Download or read book Severe ME Notes for Carers written by Greg Crowhurst and published by Lulu.com. This book was released on 2015-05-10 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: This illustrated guide with contributions from carers and those who are ill, from around the world, is packed full of practical tips, insights, guides and self-reflective exercises designed to raise awareness of how to care for someone with Severe/Very Severe M.E. Greg Crowhurst PgDip, Cert Counselling, Dip Life Coaching, MA, who qualified as a Registered Nurse in 1984, has spent over two decades caring for his wife who has Very Severe ME. In 2015 he was a finalist in the prestigious BJN Nurse of the Year Award, receiving a certificate in Clinical Excellence in Nursing. Greg is the author of ""Severe ME featuring Justice for Karina Hansen"" widely acclaimed as a book of ""immense value"" in describing what it is like to ""live a life as and with someone who is severely stricken with the devastating disease Myalgic Encephalomyelitis.""
Download or read book More Notes For Carers written by Greg Crowhurst and published by . This book was released on 2020-12-16 with total page 436 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book gives you an overview of how you might approach relationship, interaction and care for people diagnosed with Severe or Very Severe ME. Whether in the context of decades of suffering or newly faced with the unexpected decline of a loved one into severe illness, it is not always obvious what to do and when to do it, in the best way. My hope is to show how, in this silent, fragile and complex situation, you can not only flow and be present with each other, but learn also how to grow, to communicate, to be aware, to be skilled, to be empowered through partnership, to make all the difference in the world to the quality of care and understanding people receive.
Download or read book Caring for the M E Patient written by Jodi Bassett and published by Lulu.com. This book was released on 2011 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: Essential information on the neurological disease M.E. sourced from the world's leading M.E. experts. Suitable for M.E. patients, their friends and family, partners, carers or doctors. The book includes a foreword by international M.E. expert Dr Byron Hyde. M.E.is a distinct neurological disease and is not at all the same thing as 'CFS.' Learning the facts is not time-consuming or complicated. Supporting your ill friend or family member or patient more fully by being aware of the basic facts of M.E. could make all the difference in the world to them. This book shows you how. Jodi Bassett is the founder of the international M.E. charity, HFME. Jodi contracted M.E. in 1995 when she was just 19. HFME contributors also aim to advocate for those non-M.E. patients who have been given the always meaningless 'CFS' diagnosis, and subsequently denied correct diagnosis and treatment.
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Download or read book Patient Safety and Quality written by Ronda Hughes and published by Department of Health and Human Services. This book was released on 2008 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
Download or read book Pocket Book of Hospital Care for Children written by World Health Organization and published by World Health Organization. This book was released on 2013 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Pocket Book is for use by doctors nurses and other health workers who are responsible for the care of young children at the first level referral hospitals. This second edition is based on evidence from several WHO updated and published clinical guidelines. It is for use in both inpatient and outpatient care in small hospitals with basic laboratory facilities and essential medicines. In some settings these guidelines can be used in any facilities where sick children are admitted for inpatient care. The Pocket Book is one of a series of documents and tools that support the Integrated Managem.
Download or read book Beyond Myalgic Encephalomyelitis Chronic Fatigue Syndrome written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-16 with total page 251 pages. Available in PDF, EPUB and Kindle. Book excerpt: Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.
Download or read book Forced to Care written by Evelyn Nakano Glenn and published by Harvard University Press. This book was released on 2012-03-05 with total page 271 pages. Available in PDF, EPUB and Kindle. Book excerpt: The United States faces a growing crisis in care. The number of people needing care is growing while the ranks of traditional caregivers have shrunk. The status of care workers is a critical concern. Evelyn Nakano Glenn offers an innovative interpretation of care labor in the United States by tracing the roots of inequity along two interconnected strands: unpaid caring within the family; and slavery, indenture, and other forms of coerced labor. By bringing both into the same analytic framework, she provides a convincing explanation of the devaluation of care work and the exclusion of both unpaid and paid care workers from critical rights such as minimum wage, retirement benefits, and workers' compensation. Glenn reveals how assumptions about gender, family, home, civilization, and citizenship have shaped the development of care labor and been incorporated into law and social policies. She exposes the underlying systems of control that have resulted in womenÑespecially immigrants and women of colorÑperforming a disproportionate share of caring labor. Finally, she examines strategies for improving the situation of unpaid family caregivers and paid home healthcare workers. This important and timely book illuminates the source of contradictions between American beliefs about the value and importance of caring in a good society and the exploitation and devalued status of those who actually do the caring.
Download or read book UCOC English for Carers written by Virginia Allum and published by Lulu.com. This book was released on 2014-08 with total page 143 pages. Available in PDF, EPUB and Kindle. Book excerpt: English for Carers (UCOC version)is a book which can be used in conjunction with online materials by carers, personal care assistants, nursing assistants and nurses who care for the elderly. A variety of common situations are presented, including end-of-life care. Dialogues are introduced using short YouTube cartoon videos with related practice activities. The book has a communication focus aimed at Pre-Intermediate Level (A2) Virginia Allum is a medical English author who has published several EFL/ESP books for nurses, nursing assistants and doctors. She is a practising Registered Nurse in the UK and has taught in a Diploma of Nurses and Aged Care Certificate in Australia. She is a co-author of both 'Cambridge English for Nursing' books as well as several online courses for nurses and healthcare assistants
Download or read book Finding You Finding Me written by Phoebe Caldwell and published by Jessica Kingsley Publishers. This book was released on 2006 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Based on many years of working with such people, many of whom have withdrawn into a world of their own, Phoebe Caldwell explores the different sensory reality they experience, showing it to be infinitely more complex and varied than is widely understood.
Download or read book Lighting Up a Hidden World written by Valerie Free and published by FriesenPress. This book was released on 2016-08-29 with total page 516 pages. Available in PDF, EPUB and Kindle. Book excerpt: The onset can be fast and shocking or slow and insidious. It can happen to anyone at any age. A flu, a vaccination, or an infection can be the innocent beginnings to the potentially life-long and disabling illness called myalgic encephalomyelitis (ME), which is more commonly known as chronic fatigue syndrome (CFS) or ME/CFS in North America. In the mid 1980s, the U.S. Centers for Disease Control (CDC) was called in by concerned doctors who were witnessing an influx of patients with a mysterious illness. Eventually the CDC labeled the condition "chronic fatigue syndrome" which turned out to be very misleading. Decades later, in 2016, health agencies are finally beginning to agree with international experts that ME/CFS is a serious, chronic, multi-system illness. Through artwork, poetry, story-telling, and meticulous research, Lighting Up a Hidden World: CFS and ME takes readers into the fascinating, yet frightening, landscape of ME/CFS. Author Valerie Free shares her personal experiences and delivers illuminating first-hand perspectives from patients, caregivers, journalists, and medical professionals from within the global community in short easy-to-read segments. These stories reveal the disgrace, controversy, and tragedy of worldwide neglect by political and health care systems, leaving ME/CFS research underfunded and millions of people marginalized, sick, and socially unsupported. Lighting Up a Hidden World: CFS and ME advocates for those too ill to speak out, abounds with patient resources, and offers realistic hope for the future. People living with this illness, along with their family and friends, will find compassion and camaraderie in its pages. This book reaches beyond the ME/CFS community exposing the themes of human suffering, resilience, and the need for social change.
Download or read book Acute Medicine written by Glenn Matfin and published by John Wiley & Sons. This book was released on 2023-01-20 with total page 468 pages. Available in PDF, EPUB and Kindle. Book excerpt: Lecture Notes discusses the principles of the initial assessment, investigation, diagnosis, and management of adult patients with everyday Acute Internal Medicine (AIM) presentations and conditions. This textbook is wide in scope and covers topics ranging from initial identification of acute medical illness, through to effective discharge planning. Lecture Notes contains the latest developments on the generic professional and specialty specific capabilities needed to manage patients presenting with a wide range of medical symptoms and conditions covered in the UK AIM curriculum (2022). In Lecture Notes, readers can expect to find detailed information on: Generic skills relevant to AIM, such as clinical reasoning, safe prescribing, point of care ultrasound (POCUS), resuscitation, and managing the acute medical take AIM across the various acute care settings – home (telemedicine, virtual wards, Hospital at Home), ambulatory (same day emergency care), and in-hospital (acute medical unit, enhanced care, critical care) AIM presentations and conditions in special populations such as older people, pregnancy, people with HIV, LGBTQ+, inclusion medicine, people with learning disabilities, perioperative medicine, people with mental illness and more Common presentations in AIM Standalone chapters can be read in any sequence, making the text perfect for quick reference With its accessible coverage of a wide range of AIM content, Lecture Notes: Acute Medicine is an essential resource for medical students, physician trainees, consultants, and other members of the multidisciplinary team working in acute care, patient-facing settings.
Download or read book Educated written by Tara Westover and published by Random House. This book was released on 2018-02-20 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 NEW YORK TIMES, WALL STREET JOURNAL, AND BOSTON GLOBE BESTSELLER • One of the most acclaimed books of our time: an unforgettable memoir about a young woman who, kept out of school, leaves her survivalist family and goes on to earn a PhD from Cambridge University “Extraordinary . . . an act of courage and self-invention.”—The New York Times NAMED ONE OF THE TEN BEST BOOKS OF THE YEAR BY THE NEW YORK TIMES BOOK REVIEW • ONE OF PRESIDENT BARACK OBAMA’S FAVORITE BOOKS OF THE YEAR • BILL GATES’S HOLIDAY READING LIST • FINALIST: National Book Critics Circle’s Award In Autobiography and John Leonard Prize For Best First Book • PEN/Jean Stein Book Award • Los Angeles Times Book Prize Born to survivalists in the mountains of Idaho, Tara Westover was seventeen the first time she set foot in a classroom. Her family was so isolated from mainstream society that there was no one to ensure the children received an education, and no one to intervene when one of Tara’s older brothers became violent. When another brother got himself into college, Tara decided to try a new kind of life. Her quest for knowledge transformed her, taking her over oceans and across continents, to Harvard and to Cambridge University. Only then would she wonder if she’d traveled too far, if there was still a way home. “Beautiful and propulsive . . . Despite the singularity of [Westover’s] childhood, the questions her book poses are universal: How much of ourselves should we give to those we love? And how much must we betray them to grow up?”—Vogue NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The Washington Post • O: The Oprah Magazine • Time • NPR • Good Morning America • San Francisco Chronicle • The Guardian • The Economist • Financial Times • Newsday • New York Post • theSkimm • Refinery29 • Bloomberg • Self • Real Simple • Town & Country • Bustle • Paste • Publishers Weekly • Library Journal • LibraryReads • Book Riot • Pamela Paul, KQED • New York Public Library
Download or read book Me Before You written by Jojo Moyes and published by Penguin. This book was released on 2012-12-31 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the #1 New York Times bestselling author of The Giver of Stars and the forthcoming Someone Else's Shoes, discover the love story that captured over 20 million hearts in Me Before You, After You, and Still Me. They had nothing in common until love gave them everything to lose . . . Louisa Clark is an ordinary girl living an exceedingly ordinary life—steady boyfriend, close family—who has barely been farther afield than their tiny village. She takes a badly needed job working for ex–Master of the Universe Will Traynor, who is wheelchair bound after an accident. Will has always lived a huge life—big deals, extreme sports, worldwide travel—and now he’s pretty sure he cannot live the way he is. Will is acerbic, moody, bossy—but Lou refuses to treat him with kid gloves, and soon his happiness means more to her than she expected. When she learns that Will has shocking plans of his own, she sets out to show him that life is still worth living. A Love Story for this generation and perfect for fans of John Green’s The Fault in Our Stars, Me Before You brings to life two people who couldn’t have less in common—a heartbreakingly romantic novel that asks, What do you do when making the person you love happy also means breaking your own heart?
Download or read book How to Be Sick written by Toni Bernhard and published by Simon and Schuster. This book was released on 2010-09-14 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is--or who might one day be--sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness. The author--who became ill while a university law professor in the prime of her career--tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice--and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. And whether we ourselves are sick now or not, we can learn these vital arts of living well from "How to Be Sick."
Download or read book Missed Diagnoses Myalgic Encephalomyelitis Chronic Fatigue Syndrome Second Edition written by Byron Hyde MD and published by Lulu.com. This book was released on 2010 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: A few notes on this NEW revised and expanded edition which includes Dr. Hyde's chapter from the new Puri & Treasaden textbook:"Thirty years ago when a patient presented to a hospital clinic with unexplained fatigue, any medical school physician would have told the students to search for an occult malignancy, cardiac or other organ disease or chronic infection. The concept that there is an entity called chronic fatigue syndrome has totally altered that essential medical guideline. Patients are now being diagnosed with CFS as though it were a disease. It is not. It is a patchwork of symptoms that could mean anything. The original concepts of searching for occult disease are relevant to patients today with CFS, ME and other fatiguing illnesses. Furthermore, because you do not find pathology does not mean there is none."- Byron Hyde
Download or read book Strengthening Forensic Science in the United States written by National Research Council and published by National Academies Press. This book was released on 2009-07-29 with total page 348 pages. Available in PDF, EPUB and Kindle. Book excerpt: Scores of talented and dedicated people serve the forensic science community, performing vitally important work. However, they are often constrained by lack of adequate resources, sound policies, and national support. It is clear that change and advancements, both systematic and scientific, are needed in a number of forensic science disciplines to ensure the reliability of work, establish enforceable standards, and promote best practices with consistent application. Strengthening Forensic Science in the United States: A Path Forward provides a detailed plan for addressing these needs and suggests the creation of a new government entity, the National Institute of Forensic Science, to establish and enforce standards within the forensic science community. The benefits of improving and regulating the forensic science disciplines are clear: assisting law enforcement officials, enhancing homeland security, and reducing the risk of wrongful conviction and exoneration. Strengthening Forensic Science in the United States gives a full account of what is needed to advance the forensic science disciplines, including upgrading of systems and organizational structures, better training, widespread adoption of uniform and enforceable best practices, and mandatory certification and accreditation programs. While this book provides an essential call-to-action for congress and policy makers, it also serves as a vital tool for law enforcement agencies, criminal prosecutors and attorneys, and forensic science educators.
