Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Download or read book Metadata written by Marcia Lei Zeng and published by ALA Neal-Schuman. This book was released on 2008-06-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this new, authoritative textbook, internationally recognized metadata experts Zeng and Qin have created a comprehensive primer for advanced undergraduate, graduate, or continuing education courses in information organization, information technology, cataloging, digital libraries, electronic archives, and, of course, metadata.

Download or read book Metadata for Digital Collections written by Steven Jack Miller and published by American Library Association. This book was released on 2022-07-06 with total page 536 pages. Available in PDF, EPUB and Kindle. Book excerpt: Since it was first published, LIS students and professionals everywhere have relied on Miller’s authoritative manual for clear instruction on the real-world practice of metadata design and creation. Now the author has given his text a top to bottom overhaul to bring it fully up to date, making it even easier for readers to acquire the knowledge and skills they need, whether they use the book on the job or in a classroom. By following this book’s guidance, with its inclusion of numerous practical examples that clarify common application issues and challenges, readers will learn about the concept of metadata and its functions for digital collections, why it’s essential to approach metadata specifically as data for machine processing, and how metadata can work in the rapidly developing Linked Data environment; know how to create high-quality resource descriptions using widely shared metadata standards, vocabularies, and elements commonly needed for digital collections; become thoroughly familiarized with Dublin Core (DC) through exploration of DCMI Metadata Terms, CONTENTdm best practices, and DC as Linked Data; discover what Linked Data is, how it is expressed in the Resource Description Framework (RDF), and how it works in relation to specific semantic models (typically called “ontologies”) such as BIBFRAME, comprised of properties and classes with “domain” and “range” specifications; get to know the MODS and VRA Core metadata schemes, along with recent developments related to their use in a Linked Data setting; understand the nuts and bolts of designing and documenting a metadata scheme; and gain knowledge of vital metadata interoperability and quality issues, including how to identify and clean inconsistent, missing, and messy metadata using innovative tools such as OpenRefine.

Download or read book Metadata for Information Management and Retrieval written by David Haynes and published by Facet Publishing. This book was released on 2004 with total page 201 pages. Available in PDF, EPUB and Kindle. Book excerpt: What is metadata and what do I need to know about it? These are two key questions for the information professional operating in the digital age as more and more information resources are available in electronic format. This is a thought-provoking introduction to metadata written by one of its leading advocates. It assesses the current theory and practice of metadata and examines key developments - including global initiatives and multilingual issues - in terms of both policy and technology. Subjects discussed include: What is metadata? definitions and concepts Retrieval environments: web; library catalogues; documents and records management; GIS; e-Learning Using metadata to enhance retrieval: pointing to content; subject retrieval; language control and indexing Information management issues: interoperability; information security; authority control; authentication and legal admissibility of evidence; records management and document lifecyc≤ preservation issues Application of metadata to information management: document and records management; content management systems for the internet Managing metadata: how to develop a schema Standards development: Dublin Core; UK Government metadata standards (eGIF); IFLA FRBR Model for cataloguing resources Looking forward: the semantic web; the Web Ontology Working Group. Readership: This book will be essential reading for network-oriented librarians and information workers in all sectors and for LIS students. In addition, it will provide useful background reading for computer staff supporting information services. Publishers, policy makers and practitioners in other curatorial traditions such as museums work or archiving will also find much of relevance.

Download or read book The Complete Guide to Open Scholarship written by Victoria Martin and published by Bloomsbury Publishing USA. This book was released on 2022-05-24 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: Choice Outstanding Academic Title 2023 Offers librarians an authoritative overview of the full spectrum of significant issues and controversies related to open scholarship in a candid and fair-minded manner. There has long been a debate about openness in scholarship, and even the term itself continues to be debated. Openness is a complex and multidimensional concept, and its nature in scholarship continually evolves. One of the hindrances to the transition to greater openness in academia is this lack of clear understanding about how it fits into the practice of scholarly communication. To ensure that librarians as knowledge managers can better educate scholars about the benefits and challenges of open scholarship, Victoria Martin's The Complete Guide to Open Scholarship brings clarity to the concept of openness, tests assumptions concerning it, and strikes the right balance between breaking down complex ideas into simpler ones and honoring the reader's intelligence and previous knowledge of the subject. Readers will learn the history of openness in scholarship as well as several ways in which openness can be perceived. Drawing on specific examples, Martin discusses the most prominent scholarly models based on openness, barriers to openness, concerns about openness in scholarship, and the future of open scholarship.

Download or read book Data Management for Researchers written by Kristin Briney and published by Pelagic Publishing Ltd. This book was released on 2015-09-01 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: A comprehensive guide to everything scientists need to know about data management, this book is essential for researchers who need to learn how to organize, document and take care of their own data. Researchers in all disciplines are faced with the challenge of managing the growing amounts of digital data that are the foundation of their research. Kristin Briney offers practical advice and clearly explains policies and principles, in an accessible and in-depth text that will allow researchers to understand and achieve the goal of better research data management. Data Management for Researchers includes sections on: * The data problem – an introduction to the growing importance and challenges of using digital data in research. Covers both the inherent problems with managing digital information, as well as how the research landscape is changing to give more value to research datasets and code. * The data lifecycle – a framework for data’s place within the research process and how data’s role is changing. Greater emphasis on data sharing and data reuse will not only change the way we conduct research but also how we manage research data. * Planning for data management – covers the many aspects of data management and how to put them together in a data management plan. This section also includes sample data management plans. * Documenting your data – an often overlooked part of the data management process, but one that is critical to good management; data without documentation are frequently unusable. * Organizing your data – explains how to keep your data in order using organizational systems and file naming conventions. This section also covers using a database to organize and analyze content. * Improving data analysis – covers managing information through the analysis process. This section starts by comparing the management of raw and analyzed data and then describes ways to make analysis easier, such as spreadsheet best practices. It also examines practices for research code, including version control systems. * Managing secure and private data – many researchers are dealing with data that require extra security. This section outlines what data falls into this category and some of the policies that apply, before addressing the best practices for keeping data secure. * Short-term storage – deals with the practical matters of storage and backup and covers the many options available. This section also goes through the best practices to insure that data are not lost. * Preserving and archiving your data – digital data can have a long life if properly cared for. This section covers managing data in the long term including choosing good file formats and media, as well as determining who will manage the data after the end of the project. * Sharing/publishing your data – addresses how to make data sharing across research groups easier, as well as how and why to publicly share data. This section covers intellectual property and licenses for datasets, before ending with the altmetrics that measure the impact of publicly shared data. * Reusing data – as more data are shared, it becomes possible to use outside data in your research. This chapter discusses strategies for finding datasets and lays out how to cite data once you have found it. This book is designed for active scientific researchers but it is useful for anyone who wants to get more from their data: academics, educators, professionals or anyone who teaches data management, sharing and preservation. "An excellent practical treatise on the art and practice of data management, this book is essential to any researcher, regardless of subject or discipline." —Robert Buntrock, Chemical Information Bulletin

Download or read book Africa regional overview of food security and nutrition 2020 written by Food and Agriculture Organization of the United Nations and published by Food & Agriculture Org.. This book was released on 2021-06-29 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: Africa is not on track to meeting the Sustainable Development Goal (SDG) 2 targets to end hunger and ensure access by all people to safe, nutritious and sufficient food all year round and to end all forms of malnutrition. The number of hungry people on the continent has risen by 47.9 million since 2014 and now stands at 250.3 million, or nearly one-fifth of the population. The 2017, 2018 and 2019 editions of this report explain that this gradual deterioration of food security was due to conflict, weather extremes, and economic slowdowns and downturns, often overlapping. A continued worsening of food security is expected also for 2020 as a result of the COVID-19 pandemic. In addition to hunger, across all countries in Africa millions of people suffer from widespread micronutrient deficiencies, and overweight and obesity are emerging as significant health concerns in many countries. This report shows that the food system in Africa does not provide food at a cost that makes nutritious food affordable to a majority of the population, and this is reflected in the high disease burden associated with maternal and child malnutrition, high body-mass, micronutrient deficiencies and dietary risk factors. The report also shows that current food consumption patterns impose high health and environmental costs, which are not reflected in food prices. The findings presented in this report highlight the importance of prioritizing the transformation of food systems to ensure access to affordable and healthy diets for all, produced in a sustainable manner.

Download or read book Metadata written by Jian Qin and published by American Library Association. This book was released on 2020-06-22 with total page 640 pages. Available in PDF, EPUB and Kindle. Book excerpt: This benchmark text is back in a new edition thoroughly updated to incorporate developments and changes in metadata and related domains. Zeng and Qin provide a solid grounding in the variety and interrelationships among different metadata types, offering a comprehensive look at the metadata schemas that exist in the world of library and information science and beyond. Readers will gain knowledge and an understanding of key topics such as the fundamentals of metadata, including principles of metadata, structures of metadata vocabularies, and metadata descriptions; metadata building blocks, from modeling to defining properties, from designing application profiles to implementing value vocabularies, and from specification generating to schema encoding, illustrated with new examples; best practices for metadata as linked data, the new functionality brought by implementing the linked data principles, and the importance of knowledge organization systems; resource metadata services, quality measurement, and interoperability approaches; research data management concepts like the FAIR principles, metadata publishing on the web and the recommendations by the W3C in 2017, related Open Science metadata standards such as Data Catalog Vocabulary (DCAT) version 2, and metadata-enabled reproducibility and replicability of research data; standards used in libraries, archives, museums, and other information institutions, plus existing metadata standards’ new versions, such as the EAD 3, LIDO 1.1, MODS 3.7, DC Terms 2020 release coordinating its ISO 15396-2:2019, and Schema.org’s update in responding to the pandemic; and newer, trending forces that are impacting the metadata domain, including entity management, semantic enrichment for the existing metadata, mashup culture such as enhanced Wikimedia contents, knowledge graphs and related processes, semantic annotations and analysis for unstructured data, and supporting digital humanities (DH) through smart data. A supplementary website provides additional resources, including examples, exercises, main takeaways, and editable files for educators and trainers.

Download or read book Advances in Ecoacoustics written by Almo Farina and published by Frontiers Media SA. This book was released on 2022-09-02 with total page 150 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Kafka The Definitive Guide written by Neha Narkhede and published by "O'Reilly Media, Inc.". This book was released on 2017-08-31 with total page 315 pages. Available in PDF, EPUB and Kindle. Book excerpt: Every enterprise application creates data, whether it’s log messages, metrics, user activity, outgoing messages, or something else. And how to move all of this data becomes nearly as important as the data itself. If you’re an application architect, developer, or production engineer new to Apache Kafka, this practical guide shows you how to use this open source streaming platform to handle real-time data feeds. Engineers from Confluent and LinkedIn who are responsible for developing Kafka explain how to deploy production Kafka clusters, write reliable event-driven microservices, and build scalable stream-processing applications with this platform. Through detailed examples, you’ll learn Kafka’s design principles, reliability guarantees, key APIs, and architecture details, including the replication protocol, the controller, and the storage layer. Understand publish-subscribe messaging and how it fits in the big data ecosystem. Explore Kafka producers and consumers for writing and reading messages Understand Kafka patterns and use-case requirements to ensure reliable data delivery Get best practices for building data pipelines and applications with Kafka Manage Kafka in production, and learn to perform monitoring, tuning, and maintenance tasks Learn the most critical metrics among Kafka’s operational measurements Explore how Kafka’s stream delivery capabilities make it a perfect source for stream processing systems

Download or read book Global patient safety report 2024 written by World Health Organization and published by World Health Organization. This book was released on 2024-05-30 with total page 388 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first-ever WHO Report on Patient Safety, the "Global Patient Safety Report 2024", offers a comprehensive overview of patient safety implementation worldwide. Aligned with the Global Patient Safety Action Plan 2021–2030, this report explores policies, strategies, and initiatives shaping safety in health care. From analyses of country actions to in-depth summaries of burden of unsafe care, it provides crucial insights for policy-makers, health care leaders, researchers, and patient safety advocates. Explore how nations address challenges, learn from case studies and feature stories, and gain deeper understanding in priority areas for action. This report serves as a vital resource for fostering global collaboration and advancing patient safety in health care. The contents of this report encompass: - An analysis that compiles and describes actions taken by countries, including the summary of these actions across different WHO regions and income levels based on Member State survey. - An in-depth summary presenting evidence on the overall burden of unsafe health care practices, viewed broadly as well as within specific population groups, clinical domains, and according to major sources of harm. - Case studies showcasing how different countries are learning and developing patient safety solutions within their unique contexts, along with feature stories highlighting key global initiatives and interventions in patient safety. - Comparative analyses offering deeper insights into crucial areas such as patient safety policies, legal frameworks, patient involvement, educational initiatives, reporting and learning systems, and the involvement of various stakeholders.

Download or read book Data Stewardship written by David Plotkin and published by Newnes. This book was released on 2013-09-16 with total page 251 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data stewards in business and IT are the backbone of a successful data governance implementation because they do the work to make a company's data trusted, dependable, and high quality. Data Stewardship explains everything you need to know to successfully implement the stewardship portion of data governance, including how to organize, train, and work with data stewards, get high-quality business definitions and other metadata, and perform the day-to-day tasks using a minimum of the steward's time and effort. David Plotkin has loaded this book with practical advice on stewardship so you can get right to work, have early successes, and measure and communicate those successes, gaining more support for this critical effort. - Provides clear and concise practical advice on implementing and running data stewardship, including guidelines on how to organize based on company structure, business functions, and data ownership - Shows how to gain support for your stewardship effort, maintain that support over the long-term, and measure the success of the data stewardship effort and report back to management - Includes detailed lists of responsibilities for each type of data steward and strategies to help the Data Governance Program Office work effectively with the data stewards

Download or read book The Joy of Search written by Daniel M. Russell and published by MIT Press. This book was released on 2023-06-06 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: How to be a great online searcher, demonstrated with step-by-step searches for answers to a series of intriguing questions (for example, “Is that plant poisonous?”). We all know how to look up something online by typing words into a search engine. We do this so often that we have made the most famous search engine a verb: we Google it—“Japan population” or “Nobel Peace Prize” or “poison ivy” or whatever we want to know. But knowing how to Google something doesn't make us search experts; there's much more we can do to access the massive collective knowledge available online. In The Joy of Search, Daniel Russell shows us how to be great online researchers. We don't have to be computer geeks or a scholar searching out obscure facts; we just need to know some basic methods. Russell demonstrates these methods with step-by-step searches for answers to a series of intriguing questions—from “what is the wrong side of a towel?” to “what is the most likely way you will die?” Along the way, readers will discover essential tools for effective online searches—and learn some fascinating facts and interesting stories. Russell explains how to frame search queries so they will yield information and describes the best ways to use such resources as Google Earth, Google Scholar, Wikipedia, and Wikimedia. He shows when to put search terms in double quotes, how to use the operator (*), why metadata is important, and how to triangulate information from multiple sources. By the end of this engaging journey of discovering, readers will have the definitive answer to why the best online searches involve more than typing a few words into Google.

Download or read book Data Management at Scale written by Piethein Strengholt and published by "O'Reilly Media, Inc.". This book was released on 2020-07-29 with total page 404 pages. Available in PDF, EPUB and Kindle. Book excerpt: As data management and integration continue to evolve rapidly, storing all your data in one place, such as a data warehouse, is no longer scalable. In the very near future, data will need to be distributed and available for several technological solutions. With this practical book, you’ll learnhow to migrate your enterprise from a complex and tightly coupled data landscape to a more flexible architecture ready for the modern world of data consumption. Executives, data architects, analytics teams, and compliance and governance staff will learn how to build a modern scalable data landscape using the Scaled Architecture, which you can introduce incrementally without a large upfront investment. Author Piethein Strengholt provides blueprints, principles, observations, best practices, and patterns to get you up to speed. Examine data management trends, including technological developments, regulatory requirements, and privacy concerns Go deep into the Scaled Architecture and learn how the pieces fit together Explore data governance and data security, master data management, self-service data marketplaces, and the importance of metadata

Download or read book Programming Persistent Memory written by Steve Scargall and published by Apress. This book was released on 2020-01-09 with total page 387 pages. Available in PDF, EPUB and Kindle. Book excerpt: Beginning and experienced programmers will use this comprehensive guide to persistent memory programming. You will understand how persistent memory brings together several new software/hardware requirements, and offers great promise for better performance and faster application startup times—a huge leap forward in byte-addressable capacity compared with current DRAM offerings. This revolutionary new technology gives applications significant performance and capacity improvements over existing technologies. It requires a new way of thinking and developing, which makes this highly disruptive to the IT/computing industry. The full spectrum of industry sectors that will benefit from this technology include, but are not limited to, in-memory and traditional databases, AI, analytics, HPC, virtualization, and big data. Programming Persistent Memory describes the technology and why it is exciting the industry. It covers the operating system and hardware requirements as well as how to create development environments using emulated or real persistent memory hardware. The book explains fundamental concepts; provides an introduction to persistent memory programming APIs for C, C++, JavaScript, and other languages; discusses RMDA with persistent memory; reviews security features; and presents many examples. Source code and examples that you can run on your own systems are included. What You’ll Learn Understand what persistent memory is, what it does, and the value it brings to the industry Become familiar with the operating system and hardware requirements to use persistent memory Know the fundamentals of persistent memory programming: why it is different from current programming methods, and what developers need to keep in mind when programming for persistence Look at persistent memory application development by example using the Persistent Memory Development Kit (PMDK)Design and optimize data structures for persistent memoryStudy how real-world applications are modified to leverage persistent memoryUtilize the tools available for persistent memory programming, application performance profiling, and debugging Who This Book Is For C, C++, Java, and Python developers, but will also be useful to software, cloud, and hardware architects across a broad spectrum of sectors, including cloud service providers, independent software vendors, high performance compute, artificial intelligence, data analytics, big data, etc.

Download or read book Controlling Privacy and the Use of Data Assets Volume 2 written by Ulf Mattsson and published by CRC Press. This book was released on 2023-08-24 with total page 319 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book will review how new and old privacy-preserving techniques can provide practical protection for data in transit, use, and rest. We will position techniques like Data Integrity and Ledger and will provide practical lessons in Data Integrity, Trust, and data’s business utility. Based on a good understanding of new and old technologies, emerging trends, and a broad experience from many projects in this domain, this book will provide a unique context about the WHY (requirements and drivers), WHAT (what to do), and HOW (how to implement), as well as reviewing the current state and major forces representing challenges or driving change, what you should be trying to achieve and how you can do it, including discussions of different options. We will also discuss WHERE (in systems) and WHEN (roadmap). Unlike other general or academic texts, this book is being written to offer practical general advice, outline actionable strategies, and include templates for immediate use. It contains diagrams needed to describe the topics and Use Cases and presents current real-world issues and technological mitigation strategies. The inclusion of the risks to both owners and custodians provides a strong case for why people should care. This book reflects the perspective of a Chief Technology Officer (CTO) and Chief Security Strategist (CSS). The Author has worked in and with startups and some of the largest organizations in the world, and this book is intended for board members, senior decision-makers, and global government policy officials—CISOs, CSOs, CPOs, CTOs, auditors, consultants, investors, and other people interested in data privacy and security. The Author also embeds a business perspective, answering the question of why this an important topic for the board, audit committee, and senior management regarding achieving business objectives, strategies, and goals and applying the risk appetite and tolerance. The focus is on Technical Visionary Leaders, including CTO, Chief Data Officer, Chief Privacy Officer, EVP/SVP/VP of Technology, Analytics, Data Architect, Chief Information Officer, EVP/SVP/VP of I.T., Chief Information Security Officer (CISO), Chief Risk Officer, Chief Compliance Officer, Chief Security Officer (CSO), EVP/SVP/VP of Security, Risk Compliance, and Governance. It can also be interesting reading for privacy regulators, especially those in developed nations with specialist privacy oversight agencies (government departments) across their jurisdictions (e.g., federal and state levels).

Download or read book Official Google Cloud Certified Professional Data Engineer Study Guide written by Dan Sullivan and published by John Wiley & Sons. This book was released on 2020-06-10 with total page 357 pages. Available in PDF, EPUB and Kindle. Book excerpt: The proven Study Guide that prepares you for this new Google Cloud exam The Google Cloud Certified Professional Data Engineer Study Guide, provides everything you need to prepare for this important exam and master the skills necessary to land that coveted Google Cloud Professional Data Engineer certification. Beginning with a pre-book assessment quiz to evaluate what you know before you begin, each chapter features exam objectives and review questions, plus the online learning environment includes additional complete practice tests. Written by Dan Sullivan, a popular and experienced online course author for machine learning, big data, and Cloud topics, Google Cloud Certified Professional Data Engineer Study Guide is your ace in the hole for deploying and managing analytics and machine learning applications. Build and operationalize storage systems, pipelines, and compute infrastructure Understand machine learning models and learn how to select pre-built models Monitor and troubleshoot machine learning models Design analytics and machine learning applications that are secure, scalable, and highly available. This exam guide is designed to help you develop an in depth understanding of data engineering and machine learning on Google Cloud Platform.