Download or read book Law Palliative Care and Dying written by John Lombard and published by Routledge. This book was released on 2018-05-16 with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt: Law, Palliative Care and Dying critically examines the role of the legal framework in shaping the boundaries of palliative care practice. The work underlines the importance of a distinct legal framework for specialist palliative care which can provide clarity for both the healthcare professional and the patient. It examines the legal and ethical justifications for specialist palliative care practices and, in doing so, it questions the legitimacy of the distinction between euthanasia and practices such as palliative sedation. Moreover, this work discusses the influence of a human rights discourse on palliative care and examines the contribution of autonomy, dignity, and the right to palliative care. This book includes detailed comparative research on several European jurisdictions. The jurisdictions illustrate varied approaches to palliative care regulation and promotion. In this manner, the role of professional guidelines and legislation are drawn out and common themes in the regulation of palliative care emerge.
Download or read book Helping People at the End of Their Lives written by Reimer Gronemeyer and published by LIT Verlag Münster. This book was released on 2005 with total page 319 pages. Available in PDF, EPUB and Kindle. Book excerpt: A comprehensive analysis of today's situation of palliative care in Europe is provided, including previously unidentified statistics and standardised profiles of 16 European countries. The analysis contains demographics, the history of hospice and palliative care, the number of current services, funding, education and training of professional staff and the role of volunteers, with an in-depth case portrayal of particular services.
Download or read book Palliative Care for Chronic Cancer Patients in the Community written by Michael Silbermann and published by Springer Nature. This book was released on 2020-10-29 with total page 566 pages. Available in PDF, EPUB and Kindle. Book excerpt: The new global cancer data suggests that the global burden has risen to 18.1 million new cases per year and 9.6 million cancer deaths per year. A number of factors appear to be driving this increase, in particular, a growing and aging global population and an increase of exposure to cancer risk factors linked to social and economic development. For rapidly-growing economies, the data suggests a shift from poverty- or infection-related cancers to those associated with lifestyles more typical in industrialized countries. There is still large geographical diversity in cancer occurrence and variations in the magnitude and profile of the disease between and within world regions. There are specific types of cancer that dominate globally: lung, female breast and colorectal cancer, and the regional variations in common cancer types signal the extent to which societal, economic and lifestyle changes interplay to deferentially impact on the profile of this most complex group of diseases. Unfortunately, despite advances in cancer care, a significant proportion of patients at home, experience sub-optimal outcomes. Barriers to successful treatment outcomes include, but are not limited to: access to oncologists in the primary health centers, non-adherence, lack of experienced oncology and palliative care nurses in the community, inadequate monitoring and the lack of training of family and pediatric physicians. Telemedicine approaches, including telephone triage/education, telemonitoring, teleconsultation and status tracking through mobile applications, have shown promise in further improving outcomes, in particular for chronic cancer patients following their hospitalization. Lessons can be learned from existing hospices in North America, the United Kingdom, Australia, Centers of Excellence in African (Uganda) and modern community services in India (Kerala). An important goal of this book is to describe and encourage professionals to develop new community programs in palliative care, which include training and empowering physicians and nurses in the community on the principles of palliative care. The Middle East Cancer Consortium (MECC) together with the American Society of Clinical Oncology (ASCO) and the American Oncology Nursing Society (ONS) have conducted multiple courses ranging from basic palliative care to more specialized training in palliative care for multiple nationalities in Europe, Asia and Africa. Our experience clearly indicates that, to promote such activities, one needs strong leadership and confirmed political will to support the endeavor. The new book will emphasize the importance of having a core of multiple stakeholders including community leaders, government, NGOs and media to be actively involved in advocating for the cause and generating public awareness. This text will provide the reader with a comprehensive understanding of the outside-of-the-hospital treatment of cancer patients by medical, paramedical and volunteer personnel. In doing so, this text will encourage the creation of new palliative care services improving upon the existing ones and stimulate further research in this field. Part 1 of the text will begin with an overview of the current state of affairs of services provided to cancer patients while being cared for by primary health centers. It will also review the current literature regarding medical and psychological-based therapy options in the community for cancer patients at different stages of their disease. Part 2 will address the unique role of the community nurse, within the framework of the multidisciplinary team treating the patient, in the attempt to provide optimal evaluation and care in very challenging situations (such as with terminal patients). Part 3 will provide insightful models of this new discipline and serve as a valuable resource for physicians, nurses, social workers and others involved in the care of cancer patients. The book will take a multidisciplinary approach, integrating clinical and environmental data for practical management to enhance the efficacy of treatment while relieving suffering. Part 4 will also discuss the application of modern technological approaches to track symptoms, quality of life, diet, mobility, duration of sleep and medication use (including pain killers) in chronic cancer patients in the community. Part 5 of the book will also be devoted to modes of developing a collaborative program between governmental and non-governmental organization sectors. This includes volunteer workers in close collaboration with medical professionals for providing emotional and spiritual support, nursing care, nutritional support and empowering family caregivers. Such a model makes palliative care in the community a “people’s movement”, thus transferring part of the responsibility and ownership to the community.
Download or read book Livre de l interne en m decine interne 2e dition written by GUILLEVIN Loic and published by Lavoisier. This book was released on 2014-01-10 with total page 1112 pages. Available in PDF, EPUB and Kindle. Book excerpt: Guide indispensable de tout interne, cette nouvelle édition, actualisée et enrichie, constitue une source exceptionnelle d’informations complètes et précises sur la pratique de la médecine interne : - les conduites à tenir : couvrant toutes les situations cliniques auxquelles un interne doit faire face : fièvre, adénopathie, neuropathie périphérique, lymphopénie, AVC en phase aiguë, etc. ; - les pathologies observées en médecine interne : maladies auto-immunes, vascularites, autres maladies systémiques telles que l’amylose, les déficits immunitaires primitifs de l’adultes, les maladies auto-inflammatoires, etc. ; - la pathologie médicale systémique à laquelle un interne peut être confronté : maladies infectieuses, cardiaques, hématologiques, neurologiques, métaboliques, cancers ainsi que problèmes psychiatriques ; - les thérapeutiques en médecine interne : corticothérapie, anticorps monoclonaux, immunosuppresseurs, antagonistes des cytokines, etc. ; - les scores, paramètres, critères diagnostiques et de classification. Réunissant plus d’une centaine de spécialistes reconnus pour leur expérience et leur expertise, enrichie de tableaux, de schémas, d’algorithmes et d’un index détaillé, cette deuxième édition expose clairement les symptômes, les syndromes, les stratégies diagnostiques et thérapeutiques des affections prises en charge en médecine interne.
Download or read book Bioethics Yearbook written by B.A. Lustig and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 426 pages. Available in PDF, EPUB and Kindle. Book excerpt: nology in New Zealand. Angeles Tan Alora reports on the Code of Pharmaceutical Marketmg Practices developed by the Pharmaceutical and Health Care Association of the Philippines. Ruud ter Meulen and his colleagues provide detailed analysis of the Remmelink Commission's report on euthanasia in the Netherlands. Kazumasa Hoshino discusses the fmdings of the Special Committee on Gene Therapy in Japan. As such examples suggest, the activities of many governmental groups and professional advisory bodies, although varied, tend to converge upon a number of especially important issues. If one peruses the index of documents discussed in Volume Four, certain topics are more often the focus of legislation and official concern than others: withholding and withdrawing treatment, access to health care, consent to treatment and experimentation, and issues posed by HIV testing and AIDS. Such a common focus should not be exaggerated, for the discussion of topics is wide-ranging. But that commonality, when in evidence, is also not surprising. It suggests that key issues and concerns in bioethics may be widely shared among modern cultures and societies, for all the distinctiveness of a particular nation's or region's response to them. Issues of informed consent, after all, implicate more fundamental matters of respect for persons and the rights of individuals in the contexts of therapy and research. Issues of access to medical care concretize deeper questions about the nature and scope of a society's welfare obligations to its citizens.
Download or read book Les solidarit s entre g n rations written by and published by Primento. This book was released on 2013-03-06 with total page 740 pages. Available in PDF, EPUB and Kindle. Book excerpt: L’ampleur des enjeux humains, économiques et sociaux posés par la question des solidarités entre générations a conduit l’International society of Family Law (ISFL) à choisir ce thème pour son XVe congrès mondial. Plus de 200 intervenants, venus de 50 pays, ont abordé ces questions sous l’angle juridique, mais aussi philosophique, économique et anthropologique. Cet ouvrage présente une partie de ces communications organisées autour de deux grands thèmes : l’enfant au cœur des solidarités familiales et la prise en charge des aînés par la famille. Des phénomènes tels que l’allongement de la durée de la vie, l’urbanisation des populations, la difficulté d’entrée sur le marché du travail ou encore l’éclatement des modèles familiaux traditionnels marquent notre monde contemporain et impliquent la disparition d’anciennes solidarités et l’apparition de nouvelles solidarités redessinant les relations entre générations, posant alors le problème du sort des personnes les plus fragiles : les enfants, les malades, les handicapés et, surtout, les personnes âgées. – Quel est alors le rôle de la famille et des collectivités dans la protection de ces personnes ? – Quels rapports entre solidarités publiques et solidarités privées ? – Quels sont les droits et libertés reconnus aux personnes que l’âge, la maladie ou le handicap, placent en situation de dépendances ? Telles sont les questions au cœur de cet ouvrage. The importance of the human, economic and social issues caused by the question of generations’ solidarities led the International Society of Family Law to choose this theme for its XVIth World Congress (Lyon, July 19-23rd 2011). More than 200 speakers from 50 countries studied these questions from the legal angle, but also philosophic, economic and anthropological. This work collects a part of these papers about two great issues: the child, as the center of family solidarities; and the support for elders by family. Phenomena such as increasing life expectancy, population urbanization, labor-market entry barriers, decline of traditional family patterns, mark in depth our contemporary world and involve old solidarity disappearance and new solidarity emergence, reshaping relations between generations while bringing up the problem of the fate of the most vulnerable: children, the sick, disabled, and especially elderly people. – What then is the role of families and communities in protecting these people? – What is the relationship between public and private solidarity? – What are the rights and freedoms of people placed by age, illness or disability in a dependence situation? These are the issues addressed by the authors of this book.
Download or read book The Schubert Treatment written by Claire Oppert and published by Greystone Books Ltd. This book was released on 2024-10-08 with total page 187 pages. Available in PDF, EPUB and Kindle. Book excerpt: For readers of Oliver Sacks and Being Mortal by Atul Gawande comes “a luminous ode to the ‘mysterious ways music... moves’ patients with such conditions as dementia and autism… Assured and lyrical, this impresses."—Publishers Weekly, STARRED Review A celebrated art therapist plays the cello for her patients—and offers a moving reflection on the extraordinary power of music to enrich our lives, all the way to the very end. When Claire Oppert plays the cello, miracles happen. Children with profound autism, patients in extreme pain and distress, even people on the threshold of death smile, cry, laugh, sing and dance. “When you play, I’m not sick anymore,” one man tells her. “I feel happy, I feel alive.” In The Schubert Treatment, Oppert recounts her remarkable story of healing suffering through music, alongside portraits of the many people she has helped. Born into a family of doctors and artists, Oppert trained as a classical cellist and began playing at a center for autistic youth, where she witnessed how music could connect with even the most difficult-to-reach patients. Later, she began working as an art therapist with people with neurodegenerative diseases and palliative care patients, eventually conducting clinical trials that proved the effect of her “Schubert treatment”: using music as a counter-stimulation to reduce pain and anxiety during stressful procedures. Oppert’s crystalline, lyrical vignettes of the patients whose lives she has touched are punctuated with anecdotes from her own life as a musician, as well as reflections on the meaning of art and the human need for connection and creativity. Compassionate, uplifting, and deeply humane, The Schubert Treatment is a testament to the incredible power of music to heal our bodies, minds, and souls.
Download or read book Continuous Sedation at the End of Life written by Sigrid Sterckx and published by Cambridge University Press. This book was released on 2016-12-15 with total page 427 pages. Available in PDF, EPUB and Kindle. Book excerpt: Continuous sedation until death (sometimes referred to as terminal sedation or palliative sedation) is an increasingly common practice in end-of-life care. However, it raises numerous medical, ethical, emotional and legal concerns, such as the reducing or removing of consciousness (and thus potentially causing 'subjective death'), the withholding of artificial nutrition and hydration, the proportionality of the sedation to the symptoms, its adequacy in actually relieving symptoms rather than simply giving onlookers the impression that the patient is undergoing a painless 'natural' death, and the perception that it may be functionally equivalent to euthanasia. This book brings together contributions from clinicians, ethicists, lawyers and social scientists, and discusses guidelines as well as clinical, emotional and legal aspects of the practice. The chapters shine a critical spotlight on areas of concern and on the validity of the justifications given for the practice, including in particular the doctrine of double effect.
Download or read book Hospice Care on the International Scene written by Dame Cicely M. Saunders and published by . This book was released on 1997 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume explores how hospice care has been taking root throughout much of the world and illustrates how people are finding ways to shape hospice care to the particular needs and resources of their countries and communities. The book begins with a hospice mission statement by Dame Cicely Saunders and is followed by an overview of the international hospice movement by Dr. Jan Stemsward of the World Health Organization. Included are reports from pioneering hospice programs in the Middle East, in tropical Africa, and Croatia.
Download or read book The Politics of Intimacy written by Anna Durnova and published by University of Michigan Press. This book was released on 2018-07-23 with total page 369 pages. Available in PDF, EPUB and Kindle. Book excerpt: Debates on the end-of-life controversy are complex because they seem to highjack national and cultural traditions. Where previous books have focused on ideological grounds, The Politics of Intimacy explores dying as the site where policies are negotiated and implemented. Intimacy comprises the emotional experience of the end of life and how we acknowledge it—or not—through institutions. This process shows that end-of-life controversy relies on the conflict between the individual and these institutions, a relationship that is the cornerstone of Western liberal democracies. Through interviews with mourners, stakeholders, and medical professionals, examination of media debates in France and the Czech Republic, Durnová shows that liberal institutions, in their attempts to accommodate the emotional experience at the end of life, ultimately fail. She describes this deadlock as the “politics of intimacy,” revealing that political institutions deploy power through collective acknowledgment of individual emotions but fail to maintain this recognition because of this same experience.
Download or read book Journal of Palliative Care written by and published by . This book was released on 2002 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Pricing long term care for older persons written by Organisation for Economic Co-operation and Development and published by World Health Organization. This book was released on 2021-08-26 with total page 374 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of the book is to meet the WHO GPW output of 1.2.1 - Countries enabled to develop and implement equitable health financing strategies and reforms to sustain progress towards universal health coverage. It falls under the WKC research plan for sustainable financing under population ageing. The country studies and policy briefs will be continued in 2022-23, under the technical product of “sustainable financing in the context of population ageing.” The target audience is WHO member states and their supporting academic institutions and policymakers.
Download or read book Ethical Foundations of Palliative Care for Alzheimer Disease written by Ruth B. Purtilo and published by JHU Press. This book was released on 2010-09-01 with total page 394 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer disease afflicts more than twelve million people worldwide, and its incidence is increasing at a staggering rate. People with the disorder are living longer than have those in previous generations, and they require interventions for quality-of-life issues associated with palliative care. However, the symptoms of Alzheimer disease often fail to place such persons into settings where palliative care resources are available to them. Indeed, clinicians and other caregivers may be unsure about what constitutes effective palliation in these cases. At the same time, the ethical issues involved in providing end-of-life care to persons with Alzheimer disease remain on the margins of mainstream bioethics. In Ethical Foundations of Palliative Care for Alzheimer Disease, leading ethicists and clinicians from the United States and Europe explore ethical and scientific concerns about the diagnosis and prognosis of Alzheimer disease, challenges arising from applying palliative procedures to its symptoms, key philosophical and theological concepts central to our understanding of the disease and to end-of-life decisions, and the changing patterns of relevant medical, social, and economic policies. Cross-cultural, multidisciplinary, and state-of-the-art, this volume is a unique and important resource for bioethicists, clinicians, and policy makers everywhere. Contributors: David A. Bennahum, M.D., University of New Mexico; Pierre Boitte, Ph.D., Catholic University of Lille, France; Roger A. Brumback, M.D., Creighton University Medical Center; Wim J. M. Dekkers, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Elizabeth Furlong, R.N., Ph.D., J.D., Creighton University Medical Center; Eugenijus Gefenas, M.D., Ph.D., Vilnius University, Lithuania; Bert Gordijn, Ph.D., University Medical Centre Nijmegen, The Netherlands; Amy M. Haddad, R.N., Ph.D., Creighton University Medical Center; Søren Holm, M.D., Ph.D., Dr.Med.Sci., University of Manchester; Franz J. Illhardt, D.D., Ph.D., Freiburg University; Rien Janssens, Ph.D., University Medical Centre Nijmegen, The Netherlands; Givi Javashvili, M.D., Ph.D., State Medical Academy of Georgia, Tbilisi; Judith Lee Kissell, Ph.D., Creighton University Medical Center; Gunilla Nordenram, D.D.S., Ph.D., Karolinska Institute, Stockholm; Richard L. O'Brien, M.D., Creighton University Medical Center; Marcel G. M. Olde Rikkert, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Winifred J. Ellenchild Pinch, R.N., Ed.D., Creighton University Medical Center; Patricio F. Reyes, M.D., Creighton University Medical Center; Anne-Sophie Rigaud, M.D., Ph.D., Hôpital Broca, Paris; Linda S. Scheirton, Ph.D., Creighton University Medical Center; Jos V. M. Welie, M.Med.S., J.D., Ph.D., Creighton University Medical Center.
Download or read book Management of Aging written by Jean-Pierre Michel and published by Karger Medical and Scientific Publishers. This book was released on 1999-01-01 with total page 277 pages. Available in PDF, EPUB and Kindle. Book excerpt: One of the world's major geriatric departments is housed in the Geneva University Hospital and has a 36-year-old history behind it. Some of its developments are set out in this book. Care programs such as geriatric concepts of care, community based support, convalescent beds, memory clinics, palliative medicine and care and practice of clinical ethics are discussed. Research has focussed on 15 years of comparative cross-sectional studies on aging in an urban and a rural area of Switzerland, prevalence of dementia in Geneva and Zurich, clinico-neuropathological correlation, fall prevention, hip fracture outcomes and the impact of nutrition on the recovery of hip fractures. Teaching activities include interactive pre-graduate teaching of geriatrics, patient-centered medicine, post ethics, teaching the teachers by the European Academy for Medicine of Aging. Networking by the Interfaculty Center of Gerontology, Swiss Foundation for Research on Healthy Aging and the WHO program on 'Aging and Health' are in progress. This book will be of interest to geriatricians, administrators, gerontological researchers and public health managers as it gives an insight into the setting up of a geriatric team and the implementation of geriatric programs.
Download or read book Only Love Remains written by Attilio Stajano and published by CLAIRVIEW BOOKS. This book was released on 2015-11-09 with total page 221 pages. Available in PDF, EPUB and Kindle. Book excerpt: What happens to the dying in the final days and weeks of their lives? What emotions come to the surface and what do they want to talk about? Attilio Stajano, a volunteer worker at the palliative care ward of a Brussels hospital, presents a series of deeply-moving personal encounters with seriously-ill patients. The dying, he discovers, have much to teach the living. Whilst their stories are all different, they share one thing in common: in the end, when all is said and done, only love remains... How should we respond to the challenge of death? As a society and as individuals, we can choose to be patient and sensitive, giving dignity to those reaching the end of their lives – even when those lives appear to have no further value. The period leading to death can be full of profound experiences, telling us much about the meaning of life and the abiding nature of love. If we see the terminally-ill as an inconvenience, however, we forego the possibility of finding unexpected resources in ourselves: a tenderness, a touch, a readiness to assist that we did not know we were capable of. Underlying this book is the momentous and very current debate over euthanasia. In a comprehensive appendix, the author reports on the provision of palliative care services and the laws governing euthanasia in European and English-speaking countries around the world, and the implications these have for the way we value and care for the dying.
Download or read book Health Care in Contexts of Risk Uncertainty and Hybridity written by Daniel Messelken and published by Springer Nature. This book was released on 2021-11-23 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book sheds light on various ethical challenges military and humanitarian health care personnel (HCP) face while working in adverse conditions. Contexts of armed conflict, hybrid wars or other forms of violence short of war, as well as natural disasters, all have in common that ordinary circumstances can no longer be taken for granted. Hence, the provision of health care has to adapt, for example, to a different level of risk, to scarce resources, or uncommon approaches due to external incentives or requirements. This affects the practice of health care as well as its ethics. This book offers a panoramic overview on various challenges healthcare faces in extraordinary situations and provides new insights from practitioners’ as well as from academic scholars’ perspectives.
