Download or read book Living Well with a Hidden Disability written by Stacy Taylor and published by . This book was released on 1999 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: For those who live with a hidden disability, such as chronic pain, depression, or a range of other conditions often misunderstood, downplayed, or even dismissed by others, this book offers practical suggestions for surviving rough times, coping with negative reactions, and dealing with employment issues, as well as strategies to manage pain, find a helpful therapist, rebuild self-esteem, and strengthen the body, mind, and soul.
Download or read book Living the Invisible Disability written by Hannah Andrusky and published by . This book was released on 2014-04-21 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This portrait of many months recovering has much to teach the physicians as well as lay readers. The condition she struggled with is neither rare nor trivial, but unfortunately, remains medically unaddressed." - Bruce Beutler Nobel Prize Winner & Laureate 2011. "As a close friend to Hannah and no stranger to brain injuries after playing in the NFL as a wide receiver for the Buffalo Bills for sixteen years and being ranked 10th in NFL history, I watched Hannah regress slowly. I had just lost my friend, Junior Seau, to suicide resulting from a brain injury. I couldn't sit back and let her fall too. Today, the controversy over concussions and post concussion syndrome is growing rapidly. This timely book sheds a light for all those who have suffered from it." - Andre Reed NFL Hall of Fame 2014.
Download or read book Easy to Love But Hard to Live with written by Tricia Bliven-Chasinoff and published by . This book was released on 2014-10-10 with total page 318 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book contains 35 powerful essays from adults with autism, mental illnesses, fetal alchol spectrum disorders, OCD, ADHD, and other "invisible special needs" and those who love them. These poignant, funny, heartbreaking and honest stories let mothers, fathers, brothers, sisters, lovers, husbands, wives, children and individuals with neurobehavioral disabilities themselves know that they are not alone, and that they somehow stop being important to the world when they reach adulthood. Finding that common powerful bond in a world of judgement and cruelty from those who don't understand, magically transforms the journey and makes it easier to cope. Instead of putting on appearances for others, adults with challenges and their loved ones can choose to connect with who they really are and accept their lives. "Easy To Love But Hard To Live With" is filled with poignant stories that inspire and empower. A great read for those living with a misunderstood partner, sibling, parent, child or other loved one."
Download or read book But You Look Good written by Wayne Connell and published by Invisible Disabilities Association. This book was released on 2014-09-14 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt: Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest! But You LOOK Good gets to the heart of why our friends and family have difficulty with understanding ongoing illness and pain. It serves as a tool to help explain to loved ones how extreme fatigue, pain, dizziness, cognitive impairments and other symptoms can be limiting, even though the person may not look sick or in pain. Moreover, it gives them simple, pragmatic ways to truly be an encouragement, what to say, what not to say and how to help. Often loved ones are enlightened as to why their well-meaning advice is not always well-received. It is cherished by both those living with illness or injury, as well as those who love them!
Download or read book Show Me Where it Hurts written by Kylie Maslen and published by Text Publishing. This book was released on 2020-09-01 with total page 299 pages. Available in PDF, EPUB and Kindle. Book excerpt: Personal essay meets pop-culture critique in this unflinchingly honest collection about chronic illness and misogyny in medicine, by Adelaide writer Kylie Maslen
Download or read book You Don t Look Sick written by Joy H. Selak and published by Demos Medical Publishing. This book was released on 2012-12-17 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.
Download or read book Invisible Illness written by Megan A. Arroll and published by SPCK. This book was released on 2014-09-18 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Few books on invisible illness are written by psychologists. Based on work by the Chronic Illness Research Team (CIRT) at the University of East London, this expert, accessible book encourages people actively to manage their illness using the techniques shown. • Based on 20 years of research • Helps those often 'written off' by the medical profession • Pioneering text on Mal de Debarquement Syndrome (MdDS) • Authors specialist in chronic illness
Download or read book Succeeding as a Student in the STEM Fields with an Invisible Disability written by Christy Oslund and published by Jessica Kingsley Publishers. This book was released on 2013-04-28 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: The STEM fields (Science, Technology, Engineering and Math) attract many students with autism, ADD, affective disorders and related invisible disabilities who are highly intelligent and analytical, but who, upon entering higher education, may find that they struggle with independent living and a different way of learning. This is a preparation guide for students and their families that explains everything they need to know about the university experience including classroom behavior, study skills, self-reliance, accessing support services, and when parents should and shouldn't get involved. Offering practical advice and strategies, this is a useful handbook that students can refer to again and again throughout their college years guiding them on their paths to becoming the inventors, scientists, engineers, and computer entrepreneurs of the future.
Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by New Harbinger Publications. This book was released on 2018-03-01 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.
Download or read book Disability Visibility written by Alice Wong and published by Vintage. This book was released on 2020-06-30 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
Download or read book Sick And Tired Of Feeling Sick And Tired written by Paul J Donoghue and published by W. W. Norton & Company. This book was released on 2000-10-10 with total page 310 pages. Available in PDF, EPUB and Kindle. Book excerpt: Invisible chronic illness (ICI) can manifest itself in chronic fatigue, chronic pain, and many other miseries that are often perceived and dismissed negatively, even by doctors. This book offers "an invaluable source of help and comfort" (Katharina Dalton, M.D.) to those who suffer from ICI. "Today" feature.
Download or read book Living Human written by Flic Manning and published by Simon and Schuster. This book was released on 2021-09-14 with total page 158 pages. Available in PDF, EPUB and Kindle. Book excerpt: My deepest wish is that reading this book will inspire you to take a look at your human experience and see it for the beautiful, painful blessing that it is. Whether you face illness and pain or you want to build a scalable business, you have the power to do it no matter what life throws at you by doing it your perfectly imperfect way, with your perfectly imperfect body and mind. Flic Manning has lived a life that is anything but traditional. With the odds stacked against her, facing incurable invisible diseases and mental health issues, she has walked the path less traveled to embrace the power she believes we all have inside no matter what complexities we face. In this wellness memoir, Flic takes us through her deeply personal journey, from struggling with pain and illness as a dancer to finding her voice and stepping into her most human, raw, and powerful self as an entrepreneur and wellness advocate. Her story contains nuggets of wellness and mindset wisdom wrapped up in lessons from her journey that are sometimes dark, other times deeply funny, and always inspiring. You will be uplifted, but you will also discover the sustainable wellness steps you can take to make your life a profound and healthy one
Download or read book Empowering Students with Hidden Disabilities written by Margo Izzo and published by Brookes Publishing Company. This book was released on 2016 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dare to Dream discusses critical topics for young people with hidden disabilties, such as self-advocating, developing positive relationships with mentors, planning for college, successful working life, interpersonal skills, and satisfying relationships.
Download or read book Talking Splat Communicating about Our Hidden Disabilities written by Christina Irene and published by Independently Published. This book was released on 2019-02-26 with total page 62 pages. Available in PDF, EPUB and Kindle. Book excerpt: Talking Splat: Communicating About Our Hidden Disabilities is for people with chronic illnesses, mental health diagnoses, and other invisible struggles. Our conditions are often a "moving target," meaning we never know how we're going to feel from one day to the next. The one certainty is that every day, we feel like we've been run over by something. Splat is an innovative way to communicate what that "something" is while also managing others' expectations, alleviating feelings of failure and guilt, assuring better self-care, and enabling us to establish actual routines ... at last! Written by a professional comedian and disabilities awareness trainer who lives with osteoarthritis and fibromyalgia, Talking Splat is a fast, fun, inspiring read that, if you let it, will make your life worlds better and give you your own way to make the world better for us all.
Download or read book The Traumatized Brain written by Vani Rao and published by JHU Press. This book was released on 2015-11-15 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: Useful information and real hope for patients and families whose lives have been altered by traumatic brain injury. A traumatic brain injury is a life-changing event, affecting an individual’s lifestyle, ability to work, relationships—even personality. Whatever caused it—car crash, work accident, sports injury, domestic violence, combat—a severe blow to the head results in acute and, often, lasting symptoms. People with brain injury benefit from understanding, patience, and assistance in recovering their bearings and functioning to their full abilities. In The Traumatized Brain, neuropsychiatrists Drs. Vani Rao and Sandeep Vaishnavi—experts in helping people heal after head trauma—explain how traumatic brain injury, whether mild, moderate, or severe, affects the brain. They advise readers on how emotional symptoms such as depression, anxiety, mania, and apathy can be treated; how behavioral symptoms such as psychosis, aggression, impulsivity, and sleep disturbances can be addressed; and how cognitive functions like attention, memory, executive functioning, and language can be improved. They also discuss headaches, seizures, vision problems, and other neurological symptoms of traumatic brain injury. By stressing that symptoms are real and are directly related to the trauma, Rao and Vaishnavi hope to restore dignity to people with traumatic brain injury and encourage them to ask for help. Each chapter incorporates case studies and suggestions for appropriate medications, counseling, and other treatments and ends with targeted tips for coping. The book also includes a useful glossary, a list of resources, and suggestions for further reading.
Download or read book The Invisible Kingdom written by Meghan O'Rourke and published by Penguin. This book was released on 2023-02-28 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
Download or read book Believe Me written by Yolanda Hadid and published by St. Martin's Press. This book was released on 2017-09-12 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the star of The Real Housewives of Beverly Hills comes an emotional and eye opening behind-the-scenes look at her descent into uncovering the mystery of chronic Lyme disease. In early 2011, Yolanda was struck by mysterious symptoms including brain fog, severe exhaustion, migraines and more. Over the months and years that followed, she went from being an outspoken, multi-tasking, hands-on mother of three, reality TV star, and social butterfly, to a woman who spent most of her time in bed. Yolanda was turned inside out by some of the country’s top hospitals and doctors, but due to the lack of definitive diagnostic testing, she landed in a dark maze of conflicting medical opinions, where many were quick to treat her symptoms but could never provide clear answers to their possible causes. In this moving, behind the scenes memoir, Yolanda Hadid opens up in a way she has never been able to in the media before. Suffering from late stage Lyme, a disease that is an undeniable epidemic and more debilitating than anyone realizes, Yolanda had to fight with everything she had to hold onto her life. While her struggle was lived publicly, it impacted her privately in every aspect of her existence, affecting her family, friends and professional prospects. Her perfect marriage became strained and led to divorce. It was the strong bond with her children, Gigi, Bella and Anwar, that provided her greatest motivation to fight through the darkest days of her life. Hers is an emotional narrative and all-important read for anyone unseated by an unexpected catastrophe. With candor, authenticity and an unwavering inner strength, Yolanda reveals intimate details of her journey crisscrossing the world to find answers for herself and two of her children who suffer from Lyme and shares her tireless research into eastern and western medicine. Believe Me is an inspiring lesson in the importance of having courage and hope, even in those moments when you think you can’t go on.
