Download or read book How My Daughter Is a Survivor of Sickle Cell Disease written by Adrienne F. Easter and published by . This book was released on 2010-06 with total page 72 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book My Daughters Journey written by Kristin Walker and published by Heavenly Minded Enterprises, Incorporated. This book was released on 2014-03-20 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Najja was born with Sickle Cell Anemia. At age 6 she was diagnosed with Stenosis of the Carotid Artery. When she was 11 she was struck with Moyamoya Disease, a rare neurological disease. At age 13 she underwent a bone marrow transplant that changed her life forever. This book will uplift and inspire you. It is a hopeful and encouraging story of a mother's undying love and devotion to a young daughter whose strength and courage living with multiple life threatening illnesses goes beyond her years. Kristin demonstrates amazing strength, hope and determination to fight for her daughter's life amid challenging health concerns. She and Najja, along with family prove that love truly conquers all. This book is a MUST read for any family or individual living with a life threatening illness; a perfect addition for any home library.
Download or read book I Am a Sickle Cell Survivor written by Carol Marriam Mulumba and published by Mulumba. This book was released on 2019-10-27 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: Iam a Sickle Cell Survivor, Ten Years and still Counting narrates the raw, straight-from-the-source story of an 18-year-old Sickle Cell survivor recounting her medical journey from frequent hospital visits, multiple absences from school, as well as an almost unconscious pull to be rid of what genetic shackles are holding her back. And all her memories were formed from the innocent cradle of her mind from when she was only a child. At seven years of age when she received the bone marrow and cord blood stem cell transplant. Carol's story before and now 10 years after the procedure is nothing short of an incredible make-over. The innocence but depth of this spell-binding narrative is more than just an eye-opener to the intricate challenges of sickle cell anemia. Her story renders a human face to sickle cell anemia and is the welcome handbook during an encounter with the debilitating and almost always, a fatal disease.
Download or read book Living with Sickle Cell Disease written by Judy Gray Johnson and published by . This book was released on 2012-05-01 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Judy Gray was four when the pain first struck. As mysterious as it was excruciating, Judy's anguish confounded the local doctor, who advised her mother to apply liniment. It was not until Judy was a teenager that another doctor informed her aunt of the real cause of Judy's agony - something called sickle cell anemia. The social mores of that time, however, dictated that adults discussed nothing of substance with children. So Judy learned little about her ailment other than it could cause her to die. A frightened Judy simply put sickle cell disease out of her mind and suffered in silence as she went on with her life. Readers will follow Judy's journey through college, a teaching career, a short-lived marriage, and the raising of a daughter while enduring severe pain episodes. All the while, exhaustion was her constant companion. Living with Sickle Cell Disease: The Struggle to Survive is a story of Judy Gray Johnson's perseverance in the face of living with a little-understood chronic illness.
Download or read book My Baby Has Sickle Cell Disease written by Robin Caz and published by . This book was released on 2019-10-30 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt: An Invaluable Resource For Parents Raising A Child With Sickle Cell Disease You spent the last 9 months looking forward to the day you will meet your little one, hold them in your hands, kiss them and introduce them to the rest of the family. So when they was born and you held them in your hands, you were elated. But soon after, you received one of the most painful, disheartening and frightening news; your child has sickle cell disease or probably you may have received the news earlier before they was even born. As a parent, you may blame yourself for this, think that maybe you could have done something differently. You may even think that you are alone and no one seems to understand what you and your family may be going through, and the truth is that many people might not understand what you are going through but you are not alone. Did you know that over 14000 people live with SCD in the UK with 350 babies born each year with the condition in England? When I learned my child had sickle cell disease, I was crushed. It took a while for me to accept the situation and care for him and I have learned a lot throughout the process. My son has grown up and we have learned how he can live a full life even with his condition. I wrote this book to share my experience of having a child with sickle cell disease to create more awareness and for people to learn more about the disease in an easily understandable way. This book provides comprehensive information about sickle cell disease to equip you with all the information you need to take care of your child. Here is what the book covers: A comprehensive understanding of sickle cell disease Common myths about sickle cell disease How to deal with denial, guilt and criticism as a parent Sickle cell disease at different ages The importance of emotional support throughout this journey How your life changes when you have a child with sickle cell disease How best to communicate with the caregivers How best to strengthen the immune system The role of nutrition and exercise in people who have sickle cell disease Experiences of people who have lived with sickle cell disease Among many other things If you are looking for information to help you understand sickle cell disease to equip you with the knowledge to better care for your child..... Click Buy Now With 1-Click or Buy Now to get started!
Download or read book Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease written by Ronald T. Brown and published by Oxford University Press. This book was released on 2006-04-06 with total page 603 pages. Available in PDF, EPUB and Kindle. Book excerpt: Over recent decades, tremendous advances in the prevention, medical treatment, and quality of life issues in children and adolescents surviving cancer have spawned a host of research on pediatric psychosocial oncology. This important volume fulfills the clear need for an up-to-date, comprehensive handbook for practitioners that delineates the most recent research in the field--the first of its kind in over a decade. Over 60 renowned authors have been assembled to provide a thorough presentation of the state-of-the art research and literature, with topics including: -Neuropsychological effects of chemotherapy and radiation therapy -Bone marrow transplantation -Important issues about quality of life during and following treatment -Collaborative research among child-focused psychologists -Standards of psychological care for children and adolescents -Stress and coping in the pediatric cancer experience -The role of family and peer relationships The Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease represents both multidisciplinary and international efforts, an alliance between physicians and parents, and a combination of research and service. With a wealth of information of great interest to patients and their families, this volume will also be a welcome resource to the psychologists, psychiatrists, pediatricians, oncologists, nurses, and social workers who confront these issues as they help children and their families through the treatment, recovery, and grieving processes.
Download or read book Soar written by Gail Campbell Woolley and published by Agate Publishing. This book was released on 2017-12-12 with total page 195 pages. Available in PDF, EPUB and Kindle. Book excerpt: “This is a book about life—about living it ravenously, fully, joyously, unendingly, even if you have a death sentence.” —Donna Brazile, former chair, Democratic National Committee When Gail Campbell Woolley was seven, a pediatrician told her mother that Gail suffered from sickle cell anemia, a rare blood disease, and that she would be dead by age thirty-five. While others may have responded to this horrifying news by descending into a fog of self-pity, Gail went in the opposite direction. She decided to live an eventful, exciting life that ultimately included—despite a troubled home life and the systemic racism and sexism of the late twentieth century—academic success, an impressive career, a long and loving marriage, and the ability to leave her unmistakable stamp on every person she met. By the time she finally succumbed to her disease at age fifty-eight in 2015, she had ground that doctor’s words into dust. Soar, written in the last two years of her life, is Woolley’s powerfully inspiring story, and its publication checks the last item off her extraordinary bucket list, which also included traveling to every continent except Antarctica. Written in an engaging, no-nonsense voice with a directness that reflects her many years in journalism, Woolley’s remarkable story not only will move readers to root for this irrepressible, quietly heroic woman but also will push readers to reassess their own approach to life. “An inspiration for anyone confronting life’s challenges. Gail has left a legacy of courage and compassion, and her memoir represents a voice that desperately needs to be heard in America right now.” —Marc Morial, president and CEO, National Urban League
Download or read book Sickle Cell Pain written by Samir K. Ballas and published by Lippincott Williams & Wilkins. This book was released on 2015-06-01 with total page 1004 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Pain is a panoramic, in-depth exploration of every scientific, human, and social dimension of this cruel disease. This comprehensive, definitive work is unique in that it is the only book devoted to sickle cell pain, as opposed to general aspects of the disease. The 752-page book links sickle cell pain to basic, clinical, and translational research, addressing various aspects of sickle pain from molecular biology to the psychosocial aspects of the disease. Supplemented with patient narratives, case studies, and visual art, Sickle Cell Pain’s scientific rigor extends through its discussion of analgesic pharmacology, including abuse-deterrent formulations. The book also addresses in great detail inequities in access to care, stereotyping and stigmatization of patients, the implications of rapidly evolving models of care, and recent legislation and litigation and their consequences.
Download or read book Ebony written by and published by . This book was released on 2004-08 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: EBONY is the flagship magazine of Johnson Publishing. Founded in 1945 by John H. Johnson, it still maintains the highest global circulation of any African American-focused magazine.
Download or read book A Doctor in a Patient s Body written by Simone C. Uwan and published by . This book was released on 2018-11-10 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a wonderful educational journey written by someone with Sickle Cell Disease who trained while being sick to become a medical doctor. The author uses humor to tell her story. She shares about many things including making it through school with usual and unusual disability accommodations, natural things and simple techniques you can use to protect your health that are not found in textbooks, her experiences navigating the healthcare system, and even how to attract people to you, to name a few. This is a book that everyone with a chronic illness, or who knows someone with a chronic illness, should have. It is especially crucial for those with Sickle Cell Disease and chronic pain, because it reads like a survivor manual.
Download or read book A Sick Life written by Tionne "T-Boz" Watkins and published by Rodale. This book was released on 2017-09-12 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: A candid memoir of fame, strength, family, and friendship from the lead singer of TLC As the lead singer of Grammy-winning supergroup TLC, Tionne "T-Boz" Watkins has seen phenomenal fame, success, and critical acclaim. But backstage, she has lived a dual life. In addition to the balancing act of juggling an all-consuming music career and her family, Tionne has struggled since she was a young girl with sickle-cell disease--a debilitating and incurable condition that can render her unable to perform, walk, or even breathe. A Sick Life chronicles Tionne's journey from a sickly young girl from Des Moines who was told she wouldn't live to see 30 through her teen years in Atlanta, how she broke into the music scene, and became the superstar musician and sickle-cell disease advocate she is today. Through Tionne's tough, funny, tell-it-like-it-is voice, she shares how she found the inner strength, grit, and determination to live her dream, despite her often unpredictable and debilitating health issues. She dives deep into never-before-told TLC stories, including accounts of her friendship with Lisa "Left-Eye" Lopes and her tragic death. Tionne's unvarnished discussion of her remarkable life, disease, unending strength, and ability to power through the odds offers a story like no other.
Download or read book Sickle Cell Natural Healing written by Tamika Moseley and published by AuthorHouse. This book was released on 2013-09-26 with total page 89 pages. Available in PDF, EPUB and Kindle. Book excerpt: After spending every three months of her newborn's life in the hospital managing his sickle cell disease, Tamika Moseley knew she had to change what she was doing or the hospital would be her second home. In this deeply personal book, Tamika shares her story of the difficult journey she took to find natural ways to treat her son's debilitating disease. Three years since she started using herbs to minimize his sickle cell crises, her son is living a normal, healthy and pain-free life. Whether you have sickle cell disease or the trait, this book will show you what your body needs and how to treat your symptoms so that pain is no longer a part of your vocabulary. As Tamika likes to say, "Knowledge is power!" Sickle Cell Natural Healing: A Mother's Journey gives you the benefit of the wisdom one fearless and determined mother collected so that others suffering with this disease can thrive.
Download or read book Survival of the Sickest LP written by Dr. Sharon Moalem and published by Harper Collins. This book was released on 2007-05-22 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: Was diabetes evolution's response to the last Ice Age? Did a deadly genetic disease help our ancestors survive the bubonic plagues of Europe? Will a visit to the tanning salon help lower your cholesterol? Why do we age? Why are some people immune to HIV? Can your genes be turned on—or off? Survival of the Sickest is fi lled with fascinating insights and cutting-edge research, presented in a way that is both accessible and utterly absorbing. This is a book about the interconnectedness of all life on earth—and especially what that means for us. Read it. You're already living it.
Download or read book Uncommon Causes of Stroke written by Julien Bogousslavsky and published by Cambridge University Press. This book was released on 2001-05-24 with total page 418 pages. Available in PDF, EPUB and Kindle. Book excerpt: An essential resource for diagnosis and treatment of stroke patients outside the usual clinical categories.
Download or read book From Cancer Patient to Cancer Survivor Lost in Transition written by National Research Council and published by National Academies Press. This book was released on 2006-04-27 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: This report of the proceedings of a symposium held in conjunction with the release of the IOM report, From Cancer Patient to Cancer Survivor: Lost in Transition, represents an effort on the part of the American Society of Clinical Oncology (ASCO), the National Coalition for Cancer Survivorship (NCCS), and the Institute of Medicine (IOM) to further disseminate the findings and recommendations of the IOM report and to take the next step toward implementation of those recommendations. The symposium and this report serve as important vehicles to raise awareness, fill gaps that have existed in cancer patients' long-term care, and chart a course for quality care for cancer survivors and their families. More than 100 stakeholders in the cancer community, including survivors, advocates, healthcare providers, government officials, insurers and payers, and researchers participated in the symposium. This report culminates a series of work at the IOM focused on cancer survivorship. The idea to embark on a major study of cancer survivorship within the National Academies originated with the National Cancer Policy Board (NCPB). The NCPB was established in 1997 in the IOM and the National Research Council's Division of Earth and Life Studies at the request of the National Cancer Institute (NCI), the National Institutes of Health, and the President's Cancer Panel. The NCPB identified emerging policy issues in the nation's effort to combat cancer, and prepared reports that address those issues, including a series of reports on topics ranging from cancer prevention to end-of-life care.
Download or read book CDC Yellow Book 2018 Health Information for International Travel written by Centers for Disease Control and Prevention CDC and published by Oxford University Press. This book was released on 2017-04-17 with total page 705 pages. Available in PDF, EPUB and Kindle. Book excerpt: THE ESSENTIAL WORK IN TRAVEL MEDICINE -- NOW COMPLETELY UPDATED FOR 2018 As unprecedented numbers of travelers cross international borders each day, the need for up-to-date, practical information about the health challenges posed by travel has never been greater. For both international travelers and the health professionals who care for them, the CDC Yellow Book 2018: Health Information for International Travel is the definitive guide to staying safe and healthy anywhere in the world. The fully revised and updated 2018 edition codifies the U.S. government's most current health guidelines and information for international travelers, including pretravel vaccine recommendations, destination-specific health advice, and easy-to-reference maps, tables, and charts. The 2018 Yellow Book also addresses the needs of specific types of travelers, with dedicated sections on: · Precautions for pregnant travelers, immunocompromised travelers, and travelers with disabilities · Special considerations for newly arrived adoptees, immigrants, and refugees · Practical tips for last-minute or resource-limited travelers · Advice for air crews, humanitarian workers, missionaries, and others who provide care and support overseas Authored by a team of the world's most esteemed travel medicine experts, the Yellow Book is an essential resource for travelers -- and the clinicians overseeing their care -- at home and abroad.
Download or read book My Brother Has Sickle Cell written by Dr. Erica D. Gamble and published by Author House. This book was released on 2014-03 with total page 26 pages. Available in PDF, EPUB and Kindle. Book excerpt: From mom, professor, author and life coach Dr. Erica Gamble-----a heartwarming story about a boy who happens to have sickle cell, based on her son, who has the disease. "My brother has sickle cell. After learning what sickle cell is I now know more about my brother". Alvin is special and he has a special love for animals, especially Diamond. When Alvin and Diamond are together it helps to ease his pain. Diamond make's Alvin feel better- she licks his face, plays catch with him, lays on his leg when he is in pain and stays close to him when he is sad. Only Alvin can get Diamond to sit run or roll over. Dr. Erica Gamble collaborates with her son on this book based on her now 22- year old son, who has sickle cell anemia.
