Download or read book Factors Associated with Health related Quality of Life in Pediatric Inflammatory Bowel Disease written by Ellen M. Manegold and published by . This book was released on 2017 with total page 49 pages. Available in PDF, EPUB and Kindle. Book excerpt: Youth with inflammatory bowel disease (IBD) experience poor health-related quality of life (HRQOL; e.g., Cunningham et al., 2007; De Boer et al., 2005; Greenley et al., 2010). Previous research has demonstrated that factors such as problematic family functioning and increased general anxiety are associated with decreased HRQOL in pediatric IBD (e.g., Guilfoyle et al., 2014; Gumidyala & Greenley, 2014; Herzer et al., 2011a; Kilroy, Nolan, & Sarma, 2011). However, little was known about how specific aspects of the parent-child relationship are related to HRQOL. Furthermore, there was a gap in the literature about the relation of gastrointestinal (GI)-specific anxiety to HRQOL. Therefore, the purpose of the study was to identify more specific factors of the parent-child relationship and GI-specific anxiety that are associated with HRQOL in pediatric IBD. Thirty youth with IBD (Mage = 13.90 years, Range = 10 -- 18; 60% Male) and their primary caregivers or parents were recruited from a pediatric gastroenterology clinic in West Virginia. Parents and youth each completed a series of study questionnaires. Results indicated a significant association between GI-specific anxiety and both youth- and parent-reported total HRQOL scores. There were some significant associations among parent-child relationship dimensions and youth- and parent-report of HRQOL. However, most all of these were counterintuitive and may have been a function of study limitations. Exploratory analyses with specific parent-child relationship dimensions as mediators or moderators of GI-specific anxiety and youth-reported HRQOL were non-significant. The small sample and number of analyses performed each contributed to a likely increase in Type I error. Further, the sample was underpowered to detect medium-to-large effect sizes. However, data suggests that GI-specific anxiety is an important consideration in HRQOL in this population. Future directions include expanding data collection for this study to increase statistical power through a larger sample and potentially greater generalizability of data, as well as investigate targeted interventions to improve GI-specific anxiety in this population.
Download or read book Pediatric Inflammatory Bowel Disease written by Petar Mamula and published by Springer Science & Business Media. This book was released on 2012-12-14 with total page 573 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric Inflammatory Bowel Disease, Second Edition provides an essential reference with an emphasis on the unique pediatric issues of IBD. Chapters focus on complications of IBD specific to children and adolescents. Treatment recommendations are based on the latest clinical research available. The textbook also presents sections dedicated to the aspects of participation in clinical research unique to children and adolescents and the complicated yet vital process of successfully transitioning a patient from a pediatric to adult specialist. Controversies in pediatric IBD care such as the off-label use of medications are also covered. The format incorporates multiple tables, graphs, and figures to improve readability and make for an efficient reference for clinicians to use. Thoroughly revised and updated from the first edition, the volumes includes new therapies that are currently being used or tested for treatment of IBD, important areas regarding incidence and prevalence, immunization and response to vaccine administration as well as advancements in our understanding of growth and development with particular to the use of growth hormone therapy. Other new areas covered include important topics of complementary and alternative medicine use in IBD, immunization, and liver disease in IBD. Pediatric Inflammatory Bowel Disease, Second Edition is a valuable resource for pediatric gastroenterologists as well as adult gastroenterologists.
Download or read book Patient Engagement written by Guendalina Graffigna and published by Walter de Gruyter GmbH & Co KG. This book was released on 2016-01-01 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patient engagement should be envisaged as a key priority today to innovate healthcare services delivery and to make it more effective and sustainable. The experience of engagement is a key qualifier of the exchange between the demand (i.e. citizens/patients) and the supply process of healthcare services. To understand and detect the strategic levers that sustain a good quality of patients’ engagement may thus allow not only to improve clinical outcomes, but also to increase patients’ satisfaction and to reduce the organizational costs of the delivery of services. By assuming a relational marketing perspective, the book offers practical insights about the developmental process of patients’ engagement, by suggesting concrete tools for assessing the levels of patients’ engagement and strategies to sustain it. Crucial resources to implement these strategies are also the new technologies that should be (1) implemented according to precise guidelines and (2) designed according to a user-centered design process. Furthermore, the book describes possible fields of patients’ engagement application by describing the best practices and experiences matured in different fields
Download or read book An Investigation Into Factors that Predict Health related Quality of Life in Adolescents with Inflammatory Bowel Disease written by Fionnuala Scullion and published by . This book was released on 2009 with total page 110 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book An Investigation Into Factors that Predict Health related Quality of Life in Adolescents with Inflammatory Bowel Disease written by Fionnuala Scullion and published by . This book was released on 2009 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Psychosocial Factors Contributing to Medication Non adherence Health related Quality of Life and Disease Activity in Patients with Inflammatory Bowel Disease written by Alejandra H. Faust and published by . This book was released on 2010 with total page 90 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Inflammatory Bowel Disease IBD written by Anilga Moradkhani and published by . This book was released on 2011 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Pediatric Inflammatory Bowel Disease written by Petar Mamula and published by Springer Nature. This book was released on 2023-02-27 with total page 847 pages. Available in PDF, EPUB and Kindle. Book excerpt: The latest edition of this essential text provides a comprehensive overview of the unique pediatric issues of inflammatory bowel disease. Through new and thoroughly revised chapters, the volume features updates on all aspects of etiology, diagnosis, and treatment, with an emphasis on recent understanding of pharmacokinetics and the utilization of cutting edge therapeutic monitoring to maximize efficacy of medical management. The new edition also highlights newer, recently approved drugs, emerging therapies, and the most recent recommendations regarding post-operative management for patients who ultimately require surgery. Written by experts in the field, Pediatric Inflammatory Bowel Disease, Fourth Edition is a valuable resource for both pediatric and adult gastroenterologists involved in the care of children with inflammatory bowel disease.
Download or read book Inflammatory Bowel Disease and Familial Adenomatous Polyposis written by Gian Gaetano Delaini and published by Springer Science & Business Media. This book was released on 2007-03-06 with total page 466 pages. Available in PDF, EPUB and Kindle. Book excerpt: Inflammatory bowel disease (IBD) and familial adenomatous polyposis (FAP) are complex diseases. Despite increased knowledge on the pathophysiological process, many aspects remain rather unclear, especially concerning IBD. This book gathers current methods of treatment of these diseases and also presents the management of their complications. The authors give a comprehensive overview of the newer therapies to bring readers up to date.
Download or read book Disease Specific Symptoms and Health Related Quality of Life in Children and Adolescents with Inflammatory Bowel Disease written by Chelsea Ann Vaughan-Dark and published by . This book was released on 2013 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: This study assesses generic and disease-specific Health-Related Quality of Life (HRQOL) in children and adolescents with Inflammatory Bowel Disease (IBD). More specifically, the purpose of the study is to address the relationship between disease- specific indicators, both on a symptom-by-symptom basis and as a whole, to overall HRQOL. Self- and proxy-report versions of the Pediatric Quality of Life Inventory (PedsQ) Generic Core Scales and the newly developed Pediatric Quality of Life Inventory Gastrointestinal Symptoms Module were administered to 187 parent-child dyads at ten study sites across the United States. Disease-specific indicators included: stomach pain, stomach upset, trouble swallowing, heartburn and reflux, gas and bloating, constipation, and diarrhea. It was hypothesized that caregiver- and child-reported disease-specific HRQOL would be positively correlated with generic HRQOL, and that physical disease-specific indicators would contribute the greatest variance in total generic HRQOL scores, for both self and proxy report. Results confirmed the hypothesis that disease-specific HRQOL would be positively correlated with generic HRQOL for children and caregivers. Multivariate regression results revealed that the Stomach Pain and Hurt, Worry, Medicines, and Communication scales contributed the most variance to overall HRQOL scores for children. The same analysis performed for parent ratings yielded one statistically significant scale: Worry. In essence, intervention efforts aimed at reducing the influence of worry and anxiety may prove more effective in improving HRQOL outcomes than interventions targeting reduction of physical symptoms. The electronic version of this dissertation is accessible from http://hdl.handle.net/1969.1/151130
Download or read book Health Related Quality of Life in Inflammatory Bowel Disease written by Ramiro Veríssimo and published by . This book was released on 2012 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Validation of the IMPACT Questionnaire for Measuring Health related Quality of Life in Paediatric Inflammatory Bowel Disease microform Sensibility Validity and Reliability Testing in a Paediatric Cohort written by Anthony Roger Otley and published by National Library of Canada = Bibliothèque nationale du Canada. This book was released on 2004 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: IMPACT, a disease-specific measure of health-related quality of life (HRQOL) in paediatric inflammatory bowel disease (IBD). The goals of this thesis were to assess IMPACT's sensibility, validity and reliability. Using Feinstein's principles a qualitative and 'quantitative' assessment of sensibility was conducted. The patient and physician participants strongly endorsed the sensibility of IMPACT. The IMPACT total score showed excellent test-retest reliability with an intraclass correlation coefficient of 0.90. The internal consistency rating was also excellent with a Cronbach's alpha of 0.96. Construct validity testing was conducted because of the lack of a gold standard with which to assess HRQOL. All constructs supported the validity of the questionnaire for measuring HRQOL in paediatric IBD patients. No significant influence of patient diagnosis (Crohn's disease or ulcerative colitis) or age was noted. A patient's assessment of their HRQOL appears to be most influenced by their current status, rather their disease course over the past year.
Download or read book Health Related Quality of Life in Inflammatory Bowel Disease written by Edel McDermott and published by . This book was released on 2016 with total page 211 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Psychogastroenterology for Adults written by Simon R. Knowles and published by Routledge. This book was released on 2019-09-16 with total page 372 pages. Available in PDF, EPUB and Kindle. Book excerpt: The brain-gut connection has been increasingly implicated in biopsychosocial well-being. While there are numerous factors that directly and indirectly impact on how the gut and the brain interact, there is a growing awareness that gastrointestinal conditions need to be viewed and treated as part of a multidisciplinary approach. Psychogastroenterology for Adults: A Handbook for Mental Health Professionals is the first book to provide mental health professionals with an evidence-based, practical guide for working with patients living with gastrointestinal conditions. Timely and accessibly written, this book provides a unique, comprehensive introduction to psychogastroenterology, offering a step-by-step guide to evidence-based psychological treatment protocols. Broad in scope and expertise, the book is divided into four parts. It opens with an overview of the field, moving on to outline psychological concerns and conditions in gastroenterological (GI) cohorts. Further, it covers various approaches to psychogastroenterology, including psychopharmacological and eHealth practices. In closing, the book looks to the future, providing guidance on supervision in psychogastroenterology, and exploring challenges in the field. Written by experts in the field, this book will be an indispensable resource for those who wish to enhance their knowledge and practice of psychogastroenterology in the mental health profession, including psychologists, psychiatrists, psychosomatic medicine specialists, nurses and social workers.
Download or read book Chronic Illness written by Ilene Morof Lubkin and published by Jones & Bartlett Publishers. This book was released on 2013 with total page 738 pages. Available in PDF, EPUB and Kindle. Book excerpt: The newest edition of best-selling Chronic Illness continues to focus on the various aspects of chronic illness that influence both patients and their families. Topics include the sociological, psychological, ethical, organizational, and financial factors, as well as individual and system outcomes. This book is designed to teach students about the whole client or patient versus the physical status of the client with chronic illness. The study questions at the end of each chapter and the case studies help the students apply the information to real life. Evidence-based practice references are included in almost every chapter.
Download or read book Pediatric Health Conditions in Schools written by Allison G. Dempsey and published by Oxford University Press, USA. This book was released on 2019-11-25 with total page 497 pages. Available in PDF, EPUB and Kindle. Book excerpt: As the rates of chronic health conditions in childhood increase, school-based professionals regularly encounter children with chronic health conditions in the school setting. Students with chronic health conditions often require accommodations, assessment, intervention, and close collaboration with medical providers and families. However, most school-based clinicians (school psychologists, counselors, social workers) responsible for addressing the special needs of these children have no prior experience and have never taken coursework related to common pediatric conditions. Pediatric Health Conditions in Schools is a practical guide for school-based clinicians working with children with chronic health issues. Section I provides a broad overview of school-related issues for working with children with long-term health problems. This includes a review of common medical conditions and terminology and cross-cutting issues related to social, emotional, and academic functioning, as well as the role of the school-based professional in collaborating across systems of care. This section also reviews legal and policy issues, as well as alternative educational settings for students with chronic health needs. Section II focuses on prevention, assessment, intervention, and consultations strategies for both individual students and entire school systems. Finally, Section III includes chapters for common groups of medical conditions. Each chapter provides an overview of the condition(s), common school-related concerns, risk and protective factors and cultural considerations, and includes practical strategies, resources, and handouts for the school-based professional. Case examples are used throughout the book to illustrate key concepts and implications for the school setting.
Download or read book Endoscopy in Inflammatory Bowel Disease written by Richard Kozarek and published by Springer. This book was released on 2014-11-03 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book conjoins the latest advances on the use of endoscopy to diagnose, monitor, and treat patients with inflammatory bowel disease. Chapters include the historical use of rigid sigmoidoscopy, non-interventional imaging procedures, and the correlation of pathology and endoscopic visualization. This is the first book to include individual chapters in gastroenterology, colorectal surgery, and IBD texts, the preeminent role of endoscopic imaging in the management of chronic ulcerative colitis, and Crohn's disease. It also includes chapters on capsule endoscopy and balloon and overtube-assisted enteroscopy to define the presence and activity of Crohn's enteritis and additional chapters defining the use of random biopsies versus chromoendoscopy, and computer enhanced imaging to define possible dysplasia development. The book also includes access to online videos, making it the ultimate verbal and visual tool for all medical professionals interested in the advances in the field over the last several decades. Endoscopy in Inflammatory Bowel Disease is a concise text that is of great value to practicing endoscopists, gastroenterologists, general or colorectal surgeons, physicians in training, and all medical professionals caring for patients with inflammatory bowel disease.
