Download or read book Dementia Caregivers Share Their Stories written by Lynda A. Markut and published by Vanderbilt University Press. This book was released on 2005 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: Replete with the powerful words of experienced caregivers, Dementia Caregivers Share Their Stories is an essential guidebook for anyone who must attend to the needs of a loved one suffering from Alzheimer's disease or another form of dementia. In these pages, members of caregivers' support groups - representing twenty-six families and a variety of professions and income levels - speak candidly about the challenges they have faced at every step in the caregiving process, from recognizing early symptoms of dementia to dealing with its advanced stages. Highlighting the ingenuity and resourcefulness of caregivers, the book brims with inspirational stories, practical advice, and creative approaches to problem-solving. Among the issues addressed are: Becoming a caregiver, whether for a spouse or parent Dealing with the personality changes caused by dementia, from anxiety and paranoia to hallucinations and impulsive behavior Keeping dementia sufferers meaningfully involved in life Handling the emotions and stresses of caregiving Seeking help through support groups and other sources, including medical professionals, clergy, and other family members The authors, who have both been caregivers themselves, augment their interviewees' stories with connective commentary and their own personal stories. A useful resource section is included to refer readers to associations and help-lines.
Download or read book Supporting the Caregiver in Dementia written by Sheila M. LoboPrabhu and published by JHU Press. This book was released on 2006-06-19 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dementia is one of the greatest challenges facing seniors and their caregivers around the globe. Developed by experts in both research and practice, this guide for mental health clinicians explores the experience of caregiving in dementia, discussing the latest research developments and sharing clinical pearls of wisdom that can easily be translated to daily practice. The contributors explore the history of caregiving and then examine the current demographics of caregivers for persons with dementia. They discuss who provides care, the settings in which it is delivered, and the rewards and burdens of caregiving. They place special emphasis on understanding the psychological needs of both the person with dementia and the caregiver, as well as interpersonal bonds, spiritual dimensions, and reactions to grief and loss. Using a multidisciplinary approach to treatment for caregivers, this book addresses the role of pharmacotherapy, individual and family interventions, and social supports. Finally, the authors reflect on societal issues such as health care policies, ethnic elders, and ethics. This volume offers health professionals insights into the daily lives of caregivers, along with tools to provide their patients with the support they need.
Download or read book I Didn t Sign up for This written by Mary Monroe and published by AuthorHouse. This book was released on 2019-02-27 with total page 83 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brutally honest about her feelings when life dealt her husband the greatest setback one can imagine—a diagnosis of Lewy body dementia and Alzheimer’s—Mary Monroe lamented, “I didn’t sign up for this!” All her dreams of living her “golden years” with her husband of forty years disappeared, and a new “normal” had to be established. After living in a caregiving role for over six years, Monroe shares the lessons and tips she learned to survive—and even thrive—as a caregiver to a loved one with dementia. You’ll enjoy the frank and revealing way Monroe looks at every aspect of being a caregiver, even approaching “taboo topics,” rarely discussed. Her tips, tricks, and strategies will give you hope and encouragement to reflect and journal about your own journey, helping you make the best out of a situation no one would wish on their worst enemy!
Download or read book You Are Not Alone Even If You Think You Are written by Denise Benner and published by . This book was released on 2015-03-25 with total page 88 pages. Available in PDF, EPUB and Kindle. Book excerpt: A caregiver of someone with dementia may say, "Who has time to sit and read?" You don't need much time to read You Are Not Alone (even if you think you are), a short book of personal stories about the journey of dementia care. Many caregivers of those with dementia feel overwhelmed from the struggles they face with the burdens of caregiving. They can feel alone and isolated. However, if they have ever shared their situation with another caregiver, they will find a common bond, as they will in this book. You Are Not Alone (even if you think you are) shares with the reader stories of caregivers for those suffering from dementia. The book offers insight and advice to help people realize the struggles, treasured moments, humor, and care throughout the journey of dementia. We are living longer. Dementia care is growing. The Alzheimer's Association states: "In 2013, 15.5 million caregivers provided an estimated 17.7 billion hours of unpaid care. All caregivers of people with Alzheimer's - both women and men - face a devastating toll. Due to the physical and emotional burden of caregiving, Alzheimer's and dementia caregivers had $9.3 billion in additional health care costs of their own in 2013. Nearly 60 percent of Alzheimer's and dementia caregivers rate the emotional stress of caregiving as high or very high, and more than one-third report symptoms of depression." Know you are not alone in this journey, by reading this short book, You Are Not Alone (even if you think you are).
Download or read book Essential Strategies for the Dementia Caregiver written by Tami Anastasia and published by . This book was released on 2022-01-04 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: ESSENTIAL STRATEGIES FOR THE DEMENTIA CAREGIVER offers a fresh and practical approach to the challenges faced by wives, husbands, and adult children who care for loved ones with dementia. Using the 4 D's of Dementia Care - detach, document, diffuse, distract - caregivers can find solutions for behaviors ranging from shadowing to wandering to medication refusal. The PACE model emphasizes the importance of prioritizing the caregiver's well-being while navigating the dementia journey: P = Permission for Trial and Error, A = Acknowledge Their Reality, C = Compassionate Care, E = Empower Yourself.
Download or read book A Loving Approach to Dementia Care written by Laura Wayman and published by JHU Press. This book was released on 2021-03-16 with total page 201 pages. Available in PDF, EPUB and Kindle. Book excerpt: An encouraging and compassionate guide for dementia caregivers. Caring for someone with dementia means devotedly and patiently doing a hundred little things each day. But few care providers are trained to meet the challenges of dementia—despite the fact that millions of people will struggle with it as they grow older. In A Loving Approach to Dementia Care, Laura Wayman, who is known professionally as the Dementia Whisperer, offers practical, compassionate advice on overcoming caregiving obstacles and maintaining meaningful relationships with loved ones who have dementia and memory loss. In this thoroughly revised third edition, Wayman includes • answers to common caregiver questions, such as "What is dementia?" • a detailed explanation of how to cope with and care for a spouse with dementia symptoms, including advice about communication • a new chapter on caring for someone who has dementia along with other health problems • recommendations about how to handle challenging situations and behaviors • dementia-aware activities that work for both family caregivers and professional care staff • fresh caregiving insights that emphasize the importance of taking time to care for oneself Each chapter contains two sections—"Lessons Learned" and "Perceptions and Approaches"—which provide details about how readers can apply lessons from the stories Wayman tells to their own caregiving practice. Providing support for the numerous difficulties and disruptions that all caregivers face along the way, A Loving Approach to Dementia Care is an empathetic guide filled with respect, calm, and creativity. It will leave readers feeling empowered and inspired.
Download or read book I Didnt Sign Up for This written by Mary Monroe and published by AuthorHouse. This book was released on 2019-02-27 with total page 80 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brutally honest about her feelings when life dealt her husband the greatest setback one can imagine-a diagnosis of Lewy body dementia and Alzheimer's-Mary Monroe lamented, "I didn't sign up for this!" All her dreams of living her "golden years" with her husband of forty years disappeared, and a new "normal" had to be established. After living in a caregiving role for over six years, Monroe shares the lessons and tips she learned to survive-and even thrive-as a caregiver to a loved one with dementia. You'll enjoy the frank and revealing way Monroe looks at every aspect of being a caregiver, even approaching "taboo topics," rarely discussed. Her tips, tricks, and strategies will give you hope and encouragement to reflect and journal about your own journey, helping you make the best out of a situation no one would wish on their worst enemy!
Download or read book Caregiving Both Ways written by Molly Wisniewski and published by Mango Media Inc.. This book was released on 2019-08-15 with total page 166 pages. Available in PDF, EPUB and Kindle. Book excerpt: Overcome the Language Barrier of Dementia When a parent, spouse, sibling, or loved one is diagnosed with Alzheimer’s or another form of dementia, it can be difficult to know what to do. Your day can spiral into a never-ending series of tasks and attempts to communicate that leave you both frustrated. Instead of burning out, discover a new approach. When your loved one behaves differently than they used to, they’re just communicating in a new way. As caregivers, the most important thing we can do is learn that new language. Navigate the caregiving relationship: In Caregiving Both Ways, Molly Wisniewski offers essential advice for getting to know your loved one and yourself during this new phase of life. Learn to balance your priorities, avoid burning out, and honor self-care. Molly will teach you how to navigate the difficult moments with techniques she’s mastered from years of experience working with people with dementia. Prepare for each stage of care: Caregiving Both Ways is divided into two parts. First, learn how to care for your loved one with dementia and prioritize your new role as caregiver. Next, discover how to build a strong support system with help from professional caregivers and how to prepare for end-of-life care. In Caregiving Both Ways, you’ll find worksheets, exercises, and essential tips for smart, empathetic caregiving. You'll learn how to: • Use non-medical interventions to reduce anxiety • Prioritize and make time for your own care and mental health • Identify triggers that may cause confusion in your loved one • Handle difficult medical decisions • Provide support and validation through all stages of Alzheimer’s disease or dementia Readers who turned to Alzheimer’s books like The 36-Hour Day, When Reasoning No Longer Works, and Creating Moments of Joy Along the Alzheimer's Journey will love the compassionate approach of Caregiving Both Ways.
Download or read book Enduring written by Donna Larkin and published by . This book was released on 2024 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: One wife’s story of caring for her husband with dementia—and the lessons for caregivers she learned along the way.After the death of her husband, author Donna Larkin realized that she—and the other women in her dementia caregivers’ support group—had accumulated invaluable strategies and tools that might be helpful for others recently finding themselves in a similar situation. In Enduring: A Story of Love, Dementia, and Lessons Learned, Larkin shares a chronology of her husband’s Alzheimer’s disease and her caregiving approaches, including those gleaned from her support-group friends and experts she met along the way.An honest, loving, and unflinching portrait of caregiving, Enduring draws on nine years’ worth of notes, emails, and journal pages written while full-time caregiving at home and while later helping to transition her husband into a memory-care facility. A chronicle of the couple’s journey from diagnosis to passing, her stories—with vulnerability, straight talk, and good humor—uniquely illustrate what it means to be a full-time caregiver for a loved one with Alzheimer’s disease.As Larkin and her husband faced down the realities of his condition, a problem-solving approach kept her focused on finding solutions where possible—while her heart kept her focused on the man she knew her husband to be and the love they still shared in the face of many obstacles. For anyone struggling with the realities of a loved one’s battle with dementia, Enduring is a reminder that you are not alone.
Download or read book Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2021-11-23 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Dementia Caregiver Guide written by Teepa L. Snow and published by . This book was released on 2013-10 with total page 112 pages. Available in PDF, EPUB and Kindle. Book excerpt: This simple, easy to read, 100 page guidebook helps family members, friends, and caregivers to better understand the changes that come with advancing dementia or other impairments in thinking, reasoning or processing information. It also reinforces the impact of Teepa Snow's guidance and person-centered care interventions including the GEMS and Positive Approach to Care techniques. The goal is to provide better support and care practices when someone is living with an ever-changing condition. By appreciating what has changed but leveraging what is still possible, care partners can choose interactions that are more positive, communication that is more productive, and care that is more effective and less challenging for all involved.
Download or read book A Lonely Journey written by Journey Publish LLC Staff and published by . This book was released on 2018-05-21 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: A collection of dementia caregivers sharing, in their own words, their journey with their loved ones. This book is intended to help family, friends, co-workers and employers understand the journey of a dementia caregiver.
Download or read book Forget Remember 13 Steps to Care A Guidebook for the Dementia Caregiver written by Dennis E. Wiseman and published by . This book was released on 2018-09-27 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Forget "Remember", is a lifeboat for the caregiver whose life has been remodeled into one now responsible for the care of someone stricken with dementia. This dementia can be Alzheimer's disease, Vascular dementia, Lewy body disease, Frontotemporal dementia, or other dementias creating similar symptoms, but all needing common care. This book is focused on maintaining the Quality of Life, an optimistic support style, and a focus on respecting the dignity of your patient. It is a toolbox, a survival guide, a rescue aid, a coach's playbook, or your support devotional. With over 20 years of experience in helping caregivers better understand the daily challenges they face, this author has combined actual life examples, a medical explanation of the dementias, a review of the financial issues the caregiver will experience, and methods for becoming the best caregiver for your loved-one. If you are a caregiver, healthcare provider, senior care service provider, or an aging adult curious to learn more about memory care -- This book is for you!
Download or read book Creative Care written by Anne Basting and published by HarperCollins. This book was released on 2020-05-19 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: A MacArthur Genius Grant recipient pioneers a radical change in how we interact with older loved ones, especially those experiencing dementia, as she introduces a proven method that uses the creative arts to bring light and joy to the lives of elders. In Creative Care, Anne Basting lays the groundwork for a widespread transformation in our approach to elder care and uses compelling, touching stories to inspire and guide us all—family, friends, and health professionals—in how to connect and interact with those living with dementia. A MacArthur Genius Grant recipient, Basting tells the story of how she pioneered a radical change in how we interact with our older loved ones. Now used around the world, this proven method has brought light and joy to the lives of elders—and those who care for them. Here, for the first time, everyone can learn these methods. Early in her career, Basting noticed a problem: today’s elderly—especially those experiencing dementia and Alzheimer’s— are often isolated in nursing homes or segregated in elder-care settings, making the final years of life feel lonely and devoid of meaning. To alleviate their sense of aloneness, Basting developed a radical approach that combines methods from the world of theater and improvisation with evidence-based therapies that connect people using their own creativity and imagination. Rooted in twenty-five years of research, these new techniques draw on core creative exercises—such as “Yes, and . . .” and “Beautiful Questions.” This approach fosters storytelling and active listening, allowing elders to freely share ideas and stories without worrying about getting the details “correct.” Basting’s research has shown that these practices stimulate the brain and awaken the imagination to add wonder and awe to patients’ daily lives—and provide them a means of connection, both with the world and with those caring for them. Creative Care promises to bring light and hope to a community that needs it most.
Download or read book The Caregiver s Tale written by Ann Burack-Weiss and published by Columbia University Press. This book was released on 2006-03-14 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ann Burack-Weiss explores a rich variety of published memoirs by authors who cared for ill or disabled family members. Contrary to the common belief that caregiving is nothing more than a stressful situation to be endured, memoirs describe a life transforming experience-self-discovery, a reordering of one's priorities, and a changed view of the world. The Caregiver's Tale offers insight and comfort to individuals caring for a loved one and is a valuable resource for all health care professionals. Identifying common themes, Burack-Weiss describes how the illness career and social meaning of cancer, dementia, HIV/AIDS, mental illness, and chemical dependence affect the caregiving experience. She applies the same method to an examination of family roles: parents caring for ailing children, couples and siblings caring for one another, and adult children caring for aging parents. Jamaica Kincaid, Sue Miller, Paul Monette, Kenzaburo Oë, and Philip Roth are among the many authors who share their caregiving stories. Burack-Weiss provides an annotated bibliography of the more than one hundred memoirs and an accompanying chart to help readers locate those of greatest interest to them.
Download or read book Enough About Me written by Richard Lui and published by Zondervan. This book was released on 2021-03-23 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: What if your path to a more successful, healthy, and satisfying life is actually not about you? Enough About Me equips you with practical tools to find meaning and compassion in even the smallest of everyday choices. When his father was diagnosed with Alzheimer's disease, Richard Lui made a tough decision. The award-winning news anchor decided to set aside his growing career to care for his family. At first, this new caregiving lifestyle did not come easily for Lui, and what followed was a seven-year exercise in what it really means to be selfless. Enough About Me also takes a behind-the-scenes look at some of the world's most difficult moments from a journalist's point of view. From survivors of terrorist attacks to victims of racial strife, Lui shares the lessons he learned from those who rose above the fray to be helpful, self-sacrificing, and generous in the face of monumental tragedy and loss. Lui shares practical tips, tools, and mnemonics learned along the way to help shift the way we think and live, including: Selfless decision methods and practices for work, home, relationships, and community Studies and research that show the personal benefits of being selfless The lasting impact of sharing your story Practical, bite-sized ways to be more engaging and inclusive in your day-to-day life How to train our decision-making muscles to choose others over ourselves Choice by choice, step by step, the path to a more satisfying and fulfilling journey is right here in the people around us. Praise for Enough About Me: "Richard Lui underscores the importance of sharing stories to bring people together through selfless acts for the greater good." Beth Kallmyer, Vice President of Care and Support, Alzheimer's Association "Richard is living a life of service. This is a jewel of a book, a celebration of the best of the human spirit and of the good that emerges from sacrifice. Richard Lui is a beacon of light in these dark times." José Díaz-Balart, Anchor, NBC Nightly News Saturday; Anchor, Noticias Telemundo
Download or read book Losing Me While Losing You written by Jeanette A. Auger and published by Fernwood Publishing. This book was released on 2021-09-21T00:00:00Z with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: Losing Me, While Losing You is a long-needed resource to those providing care for people living with dementia — and for those providing care to the caregivers. In this book, caregivers speak from their own experiences of caring for loved ones with dementia; they cover when they first noticed behavioural changes, what they did and how their roles changed when they received the diagnosis, how the experiences changed their perceptions of themselves, especially in cases where important ones no longer recognized them or their, often long-standing, relationships. The caregivers also talked about what resources, if any, were available to support them through the caregiving journey and what recommendations they would make to government policymakers and to others in similar situations. This book is unique in that it documents the personal lived experience of loss which family, friends and caregivers go through as their roles, expectations and images of self are changed throughout the caregiving process.
