Download or read book But She Still Can Love A Child s Understanding of ALS written by Amalia Flecksteiner and published by . This book was released on 2021-04-08 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt: ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that currently has no cure. ALS is a disease that typically involves a gradual onset, with initial symptoms that can be quite varied in different people. One person may struggle with lifting a coffee cup or grasping a pen, while others may begin slurring or losing their speech - ALS affects everyone differently. Regardless, ALS is a disease that always takes - takes someone's ability to help themselves, takes someone's ability to express themselves, and ultimately takes someone from the ones who love them most.Mom was taken from us by this disease too soon. She was a nurse of over 30 years, always taking care of others, to end up being taken care of herself. Though we ultimately lost Mom to ALS, we gained a purpose to bring awareness and support to others who may have or had the same experience with their loved one. Whether it's Mom, Dad, Grandma, Grandpa, or another loved one affected by this disease that always takes, always remember - but they still can love.For more ALS information and resources, visit als.org. A large portion of the proceeds from this book will benefit the ALS Association of Georgia Chapter's 'Walk to Defeat ALS' in honor of Mom, Marina Pascarelli.
Download or read book And Love Speaks written by Jamie L Blair and published by . This book was released on 2021-05-07 with total page 38 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Grandma said she's sick, but she looks fine to me. She has a disease called ALS that makes it hard for her muscles to work. My whole family is learning new ways to help her, but I miss how things used to be." Amyotrophic Lateral Sclerosis (ALS) is a very challenging disease that affects all types of people: parents, grandparents, aunts, uncles, and friends. Of course, it also has an enormous impact on the children who love those who've been diagnosed with ALS. Children bring kisses, hugs, caregiving, and joy to those living with ALS, but at the same time, those children may be experiencing confusion, fear, and worry as they watch the person they love face a scary disease. And Love Speaks helps to navigate those difficult feelings and conversations, to help children understand that their loved one with ALS is the same person inside, and to maximize quality time together ensuring every moment counts.
Download or read book And Love Speaks written by Jamie L Blair and published by Euphoria Publishing. This book was released on 2021-05-24 with total page 38 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Grandma said she's sick, but she looks fine to me. She has a disease called ALS that makes it hard for her muscles to work. My whole family is learning new ways to help her, but I miss how things used to be." Amyotrophic Lateral Sclerosis (ALS) is a very challenging disease that affects all types of people: parents, grandparents, aunts, uncles, and friends. Of course, it also has an enormous impact on the children who love those who've been diagnosed with ALS. Children bring kisses, hugs, caregiving, and joy to those living with ALS, but at the same time, those children may be experiencing confusion, fear, and worry as they watch the person they love face a scary disease. And Love Speaks helps to navigate those difficult feelings and conversations, to help children understand that their loved one with ALS is the same person inside, and to maximize quality time together ensuring every moment counts.
Download or read book Lou Gehrig Disease Als Or Amyotrophic Lateral Sclerosis Explained Als Symptoms Signs Stages Types Diagnosis Treatment Caregiver Tips Aids And written by Robert Rymore and published by Imb Publishing. This book was released on 2013-08-01 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author, Robert Rymore, had a good friend who was diagnosed with Lou Gehrig Disease. He wanted to be able to help her and decided to buy some books about the disease. To his disappointment there was a lack of good informative books available on the subject. He decided to investigate the subject thoroughly and write a book about it to be able to help others. He decided he would start talking to professionals - doctors, physical therapists, speech therapists and occupational therapists - to learn more. He quickly realized the information he was getting would be extremely valuable for other people with ALS and their loved ones. This book has been a labor of love, one born of necessity and certainly one that aims to help those with ALS, their families, and their friends. ALS symptoms, signs, stages, types, diagnosis, treatment, caregiver tips, aids and what to expect is all covered. Including chapters about financial considerations, famous people with Lou Gehrig Disease and resources. The book is written in an easy to read and understandable style and contains tips for caregivers.
Download or read book Until I Say Good Bye written by Bret Witter and published by Hachette UK. This book was released on 2013-03-14 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: THE NEW YORK TIMES BESTSELLER What would you do with one last year? Susan Spencer-Wendel was determined to laugh instead of cry. In June 2011, Susan Spencer-Wendel learned she had amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - an irreversible condition that systematically destroys the nerves that power the muscles. She was 44-years-old, with three young children, and she had only one year of health remaining. She decided to live that year with joy. She left her job as a journalist and spent time with her family. She built a meeting place for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She went to the beach with her sons and to Kleinfeld's bridal shop in New York City with her teenage daughter, Marina, for a glimpse of the wedding she would never attend. She also wrote this book. No longer able to walk or even lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working. And yet Until I Say Good-Bye is not angry or bitter. It is sad in parts - how could it not be? - but it is filled with Susan's optimism, joie de vivre and sens of humour. It is a book that, like Susan, will make everyone smile. From a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is Susan Spencer-Wendel's unforgettable gift to her loved ones and to us: a record of their final experiences together and a reminder that every day is better when it is lived with joy.
Download or read book The Women written by Hilton Als and published by . This book was released on 2022-05-05 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book We Know How This Ends written by Bruce H. Kramer and published by U of Minnesota Press. This book was released on 2015-04-01 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nautilus Book Awards — Silver Award Winner 2010 had been a very good year for Bruce H. Kramer. But what began as a floppy foot and leg weakness led to a shattering diagnosis: he had amyotrophic lateral sclerosis. ALS is a cruel, unrelenting neurodegenerative disease in which the body’s muscles slowly weaken, including those used to move, swallow, talk, and ultimately breathe. There is no cure: ALS is a death sentence. When death is a constant companion, sitting too closely beside you at the dinner table, coloring your thoughts and feelings and words, your outlook on life is utterly transformed. The perspective and insights offered in We Know How This Ends reveal this daily reality and inspire a way forward for anyone who has suffered major loss and for anyone who surely will. Rather than wallowing in sadness and bitterness, anger and denial, Kramer accepted the crushing diagnosis. The educator and musician recognized that if he wanted a meaningful life, then embracing his imminent death was his only viable option. His decision was the foundation for profound, personal reflection and growth, even as his body weakened, and inspired him to share the lessons he was learning from ALS about how to live as fully as possible, even in the midst of devastating grief. At the time Kramer was diagnosed, broadcast journalist Cathy Wurzer was struggling with her own losses, especially her father’s slow descent into the bewildering world of dementia. Mutual friends put this unlikely pair—journalist and educator—together, and the serendipitous result has been a series of remarkable broadcast conversations, a deep friendship, and now this book. Written with wisdom, genuine humor, and down-to-earth observations, We Know How This Ends is far more than a memoir. It is a dignified, courageous, and unflinching look at how acceptance of loss and inevitable death can lead us all to a more meaningful and fulfilling life.
Download or read book Tuesdays with Morrie written by Mitch Albom and published by Crown. This book was released on 2007-06-29 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 NEW YORK TIMES BESTSELLER • A special 25th anniversary edition of the beloved book that has changed millions of lives with the story of an unforgettable friendship, the timeless wisdom of older generations, and healing lessons on loss and grief—featuring a new afterword by the author “A wonderful book, a story of the heart told by a writer with soul.”—Los Angeles Times “The most important thing in life is to learn how to give out love, and to let it come in.” Maybe it was a grandparent, or a teacher, or a colleague. Someone older, patient and wise, who understood you when you were young and searching, helped you see the world as a more profound place, gave you sound advice to help you make your way through it. For Mitch Albom, that person was his college professor Morrie Schwartz. Maybe, like Mitch, you lost track of this mentor as you made your way, and the insights faded, and the world seemed colder. Wouldn’t you like to see that person again, ask the bigger questions that still haunt you, receive wisdom for your busy life today the way you once did when you were younger? Mitch Albom had that second chance. He rediscovered Morrie in the last months of the older man’s life. Knowing he was dying, Morrie visited with Mitch in his study every Tuesday, just as they used to back in college. Their rekindled relationship turned into one final “class”: lessons in how to live. “The truth is, Mitch,” he said, “once you learn how to die, you learn how to live.” Tuesdays with Morrie is a magical chronicle of their time together, through which Mitch shares Morrie’s lasting gift with the world.
Download or read book Someone I Love Has ALS written by Jodi O'Donnell-Ames and published by People Tested Publications. This book was released on 2015-09-09 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: Kevin and Jodi O'Donnell, were a young New Jersey couple busy raising a toddler and making plans for their future when they received life-altering news in 1995 that changed everything as they knew it. Kevin was only 30 years old when he was told that his health problems were the result of a rare, terminal disease called ALS (Amyotrophic Lateral Sclerosis), or Lou Gehrig's disease. Kevin and Jodi had not heard of ALS until then and had no idea how those three letters would challenge everything they thought to be certain. After more than 20 years of working with ALS families, Jodi realized that more information and better resources could be available to help families who are coming to grips with the challenges of the disease and the caregiving responsibilities that are involved. In the Introduction to "Someone I Love Has ALS: A Family Caregiver's Guide," Jodi recounts the journey she took as a caregiver, advocate and writer and embraces and shares the lessons learned throughout the pages of this wonderful guide, "This guide was created by a variety of caregivers and professionals who have years of experience with various aspects of ALS. It was written by volunteers and experts who care about ALS and your journey. It is the resource that I wish we had received along with the shocking diagnosis." Although Kevin died of ALS in 2001 at the age 35, the disease never won the battle. ALS only strengthened Kevin and Jodi's love for God and each other and it created an even bigger purpose and plan: the creation of Hope Loves Company(r), the only non-profit whose mission is to support the children and grandchildren caregivers of PALS (people with ALS).
Download or read book My Dad Has ALS written by Rachel Silverman and published by Bookbaby. This book was released on 2015-09-17 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the story about little boy whose dad has Lou Gehrig's disease, or ALS, and how they cope as family.
Download or read book ALS Awareness Relationships Attention To Significant Others Family Friends written by Laurence Donelson lll and published by Laurence Donelson lll. This book was released on 2024-04-04 with total page 186 pages. Available in PDF, EPUB and Kindle. Book excerpt: "ALS Awareness Relationships: Attention to Significant Others, Family & Friends" is a compassionate guide for those touched by ALS. It begins with an **introduction** to the importance of awareness and a brief overview of ALS. The book delves into the **impact of ALS**, sharing personal stories and case studies that highlight the challenges faced by patients and their loved ones. Navigating the complex web of **relationships** affected by ALS, the book offers insights into the changing dynamics within families and the challenges faced by significant others. It emphasizes the creation of strong **support systems**, providing a list of resources and organizations for caregivers. Communication is key, and the book discusses **techniques** for maintaining strong relationships, alongside communication aids and technology. It also addresses the often-overlooked aspect of **self-care for caregivers**, offering strategies for managing stress and the importance of self-care routines. The book encourages **advocacy and involvement** in the ALS community, suggesting ways to become an advocate and organize community events. It shares **stories of hope and resilience**, providing messages of hope and inspiration from the ALS community. Concluding with reflections on the journey and the future of ALS awareness, the book also includes a comprehensive **resources section** with a list of ALS associations and educational materials for further reading. This book is an essential resource for anyone seeking to understand and support those affected by ALS.
Download or read book Our Mom Is Sick Really Really Sick But She Rocks written by Angela Parker-Brown and published by . This book was released on 2023-09-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Told through the perspective of Angela Parker-Brown's twin twelve-year-old daughters, this slim volume offers children and young adults the tools to navigate a parent's serious medical diagnosis. For Angela Parker-Brown, that diagnosis was ALS, Amyotrophic Lateral Sclerosis, a debilitating disease for which there is no cure. From the early signs of the illness to the later stages, Paris and Parker openly talk about their journey with their mother. They discuss their fear and confusion, as well as their sense of unfairness that this should happen to their wonderful mom, who took such good care of them and continued to do so as her condition deteriorated. Guided by a helpful book, Real Kids Talk About ALS, Feeling Normal Sad and Different, and by their mother, Parker and Paris learned about the disease and how to cope with their emotions. Although they are twins, each daughter responded to their new situation differently. Parker delved into research, finding out additional details about ALS, which scared her so much she didn't tell her sister. Angela impressed on her girls how important it is to have the right information, and Parker says how glad she was that their mother didn't try to hide the truth from them. "I liked that our mom trusted us enough to tell us the truth," she said. "It's way scarier when you don't know what's going on, but you know something is going on, but nobody is telling you." As the disease progressed, Paris and Parker learned that they were still able to do normal things like watching TV together, having friends to visit and especially making memories with their mother. Through all the changes in their mother's condition, the girls learned how important it is to acknowledge their feelings, to ask for help, and to always know their mom is still their mom -- and that she rocks!
Download or read book I Love Jesus But I Want to Die written by Sarah J. Robinson and published by WaterBrook. This book was released on 2021-05-11 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: A compassionate, shame-free guide for your darkest days “A one-of-a-kind book . . . to read for yourself or give to a struggling friend or loved one without the fear that depression and suicidal thoughts will be minimized, medicalized or over-spiritualized.”—Kay Warren, cofounder of Saddleback Church What happens when loving Jesus doesn’t cure you of depression, anxiety, or suicidal thoughts? You might be crushed by shame over your mental illness, only to be told by well-meaning Christians to “choose joy” and “pray more.” So you beg God to take away the pain, but nothing eases the ache inside. As darkness lingers and color drains from your world, you’re left wondering if God has abandoned you. You just want a way out. But there’s hope. In I Love Jesus, But I Want to Die, Sarah J. Robinson offers a healthy, practical, and shame-free guide for Christians struggling with mental illness. With unflinching honesty, Sarah shares her story of battling depression and fighting to stay alive despite toxic theology that made her afraid to seek help outside the church. Pairing her own story with scriptural insights, mental health research, and simple practices, Sarah helps you reconnect with the God who is present in our deepest anguish and discover that you are worth everything it takes to get better. Beautifully written and full of hard-won wisdom, I Love Jesus, But I Want to Die offers a path toward a rich, hope-filled life in Christ, even when healing doesn’t look like what you expect.
Download or read book The Presbyterian written by and published by . This book was released on 1900 with total page 1674 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Alone Together written by Henry Berlin and published by University of Toronto Press. This book was released on 2021 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alone Together reinterprets the explosion of sentimental poetry and prose in fifteenth-century Iberia.
Download or read book The Wild West written by Will Wright and published by SAGE. This book was released on 2001-08-09 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: Will Wright explores the continuing popularity of the myth of the Wild West, demonstrating how, as a cultural icon, it speaks deeply to a desire for individualism and liberty. The author discusses the myth through market and social theory.
Download or read book The Journal of Education written by and published by . This book was released on 1918 with total page 804 pages. Available in PDF, EPUB and Kindle. Book excerpt:
