Download or read book A Guide to Living with Ehlers Danlos Syndrome Hypermobility Type written by Isobel Knight and published by Singing Dragon. This book was released on 2014-12-21 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.
Download or read book A Guide to Living with Ehlers Danlos Syndrome Hypermobility Type written by Isobel Knight and published by Singing Dragon. This book was released on 2014-12-21 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.
Download or read book Joint Hypermobility Handbook written by Brad T. Tinkle and published by Wiley-Blackwell. This book was released on 2010 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: "...provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... "...a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." "...thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." "...a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the weatlth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: - Genetics - Medical Genetics - Orthopedics - Family and General Practice Brad T. Tinkle, M.D., Ph.D., is a clinical and clinical molecular geneticist at Cincinnati Children's Hospital Medical Center (CCHMC). He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and achondroplasia among the many.
Download or read book Issues and Management of Joint Hypermobility written by Brad T. Tinkle and published by Left Paw Press, LLC. This book was released on 2008 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: A leading expert in connective tissue disorders presents a primer to encourage dialogue between patients and their health care providers in order to create an individualized treatment plan addressing the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobile Syndrome.
Download or read book A Guide to Living with Hypermobility Syndrome written by Isobel Knight and published by Singing Dragon. This book was released on 2011 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: People with Hypermobility Syndrome (HMS), including Ehlers-Danlos type Hypermobility Syndrome, have a larger range of joint movement than is typical, which can cause pain and fatigue despite an outward appearance of good health. This book is the complete guide to living with and managing HMS, and ultimately enjoying a fulfilling life. The book covers everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis and managing its negative effects. The author, who has HMS herself, looks at how the condition affects children and adolescents, before moving on to explore pain management (including the use of physiotherapy, pilates and a selected range of complementary health therapies), pregnancy, physical and psychological aspects of the condition, and how it widely affects dancers and other performance artists. Wider conditions that encompass Hypermobility Syndrome are also touched upon, including Fibromyalgia and IBS. This book will be a must for anybody who suffers, or suspects they might be suffering from, Hypermobility Syndrome. It will also be of interest to their families and friends, and professionals working with the condition.
Download or read book Zebras of Hope written by Ellen Kelleher and published by CreateSpace. This book was released on 2014-05-04 with total page 50 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book was written for those diagnosed with Ehlers-Danlos Syndrome. It can be difficult to navigate the complexities of this condition, and I hope this book will help to prepare you to take on the challenge of living life after the diagnosis. We are born with EDS, yet finally receiving a diagnosis is devastating to many of us. This book includes some personal stories, so that you will be able to see how others have dealt with the diagnosis and learned to live their lives as they have faced the challenge of EDS and overcame the obstacle of self-pity, to move forward into a new life. Faith is the backbone of this book and I hope that through faith you will also learn to cope with EDS.
Download or read book Living Life to the Fullest with Ehlers Danlos Syndrome written by Pt Kevin Muldowney and published by . This book was released on 2015-07-17 with total page 400 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This book was written to teach people with Ehlers-Danlos Syndrome (EDS) how to systematically progress through an exercise program to allow their muscles to support many joint subluxations commonly associated with this genetic disorder. This will allow people living wih EDS to have less pain throughout their body."--Back cover.
Download or read book Our Stories of Strength written by Kendra Neilsen Myles and published by . This book was released on 2016-10-20 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: This listing is for the 7x10 full-color version of the paperback book. An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos syndrome. EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles founded Sisters Media, LLC with core values of giving back and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Sisters Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are #Stronger2Gether."
Download or read book Joint Hypermobility Handbook 10th Anniversary Edition written by BRAD T. TINKLE and published by . This book was released on 2019-09-21 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: Please note: This is the same book with the same information that was in the original release of the "Joint Hypermobility Handbook." This version has an increased size so as to allow for larger margins - convenient for notetaking while ingesting the information! Book content description: As a follow-up to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: "...provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... "...a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." "...thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." "...a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the wealth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: - Genetics - Medical Genetics - Orthopedics - Family and General Practice. Brad T. Tinkle, M.D., Ph.D., is a clinical geneticist at Peyton Manning Children's Hospital. He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and skeletal dysplasias among the many.
Download or read book Hypermobility written by Pricilla M Hilda and published by Independently Published. This book was released on 2024-05-12 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: If you or someone you know is living with hypermobility, then "HYPERMOBILITY: Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders" is the essential guide you've been searching for. This concise yet comprehensive book unravels the mysteries surrounding hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorders (HSD). From demystifying the diagnostic process to exploring management strategies and daily life tips, this book covers it all. Gain valuable insight into symptoms, treatment options, and how to navigate the complexities of living with hypermobility. Whether you're a patient, caregiver, or healthcare provider, "HYPERMOBILITY" is your go-to resource for understanding and managing hypermobile conditions. A trial will convince you!
Download or read book Breaking the Crisis on Hypermobility Syndrome written by Dr Rundell Meehan and published by Independently Published. This book was released on 2024-02-28 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you or someone you know struggling with the challenges of Hypermobility Syndrome? Look no further - "Breaking the Crisis on Hypermobility Syndrome" is your comprehensive guide to understanding, managing, and thriving with this condition. In this groundbreaking book, we dive deep into the intricacies of Hypermobility Syndrome, from its historical roots to its clinical manifestations and impact on daily life. Through meticulously researched chapters, we explore the basics of joint hypermobility, clinical manifestations, diagnosing criteria, and the crucial role of connective tissue in this syndrome. But "Breaking the Crisis on Hypermobility Syndrome" goes beyond mere understanding - it offers practical strategies for managing this condition effectively. From lifestyle modifications and physical therapy to holistic approaches and mental health considerations, this book equips you with the tools you need to take control of your health and well-being. What sets this book apart is its focus on empowerment and advocacy. Through personal stories, insights, and a call to action for societal inclusivity, "Breaking the Crisis on Hypermobility Syndrome" not only educates but also inspires change and support for those affected by this condition. Don't let Hypermobility Syndrome dictate your life - take charge with the knowledge and strategies found in "Breaking the Crisis on Hypermobility Syndrome." Your journey to empowerment starts now.
Download or read book Ehlers Danlos Syndrome A Multidisciplinary Approach written by J.W.G. Jacobs and published by IOS Press. This book was released on 2018-08-14 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: Generalized hypermobility has been known since ancient times, and a clinical description of Ehlers-Danlos syndrome (EDS) is said to have first been recorded by Hippocrates in 400 BC. Hypermobility syndromes occur frequently, but the wide spectrum of possible symptoms, coupled with a relative lack of awareness and recognition, are the reason that they are frequently not recognized, or remain undiagnosed. This book is an international, multidisciplinary guide to hypermobility syndromes, and EDS in particular. It aims to create better awareness of hypermobility syndromes among health professionals, including medical specialists, and to be a guide to the management of such syndromes for patients and practitioners. It is intended for use in daily clinical practice rather than as a reference book for research or the latest developments, and has been written to be understandable for any healthcare worker or educated patient without compromise to the scientific content. The book is organized as follows: chapters on classifications and genetics are followed by chapters on individual types, organ (system) manifestations and complications, and finally ethics and therapeutic strategies, with an appendix on surgery and the precautions which should attend it. A special effort has been made to take account of the perspective of the patient; two of the editors have EDS. The book will be of interest to patients with hypermobility syndromes and their families, as well as to all those healthcare practitioners who may encounter such syndromes in the course of their work.
Download or read book Hypermobility in Children written by Ruth Peters and published by Independently Published. This book was released on 2023-08-23 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The term "loose joints" has been used to describe the condition in which a person's joint is more flexible than usual. A person with this condition is described as "double jointed" Hypermobility is seen in about 10%-15% of children and it's more prevalent in girls. As parents and caregivers, raising a child with hypermobility could be challenging, especially if you are not equipped with the necessary knowledge. While some degree of flexibility is natural, excessive joint mobility can have a significant impact on your child's physical health and overall development. This book is specially crafted for parents and caregivers raising children living with hypermobility. In this book, you will find: ✓ Causes and risk factors for hypermobility ✓ Various types of hypermobility ✓ Impact of hypermobility on children and how to manage them ✓ Pain management strategies for hypermobile children ✓ Simple muscle strengthening exercises with pictures ✓ Practical tips to help your child cope with the hypermobility syndrome If you are raising a child with hypermobility, this book is a comprehensive guide for effective management. Armed with knowledge, you can become a stronger advocate for your child's needs. You'll be better equipped to communicate with medical professionals, educators, and other caregivers to ensure a supportive environment.
Download or read book Our Stories of Strength written by Kendra Neilsen Myles and published by . This book was released on 2015-05 with total page 222 pages. Available in PDF, EPUB and Kindle. Book excerpt: An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos Syndromes. "These are stories of hope and resilience, of strength under adversity, of self-reliance and new-found sources of support. They offer one core message to all who suffer from the diverse and difficult manifestations of EDS: You are not alone." - Dr. Clair Francomano, MD "Ehlers-Danlos Syndrome is another form of the human body. Just as there are tall people, short people, dark skin colored people, and light skin colored people, each with their own set of medical issues - similarly there are hypermobile people and not so hypermobile people who have different medical issues. Our understanding of EDS has improved, but we still have a lot of work to do. While the medical world works on understanding Ehlers-Danlos Syndrome, people with EDS have provided us with stories of courage and ingenuity. These stories give others and doctors the strength to find solutions." - PRADEEP CHOPRA, MD "As a physical therapist who works with many patients suffering from EDS, I've seen firsthand how isolating and frustrating EDS can be. Along with a more knowledgeable medical field, what these patients need most is an understanding that they are not alone and to be given hope. 'Our Stories of Strength' provides both community and hope and will be just as effective as any medication or exercise." - CHRISTOPHER GNIP, PT, DPT EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles and Mysti Reutlinger founded Our SOS Media, LLC with core values of giving back to non-profit organizations, creating jobs for people living with invisible and chronic illnesses, and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Our SOS Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are stronger together."
Download or read book The Hypermobility Manual written by June Corder and published by . This book was released on 2021-08-11 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues - primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body. People who have Ehlers-Danlos syndrome usually have overly flexible joints and stretchy, fragile skin. This can become a problem if you have a wound that requires stitches, because the skin often isn't strong enough to hold them. Eating a "heart-healthy diet" can be important for people with Ehlers-Danlos syndrome (EDS), a rare disease that causes weakness in the connective tissue that gives structure to different organs and tissues in the body. In EDS, patients' blood vessels may be weaker than normal, meaning that increases in blood pressure can escalate the risk of complications like bruises and tears in blood vessels. This guide will show you how to diagnose as well as how to effectively treat Ehlers-Danlos syndrome You will also be shown food to avoid and eat to end Ehlers-Danlos syndrome GET YOUR COPY TODAY BY SCROLLING UP AND CLICKING BUY NOW TO GET YOUR COPY TODAY
Download or read book The Mystery of Ehlers Danlos Syndrome written by Minnie H Lewis and published by Independently Published. This book was released on 2023-10-26 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Mystery Of Ehlers-Danlos Syndrome: A Comprehensive Guide for Patients, Caregivers, and Healthcare Professionals Ehlers-Danlos syndrome (EDS) is a collection of genetic connective tissue illnesses that predominantly affect your skin, joints, and blood vessel walls. People with EDS may experience a wide range of symptoms, including joint hypermobility, skin fragility, chronic pain, and fatigue. This comprehensive guide provides everything you need to know about EDS, from understanding the causes and diagnosis to managing symptoms and improving quality of life. The book covers: The different types of EDS and their clinical manifestations The latest research on EDS and its treatment Practical strategies for managing EDS on a day-to-day basis The emotional and psychological impact of living with EDS Resources and support networks for patients, families, and healthcare professionals Whether you are newly diagnosed with EDS or looking for ways to better manage your condition, this book is an essential resource. Learn how to navigate the healthcare system, advocate for your needs, and live a fulfilling life with EDS. Who this book is for: This book is intended for people living with hEDS and vEDS, their caregivers, and healthcare professionals. It is written in a clear and concise style, making it accessible to readers of all backgrounds. Benefits of this book: If you are living with EDS, this book will provide you with the knowledge and tools you need to manage your condition effectively. You will learn about the latest research on EDS, as well as practical strategies for coping with symptoms and improving your quality of life. If you are a caregiver of someone with EDS, this book will help you to better understand the condition and how to support your loved one. You will also learn about resources and support networks that are available to help you and your family. If you are a healthcare professional, this book will provide you with a comprehensive overview of EDS, its clinical manifestations, and the latest treatment options. You will also learn about ways to improve the lives of your patients with EDS. Grab your copy today and start living your best life with EDS!
Download or read book Hypermobility Without Tears written by Jeannie Di Bon and published by Independently Published. This book was released on 2019-05-09 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hypermobility Without Tears is a step-by-step guide to help people with hypermobility and Ehler-Danlos Syndrome (EDS) learn how to move pain-free and effortlessly. A movement therapist and hypermobility specialist with over a decade of education, research, client practice and Pilates teaching, Jeannie is an expert in the field of movement. Her own experience of hypermobile EDS, leaves her uniquely qualified to guide people with hypermobility and EDS back to movement and a 'no pain, no strain' lifestyle. Having suffered through years of misdiagnosis and pain, Jeannie truly understands the 'hypermobile body' and her book offers empathetic guidance on how to listen to the body and learn to move without pain. Hypermobility Without Tears is arranged into six sections based on Jeannie's key principles of pain-free movement for the hypermobile body: breath, relaxation, proprioception, stability, balance and posture.
