Download or read book Young People s Perspectives on End of Life written by Sarah Coombs and published by Springer. This book was released on 2017-07-18 with total page 211 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book challenges adult assumptions that young-people do not, cannot and should not think about death. The author uses everyday material objects in order to facilitate a range of conversations, revealing lively engagement with the topic. Cultural resources, such as literature and film, provide a rich variety of perspectives on and responses to death, whilst equally providing an opportunity to challenge many of these representations as unreal and unauthentic. The book contains personal narratives of loss and memories of loved ones, presenting a variety of encounters with significant deaths, the stories being told in an array of vibrant, amusing and emotive ways. Similarly, death is explored from a variety of religious and scientific frameworks, highlighting rich and changing perspectives. Such shifting and exciting vistas are a largely undiscovered part of young-people's lives and situate them in a landscape not often associated with childhood. Young-People's Perspectives on End-of-Life will be of interest to students and scholars across a range of disciplines, including Childhood and Youth Studies, Death Studies, Qualitative Research Methodologies, Sociology, Anthropology and Education.
Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.
Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Download or read book Between Life and Death written by Kathryn Butler and published by Crossway. This book was released on 2019-04-17 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: “To prepare yourself to make difficult medical decisions in a distinctly Christian way, you won’t do better than to read Between Life and Death.” —Tim Challies Modern medical advances save countless lives. But for all their merits, sophisticated technologies have created a daunting new challenge, namely a blurring of the expanse between life and death. The dying process is often hidden behind a complex web of medical terminology, statistics, and ethical decisions, making it difficult for patients and loved ones to know how to approach the end of life in a dignity-affirming, Godhonoring, faith-filled way. This book offers a distinctly Christian guide to end-of-life care. It equips readers by explaining common medical jargon, exploring biblical principles that connect to common medical situations, and offering guidance for making critical decisions. In these pages, readers will find the medical knowledge and scriptural wisdom they need to navigate this painful and confusing process with clarity, peace, and discernment.
Download or read book The Private Worlds of Dying Children written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2020-05-05 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.
Download or read book Psychosocial Aspects of Pediatric Oncology written by Shulamith Kreitler and published by John Wiley & Sons. This book was released on 2004-05-31 with total page 474 pages. Available in PDF, EPUB and Kindle. Book excerpt: Publisher description
Download or read book Perspectives on Palliative Care for Children and Young People written by Rita Pfund and published by CRC Press. This book was released on 2017-11-22 with total page 496 pages. Available in PDF, EPUB and Kindle. Book excerpt: Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.
Download or read book Death Dying and Palliative Care in Children and Young People written by Alison M. Rodriguez and published by Taylor & Francis. This book was released on 2023-04-07 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: Death, Dying and Palliative Care in Children and Young People: Perspectives from Health Psychology examines the issues relevant to children and young people living with serious illness and their families by taking a closer look at the literature and knowledge around the processes of care, health, well-being and development through a health psychology lens. The text introduces readers to the general palliative and holistic care needs of children and young people along with the nuances of caring relationships. The chapters discuss the vulnerabilities encountered in living with serious illness and facing a shortened life prognosis, being at the end of life, and issues relative to the historical concept of the ‘good death’ or ‘dying well’, grief, and bereavement. The author examines how individual and familial experiences can be multi-layered, which can consequently influence perceptions and behaviours. The text therefore offers a deep exploration of the varied ways in which people draw on different resources to navigate their palliative care lived experiences. The book will be beneficial to the students of, and individuals interested in, psychology and nursing along with other health and social care courses. It will further be of interest to individuals interested in gaining more understanding of the experiential aspects of death, dying and palliative care in children and young people from health psychology perspectives.
Download or read book Journey S End written by Victoria Brewster and published by Xlibris Corporation. This book was released on 2017-07-20 with total page 383 pages. Available in PDF, EPUB and Kindle. Book excerpt: In Journey's End, many and varied collaborators write about death, dying, and the end of life. We attempt to describe real life issues and circumstances, and we discuss ways to proactively deal with them. Useful training, resource, and reference material is also included. Death, dying, and end of life are topics many prefer to avoid. This book suggests that we benefit from having frank discussions, living life to the fullest, and planning for our own journey's end, whenever that may be. Everyone who is born eventually will die, whether or not we want to embrace that fact. **** Though few of us know when we will die, we and our family or friends can be well prepared. We can have discussions and create written directives for what we want, if we are unable to verbally state them ourselves. Do we want life support? Do we want interventions that may or may not have any benefit to our quality of life if we are in the hospital or in an accident? Do we want to be involved in planning our funeral, memorial, or celebration of life? The submissions within are from professionals in the field of death and bereavement support and from laypeople, all of whom share stories of dying family members, friends, clients, and patients. Julie and Victoria, the coauthors of this book, also share stories from their personal and professional experiences. Journey's End is a broadly comprehensive book about death, dying, and the end of life.
Download or read book With the End in Mind written by Kathryn Mannix and published by Little, Brown Spark. This book was released on 2018-01-16 with total page 302 pages. Available in PDF, EPUB and Kindle. Book excerpt: For readers of Atul Gawande and Paul Kalanithi, a palliative care doctor's breathtaking stories from 30 years spent caring for the dying. Modern medical technology is allowing us to live longer and fuller lives than ever before. And for the most part, that is good news. But with changes in the way we understand medicine come changes in the way we understand death. Once a familiar, peaceful, and gentle -- if sorrowful -- transition, death has come to be something from which we shield our eyes, as we prefer to fight desperately against it rather than accept its inevitability. Dr. Kathryn Mannix has studied and practiced palliative care for thirty years. In With the End in Mind , she shares beautifully crafted stories from a lifetime of caring for the dying, and makes a compelling case for the therapeutic power of approaching death not with trepidation, but with openness, clarity, and understanding. Weaving the details of her own experiences as a caregiver through stories of her patients, their families, and their distinctive lives, Dr. Mannix reacquaints us with the universal, but deeply personal, process of dying. With insightful meditations on life, death, and the space between them, With the End in Mind describes the possibility of meeting death gently, with forethought and preparation, and shows the unexpected beauty, dignity, and profound humanity of life coming to an end.
Download or read book Nursing Adolescents and Young Adults with Cancer written by Pia Riis Olsen and published by Springer. This book was released on 2018-05-30 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book describes and explains how caring for adolescents and young adults with cancer (AYA) has developed into what is now a recognized and distinct field of nursing practice. It captures current innovative nursing practices and interventions which have developed over the past 25 years across the globe and are supported by research and evidence achieved in many European and international oncology settings. By outlining and describing educational needs of the AYA cancer nursing profession, this book supports its education and professional development for the nursing profession and serves to develop and disseminate nurses’ competencies worldwide. During the last decade, AYA have gained increased attention in healthcare. Today, it is recognized that AYA with cancer have distinct needs that are different to both children and older adults. Young people are in a unique developmental and transitional phase of their lives; thus, their treatment, perspectives and experiences have been addressed in research and the body of knowledge is growing accordingly. Some books are available that describe AYA cancer care, service delivery and aspects of age appropriate care but this volume will be the first to focus on how nurses contribute to AYA cancer care in practice. It will appeal to the AYA clinical nurses in cancer care, as well as to multidisciplinary healthcare professionals and healthcare professionals who support formal nursing education programmes, training and development in practice.
Download or read book Perspectives from a Psych Oncology Team Working with Teenagers and Young Adults with Cancer written by Jane Elfer and published by Taylor & Francis. This book was released on 2023-03-31 with total page 186 pages. Available in PDF, EPUB and Kindle. Book excerpt: Exploring the work of a Psych-Oncology Team in an inpatient and outpatient setting, this powerful, interesting, and engaging book is about teenagers and young adults diagnosed with cancer. As part of the few multidisciplinary teams of this type in the United Kingdom, the authors offer helpful insights into supporting young people and their families as they navigate this complex and devastating disease, writing on key areas such as trauma, the effects of early childhood cancer in adolescence and beyond, the social and cultural effects of cancer treatment, hope, and hopelessness, and questions of mortality. Each chapter contains a mixture of clinical reflections and patient vignettes, along with clear guidance about how to support patients and their families both during and after treatment, and at the point of death too. With a compassionate approach to understanding the challenges for patients, their families, and clinicians alike, this is a book for nurses, doctors, occupational therapists, and physiotherapists, for parents and carers, and for young people who find themselves in this position and who can easily feel as though they are alone with their overwhelming feelings.
Download or read book Essentials of Nursing Children and Young People written by Jayne Price and published by SAGE Publications Limited. This book was released on 2023-12-15 with total page 660 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a one-stop shop for the vast majority of children and young people′s nursing students. The editors for the new edition are Jayne Price from Kingston University, Orla McAlinden from Queen′s University Belfast, and Zoë Veal from UWE Bristol, all with vast experience in nursing children and young people. A high level of research has gone into developing and refining the key features for this edition, such as updated voices and implementing new NMC standards. This book maps to the content of the majority of pre-registration child nursing programmes, and by adopting a 5 part structure it clearly covers the core parts of training and practice that you will need: Part 1): Principles of nursing children and young people Part 2): Wellbeing and development Part 3): Caring for children and young people with acute health care needs and injury Part 4): Caring for children and young people with complex and high dependency needs Part 5): Being a professional children and young people′s nurse
Download or read book Oxford Textbook of Palliative Nursing written by Betty Rolling Ferrell and published by Oxford University Press. This book was released on 2019-02-15 with total page 935 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Oxford Textbook of Palliative Nursing remains the most comprehensive treatise on the art and science of palliative care nursing available. Dr. Betty Rolling Ferrell and Dr. Judith A. Paice have invited 162 nursing experts to contribute 76 chapters addressing the physical, psychological, social, and spiritual needs pertinent to the successful palliative care team. Organized within 7 Sections, this new edition covers the gamut of principles of care: from the time of initial diagnosis of a serious illness to the end of a patient's life and beyond. This fifth edition features several new chapters, including chapters on advance care planning, organ donation, self-care, global palliative care, and the ethos of palliative nursing. Each chapter is rich with tables and figures, case examples for improved learning, and a strong evidence-based practice to support the highest quality of care. The book offers a valuable and practical resource for students and clinicians across all settings of care. The content is relevant for specialty hospice agencies and palliative care programs, as well as generalist knowledge for schools of nursing, oncology, critical care, and pediatric. Developed with the intention of emphasizing the need to extend palliative care beyond the specialty to be integrated in all settings and by all clinicians caring for the seriously ill, this new edition will continue to serve as the cornerstone of palliative care education.
Download or read book Essential Nursing Care for Children and Young People written by Chris Thurston and published by Routledge. This book was released on 2014-03-14 with total page 483 pages. Available in PDF, EPUB and Kindle. Book excerpt: Essential Nursing Care for Children and Young People is the definitive guide for all nursing and healthcare students and professionals caring for children and young people. Designed to meet the 2010 NMC competency standards for pre-registration nurses, the textbook supports you through the process of caring for children and young people with varied needs and conditions across all healthcare settings. A practical, patient-centred approach is taken throughout, with the ‘voices’ of children, their families and their carers used to tie theoretical knowledge to the real experience of providing care. The inclusion of the latest research and health and social care policies ensures that you are fully in line with the latest clinical practice, whilst the book’s activities and exercises allow you to regularly check your understanding and develop confidence during your journey from student to nursing professional. Main features: Course-Focused Approach – pedagogy and content designed specifically for all three years of the child nursing degree programme. Contemporary Content – research note features and policy integrated throughout to give you instant access to the latest evidence-based practice. Illustrated Throughout – this highly accessible text regularly uses pictures and diagrams to highlight key issues. Voices – include authentic experiences of children, young people, parents, carers and professionals to help develop a patient-focused attitude to care. Pertinent A&P – includes coverage of all relevant anatomy and physiology for child and young person nursing courses. Practice Guidelines – provide practical guidance on everyday procedures for your quick reference. Activities and Answers – allow you to check your knowledge and build confidence. Specialist Authors – each chapter is written by leading experts in each area. Essential Nursing Care for Children and Young People is the ideal main textbook for all undergraduate child and young person nursing students, as well as professionals wanting to ensure they are using the latest practice. This text is also relevant to any student or professional involved in the health and social care of children and young adults.
Download or read book Oxford Textbook of Public Health Palliative Care written by Julian Abel and published by Oxford University Press. This book was released on 2022-03-31 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: Death, dying, loss, and care giving are not just medical issues, but societal ones. Palliative care has become increasingly professionalised, focused around symptom science. With this emphasis on minimizing the harms of physical, psychological, and spiritual stress, there has been a loss of how cultures and communities look after their dying, with the wider social experience of death often sidelined in the professionalisation and medicalisation of care. However, the people we know and love in the places we know and love make up what matters most for those undergoing the experiences of death, loss, and care giving. Over the last 25 years the theory, practice, research evidence base, and clinical applications have developed, generating widespread adoption of the principles of public health approaches to palliative care. The essential principles of prevention, harm reduction, early intervention, and health and wellbeing promotion can be applied to the universal experience of end of life, irrespective of disease or diagnosis. Compassionate communities have become a routine part of the strategy and service development in palliative care, both within the UK and internationally. The Oxford Textbook of Public Health Palliative Care provides a reframing of palliative care, bringing together the full scope of theory, practice, and evidence into one volume. Written by international leaders in the field, it provides the first truly comprehensive and authoritative textbook on the subject that will help to further inform developments in this growing specialty.
Download or read book A Textbook of Children s and Young People s Nursing E Book written by Edward Alan Glasper and published by Elsevier Health Sciences. This book was released on 2021-03-19 with total page 738 pages. Available in PDF, EPUB and Kindle. Book excerpt: This innovative textbook provides a concise and accessible guide for undergraduate students specializing in children and young people’s nursing in the UK and further afield. Each chapter has been fully updated to reflect current knowledge and practice. The wide range of topics covered includes all the essentials, such as contemporary child health policy and legal issues; knowledge and skills for practice; and caring for children with special needs. Students will learn how to recognize the deteriorating child, use procedural play and distraction, and consider the mental health of children and young people. A Textbook of Children's and Young People's Nursing is written by multidisciplinary experts, rooted in child-centred healthcare within a family context, and draws upon best contemporary practice. It is an invaluable resource that will help nursing students provide effective, evidence-based care. Key points, summary boxes and clearly defined aims, objectives and learning outcomes to support learning Conversation boxes to enliven the text Patient scenarios to relate theory to practice New chapters on skin health and the use of therapeutic play Suggestions for seminar discussion topics to help teachers Resource lists and online resources for further study or research Online slides to complement chapters within book
