Download or read book Work and Unseen Chronic Illness written by Margaret Vickers and published by Routledge. This book was released on 2002-09-09 with total page 303 pages. Available in PDF, EPUB and Kindle. Book excerpt: In an increasingly ageing society, medicine, hygiene and nutrition have reduced the impact of acute and life-threatening illnesses. However, whilst we are living longer, the chance of developing or contracting a chronic illness is increasing. There are a growing number of working adults affected by chronic health conditions that may be largely invisible to those around them. In this book, the author explores the 'silent' problem of unseen illness at work. The author employs qualitative research methods to challenge the idea that if you look well, you must be well. While demonstrating the effectiveness of this controversial methodology, she uses it to expose the voices of a group of marginalized workplace actors who have hitherto remained unheard. Stories from people with cancer, multiple sclerosis, endometriosis and other illnesses are interspersed with the author's reflections about life and work with illness that others cannot see. These stories reflect a passage of trauma and marginalization, but also foreground themes of survival.
Download or read book Invisible Illness written by Megan A. Arroll and published by SPCK. This book was released on 2014-09-18 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Few books on invisible illness are written by psychologists. Based on work by the Chronic Illness Research Team (CIRT) at the University of East London, this expert, accessible book encourages people actively to manage their illness using the techniques shown. • Based on 20 years of research • Helps those often 'written off' by the medical profession • Pioneering text on Mal de Debarquement Syndrome (MdDS) • Authors specialist in chronic illness
Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by New Harbinger Publications. This book was released on 2018-03 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.
Download or read book You Don t Look Sick written by Steven S. Overman, MD and published by Demos Medical Publishing. This book was released on 2012-12-17 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: You Don't Look Sick chronicles one personís true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness: Getting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.
Download or read book You Don t Look Sick written by Joy H. Selak and published by Demos Medical Publishing. This book was released on 2013 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.
Download or read book You Don t LOOK Sick written by Joy Selak and published by CRC Press. This book was released on 2005-03-08 with total page 166 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Coming to terms with this reality was a lot like accepting the death of a loved one.” You Don’t LOOK Sick!: Living Well with Invisible Chronic Illness chronicles a patient’s true-life accounts and her physician’s compassionate commentary as they take a journey through the three stages of chronic illness—Getting Sick, Being Sick, and Living Well. This resource helps you focus on building a meaningful life that contains illness as opposed to a life of frustration and fear. Designed for patients in at all stages of the chronic illness journey, this book will also be illuminating for caregivers and loved ones. From the book: “I’ve learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones.” You Don’t LOOK Sick! addresses practical aspects of chronic illness, such as: hiring a doctor managing chronic pain coping with grief and the loss of function winning battles with health and disability insurers countering the social bias against the chronically ill recognizing the limitations of chronics illness care and charting a path for change In You Don’t LOOK Sick!: Living Well with Invisible Chronic Illness, you will find stories, dialogue, humor, examples, and analogy of the three stages to illustrate a challenging but navigable journey. You will also find suggested reading materials for learning to live well, medical Internet resources, illness-specific Web sites, names and addresses of national associations, and a bibliography of medical books by topic. The short chapters and straightforward language of the book will be helpful for readers who are weary and dispirited. From the authors: “I've learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones.” —Joy H. Selak “My goal is to work with patients so that, like world class athletes, they can perform at their peak capacity. My job is more than giving answers; I must educate, counsel and encourage patients to set goals and implement a personal care program as well as take appropriate medications.” —Dr. Steven Overman The authors are experienced public speakers. If you wish to inquire about their availability to speak to patients or health care professionals, please contact Joy Selak by email at [email protected].
Download or read book Young Sick and Invisible written by Ania Bula and published by Pitchstone Publishing (US&CA). This book was released on 2016-04-15 with total page 235 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing—or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even &“faith healed.&” With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness—and to help those who might similarly suffer feel less alone, so that they too might start living again.
Download or read book Show Me Where it Hurts written by Kylie Maslen and published by Text Publishing. This book was released on 2020-09-01 with total page 299 pages. Available in PDF, EPUB and Kindle. Book excerpt: Personal essay meets pop-culture critique in this unflinchingly honest collection about chronic illness and misogyny in medicine, by Adelaide writer Kylie Maslen
Download or read book The Invisible Kingdom written by Meghan O'Rourke and published by Penguin. This book was released on 2023-02-28 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
Download or read book Working and Caring for a Child with Chronic Illness written by M. Vickers and published by Springer. This book was released on 2006-03-15 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Using an innovative, action research approach, Vickers explores the lives of women who work full time while caring for a child with significant chronic illness or disability. She demonstrates that such women can be disconnected from those around them, unsupported and overwhelmed with responsibility at home and work.
Download or read book Sick And Tired Of Feeling Sick And Tired written by Paul J Donoghue and published by W. W. Norton & Company. This book was released on 2000-10-10 with total page 310 pages. Available in PDF, EPUB and Kindle. Book excerpt: Invisible chronic illness (ICI) can manifest itself in chronic fatigue, chronic pain, and many other miseries that are often perceived and dismissed negatively, even by doctors. This book offers "an invaluable source of help and comfort" (Katharina Dalton, M.D.) to those who suffer from ICI. "Today" feature.
Download or read book Living with Chronic Invisible Illnesses You Are Not Alone written by Carrie Allen and published by Carrie Allen. This book was released on 2022-11-05 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with Chronic, Invisible, Illnesses - You Are Not Alone is a glimpse into the life of the author, Carrie A. Allen, since she was diagnosed with three different illnesses. Ms. Allen goes into detail of her illnesses, Mast Cell Activation Disorder (MSAD), Ehlers Danlos Syndrome (EDS); and Postural Orthostatic Tachycardia Syndrome (POTS). However, before doing so she has provided the meaning to different medical terms that are used in the world of illnesses. Ms. Allen also goes into detail of living her daily life for an entire month so readers can see how the illnesses effect everything that she does and how the limit her on a regular basis. She also has given us a look into the life of her daughter who has also been diagnosed with several Chronic, Invisible, Illnesses. The authors purpose with this book is to let those that are also suffering with invisible illness know that they are not alone in their journey. She also hopes that normies will read this book and get a better understanding of what individuals with invisible illnesses go through. Remember - YOU ARE NOT ALONE.
Download or read book Living Human written by Flic Manning and published by Simon and Schuster. This book was released on 2021-09-14 with total page 158 pages. Available in PDF, EPUB and Kindle. Book excerpt: My deepest wish is that reading this book will inspire you to take a look at your human experience and see it for the beautiful, painful blessing that it is. Whether you face illness and pain or you want to build a scalable business, you have the power to do it no matter what life throws at you by doing it your perfectly imperfect way, with your perfectly imperfect body and mind. Flic Manning has lived a life that is anything but traditional. With the odds stacked against her, facing incurable invisible diseases and mental health issues, she has walked the path less traveled to embrace the power she believes we all have inside no matter what complexities we face. In this wellness memoir, Flic takes us through her deeply personal journey, from struggling with pain and illness as a dancer to finding her voice and stepping into her most human, raw, and powerful self as an entrepreneur and wellness advocate. Her story contains nuggets of wellness and mindset wisdom wrapped up in lessons from her journey that are sometimes dark, other times deeply funny, and always inspiring. You will be uplifted, but you will also discover the sustainable wellness steps you can take to make your life a profound and healthy one
Download or read book Unseen written by Jacinta Parsons and published by Affirm Press. This book was released on 2020-09-29 with total page 252 pages. Available in PDF, EPUB and Kindle. Book excerpt: Jacinta Parsons was in her twenties when she first began to feel unwell - the kind of unwell that didn't go away. Doctors couldn't explain why, and Jacinta wondered if it might be in her head. But she could barely function, was frequently unable to eat or get out of bed for days, and gradually turned into a shadow of herself. Eventually she got a diagnosis, but knowing she had Crohn's disease wouldn't stop her life from spiralling into a big mess of doctors, hospitals and medical disasters. With chronic illness her constant companion, she had to learn how to function in a world set up for the well. What's most extraordinary about Jacinta's story is how common it is. Nearly half of Australians live with a chronic illness, but most of these conditions are not obvious, often endured in secrecy and little understood. They are unseen. With compelling candour, Jacinta trains a microscope on the unique challenges of living with an invisible condition. She lays bare the struggles with shame, loss of identity, the threat of mortality, and the profoundly complex relationships between the chronically ill and their own bodies, as well as with those around them. It's a story of trying to fix an unfixable illness, getting beaten down then clawing back up, and how that experience can shape a life.
Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by . This book was released on 2018-09-20 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this much-needed guide, popular blogger Ilana Jacqueline writes poignantly about her experience living with two debilitating, yet invisible autoimmune diseases, and offers sound advice and practical tips for living with a chronic illness or disability that others can't see. Readers will learn to deal with doctors who don't understand, are of little or no help, or outright dismiss their condition. They will also learn how to navigate friendships, family, relationships, work, and school; overcome body image and self-esteem issues; become their own best advocate; create a support system; and live an engaged and values-driven life.
Download or read book Invisible written by Michele Lent Hirsch and published by Beacon Press. This book was released on 2018-02-27 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: This vital exploration of the ways society overlooks—and fails—young women with disabilities and chronic illnesses is an “essential read for . . . those wondering how to be a better support system” (Library Journal). Michele Lent Hirsch knew she couldn’t be the only woman who has dealt with serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population—and now, with long COVID emerging, one that continues to grow. Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system—a system where young women, especially women of color and trans women, are invisible. And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Lent Hirsch weaves her own experiences together with stories from other women, perspectives from sociologists on structural inequality and inequity, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.
Download or read book Finding Joy with an Invisible Chronic Illness written by Christopher Martin and published by Martin Family Bookstore. This book was released on 2021-11-14 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Christopher does a brilliant job of explaining the tools for managing the social, spiritual, mental, and physical aspects of chronic illness. I loved that the book contains straightforward tips for patients, their caregivers, and loved ones. Every chapter includes useful advice." —Edith Wairimu, 5-Star Readers' Favorite Book Review Live your best life — even when your physical health crumbles. Finding Joy presents a comprehensive, practical guide for living your best life with chronic illness. This psychology self-help book integrates personal and professional insights to give you tools for handling various aspects of living with a chronic illness. There is also a chapter specifically for the loved ones and caregivers of the chronically ill. While this book is designed for anyone with a chronic illness, the spiritual content early in the book suggests the value of sticking to your faith and offers several Bible references. Ultimately, Finding Joy is an A-to-Z guide that critiques the literature and empowers the reader with: Positive psychology techniques. These range from self-compassion, positive reappraisal, positive self-talk, and pacing to positive thoughts, emotions, and behaviors such as optimism, humor, and volunteer work. Stress-reduction methods. These include tools such as mindfulness, breathing exercises, simplification, and (therapeutic) journaling. Proven therapies. Examples include cognitive behavior therapy (CBT), dialectical behavior therapy (DBT), and acceptance and commitment therapy (ACT). Effective communication strategies and their impact on relationships and even the ability to access quality healthcare. Numerous tips to both access and optimize your your experience with high quality healthcare. Important considerations for loved ones of the chronically ill, so they too can know how to best support their loved one and take care of themselves in the process. Lastly, consider using the workbook by Oak Tree Reading on Amazon to enhance your reading experience. This could be useful for solo readers or support groups. “This book offers great value for anyone with chronic illness as it contains clear, practical, and actionable insights and steps that can be naturally implemented into daily life. An engaging, easy, and helpful read. Highly recommended.” —Alla Bogdanova, MSc, MIM, co-founder and past president of the International Empty Nose Syndrome Association "Having known Chris for decades, I am beyond fortunate to have been privy to such a work that serves others by providing a timely message, a powerhouse of practical strategies, and invaluable guidance.” —Mark Montgomery, PhD, chief diversity officer, SUNY Polytechnic Institute, and founder and chair of Joseph’s Experience, Inc., an organization that assists children impacted by cancer and/or leukemia “I have had various invisible chronic illnesses for nearly forty years, but I was still able to find suggestions that will help me. So many of the things I have gone through are reflected in this book. I highly recommend this comprehensive book.” —Sue on Amazon.ca
