Download or read book Where Is Jack Memoirs of an Alzheimer s Caregiver written by Sarah Burakoff and published by Lulu.com. This book was released on 2006-11-01 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: At age 80, Sarah looked forward to enjoying the "golden years" with Jack, her husband of 40 years. Unfortunately this was not to be. After episodes of surprise, disbelief, denial and despair, Sarah finally had to accept the devastating truth; Jack had Alzheimer's disease and life would never be the same again. Now began her challenging task as Jack's caregiver. With the help of family, friends and a sympathetic social worker, she tries to make a life for herself while getting the best possible care for Jack. This loving and courageous woman recounts her experiences, heartbroken to see Jack slowly losing contact with the world around him.The episodes she describes are illuminating, sometimes sad, sometimes amusing but always difficult and frustrating. They were a challenge to her resourcefulness in working out ways to care for Jack and at the same time lead a life of her own. She could no longer share with her beloved Jack, the wonderful memories of days gone by.
Download or read book Alzheimer s Disease Memoirs written by Pramod K Nayar and published by Springer Nature. This book was released on 2021-12-06 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book examines writings by people living with Alzheimer's Disease and their caregivers. Its focus areas include the construction of the self in the face of diminishing linguistic and cognitive abilities, the stigmatization of ageing, the various narrative strategies that these texts (often collaborative) employ, the health activism and advocacy generated via a 'biosociality,' and the ethics of care. It examines the 'disease writing' genre about a condition that ravages the ability to use language. It serves as a "literary" examination of the work done in this area through a critical reading of the memoirs of those with AD and caregivers and a healthy dose of literary theory. The book is a valuable resource for those interested in literary and critical theory and researchers in the field of ageing/dementia studies.
Download or read book The Caregiver written by Aaron Alterra and published by Cornell University Press. This book was released on 2018-10-18 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: Aaron and Stella Alterra had been married for more than sixty years when Aaron began to notice puzzling lapses in his wife's memory. Innocuous at first, they became more severe and more alarming. After a series of appointments and tests, the Alterras were informed that Stella was one of the more than 4.5 million Americans with Alzheimer's disease. Combining medical research on the disease and often-painful anecdotes of memory loss, deteriorating motor functions, personality shifts, support-group and daycare experiences, and drug trials, Alterra chronicles his transformation from husband to caregiver after his wife's diagnosis. More than a chronology of one family's experience of Alzheimer's disease, The Caregiver is an intelligent, beautifully reflective testimony to how family members turned caregivers become the ultimate advocates for their loved ones in the face of a disease with no cure.
Download or read book An Eight Year Goodbye written by Maryanne V. Scott and published by Page Publishing Inc. This book was released on 2021-01-27 with total page 222 pages. Available in PDF, EPUB and Kindle. Book excerpt: Samuel Valenti was an unpretentious, humble man who required very little in life to make him happy. He grew up during the Great Depression, working on the family farm in New Jersey, growing tomatoes to sell to Campbell Soup Company. Seeing the Hindenburg fly over his farm, receiving visits to the farm from his cousin, Anne Bancroft, and serving his country in World War II were a few of the highlights of his young adult life that he spoke of often. However, marrying the love of his life and having his daughter and son were the basis of what sustained him every day as he lived the American dream of working hard and prospering. Life had always been wonderful for Sam until later in his life when he started to lose his precious memories and abilities to Alzheimer's disease. His slow cognitive decline lasted for eight long years with his children by his side, helping him to navigate through the stages of the disease. An Eight-Year Goodbye is the story of Sam's journey through this debilitating illness with some helpful suggestions from the author on how to handle some of the heartbreaking challenges that Alzheimer's presents. It is also a story of love and compassion as Sam's children watch their father go from the vital, independent, vibrant man that they grew up with to the feeble, confused man who was no longer able to communicate with his family. This story will touch the heart of anyone whose loved one has experienced or is experiencing the long, slow deterioration that Alzheimer's disease brings.
Download or read book Memoirs of a Caregiver written by Cynthia Young and published by iUniverse. This book was released on 2013-01-31 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimers is a memory-robbing, debilitating disease that affects millions of Americans. For most families, having just one member afflicted with Alzheimers disease can be devastating. In her poignant memoir, Cynthia Young shares her story of love and devotion as she learns how to care for four family members stricken with Alzheimers disease over a ten-year period. Young narrates a journey filled with laughter, challenges, and sorrow as she commutes from California to Michigan to care for her mother, two aunts, and a cousin. She provides insight into how the disease progresses and gradually destroys the memory and abilities to learn, reason, make sound judgments, communicate, and carry out daily activities. While sharing her personal story and detailing how she overcame each obstacle along the way, Young also teaches other caregivers how to use valuable resources, navigate the court system as a guardian and conservator, handle the Alzheimers personality, and search for an assisted-living facility. Memoirs of a Caregiver shares one womans inspiring story of unconditional love and courage with the hope that it will encourage and empower other caregivers to be diligent, strong, and, most importantly, to never give up. A portion of the proceeds from this book will be directed to the Alzheimers Association.
Download or read book Mashed Potatoes in My Salad written by Eunice L Sykes and published by Xlibris Corporation. This book was released on 2014-09-19 with total page 124 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mashed Potatoes in My Salad is foremost a love story. It is a poignant tale of a woman, who, after several unsuccessful, toxic and abusive relationships, finally finds the man of her dreams under unlikely, risky and daring circumstances. What she had not anticipated, though, was being a caregiver time and time again as he endures serious illnesses -- including a devastating Alzheimer's diagnosis. This is her complex, multilayered story of ambition, drive, romance, endurance, resilience, loyalty, survival, love, and joy. Her lessons learned will inspire and motivate you to be all that you can be and to live your best life better.
Download or read book We Keep Our Potato Chips in the Refrigerator written by Cox Patricia Cox and published by iUniverse. This book was released on 2010 with total page 111 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's disease affects millions worldwide, and this figure is compounded by all the involved caregivers, relatives, and friends of those who are afflicted. This touching memoir is about one man, Fred Thompson, who fell victim to this disease, and the reflections of his wife and caregiver, Patricia Cox who learned from daily experience how dilibilating this cruel malady can be. This honest exposure of successes and failures is intended to convey there is no set formula for dealing with dementia, but there is hope available for those who think they are alone in this quest. These candid stories are filled with some humor and profound sadness; some successes and many failures, but with great love and respect for the man Patricia married and the man he eventually became.
Download or read book Love in the Land of Dementia written by Deborah Shouse and published by Central Recovery Press, LLC. This book was released on 2013-11-19 with total page 201 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caregiver Shouse celebrates spiritual and practical lessons learned on her unscripted yet rewarding journey with her mother through Alzheimer's disease.
Download or read book Forgetting the Memories written by Steinberg and published by AuthorHouse. This book was released on 2010 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's is a devastating disease, robbing its victims of so much of themselves before the end. For caregivers facing this disease, a diagnosis of Alzheimer's disease can sound like the ultimate tragedy, the disease that will rob us of our loved one by inches. It doesn't have to be. While Alzheimer's and related dementias are serious and not easily understood diseases, a new guide can help families negotiate the difficult scientific, emotional, and practical issues of dealing with the disease. In a moving and easy to read format, Dr. Steinberg has laid out a true caregiver's guide to dealing with Alzheimer's disease, from the first signs to the final stages. Incorporating science, real-life case studies from his practice and from his extensive experience as a nationally recognized seminar speaker, as well as from his personal journey coping with his mother's illness, Dr. Steinberg leads the reader through a learning and healing process. In a candid and personal sharing of his experience, Dr. Steinberg helps the reader clearly understand what to expect, when to ask for help, how to cope with the changes and the inevitable pressures within the family, and how to continue to love as a loved one's disease threatens family stability and well-being. With his profound knowledge of the disease, its treatment and manifestations, and his great love and tenderness as the son of an Alzheimer's patient, Dr. Steinberg has created a truly memorable work.
Download or read book My Bert Has Alzheimer s written by Paula de Ronde and published by FriesenPress. This book was released on 2022-01-26 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: My Bert Has Alzheimer’s is an intimate, detailed account of a wife’s experience with her husband’s dementia. As Paula de Ronde quickly learned, life for two people — patient and caregiver - is thrown into disarray with a diagnosis of Alzheimer’s. Ambushed by the disease, it is a journey into the unknown, but one that features an abundance of love, hope, and support. There is no shying away from the horror of the disease, but its awfulness doesn’t strip from the experience of the powerful companions that accompany those enduring it — namely, love, laughter, and community. Thrust into the caregiver role for her other half who used to be her equal and best buddy, making all kinds of decisions together, Paula now enters a new world of uncertainty and chaos. There is no roadmap. Instead she learns that the disease is as individual as each person who contracts it. Here is a caregiver’s poignant and revealing story of the mental, physical, and emotional stress of caring for the love of her life, her Bert, as he gives over to his neurological disease. The caregiver’s life is far from easy. Yet fueled by love, which never wanes, each step of the way is handled with grace and the help of care partners. Alzheimer’s steals memories but also gives teaching moments. As the disease progresses Paula learns to be more tolerant, patient, compassionate and accepting of human frailties. Alzheimer’s releases an inner strength. She meets each challenge, finds a solution to each issue that arises, then passes on her new-found knowledge to others. She learns the value of having a support group. Alzheimer’s cements the old adage that laughter is the best medicine. Together she and her Bert become stronger than the disease. With humour, compassion, wisdom, and deep feeling, she describes this slice of their conjoined lives. More than a record of the impact of a disease this is, at its essence, also a love story.
Download or read book The Sea is Wide written by Rundy Purdy and published by . This book was released on 2015-06-03 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Rundy Purdy was twenty-four he began caring for his grandfather who was sick with Alzheimer's. This started a three year battle against inevitable decline, a journey across confused days and long nights. With compassion, hope, and a strong dose of gritty realism, The Sea is Wide: A Memoir of Caregiving tells the story of how a grandfather and his grandson crossed the wide sea of Alzheimer's. It is a tale of losses, but even more of things found in spite of what is lost. It is about giving bedtime stories, hugs, and a lot of coffee. It is a story of laughter even in the presence of sadness. The sea of Alzheimer's is wide, but it can be crossed. In writing that is by turns uplifting and poignant, Rundy shares his journey of perseverance and love. "I laughed and cried my way through [...] it echoed things I went through with my mother and her dementia." - Alice Janice, Caregiver
Download or read book The Work of Life Writing written by G. Thomas Couser and published by Routledge. This book was released on 2021-04-13 with total page 206 pages. Available in PDF, EPUB and Kindle. Book excerpt: Life writing, in its various forms, does work that other forms of expression do not; it bears on the world in a way distinct from imaginative genres like fiction, drama, and poetry; it acts in and on history in significant ways. Memoirs of illness and disability often seek to depathologize the conditions that they recount. Memoirs of parents by their children extend or alter relations forged initially face to face in the home. At a time when memoir and other forms of life writing are being produced and consumed in unprecedented numbers, this book reminds readers that memoir is not mainly a "literary" genre or mere entertainment. Similarly, letters are not merely epiphenomena of our "real lives." Correspondence does not just serve to communicate; it enacts and sustains human relationships. Memoir matters, and there’s life in letters. All life writing arises of our daily lives and has distinctive impacts on them and the culture in which we live.
Download or read book Alzheimer S Through Tears and Laughter written by Edwina Marino and published by Author House. This book was released on 2013-08-15 with total page 129 pages. Available in PDF, EPUB and Kindle. Book excerpt: Today, there is a disease afflicting many people and arousing fear in those whose ages can start as young as forty years, and moving on through the sixties, seventy and eighty year old groups. It is known as Alzheimers Disease. This book is about sharing this experience with my sister-in-law who came down with this disease in her later years. She was eighty-four at the time and lived to be ninety four years old. I was encouraged to take notes and write about this by a doctor who told me I would be in a position to see its development every day for as long as she remained with me. He said, Take lots of notes. You will be able to observe so much more than I, because I dont spend that much time with a patient, and you will be with her day and night and observe the changes as they happen and what triggers her behavior. Good Luck! With that I started out on my ten year trip through the ups and downs, the good days and bad days of Alzheimers disease. Our days were laced with pain and humor, but I was determined to see it through, laughing a little and crying a lot, hoping the scenery would change, but finally surrendering to this fate that had come upon us. Our mantra became Lets laugh because if we dont we shall most certainly cry! I chose to care for her because I wanted her to be surrounded by love, music and laughter, in a place where we could laugh with her and cry with her and never be alone. Im glad I did.
Download or read book The Language of Time written by Ashley Bendiksen and published by . This book was released on 2020-06-12 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: "My mother developed Alzheimer's at just 48. It didn't make any sense. Worse, there was no cure and no timeline. I became a caregiver overnight, endlessly aware of a heartbreaking new reality - tomorrow was no longer guaranteed. I needed to somehow slow down time, to find answers, to create a miracle (while still managing my own life as a woman in my 20s). At the very least, I had to do my best to capture it all before time ran out - archiving memories and learning all I could about courage, how to live, and how to love." Combining journal entries with transcribed conversations and emotive storytelling, The Language of Time is a real and honest expression of one daughter's sudden and unplanned journey as caregiver. It's a story of hope, strength, courage, and the unbreakable bond between a daughter and her mom. It's a story of womanhood, without the guidance of a mother. And it's a poignant reminder of the ever-passing moments of time with those we love. The Language of Time is a breakthrough memoir that will be appreciated by those who have been touched by caregiving, Alzheimer's/dementia, terminal illness, hospice, or loss of a parent. It shines a light on the unique circumstances of early onset Alzheimer's, and fulfilling the role of caregiver as a young adult. It's also filled with stories of facing life's challenges, love, family, gratitude, personal growth, and self-discovery.
Download or read book The Art of Caregiving in Fiction Film and Memoir written by Jeffrey Berman and published by Bloomsbury Publishing. This book was released on 2020-10-29 with total page 295 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bringing together the human story of care with its representation in film, fiction and memoir, this book combines an analysis of care narratives to inform and inspire ideas about this major role in life. Alongside analysis of narratives drawn from literature and film, the author sensitively interweaves the story of his wife's illness and care to illuminate perspectives on dealing with human decline. Examining texts from a diverse range of authors such as Leo Tolstoy, Edith Wharton and Alice Munro, and filmmakers such as Ingmar Bergman and Michael Haneke, it addresses questions such as why caregiving is a dangerous activity, the ethical problems of writing about caregiving, the challenges of reading about caregiving, and why caregiving is so important. It serves as a fire starter on the subject of how we can gain insight into the challenges and opportunities of caregiving through the creative arts.
Download or read book New Essays on Life Writing and the Body written by Christopher Stuart and published by Cambridge Scholars Publishing. This book was released on 2009-03-26 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: In light of materialist revisions of the Cartesian dual self and the increased recognition of memoir and autobiography as a crucial cultural index, the physical body has emerged in the last twenty-five years as an increasingly inescapable object of inquiry, speculation, and theory that intersects all of the various subgenres of life writing. New Essays on Life Writing and the Body thus offers a timely, original, focused, and yet appropriately interdisciplinary study of life writing. This collection brings together new work by established authorities in autobiography, such as Timothy Dow Adams, G. Thomas Couser, Cynthia Huff, and others, along with essays by emerging scholars in the field. Subjects range from new interpretations of well-known autobiographies by Edith Wharton, Gertrude Stein, and Lucy Grealy, as well as scholarly surveys of more recently defined subgenres, such as the numerous New Woman autobiographies of the late 19th century, adoption narratives, and sibling memoirs of the mentally impaired. Due to their wide, interdisciplinary focus, these essay will prove valuable not only to more traditional literary scholars interested in the classic literary autobiography but also to those in Women’s Studies, Ethnic and African-American Studies, as well as in emerging fields such as Disability Studies and Cognitive Studies.
Download or read book Long Good Night written by Simpkins and published by Wm. B. Eerdmans Publishing. This book was released on 2003-09-13 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: An uplifting story of hope for caregivers everywhere. The Long Good-Night contradicts the prevailing opinion that suffering and chaos are all that is possible during seasons of caring for an aging parent, even one with Alzheimer's disease.
