Download or read book Vulnerable Subjects written by G. Thomas Couser and published by Cornell University Press. This book was released on 2018-08-06 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: "My primary concern is with the ethics of representing vulnerable subjects—persons who are liable to exposure by someone with whom they are involved in an intimate or trust-based relationship, unable to represent themselves in writing, or unable to offer meaningful consent to their representation by someone else.... Of primary importance is intimate life writing—that done within families or couples, close relationships, or quasi-professional relationships that involve trust—rather than conventional biography, which can be written by a stranger. The closer the relationship between writer and subject, the greater the vulnerability or dependency of the subject, the higher the ethical stakes, and the more urgent the need for ethical scrutiny."—from the Preface Vulnerable Subjects explores a range of life-writing scenarios-from the "celebrity" to the "ethnographic"—and a number of life-writing genres from parental memoir to literary case studies by Oliver Sacks. G. Thomas Couser addresses complex contemporary issues; he investigates the role of disability in narratives of euthanasia and explores the implications of the Human Genome Project for life-writing practices in any age when many regard DNA as a code that "scripts" lives and shapes identity. Throughout, his book is concerned with the ethical implications of the political and economic, as well as the mimetic, aspects of life writing.

Download or read book Vulnerable Subjects written by G. Thomas Couser and published by Cornell University Press. This book was released on 2004 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: 1. Consensual relations: life writing and betrayal -- 2. Auto/biographical, biomedical, and ethnographic ethics -- 3. Making, taking, and faking lives: voice and vulnerability in collaborative life writing -- 4. Adoption, disability, and surrogacy: the ethics of parental life writing in The Broken Cord -- 5. Beyond the clinic: Oliver Sacks and the ethics of neuroanthropology -- 6. Life writing as death writing: disability and euthanography -- 7. Genome and genre: DNA and life writing -- Writing wrongs: in defense of ethical criticism.

Download or read book Handbook of Social Work Practice with Vulnerable and Resilient Populations written by Alex Gitterman and published by Columbia University Press. This book was released on 2001 with total page 932 pages. Available in PDF, EPUB and Kindle. Book excerpt: Role in forming balanced assessments.

Download or read book Vulnerable Populations in the United States written by Leiyu Shi and published by John Wiley & Sons. This book was released on 2021-02-10 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: An in-depth look at disparities in health and health care, fully updated for 2021 Vulnerable Populations in the United States, 3rd Edition provides a general framework for studying vulnerable populations and summarizes major health and health care disparities by race/ethnicity, socioeconomic status, and health insurance coverage. This updated contains the latest statistics and figures, incorporates new information related to Healthy People 2020, analyzes the latest data and trends in health and health care disparities, and provides a detailed synthesis of recent and increasingly expansive programs and initiatives to remedy these disparities. In addition, the Third Edition offers new coverage of health care reform, the "deaths of despair" (suicide, opioids, etc.), and the global primary care initiative. Based on the authors' teaching and research at the Johns Hopkins Bloomberg School of Public Health and the Keck School of Medicine of the University of Southern California, this landmark text is an important resource for students, researchers, practitioners, and policymakers for learning about vulnerable populations. The book's Web site includes instructor's materials that may be downloaded. Gain a general understanding of health and health care disparities related to race/ethnicity, socioeconomic status, and health insurance coverage Access online resources including editable PowerPoint slides, video, and more Delve into the programs and initiatives designed to remedy inequalities in health and health care, including Healthy People 2020 updates Enjoy new coverage of health care reform, the "deaths of despair" (suicide, opioids, etc.), and the global primary care initiative End of chapter revision questions and other pedagogical features make this book a valuable learning tool for anyone studying at the advanced undergraduate or graduate levels. Additionally, it will prove useful in the field for medical professionals, social and community workers, and health educators in the public sphere.

Download or read book The Belmont Report written by United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research and published by . This book was released on 1978 with total page 614 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Medical Management of Vulnerable Underserved Patients Principles Practice Population written by Talmadge E. King and published by McGraw Hill Professional. This book was released on 2006-08-31 with total page 473 pages. Available in PDF, EPUB and Kindle. Book excerpt: No other book on the subject Chronic diseases, especially those associated with poor nutrition, obesity, and addiction have grown to epidemic proportion in many poor and minority populations Covers all essential topics, including Navigating Language Barriers, Understanding Disability, Patient Education, Substance Abusers, the Care of Gay and Lesbian Patients, Reproductive Issues in Poor Women, and much more

Download or read book Cultural Safety Healthcare and Vulnerable Populations written by Lucy Mkandawire-Valhmu and published by Routledge. This book was released on 2018-06-14 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: Culturally safe healthcare is rapidly challenging previous notions of cultural competency or cultural sensitivity in healthcare provision. The increasing number of vulnerable populations means healthcare must be given by a healthcare provider who has developed a social consciousness in relation to his or her own socio-cultural positioning versus that of the patient. A culturally safe practitioner has engaged in an active examination of the power differences existing in this patient-provider relationship. In this book, Lucy Mkandawire-Valhmu critically analyzes the complex issues affecting the health of vulnerable populations. Written from a critical theoretical perspective she seeks to enhance the ability of the healthcare student to develop a social consciousness about the realities faced by many populations living on the margins of society, and thereafter make an active and conscious decision to engage in culturally safe healthcare and contribute to the elimination of health disparities. Through the application of postcolonial feminist theory this book conceptualizes health as being historically situated in social relations of power and emphasizes health interventions that are potentially empowering, and enhance emancipatory change. Through discussions of health provision for ethnic minorities, immigrant populations, and refugees, the book seeks to provide pragmatic guidance for culturally safe care for a variety of marginalized populations and invites students and professionals to think deeply about the implications of power, culture and health.

Download or read book The Ethics of Research with Human Subjects written by David B. Resnik and published by Springer. This book was released on 2018-01-09 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a framework for approaching ethical and policy dilemmas in research with human subjects from the perspective of trust. It explains how trust is important not only between investigators and subjects but also between and among other stakeholders involved in the research enterprise, including research staff, sponsors, institutions, communities, oversight committees, government agencies, and the general public. The book argues that trust should be viewed as a distinct ethical principle for research with human subjects that complements other principles, such as autonomy, beneficence, non-maleficence, and justice. The book applies the principle of trust to numerous issues, including informed consent, confidentiality, risk minimization, risks and benefits, protection of vulnerable subjects, experimental design, research integrity, and research oversight.This work also includes discussions of the history of research involving human subjects, moral theories and principles, contemporary cases, and proposed regulatory reforms. The book is useful for undergraduate and graduate students studying ethical policy issues related to research with human subjects, as well as for scientists and scholars who are interested in thinking about this topic from the perspective of trust.

Download or read book Ethical and Policy Issues in Research Involving Human Participants written by National Bioethics National Bioethics Advisory Commission and published by CreateSpace. This book was released on 2015-03-17 with total page 282 pages. Available in PDF, EPUB and Kindle. Book excerpt: Protecting the rights and welfare of those who volunteer to participate in research is a fundamental tenet of ethical research. A great deal of progress has been made in recent decades in changing the culture of research to incorporate more fully this ethical responsibility into protocol design and implementation. In the 1960s and 1970s, a series of scandals concerning social science research and medical research conducted with the sick and the illiterate underlined the need to systematically and rigorously protect individuals in research (Beecher 1966; Faden and Beauchamp 1986; Jones 1981; Katz 1972; Tuskegee Syphilis Study Ad Hoc Advisory Panel 1973). However, the resulting system of protections that evolved out of these rising concerns-although an improvement over past practices-is no longer sufficient. It is a patchwork arrangement associated with the receipt of federal research funding or the regulatory review and approval of new drugs and devices. In addition, it depends on the voluntary cooperation of investigators, research institutions, and professional societies across a wide array of research disciplines. Increasingly, the current system is being viewed as uneven in its ability to simultaneously protect the rights and welfare of research participants and promote ethically responsible research.

Download or read book Mutual Aid Groups Vulnerable and Resilient Populations and the Life Cycle written by Alex Gitterman and published by Columbia University Press. This book was released on 2005-02-23 with total page 665 pages. Available in PDF, EPUB and Kindle. Book excerpt: The contributors to this volume examine the role of mutual aid groups and social workers in helping members of oppressed, vulnerable, and resilient populations regain control over their lives. The chapters reveal the ways in which mutual aid processes help individuals overcome social and emotional trauma in contemporary society by reducing isolation, universalizing individual problems, and mitigating stigma. Using the life cycle as a framework the editors establish a theoretical model for practice and demonstrate how social workers as group leaders can foster the healing and empowering process of mutual aid. The contributors also consider the fundamentals of the mutual aid process, the institutional benefits of group service, and specific clinical examples of mutual aid groups. Each chapter offers detailed case materials that illustrate both group work skills and developmental issues for a variety of populations and settings, including HIV-positive and AIDS patients, the homeless, and perpetrators and victims of sexual abuse and family violence. New chapters in this completely revised and updated third edition illustrate the power of mutual aid processes in dealing with children traumatized by the events of September 11, adult survivors of sexual abuse, parents with developmentally challenged children, people with AIDS in substance recovery, and mentally ill older adults.

Download or read book Adolescent Risk and Vulnerability written by National Research Council and published by National Academies Press. This book was released on 2001-10-08 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: Adolescents obviously do not always act in ways that serve their own best interests, even as defined by them. Sometimes their perception of their own risks, even of survival to adulthood, is larger than the reality; in other cases, they underestimate the risks of particular actions or behaviors. It is possible, indeed likely, that some adolescents engage in risky behaviors because of a perception of invulnerabilityâ€"the current conventional wisdom of adults' views of adolescent behavior. Others, however, take risks because they feel vulnerable to a point approaching hopelessness. In either case, these perceptions can prompt adolescents to make poor decisions that can put them at risk and leave them vulnerable to physical or psychological harm that may have a negative impact on their long-term health and viability. A small planning group was formed to develop a workshop on reconceptualizing adolescent risk and vulnerability. With funding from Carnegie Corporation of New York, the Workshop on Adolescent Risk and Vulnerability: Setting Priorities took place on March 13, 2001, in Washington, DC. The workshop's goal was to put into perspective the total burden of vulnerability that adolescents face, taking advantage of the growing societal concern for adolescents, the need to set priorities for meeting adolescents' needs, and the opportunity to apply decision-making perspectives to this critical area. This report summarizes the workshop.

Download or read book Ethical Considerations for Research Involving Prisoners written by Committee on Ethical Considerations for Revisions to DHHS Regulations for Protection of Prisoners Involved in Research and published by National Academies Press. This book was released on 2007-01-22 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the past 30 years, the population of prisoners in the United States has expanded almost 5-fold, correctional facilities are increasingly overcrowded, and more of the country's disadvantaged populations—racial minorities, women, people with mental illness, and people with communicable diseases such as HIV/AIDS, hepatitis C, and tuberculosis—are under correctional supervision. Because prisoners face restrictions on liberty and autonomy, have limited privacy, and often receive inadequate health care, they require specific protections when involved in research, particularly in today's correctional settings. Given these issues, the Department of Health and Human Services' Office for Human Research Protections commissioned the Institute of Medicine to review the ethical considerations regarding research involving prisoners. The resulting analysis contained in this book, Ethical Considerations for Research Involving Prisoners, emphasizes five broad actions to provide prisoners involved in research with critically important protections: • expand the definition of "prisoner"; • ensure universally and consistently applied standards of protection; • shift from a category-based to a risk-benefit approach to research review; • update the ethical framework to include collaborative responsibility; and • enhance systematic oversight of research involving prisoners.

Download or read book Clinical Trials in Vulnerable Populations written by Milica Prostran and published by BoD – Books on Demand. This book was released on 2018-05-09 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book Clinical Trials in Vulnerable Populations has 12 chapters divided into 4 sections: Minority Patients, Women, Medically Compromised Patients and Clinical Trials. Contributing authors came from several countries, from Serbia to Turkey. The book was edited by Professor Milica Prostran MD, Ph.D., specialist in Clinical Pharmacology. The potential reader is shown a modern approach to clinical trials in vulnerable populations, from different points of view. The chapters deal at length and clarity with their topics. Finally, I believe, that this book I edited and reviewed with dedication will capture the attention of many readers, from medical students to practicing doctors and pharmacists. All of whom must consider this very important field of medicine: clinical trials in vulnerable patients.

Download or read book On Your Own without a Net written by D. Wayne Osgood and published by University of Chicago Press. This book was released on 2008-09-15 with total page 416 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the decade after high school, young people continue to rely on their families in many ways-sometimes for financial support, sometimes for help with childcare, and sometimes for continued shelter. But what about those young people who confront special difficulties during this period, many of whom can count on little help from their families? On Your Own Without a Net documents the special challenges facing seven vulnerable populations during the transition to adulthood: former foster care youth, youth formerly involved in the juvenile justice system, youth in the criminal justice system, runaway and homeless youth, former special education students, young people in the mental health system, and youth with physical disabilities. During adolescence, government programs have been a major part of their lives, yet eligibility for most programs typically ends between the ages of eighteen and twenty-one. This critical volume shows the unfortunate repercussions of this termination of support and points out the issues that must be addressed to improve these young people's chances of becoming successful adults.

Download or read book Focus Group Methodology written by Pranee Liamputtong and published by SAGE Publications. This book was released on 2011-03-28 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: A friendly introduction to the basics of focus group methods with an international feel and an ethical sensibility.

Download or read book The Protection of Vulnerable Groups under International Human Rights Law written by Ingrid Nifosi-Sutton and published by Taylor & Francis. This book was released on 2017-07-06 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: The protection of vulnerable groups varies under international human rights law. Depending on the group at stake, protection may be more or less advanced. In some cases, the international community has deemed it necessary to adopt conventions providing for the rights of certain vulnerable groups and establishing mechanisms to verify State compliance. Other groups have not been the focus of States’ standard-setting endeavours, but their protection still falls within the scope of human rights treaties of general application and the mandate of their respective monitoring bodies. This book takes an innovative approach to the investigation of the international legal protection of vulnerable groups. Rather than examining the situation of a number of vulnerable groups and applicable international or regional conventions, this book reviews the overall scope of the protection of vulnerable groups under International Human Rights Law. This book conceptualizes the protection of vulnerable groups as an underlying and essential component of International Human Rights Law through a systematic and comprehensive analysis of international human rights law instruments and relevant practice of international and regional human rights monitoring bodies. The book illuminates how human rights monitoring bodies foster protection of vulnerable groups and their members at the domestic level, and underscores and assesses vulnerability paradigms these bodies have elaborated. The book also puts forward a legal definition of vulnerable groups. This book will be of great interest to students and scholars of international human rights law.

Download or read book Geographical Research with Vulnerable Groups written by Nadia von Benzon and published by Routledge. This book was released on 2019-10-23 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drawing on varied expertise from specialisms across the sub-disciplines of social and cultural geography, this book seeks to interrogate what it is to do research with people widely considered to be vulnerable. Written from an emancipatory standpoint, this book addresses the ethical and practical challenges that face researchers working with marginalised people. With chapters exploring the authors’ own experiences of working with a wide range of participants including homeless people, indigenous peoples, drug addicts, learning disabled children, and prisoners, the book draws on research undertaken by academics across the globe. Geographical Research with ‘Vulnerable Groups’ unpicks and interrogates each part of the research process, from obtaining ethics permission from review bodies, to recruitment and gatekeepers, through to dissemination of research findings. Throughout the discussion, authors foreground the relational identities of the actors in the research process, highlighting the ways in which institutional attempts to protect marginalised people from risk, perpetuate a perceived, and even material, vulnerability. This honest and empirically driven text will provide an illuminating insight for researchers embarking on research with marginalised people. The chapters in this book were originally published as a special issue of Social & Cultural Geography.