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Book The Social Ecology of New Technologies and Haemophilia in New Zealand

Download or read book The Social Ecology of New Technologies and Haemophilia in New Zealand written by Julie Park and published by . This book was released on 2008-01-01 with total page 69 pages. Available in PDF, EPUB and Kindle. Book excerpt: This research builds on previous studies conducted by the "Living with haemophilia" researchers over the past decade in New Zealand. The current study investigates the implications of new treatments, new technologies, and changes in health care for people and families with haemophilia and those who care for them, in the context of everyday living with haemophilia. The research design used semi-structured face-to-face interviews and/ or telephone interviews with 37 people, and participant observation at a range of haemophilia gatherings. We asked people to share with us their perceptions and/ or experience of prenatal genetic diagnosis, preimplantation genetic diagnosis, gene therapy, and new treatments for hepatitis C, as well as their everyday experiences with haemophilia. The study design and the reasons we undertook it are described in the introduction. The first substantive section highlights the everyday issues of living with haemophilia as a bleeding disorder. The second discusses the organisational ecology of haemophilia. The third traverses issues concerning haemophilia as a genetic disorder, passed down the generations, and the final section explores the presence of hepatitis C in the haemophilia community. In the conclusions we note that there are still some difficulties around the timely diagnosis of haemophilia. However, treatment for many people has changed from on-demand to prophylaxis and from the provision of blood products to recombinant products. These technologies have had significant effects on perceptions of the seriousness of haemophilia, on the safety of products, on daily living, and on relationships with the treatment sources: from products made from donations, to those manufactured by multinational pharmaceutical companies. There was a high level of awareness of the costs of treatment, compared to the earlier studies. The formation of a National Haemophilia Management Group, which was a result of years of work between the Haemophilia Foundation of New Zealand (HFNZ), medical experts, and Ministry of Health officials, was a very welcome development in 2006. The HFNZ continues play an important part in many people's lives. Despite a continuing emphasis on women as carriers, there is a greater realisation that men, too, pass on haemophilia, and that women can suffer from bleeding problems. Parents were exercised by the timing of when to tell their daughters about their carrier status, but carrier testing very seldom incurs the long delays of earlier years. Issues around carrying haemophilia on and reproductive choice are handled with great care in this community. A wide range of views were encountered, tempered by respect for the positions of others. Discussion of gene therapy was a little passé in this community, as it had been on an ever-moving horizon for many years, and because new alternative treatments were seemingly offering considerable benefits. However, gene therapy was not dismissed as a future possibility. Hepatitis C has had important effects on this community and on the individuals within it: effectively there is a hep C generation and a post-hep C generation. It was heartening that those undergoing the most recent form of treatment appeared to be experiencing better outcomes, although the treatment itself was gruelling. At the end of this research period, a Government announcement of acknowledgement, compensation and treatment was made, fulfilling a decade and a half of struggle for recognition of harm.

Book Haemophilia in Aotearoa New Zealand

Download or read book Haemophilia in Aotearoa New Zealand written by Julie Park and published by Routledge. This book was released on 2019-01-24 with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.

Book A Companion to Medical Anthropology

Download or read book A Companion to Medical Anthropology written by Merrill Singer and published by John Wiley & Sons. This book was released on 2015-04-20 with total page 578 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Companion to Medical Anthropology examines the current issues, controversies, and state of the field in medical anthropology today. Provides an expert view of the major topics and themes to concern the discipline since its founding in the 1960s Written by leading international scholars in medical anthropology Covers environmental health, global health, biotechnology, syndemics, nutrition, substance abuse, infectious disease, and sexuality and reproductive health, and other topics

Book The New Zealand Official Year book

Download or read book The New Zealand Official Year book written by New Zealand. Department of Statistics and published by . This book was released on 1925 with total page 920 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book Genetic Engineering in New Zealand

Download or read book Genetic Engineering in New Zealand written by Darryl Raymund Johnson Macer and published by . This book was released on 1991 with total page 104 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book Converging Technologies for Improving Human Performance

Download or read book Converging Technologies for Improving Human Performance written by Mihail C. Roco and published by Springer Science & Business Media. This book was released on 2013-04-17 with total page 477 pages. Available in PDF, EPUB and Kindle. Book excerpt: M. C. Roco and W.S. Bainbridge In the early decades of the 21st century, concentrated efforts can unify science based on the unity of nature, thereby advancing the combination of nanotechnology, biotechnology, information technology, and new technologies based in cognitive science. With proper attention to ethical issues and societal needs, converging in human abilities, societal technologies could achieve a tremendous improvement outcomes, the nation's productivity, and the quality of life. This is a broad, cross cutting, emerging and timely opportunity of interest to individuals, society and humanity in the long term. The phrase "convergent technologies" refers to the synergistic combination of four major "NBIC" (nano-bio-info-cogno) provinces of science and technology, each of which is currently progressing at a rapid rate: (a) nanoscience and nanotechnology; (b) biotechnology and biomedicine, including genetic engineering; (c) information technology, including advanced computing and communications; (d) cognitive science, including cognitive neuroscience. Timely and Broad Opportunity. Convergence of diverse technologies is based on material unity at the nanoscale and on technology integration from that scale.

Book Acute Pain Management

Download or read book Acute Pain Management written by Pamela E. Macintyre and published by . This book was released on 2010-01-01 with total page 491 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book Successful Public Policy

Download or read book Successful Public Policy written by Joannah Luetjens and published by ANU Press. This book was released on 2019-04-30 with total page 551 pages. Available in PDF, EPUB and Kindle. Book excerpt: In Australia and New Zealand, many public projects, programs and services perform well. But these cases are consistently underexposed and understudied. We cannot properly ‘see’—let alone recognise and explain—variations in government performance when media, political and academic discourses are saturated with accounts of their shortcomings and failures, but are next to silent on their achievements. Successful Public Policy: Lessons from Australia and New Zealand helps to turn that tide. It aims to reset the agenda for teaching, research and dialogue on public policy performance. This is done through a series of close-up, in-depth and carefully chosen case study accounts of the genesis and evolution of stand-out public policy achievements, across a range of sectors within Australia and New Zealand. Through these accounts, written by experts from both countries, we engage with the conceptual, methodological and theoretical challenges that have plagued extant research seeking to evaluate, explain and design successful public policy. Studies of public policy successes are rare—not just in Australia and New Zealand, but the world over. This book is embedded in a broader project exploring policy successes globally; its companion volume, Great Policy Successes (edited by Paul ‘t Hart and Mallory Compton), is published by Oxford University Press (2019).

Book The Fourth Industrial Revolution

Download or read book The Fourth Industrial Revolution written by Klaus Schwab and published by Currency. This book was released on 2017-01-03 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: World-renowned economist Klaus Schwab, Founder and Executive Chairman of the World Economic Forum, explains that we have an opportunity to shape the fourth industrial revolu­tion, which will fundamentally alter how we live and work. Schwab argues that this revolution is different in scale, scope and complexity from any that have come before. Characterized by a range of new technologies that are fusing the physical, digital and biological worlds, the developments are affecting all disciplines, economies, industries and governments, and even challenging ideas about what it means to be human. Artificial intelligence is already all around us, from supercomputers, drones and virtual assistants to 3D printing, DNA sequencing, smart thermostats, wear­able sensors and microchips smaller than a grain of sand. But this is just the beginning: nanomaterials 200 times stronger than steel and a million times thinner than a strand of hair and the first transplant of a 3D printed liver are already in development. Imagine “smart factories” in which global systems of manu­facturing are coordinated virtually, or implantable mobile phones made of biosynthetic materials. The fourth industrial revolution, says Schwab, is more significant, and its ramifications more profound, than in any prior period of human history. He outlines the key technologies driving this revolution and discusses the major impacts expected on government, business, civil society and individu­als. Schwab also offers bold ideas on how to harness these changes and shape a better future—one in which technology empowers people rather than replaces them; progress serves society rather than disrupts it; and in which innovators respect moral and ethical boundaries rather than cross them. We all have the opportunity to contribute to developing new frame­works that advance progress.

Book A Polymath Anthropologist

Download or read book A Polymath Anthropologist written by Ann Chowning and published by Department of Anthropology University of Auckland. This book was released on 2005 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume honours Ann Chownings contributions to anthropology as a whole and to the anthropology of Melanesia in particular. It reflects the scope of her interests by bringing together a wide range of scholars and topics. A biographical narrative (by Judith Huntsman) of her life to date traces her career and there is a comprehensive bibliography of her works (Kathryn Creely). The essays deal primarily with issues in Oceania, except for two addressing one of her favourite pasttimes detective fiction, as a source of innovative word formation (Laurie Bauer) and its parallels to ethnography (Claudia Gross). Three archaeology essays discuss stone artefacts in Papua New Guinea (Pamela Swadling, Jim Specht, Susan Buhner), and one essay surveys dental morphology in Oceania (Daris R. Swindler). Essays in linguistics range from surveys of Oceanic plant names (Malcolm Ross), Proto Micronesian (Ward II. Goodcnough) and Proto Oceanic (Andrew Pawley) to detailed analyses of the languages of Tokelau (Robin Hooper) and Aneityum (John Lynch). The largest section consists of essays in socio-cultural anthropology, combining themes that have been the focus of Ann Chowning's work: marriage and social organisation, gender and sexuality, social and economic change, leadership, religion, myth and human-animal relations. These essays include a survey of anthropology in Oceania (Harriet D. and Andrew P. Lyons) and cover Polynesia (Phyllis Herda, Judith Huntsman, Penelope Schoeffel), New Zealand (Joan Metge, Julie Park), the Solomon Islands (Christine Dureau) and Papua New Guinea (John Barker, Mark Busse, Michael Monsell-Davis, Mark Mosko, Maev O'Collins, Marilyn Strathern). There are also essays recollecting Ann Chowning as a teacher, colleague and friend (Jane C. Goodale, Virginia Greene, Harriet D. Lyons, Luisa Margolies, James Urry, Michael W. Young).

Book Haemophilia

    Book Details:
  • Author :
  • Publisher :
  • Release : 2002
  • ISBN :
  • Pages : 960 pages

Download or read book Haemophilia written by and published by . This book was released on 2002 with total page 960 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book A New System for Better Employment and Social Outcomes

Download or read book A New System for Better Employment and Social Outcomes written by Reference Group on Welfare Reform (Australia) and published by . This book was released on 2013 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Reference Group's Interim Report proposes four pillars of reform: Simpler and sustainable income support system; Strengthening individual and family capability; Engaging with employers; Building community capacity."--DSS website.

Book Social  Political and Cultural Dimensions of Health

Download or read book Social Political and Cultural Dimensions of Health written by Kevin Dew and published by Springer. This book was released on 2016-05-09 with total page 251 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book comprehensively explores social, political and cultural dimensions of health in contemporary society. It addresses many issues and pertinent questions, including the following: Are we over diagnosed and over medicated? How can patients participate in their own care? Do pharmaceutical companies coerce us into medication regimes? What drives inequalities in health outcomes? What is the experience of health care for indigenous communities? Why do different countries have such different health care systems? How do we respond to life-changing conditions? Can we achieve a ‘good death’? How do new genetics shape our identities? Is public health a force of liberation or disempowerment? The book incorporates the range of levels of influence on health, covering individual patient experiences, the health professions, multinational corporations, the state, global organisations as well as examining trends in social organisation, cultural expression and technological developments. It volume provides an accessible, yet in-depth, overview and discussion of the sociology of health. The chapters include an illustrative case study and further readings relating to the topic.

Book Trauma Induced Coagulopathy

Download or read book Trauma Induced Coagulopathy written by Hunter B. Moore and published by Springer Nature. This book was released on 2020-10-12 with total page 802 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first edition of this publication was aimed at defining the current concepts of trauma induced coagulopathy by critically analyzing the most up-to-date studies from a clinical and basic science perspective. It served as a reference source for any clinician interested in reviewing the pathophysiology, diagnosis, and management of the coagulopathic trauma patient, and the data that supports it. By meticulously describing the methodology of most traditional as well as state of the art coagulation assays the reader is provided with a full understanding of the tests that are used to study trauma induced coagulopathy. With the growing interest in understanding and managing coagulation in trauma, this second edition has been expanded to 46 chapters from its original 35 to incorporate the massive global efforts in understanding, diagnosing, and treating trauma induced coagulopathy. The evolving use of blood products as well as recently introduced hemostatic medications is reviewed in detail. The text provides therapeutic strategies to treat specific coagulation abnormalities following severe injury, which goes beyond the first edition that largely was based on describing the mechanisms causing coagulation abnormalities. Trauma Induced Coagulopathy 2nd Edition is a valuable reference to clinicians that are faced with specific clinical challenges when managing coagulopathy.

Book Australia s Welfare Wars

Download or read book Australia s Welfare Wars written by Philip Mendes and published by UNSW Press. This book was released on 2017 with total page 398 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this fully revised third edition of Australia's Welfare Wars, Philip Mendes questions many of the key values and assumptions that determine contemporary social welfare policies, and the factors and forces that shape these policies in Australia.

Book Reducing Birth Defects

    Book Details:
  • Author : Institute of Medicine
  • Publisher : National Academies Press
  • Release : 2003-10-27
  • ISBN : 0309166837
  • Pages : 270 pages

Download or read book Reducing Birth Defects written by Institute of Medicine and published by National Academies Press. This book was released on 2003-10-27 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt: Each year more than 4 million children are born with birth defects. This book highlights the unprecedented opportunity to improve the lives of children and families in developing countries by preventing some birth defects and reducing the consequences of others. A number of developing countries with more comprehensive health care systems are making significant progress in the prevention and care of birth defects. In many other developing countries, however, policymakers have limited knowledge of the negative impact of birth defects and are largely unaware of the affordable and effective interventions available to reduce the impact of certain conditions. Reducing Birth Defects: Meeting the Challenge in the Developing World includes descriptions of successful programs and presents a plan of action to address critical gaps in the understanding, prevention, and treatment of birth defects in developing countries. This study also recommends capacity building, priority research, and institutional and global efforts to reduce the incidence and impact of birth defects in developing countries.

Book New Zealand Medical Journal

Download or read book New Zealand Medical Journal written by and published by . This book was released on 1986 with total page 668 pages. Available in PDF, EPUB and Kindle. Book excerpt: