Download or read book The Private Worlds of Dying Children written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2020-05-05 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.
Download or read book In the Shadow of Illness written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2020-06-30 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.
Download or read book Drawings from a Dying Child RLE Jung written by Judith Bertoia and published by Routledge. This book was released on 2014-07-11 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Does a dying child understand death? How can we help children who are dying? Originally published in 1993, this book concerns a young girl, Rachel, terminally ill with leukaemia. The book describes a series of drawings she made and shows how they reveal her inner experience, how she became fully aware that she was dying and even came to accept death. The result is a moving and informative story that will be invaluable to caregivers and families with a dying child. It provides new understanding of the experience of a dying child and suggests practical strategies for coping.
Download or read book Death Dying and Palliative Care in Children and Young People written by Alison M. Rodriguez and published by Taylor & Francis. This book was released on 2023-04-07 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: Death, Dying and Palliative Care in Children and Young People: Perspectives from Health Psychology examines the issues relevant to children and young people living with serious illness and their families by taking a closer look at the literature and knowledge around the processes of care, health, well-being and development through a health psychology lens. The text introduces readers to the general palliative and holistic care needs of children and young people along with the nuances of caring relationships. The chapters discuss the vulnerabilities encountered in living with serious illness and facing a shortened life prognosis, being at the end of life, and issues relative to the historical concept of the ‘good death’ or ‘dying well’, grief, and bereavement. The author examines how individual and familial experiences can be multi-layered, which can consequently influence perceptions and behaviours. The text therefore offers a deep exploration of the varied ways in which people draw on different resources to navigate their palliative care lived experiences. The book will be beneficial to the students of, and individuals interested in, psychology and nursing along with other health and social care courses. It will further be of interest to individuals interested in gaining more understanding of the experiential aspects of death, dying and palliative care in children and young people from health psychology perspectives.
Download or read book Living Well and Dying Faithfully written by John Swinton and published by Wm. B. Eerdmans Publishing. This book was released on 2009-11-10 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living Well and Dying Faithfully explores how Christian practices — love, prayer, lament, compassion, and so on — can contribute to the process of dying well. Working on the premise that one dies the way one lives, the book is unique in its constructive dialogue between theology and medicine as offering two complementary modes of care.
Download or read book Speaking Honestly with Sick and Dying Children and Adolescents written by Dietrich Niethammer and published by JHU Press. This book was released on 2012-06 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Niethammer, a prominent paediatric oncologist, explains why it is so important to speak frankly and respectfully to young patients about their disease. The question at the heart of this book is how children and adolescents feel and think about death and dying.
Download or read book The Human Rights of Children written by Michael Freeman and published by BRILL. This book was released on 2022-03-16 with total page 306 pages. Available in PDF, EPUB and Kindle. Book excerpt: For decades, Professor Michael Freeman has without doubt been one of the world's most infuential scholars in international children's rights. His scholarship has been at the forefront of the field and has helped shape many of the developments within it. This collection offers the reader a thought-provoking snapshot of some of his most seminal essays, written and/or published over the past 30 years. Together they highlight above all the interdisciplinary nature of the issues he discusses. Legal doctrinal questions that make the case for recognising that children have rights are of course discussed. But aspects of moral and political philosophy are dealt with as well, in addition to, among other other disciplines, history, theology, psychology and antropology.
Download or read book Caring for Dying Children and Their Families written by Lenore Hill and published by . This book was released on 1994 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Dying Child written by and published by Greenwood. This book was released on 1988-08-16 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: English-language references to multidisciplinary literature published between 1960 to 1987. Classified arrangement under broad categories, i.e., general, the young child, the adolescent, the family, the caregivers, and physical care. Entries also include abstracts and indication of references. Miscellaneous appendixes. Author and subject indexes.
Download or read book Care of the Dying Child written by Robert W. Buckingham and published by Continuum Counseling Series. This book was released on 1989 with total page 212 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Care of the Dying Child written by Ann Goldman and published by . This book was released on 1994 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique book considers the specific medical, psycho-social, and practical issues involved in caring for children dying from chronic diseases. Ann Goldman, herself a consultant paediatrician in palliative care at the Hospital for Sick Children, Great Ormond Street, recognizes the special needs of terminally ill children and their families. She confronts the problems and issues surrounding the care of these children in order to help paediatricians and other professionals provide the very best possible care for such patients. A range of contributors experienced in palliative care for children provide comprehensive coverage of the subject, including: consideration of the magnitude of the problem and the provision of services, pain control symptom management, family support and communication with children, spiritual issues, bereavement, stress. This practical, interdisciplinary approach to the specific needs of children with terminal diseases will be invaluable for every professional who wishes to enhance standards of care for dying children and their families.
Download or read book Death and Dying Life and Living written by Charles A. Corr and published by Wadsworth Publishing Company. This book was released on 1994 with total page 584 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique book discusses the challenging issues in life, death, and dying as it applies to everyone: people who are facing death, those who are coping with dying or with bereavement, those struggling with decisions about euthanasia or who are contemplating suicide, and those who wish to teach children about the place of death in life. The book provides a solid foundation readers can use as they pursue their own insights, emphases, and special interests in this field. The authors illustrate that while we cannot make death disappear from our lives, we can learn from each other, talk about death together, and determine how to live more productive lives in the face of death.
Download or read book This Republic of Suffering written by Drew Gilpin Faust and published by Vintage. This book was released on 2009-01-06 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: NATIONAL BESTSELLER • NATIONAL BOOK AWARD FINALIST • An "extraordinary ... profoundly moving" history (The New York Times Book Review) of the American Civil War that reveals the ways that death on such a scale changed not only individual lives but the life of the nation. An estiated 750,000 soldiers lost their lives in the American Civil War. An equivalent proportion of today's population would be seven and a half million. In This Republic of Suffering, Drew Gilpin Faust describes how the survivors managed on a practical level and how a deeply religious culture struggled to reconcile the unprecedented carnage with its belief in a benevolent God. Throughout, the voices of soldiers and their families, of statesmen, generals, preachers, poets, surgeons, nurses, northerners and southerners come together to give us a vivid understanding of the Civil War's most fundamental and widely shared reality. With a new introduction by the author, and a new foreword by Mike Mullen, 17th Chairman of the Joint Chiefs of Staff.
Download or read book Human Behavior written by and published by . This book was released on 1979 with total page 440 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Last Child in the Woods written by Richard Louv and published by Algonquin Books. This book was released on 2008-04-22 with total page 416 pages. Available in PDF, EPUB and Kindle. Book excerpt: “The children and nature movement is fueled by this fundamental idea: the child in nature is an endangered species, and the health of children and the health of the Earth are inseparable.” —Richard Louv, from the new edition In his landmark work Last Child in the Woods, Richard Louv brought together cutting-edge studies that pointed to direct exposure to nature as essential for a child’s healthy physical and emotional development. Now this new edition updates the growing body of evidence linking the lack of nature in children’s lives and the rise in obesity, attention disorders, and depression. Louv’s message has galvanized an international back-to-nature campaign to “Leave No Child Inside.” His book will change the way you think about our future and the future of our children. “[The] national movement to ‘leave no child inside’ . . . has been the focus of Capitol Hill hearings, state legislative action, grass-roots projects, a U.S. Forest Service initiative to get more children into the woods and a national effort to promote a ‘green hour’ in each day. . . . The increased activism has been partly inspired by a best-selling book, Last Child in the Woods, and its author, Richard Louv.” —The Washington Post “Last Child in the Woods, which describes a generation so plugged into electronic diversions that it has lost its connection to the natural world, is helping drive a movement quickly flourishing across the nation.” —The Nation’s Health “This book is an absolute must-read for parents.” —The Boston Globe Now includes A Field Guide with 100 Practical Actions We Can Take Discussion Points for Book Groups, Classrooms, and Communities Additional Notes by the Author New and Updated Research from the U.S. and Abroad
Download or read book The World According to Garp written by John Irving and published by Random House Digital, Inc.. This book was released on 1978 with total page 530 pages. Available in PDF, EPUB and Kindle. Book excerpt: T.S. Garp, a man with high ambitions for an artistic career and with obsessive devotion to his wife and children, and Jenny Fields, his famous feminist mother, find their lives surrounded by an assortment of people including teachers, whores, and radicals
Download or read book Helping Children Cope with Death written by Hannelore Wass and published by Old Tfi Soc Sci. This book was released on 1984 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt:
