Download or read book The Long Hello written by Cathie Borrie and published by . This book was released on 2010 with total page 293 pages. Available in PDF, EPUB and Kindle. Book excerpt: This sensuous memoir strips away all preconceptions about what it means to be, or to love, a person with Alzheimer's, giving comfort to those who have walked the caregiving path and offering insight, hope, and a compass to those embarking on the journey. -- Cover, p. [4].

Download or read book Alzheimer s from the Inside Out written by Richard Taylor and published by . This book was released on 2007 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: Receiving a diagnosis of Alzheimer's disease profoundly alters lives and creates endless uncertainty about the future. How does a person cope with such a life-changing discovery? What are the hopes and fears of someone living with this disease? How does he want to be treated? How does he feel as the disease alters his brain, his relationships, and ultimately himself? Richard Taylor provides illuminating responses to these and many other questions in this collection of provocative essays. Diagnosed with Alzheimer's disease at age 61, the former psychologist courageously shares an account of his slow transformation and deterioration and the growing division between his world and the world of others. With poignant clarity, candor, and even occasional humor, more than 80 brief essays address difficult issues faced by those with Alzheimer's disease, including the loss of independence and personhood unwanted personality shifts communication difficulties changes in relationships with loved ones and friends the declining ability to perform familiar tasks This rare, insightful exploration into the world of individuals with Alzheimer's disease is a captivating read for anyone affected personally or professionally by the devastating disease. Individuals with early-stage Alzheimer's disease will take comfort in the voice of a fellow traveler experiencing similar challenges, frustrations, and triumphs. Family and professional caregivers will be enlightened by Taylor's revealing words, gaining a better understanding of an unfathomable world and how best to care for someone living in it.

Download or read book The Other Side of Alzheimer s written by Martha-Lee B. Ellis and published by BalboaPress. This book was released on 2012-03-07 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimers and marriage is a complex combination of emotions. You change, too, when your spouse has Alzheimers. This is a poignant collection of personal experiences, moving from confusion, loneliness, and fear to understanding and peace. Knowledge of resources and connecting with others who are, or have been, faced with this consuming task help you find your way through the maze of many unanticipated challenges. Finding the support of others is critical to achieving acceptance of this life-changing event. With a sprinkling of humor, this becomes a story of the power of love, allowing you to survive it. The Other Side of Alzheimers is written with honesty, sensitivity, and love. Every experience describes the physical, mental, and emotional challenges, while alluding to humor and hope. There are few published resources that deal with feelings of a spouse faced with a partners Alzheimers disease, and none I have read as good as this one. I found it to be a beautiful love story that any reader can appreciate. Carol Long, RN-BC Board Certified Gerontological Nurse Sozo Senior Wellness, Raleigh, North Carolina Ms. Ellis has written a beautiful, insightful account of the journey through Alzheimers. It reveals how love, understanding and the acceptance of change can overcome any adversity. It applies to us all as we navigate through the ebb and flow of a significant relationship. Karen Brisendine Retired Electronics Industry Business Manager Caregiver Martha-Lee Ellis has written a touching memoir that approaches Alzheimers from a wifes perspective of a scary and unpredictable course. The Other Side of Alzheimers offers a lifeline to others going through this experience, enabling them to see that they are not alone. This story has something to benefit anyone facing this disease with their spouse. Michelle S. Brovitz, MS PA American Society of Clinical Pathologists Former Pathologists Assistant for hospitals nationwide

Download or read book Neither Married Nor Single written by Dr. David Kirkpatrick and published by Brush Education. This book was released on 2018-01-26 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Dr. David Kirkpatrick’s wife was diagnosed with Alzheimer’s disease in 2007, their lives—and their marriage—would change forever. In an honest, uplifting, and sometimes heartbreaking account of loving a partner with dementia, Dr. Kirkpatrick creates a clear guide for others in similar circumstances. He shares his perspective both as a loving and grief-stricken husband coping with a profound change in his marriage, and as a geriatric psychiatrist doing everything he can for his wife while continually learning throughout that experience. Dr. Kirkpatrick tackles the tough questions about caretaking, grief, loss, love, and sex for those whose partners have dementia. When is the right time to find or even to begin considering a care home for your loved one? How can you navigate the complexities of your changing sexual relationship with an Alzheimer’s partner? When is it appropriate for you to consider new relationships? With wisdom and compassion, Dr. Kirkpatrick reflects on these questions and more. Whether your partner has been recently diagnosed or has been living with dementia for many years, Neither Married Nor Single will help lead you to effective strategies for living and loving in an Alzheimer’s marriage, and for dealing with the changes ahead. And it will help you remember that you are not alone.

Download or read book Kill Me First written by Karen Olivia Peck and published by Twisted Tree. This book was released on 2012-01-01 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the moving true story of two women: a mother, falling into Alzheimer's disease, and her daughter, struggling to protect her from herself.

Download or read book Just See Me written by Carmen Buck MSN FNP-BC and published by Balboa Press. This book was released on 2018-03-30 with total page 131 pages. Available in PDF, EPUB and Kindle. Book excerpt: Just See Me-Sacred Stories from the Other Side of Dementia will make you see dementia through the eyes of compassion and love and yet know this is just the beginning of a bigger conversation. Thirteen family caregivers teach us extraordinary lessons to Be a better caregiver. Feel inspired and encouraged. Support the caregivers you love. Appreciate each day as a splendid gift even in the midst of tragedy. Use the power of storytelling to see life in a different way. Believe in something we cannot hear, see or touch yet know to be true.

Download or read book Alzheimer s Disease and Dementia written by Steven R. Sabat and published by Oxford University Press. This book was released on 2018-01-02 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's is swiftly on the rise: it is estimated that every 67 seconds, someone develops the disease. For many, the words "Alzheimer's disease" or "dementia" immediately denote severe mental loss and, perhaps, madness. Indeed, the vast majority of media coverage of Alzheimer's disease (AD) and other types of dementia focuses primarily on the losses experienced by people diagnosed and the terrible burden felt by care partners yearning for a "magic bullet" drug cure. Providing an accessible, question-and-answer-format primer on what touches so many lives, and yet so few of us understand, Alzheimer's Disease and Dementia: What Everyone Needs to Know® contributes what is urgently missing from public knowledge: unsparing investigation of their causes and manifestations, and focus on the strengths possessed by people diagnosed. Steven R. Sabat mines a large body of research to convey the genetic and biological aspects of Alzheimer's disease, its clinical history, and, most significantly, to reveal the subjective experience of those with Alzheimer's or dementia. By clarifying the terms surrounding dementia and Alzheimer's, which are two distinct conditions, Sabat corrects dangerous misconceptions that plague our understanding of memory dysfunction and many other significant abilities that people with AD and dementia possess even in the moderate to severe stages. People diagnosed with AD retain awareness, thinking ability, and sense of self; crucially, Sabat demonstrates that there are ways to facilitate communication even when the person with AD has great difficulty finding the words he or she wants to use. From years spent exploring and observing the points of view and experiences of people diagnosed, Sabat strives to inform as well as to remind readers of the respect and empathy owed to those diagnosed and living with dementia. Alzheimer's Disease and Dementia conveys this type of information and more, which, when applied by family and professional caregivers, will help improve the quality of life of those diagnosed as well as of those who provide support and care.

Download or read book The Other Side of Alzheimer s a Caregiver s Story written by Marietta Harris and published by Lulu.com. This book was released on 2009-10-30 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: How do you handle a crisis in your life? Alzheimer's is just one condition that requires loved ones to be caregivers. We become caregivers not by choice and once we are, we lose our choices. This is a story of a woman who faced those choices and survived. 13:978-0-615-32820-1

Download or read book How Not to Study a Disease written by Karl Herrup and published by MIT Press. This book was released on 2023-03-07 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: An authority on Alzheimer's disease offers a history of past failures and a roadmap that points us in a new direction in our journey to a cure. For decades, some of our best and brightest medical scientists have dedicated themselves to finding a cure for Alzheimer's disease. What happened? Where is the cure? The biggest breakthroughs occurred twenty-five years ago, with little progress since. In How Not to Study a Disease, neurobiologist Karl Herrup explains why the Alzheimer's discoveries of the 1990s didn't bear fruit and maps a direction for future research. Herrup describes the research, explains what's taking so long, and offers an approach for resetting future research. Herrup offers a unique insider's perspective, describing the red flags that science ignored in the rush to find a cure. He is unsparing in calling out the stubbornness, greed, and bad advice that has hamstrung the field, but his final message is a largely optimistic one. Herrup presents a new and sweeping vision of the field that includes a redefinition of the disease and a fresh conceptualization of aging and dementia that asks us to imagine the brain as a series of interconnected "neighborhoods." He calls for changes in virtually every aspect of the Alzheimer's disease research effort, from the drug development process, to the mechanisms of support for basic research, to the often-overlooked role of the scientific media, and more. With How Not to Study a Disease, Herrup provides a roadmap that points us in a new direction in our journey to a cure for Alzheimer's.

Download or read book Fighting for My Life written by Jamie TenNapel Tyrone and published by HarperChristian + ORM. This book was released on 2019-05-07 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: A practical, helpful guide on how to fight back against Alzheimer’s disease—with expert medical advice and one woman’s inspiring personal journey. Jamie Tyrone was forty-nine years old when she learned by accident through genetic testing that she had a 91% chance of getting Alzheimer's disease. She was shocked, but after an initial bout with depression she decided to take action rather than concede defeat. Jamie teamed up with Dr. Marwan Sabbagh, a renowned neurologist, and together they created a resource detailing not just Jamie's experience, but expert medical advice for anyone facing the disease. This book is a practical, helpful guide for those who know they’re at greater risk of contracting Alzheimer’s disease. With cutting-edge medical guidance from Dr. Sabbagh about the true nature of Alzheimer’s, the risks involved, and daily steps you can take to protect yourself, Jamie’s story will encourage and empower you. In Fighting for My Life, readers will: Gain expert medical advice from Dr. Sabbagh on how to fight back against the disease Discover the pros, cons and possible dangers of genetic testing Witness a first-hand account of how to deal with the shadow of Alzheimer’s disease through Jamie’s story If Alzheimer’s has affected your life or the life of someone you know, this book is for you. You’ll be armed with information and ready to tackle Alzheimer’s head-on.

Download or read book Let s Look Together written by Rae-Lynn Cebul Ziegler and published by . This book was released on 2009 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Research demonstrates that sensory integration in the brain reinforces and excites neural connections. Using the principles of sensory integration, occupational therapist Rae-Lynn Ziegler presents photographs that trigger multiple and varied sensory reactions: visual, auditory, tactile, olfactory, gustatory, and vestibular and proprioceptive (motion and movement). Tested with people with middle to late Alzheimer s disease, Ziegler's work demonstrates that spending time with an interactive picture book can help keep people with memory loss connected and engaged.

Download or read book The Inheritance written by Niki Kapsambelis and published by Simon and Schuster. This book was released on 2017-03-07 with total page 407 pages. Available in PDF, EPUB and Kindle. Book excerpt: This gripping story of the doctors at the forefront of Alzheimer’s research and the courageous North Dakota family whose rare genetic code is helping to understand our most feared diseases is “excellent, accessible...A science text that reads like a mystery and treats its subjects with humanity and sympathy” (Library Journal, starred review). Every sixty-nine seconds, someone is diagnosed with Alzheimer’s disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer’s, an inherited genetic mutation that causes the disease in one hundred percent of cases, and has a fifty percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, daughter Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer’s research and offers the brightest hope for future treatments—and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer’s through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. “A compelling narrative…and an educational and emotional chronicle” (Kirkus Reviews, starred review), their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this inspiring race against time redefines courage in the face of this most pervasive and mysterious disease.

Download or read book The End of Alzheimer s Program written by Dale Bredesen and published by Penguin. This book was released on 2020-08-18 with total page 354 pages. Available in PDF, EPUB and Kindle. Book excerpt: The instant New York Times bestseller The New York Times Best Selling author of The End of Alzheimer's lays out a specific plan to help everyone prevent and reverse cognitive decline or simply maximize brainpower. In The End of Alzheimer's Dale Bredesen laid out the science behind his revolutionary new program that is the first to both prevent and reverse symptoms of Alzheimer's disease. Now he lays out the detailed program he uses with his own patients. Accessible and detailed, it can be tailored to anyone's needs and will enhance cognitive ability at any age. What we call Alzheimer's disease is actually a protective response to a wide variety of insults to the brain: inflammation, insulin resistance, toxins, infections, and inadequate levels of nutrients, hormones, and growth factors. Bredesen starts by having us figure out which of these insults we need to address and continues by laying out a personalized lifestyle plan. Focusing on the Ketoflex 12/3 Diet, which triggers ketosis and lets the brain restore itself with a minimum 12-hour fast, Dr. Bredesen drills down on restorative sleep, targeted supplementation, exercise, and brain training. He also examines the tricky question of toxic exposure and provides workarounds for many difficult problems. The takeaway is that we do not need to do the program perfectly but will see tremendous results if we can do it well enough. With inspiring stories from patients who have reversed cognitive decline and are now thriving, this book shifts the treatment paradigm and offers a new and effective way to enhance cognition as well as unprecedented hope to sufferers of this now no longer deadly disease.

Download or read book The Spectrum of Hope written by Gayatri Devi and published by Workman Publishing Company. This book was released on 2017-10-31 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: Imagine finding a glimmer of good news in a diagnosis of Alzheimer’s. And imagine how that would change the outlook of the 5 million Americans who suffer from Alzheimer’s disease and other dementias, not to mention their families, loved ones, and caretakers. A neurologist who’s been specializing in dementia and memory loss for more than 20 years, Dr. Gayatri Devi rewrites the story of Alzheimer’s by defining it as a spectrum disorder—like autism, Alzheimer’s is a disease that affects different people differently. She encourages people who are worried about memory impairment to seek a diagnosis, because early treatment will enable doctors and caregivers to manage the disease more effectively through drugs and other therapies. Told through the stories of Dr. Devi’s patients, The Spectrum of Hope humanizes the science, and offers equal parts practical advice and wisdom with skillful ease, along with real hope. Here are chapters on how to maintain independence and dignity; how to fight depression, anxiety, and apathy; how to communicate effectively with a person suffering from dementia. Plus chapters on sexuality, genetics, going public with the diagnosis, even putting together a bucket list—because through her practice, Dr. Devi knows that the majority of Alzheimer’s patients continue to live and work in their communities. They babysit their grandkids, drive to the store (or own the store), serve their clients, or otherwise live fulfilling lives. That’s news that 5 million people are waiting to hear.

Download or read book Alzheimer s Disease What If There Was a Cure written by Mary T. Newport and published by Turner Publishing Company. This book was released on 2013-04-15 with total page 327 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this second edition Dr. Newport, a neonatal practitioner, continues the story of Steve's progress and provides the most recent research on such topics as possible causes of Alzheimer's due to the herpes simplex virus and nitrosamine substances and how infection, inflammation and genetic makeup may affect an individual's response to fatty acid therapy.

Download or read book Floating in the Deep End How Caregivers Can See Beyond Alzheimer s written by Patti Davis and published by Liveright Publishing. This book was released on 2021-09-28 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.

Download or read book On Pluto Inside the Mind of Alzheimer s written by Greg O'Brien and published by Good Night books. This book was released on 2018-02-27 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is a book about living with Alzheimer’s, not dying with it. It is a book about hope, faith, and humor—a prescription far more powerful than the conventional medication available today to fight this disease. Alzheimer’s is the sixth leading cause of death in the US—and the only one of these diseases on the rise. More than 5 million Americans have been diagnosed with Alzheimer’s or a related dementia; about 35 million people worldwide. Greg O’Brien, an award-winning investigative reporter, has been diagnosed with early-onset Alzheimer's and is one of those faceless numbers. Acting on long-term memory and skill coupled with well-developed journalistic grit, O’Brien decided to tackle the disease and his imminent decline by writing frankly about the journey. O’Brien is a master storyteller. His story is naked, wrenching, and soul searching for a generation and their loved ones about to cross the threshold of this death in slow motion. On Pluto: Inside the Mind of Alzheimer’s is a trail-blazing roadmap for a generation—both a “how to” for fighting a disease, and a “how not” to give up!