Download or read book The Narrative Approach to Informed Consent written by Fiona Mayne and published by Routledge. This book was released on 2021-11-15 with total page 182 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Narrative Approach to Informed Consent: Empowering Young Children’s Rights and Meaningful Participation is a practical guide for researchers who want to engage young children in rights-based, participatory research. This book presents the Narrative Approach, an original and innovative method to help children understand their participation in research. This approach moves away from traditional paper-based consent to tailor the informed consent process to the specific needs of young children. Through the Informing Story, which employs a combination of interaction, information and narrative, this method enables children to comprehend concepts through storytelling. Researchers are stepped through the development of an Informing Story so that they can deliver accurate information to young children about what their participation in research is likely to involve. To further inform practice, the book documents the implementation of the Narrative Approach in four case studies demonstrating the variety of settings in which the method can be applied. The Narrative Approach to Informed Consent addresses the rights of young children to be properly researched, expands opportunities for their active and engaged research participation, and creates a unique conceptual ethical space within which meaningful informed consent can occur. This book will be an invaluable tool for novice and experienced researchers and is applicable to a wide range of education and non-education contexts.
Download or read book Informed Consent and Health Literacy written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-04 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: Informed consent - the process of communication between a patient or research subject and a physician or researcher that results in the explicit agreement to undergo a specific medical intervention - is an ethical concept based on the principle that all patients and research subjects should understand and agree to the potential consequences of the clinical care they receive. Regulations that govern the attainment of informed consent for treatment and research are crucial to ensuring that medical care and research are conducted in an ethical manner and with the utmost respect for individual preferences and dignity. These regulations, however, often require - or are perceived to require - that informed consent documents and related materials contain language that is beyond the comprehension level of most patients and study participants. To explore what actions can be taken to help close the gap between what is required in the informed consent process and communicating it in a health-literate and meaningful manner to individuals, the Institute of Medicine's Roundtable on Health Literacy convened a one-day public workshop featuring presentations and discussions that examine the implications of health literacy for informed consent for both research involving human subjects and treatment of patients. Topics covered in this workshop included an overview of the ethical imperative to gain informed consent from patients and research participants, a review of the current state and best practices for informed consent in research and treatment, the connection between poor informed consent processes and minority underrepresentation in research, new approaches to informed consent that reflect principles of health literacy, and the future of informed consent in the treatment and research settings. Informed Consent and Health Literacy is the summary of the presentations and discussion of the workshop.
Download or read book Stories and Their Limits written by Hilde Lindemann Nelson and published by Routledge. This book was released on 2014-01-21 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: Narratives have always played a prominent role in both bioethics and medicine; the fields have attracted much storytelling, ranging from great literature to humbler stories of sickness and personal histories. And all bioethicists work with cases--from court cases that shape policy matters to case studies that chronicle sickness. But how useful are these various narratives for sorting out moral matters? What kind of ethical work can stories do--and what are the limits to this work? The new essays in Stories and Their Limits offer insightful reflections on the relationship between narratives and ethics.
Download or read book Rehabilitation Ethics for Interprofessional Practice written by Laura L. Swisher and published by Jones & Bartlett Learning. This book was released on 2019-02-26 with total page 265 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rehabilitation professionals need to be grounded in moral principles in order to meet the needs of patients and effectively collaborate in interprofessional healthcare teams. Rehabilitation Ethics for Interprofessional Practice introduces a common language and theory for interdisciplinary ethics education and practice while establishing a moral foundation and guiding readers in how to put ethical principles into action. The text begins by describing the moral commons, a framework for ethical deliberation characterized by mutual respect for personal and professional identity, common language, inclusion of relevant stakeholders, and the dialogic process. The authors then describe the Dialogic Engagement Model (DEM), gives professionals a structure and space for learning and understanding within their teams as they strive to provide ethical patient care. Rehabilitation Ethics for Interprofessional Practice is forward-looking, grounded in both theory and practice. A resource for faculty
Download or read book Kaplan and Sadock s Comprehensive Textbook of Psychiatry written by Benjamin J. Sadock and published by Lippincott Williams & Wilkins. This book was released on 2017-05-11 with total page 12870 pages. Available in PDF, EPUB and Kindle. Book excerpt: 50th Anniversary Edition The cornerstone text in the field for 50 years, Kaplan & Sadock's Comprehensive Textbook of Psychiatry has consistently kept pace with the rapid growth of research and knowledge in neural science, as well as biological and psychological science. This two-volume Tenth Edition shares the expertise of over 600 renowned contributors who cover the full range of psychiatry and mental health, including neural science, genetics, neuropsychiatry, psychopharmacology, and other key areas. It remains the gold standard of reference for all those who work with the mentally ill, including psychiatrists and other physicians, psychologists, psychiatric social workers, psychiatric nurses, and other mental health professionals.
Download or read book Capturing Children s Meanings in Early Childhood Research and Practice written by Ann Marie Halpenny and published by Routledge. This book was released on 2020-11-26 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: Capturing Children’s Meanings in Early Childhood Research and Practice draws together contemporary research and established theories to produce a unique take on the meanings children express through a range of creative tools. Drawing on Reggio Emilia and the Mosaic approach, this book provides readers with a range of strategies for accessing, recording and interpreting young children’s perceptions of and responses to their experiences. Providing a synthesis of the multiple imaginative ways we can capture young children’s meanings through observations, art, photo elicitation, mindfulness, music and other creative methods, Halpenny covers topics such as: Negotiating challenges presented by researching with children Frameworks for seeing and hearing children’s intentions Accurately documenting and interpreting research findings Promoting children’s meanings and their performance of them Moving forward with new understandings This book is an indispensable resource for students of early childhood education, especially for courses focusing on the lived experiences of children from early to middle childhood. It is also a useful reference for those working with young children in educational and caregiving settings, and for those advocating for young children.
Download or read book Using Narrative in Research written by Christine Bold and published by SAGE. This book was released on 2011-10-26 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: Serving as an introduction to narrative methods and narrative analysis, Christine Bold's new book provides students, researchers, and other professionals with an introduction to the theory and practice of narrative approaches in research. This book does everything that a methods book needs to do. It is practical, yet sets out the theory and history behind the approach, and it looks explicitly at design, ethics, data gathering, data analysis and writing as an ongoing process of narrative research. Bold's text deals comprehensively with conceptual issues within narrative research and is driven throughout by a range of real research specific examples of narrative analysis in action.
Download or read book Ethical and Legal Issues in Canadian Nursing E Book written by Margaret Keatings and published by Elsevier Health Sciences. This book was released on 2019-09-01 with total page 401 pages. Available in PDF, EPUB and Kindle. Book excerpt: - NEW! Thoroughly updated and expanded coverage of top-of mind ethical and legal topics concerning mental illness, vulnerable populations, refugees, LGBTQ persons, advancing technologies, social media, violence in the workplace, regulatory management of entry to practice, the scope of various categories of nurses, Medical Assistance in Dying (MAID), social justice, and much more! - NEW! Revised coverage of the Canadian judicial system and the role of the Charter of Rights and Freedoms includes discussion of professional liability insurance concerns, new discussion of the trial process in relation to medical malpractice and negligence claims, review of current case law regarding consent and Indigenous rights, and more. - NEW! Additional Case Scenarios, tables and figures help to illustrate complex topics and pertinent concepts. - NEW! UNIQUE! Revised 2017 CNA Code of Ethics incorporated into text - NEW! Cross-country examples of regulatory and legal issues cover a large number of provinces and territories. - NEW! Redesigned text layout improves text readability and visual appeal.
Download or read book Values Ethics in Counselling and Psychotherapy written by Gillian Proctor and published by SAGE. This book was released on 2014-03-14 with total page 265 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book offers an introduction to values and ethics in counselling and psychotherapy, helping you to develop the ethical awareness needed throughout the counselling process. The book covers: - Context and emergence of ethics in counselling - Exercises to explore personal and professional values - Tools to develop ethical mindfulness - Differences between therapeutic models - Relational ethics - Ethical dilemmas and issues - Practice issues including confidentiality, boundaries and autonomy versus beneficence. Using in-depth case studies of counselling students, the author demonstrates the constant relevance of values and ethics to counselling and psychotherapy, equipping trainees with the tools to successfully navigate values and ethics in their professional practice.
Download or read book Informed Consent written by Deborah Bowman and published by Cambridge University Press. This book was released on 2011-12-15 with total page 107 pages. Available in PDF, EPUB and Kindle. Book excerpt: The literature on informed consent and its ethico-legal significance in clinical practice has grown rapidly in recent years. This unique book offers a practical description of the principles of informed consent and their application in daily clinical practice. Written by a team of experts in medical ethics and law, the chapters use a case-based approach to elucidate the essence of consent and highlight the ways in which individual patients and diverse situations can shape and even challenge the fundamental principles of informed consent. A range of situations in both primary and secondary care are covered and the content is arranged conceptually to help emphasise certain recurrent and related themes. An informative and rigorous yet accessible text, Informed Consent: A Primer for Clinical Practice is an essential resource for healthcare professionals working in all medical fields.
Download or read book Stories and Their Limits written by Hilde Lindemann Nelson and published by Routledge. This book was released on 2014-01-21 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: Narratives have always played a prominent role in both bioethics and medicine; the fields have attracted much storytelling, ranging from great literature to humbler stories of sickness and personal histories. And all bioethicists work with cases--from court cases that shape policy matters to case studies that chronicle sickness. But how useful are these various narratives for sorting out moral matters? What kind of ethical work can stories do--and what are the limits to this work? The new essays in Stories and Their Limits offer insightful reflections on the relationship between narratives and ethics.
Download or read book Routledge Handbook of Childhood Studies and Global Development written by Tatek Abebe and published by Taylor & Francis. This book was released on 2024-08-28 with total page 743 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Routledge Handbook of Childhood Studies and Global Development explores how global development agendas and processes of economic development influence children’s lives. It demonstrates that children are not only the frequent targets or objects of development but that they also shape and influence processes of economic, political and sociocultural development. The handbook makes the case for the importance of placing children at the heart of development debates and demonstrates how researchers, policymakers and practitioners can engage children in development. Through reports on field research as well as a critical engagement with theories in development studies and childhood studies, contributors contest normative assumptions about childhood and global development. They tease out and tease apart the complex social, historical, cultural, economic, epidemiological, ecological, geopolitical, and institutional processes transforming what it means to be young in the world today. Showcasing research from both established scholars and early career researchers, and with particular prominence given to the work of authors from the global south, this book will be an essential reference for policymakers, practitioners, and for researchers and students across childhood studies, education, geography, sociology, and global development.
Download or read book 100 Activities for Teaching Research Ethics and Integrity written by Catherine Dawson and published by SAGE. This book was released on 2022-07-23 with total page 509 pages. Available in PDF, EPUB and Kindle. Book excerpt: This practical, user-friendly guide consists of 100 original activities that have been designed to inspire and support educators of research ethics and integrity at undergraduate and postgraduate level. Focussing on eight key areas, activities include: • Respecting human dignity, privacy and rights • Obtaining informed consent in the digital world • Capturing data on sexual orientation and gender identity • Recognizing and addressing bias when collecting data • Creating social change through research practice • Assessing the ethical implications of data sharing. Complete with detailed teaching notes and downloadable student handouts, as well as guidance on the type and level of each activity, 100 Activities for Teaching Research Ethics and Integrity is an essential resource for both online and face-to-face teaching.
Download or read book The Immortal Life of Henrietta Lacks written by Rebecca Skloot and published by Crown. This book was released on 2010-02-02 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.
Download or read book Qualitative Inquiry written by Lynn Butler-Kisber and published by SAGE. This book was released on 2010-02-17 with total page 169 pages. Available in PDF, EPUB and Kindle. Book excerpt: Qualitative Inquiry unites the basics of research design in qualitative research with the practice of analysing qualitative data. This textbook addresses the theory and practice of choosing and designing a qualitative approach and methodological and analytical ramifications that follow from making such choices. It aims to set out the theoretical underpinnings behind different methodological choices and to help students then follow up on (and interrogate) such approaches. Qualitative Inquiry is the ideal starting point for students on research training courses who have opted to develop a qualitative research project. In it, Butler-Kisber introduces students to theory and then demonstrates this theory in practice by showing how a project is actually designed and actually analysed. This book examines theory, method and interpretation in a way that is meaningful to students and new researchers, as well as discussing newer, more avant-garde, developments in qualitative research in arts-based inquiry. It is essential reading for students who are seeking to make sense of their research and their developing theoretical standpoints.
Download or read book Psychiatric Ethics written by Sidney Bloch and published by Oxford University Press. This book was released on 2021-01-05 with total page 560 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ethical issues inherent in psychiatric research and clinical practice are invariably complex and multi-faceted. Well-reasoned ethical decision-making is essential to deal effectively with patients and promote optimal patient care. Drawing on the positive reception of Psychiatric Ethics since its first publication in 1981, this highly anticipated 5th edition offers psychiatrists and other mental health professionals a coherent guide to dealing with the diverse ethical issues that challenge them. This edition has been substantially updated to reflect the many changes that have occurred in the field during the past decade. Its 25 chapters are grouped into three sections which cover: 1) clinical practice in child and adolescent psychiatry, consultation-liaison psychiatry, psychogeriatrics, community psychiatry and forensic psychiatry; 2) relevant basic sciences such as neuroethics and genetics; and 3) philosophical and social contexts including the history of ethics in psychiatry and the nature of professionalism. Principal aspects of clinical practice in general, such as confidentiality, boundary violations, and involuntary treatment, are covered comprehensively as is a new chapter on diagnosis. Given the contributors' expertise in their respective fields, Psychiatric Ethics will undoubtedly continue to serve as a significant resource for all mental health professionals, whatever the role they play in psychiatry. It will also benefit students of moral philosophy in their professional pursuits.
Download or read book Informed Consent written by Deborah Zoe Laufer and published by . This book was released on 2015 with total page 63 pages. Available in PDF, EPUB and Kindle. Book excerpt: With genomic breakthroughs happening at breakneck speed, we can learn more about what our futures may hold than ever before. But how much should we know? And who gets to decide? Inspired by a recent court case between a Native American tribe and an Arizona University, Informed Consent takes us into the personal and national debate about science versus belief, and whether our DNA is our destiny.
