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EBookClubs

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Book Applying the FAIR Principles to Accelerate Health Research in Europe in the Post COVID 19 Era

Download or read book Applying the FAIR Principles to Accelerate Health Research in Europe in the Post COVID 19 Era written by J. Delgado and published by IOS Press. This book was released on 2021-12-03 with total page 186 pages. Available in PDF, EPUB and Kindle. Book excerpt: Medical Informatics has increasingly come into focus in the last couple of years, as the importance of managing and interpreting health data in dealing with a global pandemic has become dramatically apparent. This book presents the proceedings of the 2021 European Federation for Medical Informatics (EFMI) Special Topic Conference (STC), originally planned as a live event in Seville, Spain, but ultimately held as a virtual event from 22 – 24 November 2021. This conference focused on applying the FAIR principles (Findability, Accessibility, Interoperability and Reusability) to accelerate health research in Europe in the post COVID-19 era. The 38 papers included here are divided into 5 sections, and topics covered include: methods for the adoption of FAIR principles; FAIR-based precision medicine; AI in FAIR data-driven health; privacy and security aspects of applying FAIR in health research; FAIR and infectious-disease research data (including Covid-19); FAIR in infrastructures and software; metadata, ontologies and terminologies to support the sharing of health research data; and paradigms for sharing health research data. Offering a state-of-the-art overview of medical informatics in the post-Covid era, the book will be of interest to all those working in the field.

Book The Fair Information Principles

Download or read book The Fair Information Principles written by Shane Crounse and published by . This book was released on 2009 with total page 348 pages. Available in PDF, EPUB and Kindle. Book excerpt: "U.S. consumers are worried about their privacy and their personal information. High profile cases of identity theft involving companies losing the private information of hundreds of thousands of customers have only served to elevate the mistrust consumers have for companies that collect and share their personal information. The Federal Trade Commission (FTC) is charged with protecting U.S. consumers from fraud, deception, and unfair business practices in the marketplace; a task made difficult by an overarching need to balance the rights of the individuals against the security needs of the country and the free flow of information required by a free market economy. The FTC has asked U.S. companies to follow the Fair Information Practices developed by the U.S. government in 1973, but does not require adherence to those standards. In Canada, the Personal Information Protection and Electronic Documents Act (PIPEDA) was passed in 2000 to address the similar privacy concerns of their consumers. PIPEDA is based on the Fair Information Principles and requires that companies implement those principles. The Privacy Policy Rating System (PPRS) has been developed for this thesis as a method of rating company privacy policies for how they compare to the Fair Information Principles. Using both the PPRS content analysis technique and a standard stakeholder analysis technique, company privacy policies in both countries are examined to address the question of which government's privacy policy is doing a better job of achieving the Fair Information Principles. The lessons learned in this comparison are used to formulate policy recommendations to improve U.S. privacy policy for better adherence among U.S. companies to the Fair Information Principles."--Abstract.

Book Face Recognition Technologies

Download or read book Face Recognition Technologies written by Douglas Yeung and published by Rand Corporation. This book was released on 2020-05-15 with total page 90 pages. Available in PDF, EPUB and Kindle. Book excerpt: Face recognition technologies (FRTs) have many practical security-related purposes, but advocacy groups and individuals have expressed apprehensions about their use. This report highlights the high-level privacy and bias implications of FRT systems. The authors propose a heuristic with two dimensions -- consent status and comparison type -- to help determine a proposed FRT's level of privacy and accuracy. They also identify privacy and bias concerns.

Book Records  Computers  and the Rights of Citizens

Download or read book Records Computers and the Rights of Citizens written by United States. Department of Health, Education, and Welfare. Secretary's Advisory Committee on Automated Personal Data Systems and published by . This book was released on 1973 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book The Right to Privacy

    Book Details:
  • Author : Louis Dembitz Brandeis
  • Publisher : Good Press
  • Release : 2023-09-17
  • ISBN :
  • Pages : 43 pages

Download or read book The Right to Privacy written by Louis Dembitz Brandeis and published by Good Press. This book was released on 2023-09-17 with total page 43 pages. Available in PDF, EPUB and Kindle. Book excerpt: At the heart of 'The Right to Privacy' lies an exploration of the increasingly blurred line between the private and the public, a theme that resonates as much today as at its inception. This collection, curated with a keen eye for diversity in perspective and style, traverses the complex landscape of privacy rights in the modern world. The anthology stands out for its rigorous examination of the legal, ethical, and societal dimensions of privacy, weaving together landmark cases, pivotal essays, and critical analyses to offer a multifaceted view of privacy's evolving definition and its implications. The inclusion of foundational works such as the seminal essay by Louis Brandeis and Samuel D. Warren highlights the depth and historical significance of the discourse presented. The editors and contributors, hailing from a broad spectrum of backgrounds in law, ethics, and technology, collectively underscore the anthology's thematic coherence. Their disparate vantage points, rooted in different eras and engaging with varying aspects of privacy, illuminate the rich tapestry of legal thought and ethical considerations. This convergence of historical and contemporary views underlines the collection's alignment with significant cultural and legal shifts, reflecting society's ongoing struggle to balance personal privacy with public interest. 'The Right to Privacy' is indispensable for readers seeking to navigate the intricate and often contentious terrain of privacy rights. It promises an enlightening journey through the kaleidoscope of opinions and analyses, offering valuable insights and fostering a deeper understanding of what it means to protect personal boundaries in an increasingly open world. This anthology is a must-read for anyone invested in the pivotal debates surrounding privacy, beckoning with the allure of a comprehensive and nuanced exploration of one of the most pressing issues of our time.

Book Privacy in Context

    Book Details:
  • Author : Helen Nissenbaum
  • Publisher : Stanford University Press
  • Release : 2009-11-24
  • ISBN : 0804772894
  • Pages : 304 pages

Download or read book Privacy in Context written by Helen Nissenbaum and published by Stanford University Press. This book was released on 2009-11-24 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Privacy is one of the most urgent issues associated with information technology and digital media. This book claims that what people really care about when they complain and protest that privacy has been violated is not the act of sharing information itself—most people understand that this is crucial to social life —but the inappropriate, improper sharing of information. Arguing that privacy concerns should not be limited solely to concern about control over personal information, Helen Nissenbaum counters that information ought to be distributed and protected according to norms governing distinct social contexts—whether it be workplace, health care, schools, or among family and friends. She warns that basic distinctions between public and private, informing many current privacy policies, in fact obscure more than they clarify. In truth, contemporary information systems should alarm us only when they function without regard for social norms and values, and thereby weaken the fabric of social life.

Book Who Knows

Download or read book Who Knows written by Ann Cavoukian and published by McGraw-Hill Companies. This book was released on 1997 with total page 264 pages. Available in PDF, EPUB and Kindle. Book excerpt: Imagine a world where every detail of our lives can be known to others at the click of a mouse. In business and at home, that world is here. This shocking new book reveals precisely how the new technology is already invading our confidentiality and privacy. Fortunately, it also tells how we can protect ourselves from the innovations of cyberspace from being used as weapons against us in the 21st century.

Book Guide to Protecting the Confidentiality of Personally Identifiable Information

Download or read book Guide to Protecting the Confidentiality of Personally Identifiable Information written by Erika McCallister and published by DIANE Publishing. This book was released on 2010-09 with total page 59 pages. Available in PDF, EPUB and Kindle. Book excerpt: The escalation of security breaches involving personally identifiable information (PII) has contributed to the loss of millions of records over the past few years. Breaches involving PII are hazardous to both individuals and org. Individual harms may include identity theft, embarrassment, or blackmail. Organ. harms may include a loss of public trust, legal liability, or remediation costs. To protect the confidentiality of PII, org. should use a risk-based approach. This report provides guidelines for a risk-based approach to protecting the confidentiality of PII. The recommend. here are intended primarily for U.S. Fed. gov¿t. agencies and those who conduct business on behalf of the agencies, but other org. may find portions of the publication useful.

Book Engaging Privacy and Information Technology in a Digital Age

Download or read book Engaging Privacy and Information Technology in a Digital Age written by National Research Council and published by National Academies Press. This book was released on 2007-06-28 with total page 450 pages. Available in PDF, EPUB and Kindle. Book excerpt: Privacy is a growing concern in the United States and around the world. The spread of the Internet and the seemingly boundaryless options for collecting, saving, sharing, and comparing information trigger consumer worries. Online practices of business and government agencies may present new ways to compromise privacy, and e-commerce and technologies that make a wide range of personal information available to anyone with a Web browser only begin to hint at the possibilities for inappropriate or unwarranted intrusion into our personal lives. Engaging Privacy and Information Technology in a Digital Age presents a comprehensive and multidisciplinary examination of privacy in the information age. It explores such important concepts as how the threats to privacy evolving, how can privacy be protected and how society can balance the interests of individuals, businesses and government in ways that promote privacy reasonably and effectively? This book seeks to raise awareness of the web of connectedness among the actions one takes and the privacy policies that are enacted, and provides a variety of tools and concepts with which debates over privacy can be more fruitfully engaged. Engaging Privacy and Information Technology in a Digital Age focuses on three major components affecting notions, perceptions, and expectations of privacy: technological change, societal shifts, and circumstantial discontinuities. This book will be of special interest to anyone interested in understanding why privacy issues are often so intractable.

Book APEC Privacy Framework

Download or read book APEC Privacy Framework written by and published by . This book was released on 2005 with total page 48 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book Ethical Principles for the Information Age

Download or read book Ethical Principles for the Information Age written by Richard Severson and published by Routledge. This book was released on 2015-05-11 with total page 103 pages. Available in PDF, EPUB and Kindle. Book excerpt: This text presents the author's model of following principled ethics together with by chapters on each of the guiding principles: respect for intellectual property, principle of fair representation, privacy, and the principle of nonmalfeasance. It avoids the use of technical jargon.

Book United States Code

    Book Details:
  • Author : United States
  • Publisher :
  • Release : 2013
  • ISBN :
  • Pages : 1506 pages

Download or read book United States Code written by United States and published by . This book was released on 2013 with total page 1506 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The United States Code is the official codification of the general and permanent laws of the United States of America. The Code was first published in 1926, and a new edition of the code has been published every six years since 1934. The 2012 edition of the Code incorporates laws enacted through the One Hundred Twelfth Congress, Second Session, the last of which was signed by the President on January 15, 2013. It does not include laws of the One Hundred Thirteenth Congress, First Session, enacted between January 2, 2013, the date it convened, and January 15, 2013. By statutory authority this edition may be cited "U.S.C. 2012 ed." As adopted in 1926, the Code established prima facie the general and permanent laws of the United States. The underlying statutes reprinted in the Code remained in effect and controlled over the Code in case of any discrepancy. In 1947, Congress began enacting individual titles of the Code into positive law. When a title is enacted into positive law, the underlying statutes are repealed and the title then becomes legal evidence of the law. Currently, 26 of the 51 titles in the Code have been so enacted. These are identified in the table of titles near the beginning of each volume. The Law Revision Counsel of the House of Representatives continues to prepare legislation pursuant to 2 U.S.C. 285b to enact the remainder of the Code, on a title-by-title basis, into positive law. The 2012 edition of the Code was prepared and published under the supervision of Ralph V. Seep, Law Revision Counsel. Grateful acknowledgment is made of the contributions by all who helped in this work, particularly the staffs of the Office of the Law Revision Counsel and the Government Printing Office"--Preface.

Book Internet Privacy

    Book Details:
  • Author : United States. General Accounting Office. Accounting and Information Management Division
  • Publisher :
  • Release : 2000
  • ISBN :
  • Pages : 28 pages

Download or read book Internet Privacy written by United States. General Accounting Office. Accounting and Information Management Division and published by . This book was released on 2000 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book Registries for Evaluating Patient Outcomes

Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Book Privacy and the National Information Infrastructure

Download or read book Privacy and the National Information Infrastructure written by United States. Information Infrastructure Task Force. Working Group on Privacy and published by . This book was released on 1995 with total page 26 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book The Law of Privacy Explained

    Book Details:
  • Author : Robert Ellis Smith
  • Publisher : Privacy Journal
  • Release : 1993
  • ISBN : 9780930072100
  • Pages : 70 pages

Download or read book The Law of Privacy Explained written by Robert Ellis Smith and published by Privacy Journal. This book was released on 1993 with total page 70 pages. Available in PDF, EPUB and Kindle. Book excerpt: