Download or read book Thoughtful Dementia Care written by Jennifer Ghent-Fuller and published by Createspace Independent Publishing Platform. This book was released on 2012-04-03 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ghent-Fuller offers insights into emotional reactions and practical suggestions based on deep understanding of the way people with dementia view many situations. She explains the loss of various types of memory and other thinking processes, and describes how these losses affect the day to day life of people with dementia, their understanding of the world around them and their personal situations.

Download or read book The Dementia Experience written by Henry Johnson and published by Lulu.com. This book was released on 2019-02-19 with total page 104 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Dementia Experience is a novel by Henry Johnson, a short story based upon real life experiences of people living with a dementia. Are you worried about getting dementia in later life or do you have a relative or friend who already has dementia? Are you interested in caring for people with dementia? This book will prove invaluable in putting your mind at rest. You can have dementia and be happy, and many people living with dementia in care homes are happy. This book will restore your faith in the form of a short story about a girl called Maria who has a week's work experience at a fictitious care home called St Michael's, based upon real life experiences of carers of people and people living with dementia.

Download or read book Dementia as Social Experience written by Gaynor Macdonald and published by Routledge. This book was released on 2018-07-26 with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt: A diagnosis of dementia changes the ways people engage with each other – for those living with dementia, as well their families, caregivers, friends, health professionals, neighbours, shopkeepers and the community. Medical understandings, necessary as they are, provide no insights into how we may all live good lives with dementia. This innovative volume brings together an interdisciplinary group of researchers and practitioners to focus on dementia as lived experience. It foregrounds dementia’s social, moral, political and economic dimensions, investigating the challenges of reframing the dementia experience for all involved. Part I critiques the stigmas, the negativity, language and fears often associated with a dementia diagnosis, challenging debilitating representations and examining ways to tackle these. Part II examines proactive practices that can support better long-term outcomes for those living with dementia. Part III looks at the relational aspects of dementia care, acknowledging and going beyond the notion of person-centred care. Collectively, these contributions highlight the social and relational change required to enhance life for those with dementia and those who care for them. Engaging in a critical conversation around personhood and social value, this book examines the wider social contexts within which dementia care takes place. It calls for social change, and looks for inspiration to the growing movement for relational care and the caring society. Dementia as Social Experience is important reading for all those people who, in various ways, are living with dementia, as well as for those working in this area as clinicians, researcher and carers.

Download or read book Telling Tales About Dementia written by Lucy Whitman and published by Jessica Kingsley Publishers. This book was released on 2009-09-15 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: How does it feel when someone you love develops dementia? How do you cope with the shock, the stress and the grief? Can you be sure that you and your family will receive the support you need? In Telling Tales About Dementia, thirty carers from different backgrounds and in different circumstances share their experiences of caring for a parent, partner or friend with dementia. They speak from the heart about love and loss: 'I still find it hard to believe that Alzheimer's has happened to us,' writes one contributor, 'as if we were sent the wrong script.' The stories told here vividly reflect the tragedy of dementia, the gravity of loss, and instances of unsatisfactory diagnosis, treatment and care. But they contain hope and optimism too: clear indications that the quality of people's lives can be enhanced by sensitive support services, by improved understanding of the impact of dementia, by recognising the importance of valuing us all as human beings, and by embracing and sustaining the connections between us. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including relatives of people with dementia, social workers, medical practitioners and care staff.

Download or read book Psychodynamic Approaches to the Experience of Dementia written by Sandra Evans and published by . This book was released on 2019-12-10 with total page 268 pages. Available in PDF, EPUB and Kindle. Book excerpt: Psychodynamic Approaches to the Experience of Dementia: Perspectives from Observation, Theory and Practice demonstrates the impact of healthcare approaches that take into account not only the practical needs but also the emotional experience of the patient, their partners, families and friends, lay carers and professional staff. Currently there is no cure for dementia, but the psychosocial and therapeutic approaches described in this volume have appeared to help people, both patients and carers, feel more contained and less lonely and isolated. Psychoanalytic theory provides a disciplined way of thinking about the internal world of an individual and their relationships. Each author provides their own commentary on the personal and interpersonal effects of dementia, endeavouring to understand behaviours and emotions which may otherwise seem incomprehensible. The subject is approached from a psychodynamic perspective, considering the unconscious, previous and current experiences and relationships, including those between patients and staff. Psychodynamic Approaches to the Experience of Dementia illustrates the practical and theoretical thinking of clinicians from a wide range of disciplines who are engaged in the care of people in late life with a diagnosis of dementia. It will be essential reading for mental health and health professionals in practice and training in the field of dementia.

Download or read book The Family Experience of Dementia written by Gary Morris and published by Jessica Kingsley Publishers. This book was released on 2020-12-21 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dementia not only affects the person presented with the diagnosis, but their family and friends too. This book provides practitioners with strategies to support the whole family and understand their dementia journey both pre- and post-diagnosis. This is facilitated through a series of activities and reflective prompts. There is also a dedicated chapter offering structured exercises for health and social care practitioners and students. The book introduces the Lawrence family, where Peter has been diagnosed with dementia, and provides perspectives from each family member, allowing practitioners to become acquainted with the lived experience of everyone involved. The reflective questions allow readers to become actively engaged to maximise their knowledge and understanding, and to better contextualize what the dementia experience feels like for family and friends. With its focus on the all-important lived experience of the whole family during the diagnostic process and beyond, this is essential reading for any practitioner working with people with dementia.

Download or read book Dementia with Dignity written by Judy Cornish and published by Createspace Independent Publishing Platform. This book was released on 2019-01-22 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: The revolutionary how-to guidebook that details ways to make it easier to provide dementia home care for people experiencing Alzheimer's or dementia. Alzheimer's home care is possible! Dementia with Dignity explains the groundbreaking new approach: the DAWN Method(R), designed so families and caregivers can provide home care. It outlines practical tools and techniques to help your loved one feel happier and more comfortable so that you can postpone the expense of long-term care. In this book you'll learn: -The basic facts about Alzheimer's and dementia, plus the skills lost and those not lost; -How to recognize and respond to the emotions caused by Alzheimer's or dementia, and avoid dementia-related behaviors; -Tools for working with an impaired person's moods and changing sense of reality; -Home care techniques for dealing with hygiene, safety, nutrition and exercise issues; -A greater understanding and appreciation of what someone with Alzheimer's or dementia is experiencing, and how your home care can increase home their emotional wellbeing. Wouldn't dementia home care be easier if you could get on the same page as your loved one? When we understand what someone experiencing Alzheimer's or dementia is going through, we can truly help them enjoy more peace and security at home. This book will help you recognize the unmet emotional needs that are causing problems, giving you a better understanding and ability to address them. The good news about dementia is that home care is possible. There are infinitely more happy times and experiences to be shared together. Be a part of caring for, honoring, and upholding the life of someone you love by helping them experience Alzheimer's or dementia with dignity. Judy Cornish is the author of The Dementia Handbook-How to Provide Dementia Care at Home, founder of the Dementia & Alzheimer's Wellbeing Network(R) (DAWN), and creator of the DAWN Method. She is also a geriatric care manager and elder law attorney, member of the National Association of Elder Law Attorneys (NAELA) and the American Society on Aging (ASA).

Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.

Download or read book When Waves Rise written by Sarah Viola and published by Sv Grace LLC. This book was released on 2021-04-05 with total page 116 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Waves Rise is a must read for care providers taking care of a loved one at home, direct services providers who want to be more effective with patients, and professionals who wish to support the care providers they serve. Sarah handles a difficult topic with care as she condenses 11 years of experience serving those living with dementia. Her experience has helped care providers, both personal and professional, better understand the "why" behind difficult moments. The ever-present changes that dementia creates lead to challenges that are not easily understood. When Waves Rise helps to explain these changes and challenges with practical examples that provide technical explanations and takeaways. Care providers can use the tools in this book for day-to-day support and ongoing as the disease progresses. Readers have stated that When Waves Rise "offers insight on how to react to changes in behavior" and "does excellent job of explaining the progression of dementia and how it is viewed from the dementia sufferer and the caregiver." Further stating "excellent, practical and useful book filled with picture language to make a complicated subject understandable."

Download or read book Dementia Essentials written by Jan Hall and published by Random House. This book was released on 2013-05-02 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a loved one has been diagnosed with dementia you might step into the new role of carer, helping your relative to remain safe, happy and as independent as possible. In this fully updated and revised edition, Dementia Essentials offers a realistic and reassuring guide to help you and the person affected navigate the complexities of dementia and Alzheimer’s, and face anything that these conditions might place your way. Written by real carers with first-hand experience, this book is now updated with the latest research coupled with essential advice, personal insights and helpful strategies, including: · Advice on medication and getting support from local health professionals · Ideas for encouraging independence, confidence and activity while reducing anxiety, aggression and confusion · Strategies for coping as a carer, helping you understand your emotions and feel more empowered · Guidance on how to prepare for the future, including revised legal and financial advice and tips on choosing a care home Positive and practical, Dementia Essentials will give you with everything you need to provide the best possible care for the person you are supporting.

Download or read book The Last Ocean written by Nicci Gerrard and published by Penguin. This book was released on 2020-08-11 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people who live with the condition and those of their loved ones After a diagnosis of dementia, Nicci Gerrard’s father, John, continued to live life on his own terms, alongside the disease. But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard, an award-winning journalist and author, recognized that it was not just the disease, but misguided protocol and harmful practices that cause such pain at the end of life. Gerrard was inspired to seek a better course for all who suffer because of the disease. The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones. Her lens is unflinching, but Gerrard honors her subjects and finds the beauty and the humanity in their seemingly diminished states. In so doing, she examines the philosophy of what it means to have a self, as well as how we can offer dignity and peace to those who suffer with this terrible disease. Not only will it aid those walking with dementia patients, The Last Ocean will prompt all of us to think on the nature of a life well lived.

Download or read book Finding the Light in Dementia written by Jane M Mullins and published by Duetcare. This book was released on 2017-12 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Finding the Light in Dementia: a guide for families, friends and caregivers' is an essential book that explains common changes that can occur in those living with dementia. By offering valuable approaches, tips and suggestions interspersed with individuals' stories, the reader can learn to care for and maintain a connection with their loved one (care partner). Whether you're a spouse, partner, daughter, son, sibling, friend or even a parent caring for a loved one living with dementia, this book is for you. Finding the Light in Dementia will help give you more confidence to care by: Supporting you through your partner's diagnosis of dementia Helping you understand what your partner is experiencing Teaching you ways to communicate and connect with each other Helping you make subtle changes to your home to help your partner feel safe and content Introducing practical and creative ways to stimulate memories to help with day to day living Showing you how to create lifestories together Suggesting ways to keep your partner interested and engaged in meaningful activities Providing tips for sleeping, eating and drinking Suggesting ways to help your partner with their appearance and dignity Showing you ways of overcoming the challenges of changing behaviour, reactions and responses Helping reduce the effects of hallucinations, delusions and misperceptions Suggesting ways for you to care for yourself Involving families and friends Giving advice when considering professional care at home and in residential care Knowing how tired and stressed you may feel, 'Finding the Light in Dementia' is written in bite sized chunks that makes it easy to follow. By giving you space to write down any points you would like to make and providing question sheets for you to refer to when speaking with your doctor and/or legal professionals you can make this your personal guide. When following the approaches in this book, you should find that your partner will feel more understood and you will become calmer thereby helping you both find a sense of connection and continue to live well.

Download or read book The Dementia Care Workbook written by Morris, Gary and published by McGraw-Hill Education (UK). This book was released on 2010-02-01 with total page 229 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Dementia Care Workbook is a workbook style text on dementia, aimed at pre-registration level students training to be Mental Health or Adult nurses. By using reflective exercises and other tools, the book is designed to help readers get to grips with the key issues of dementia care, with a focus on the felt experience for all involved. Topics covered include: the felt experience (the patient), the felt experience (the carer/family), attitudes to caring, environment of care, the person, engagement, ways of working, empowerment and the future.

Download or read book The Dementia Handbook written by Judy Cornish and published by Createspace Independent Publishing Platform. This book was released on 2017-03-13 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Providing dementia care is profoundly stressful for families and caregivers. People with dementia or Alzheimer's experience emotional distress, which leads to behavioral complications and the need for institutional care. However, if families and caregivers are able to identify the emotional needs caused by dementia and understand which skills are lost and which remain, they can lower the behavioral complications and their own stress. Dementia and Alzheimer's are very personal and individual experiences they vary from person to person. However, Cornish has identified a pattern in the abilities and disabilities of people living with dementia. Based on her findings, Cornish was able to develop methods for caregivers to ease emotional distress, which can quickly and safely resolve behavioral complications. Though people with dementia lose a sense of self, they are still the same person you always loved. Judy Cornish understands this. The Dementia Handbook: How to Provide Dementia Care at Home is the supportive guide you've been looking for as you walk alongside your loved one on this difficult but potentially rewarding new path.

Download or read book Dementia Home Care written by Tracy Cram Perkins and published by Behler Publications. This book was released on 2021-03-18 with total page 466 pages. Available in PDF, EPUB and Kindle. Book excerpt: The target audience is women between the ages of 42 and 65. They represent the majority of unpaid care givers for loved ones with dementia. Dementia Home Care: How to Prepare Before, During and After will examine taking on the role of care giver and help them make informed decisions about in-home care giving. It will give examples of how to create a safe living space, how to use distraction techniques, and suggest available resources for the care giver. It will emphasize the role of care giver respite and participating in dementia community support to relieve the daily stress of dementia care. Home care giver, Tracy Cram Perkins, will use anecdotes drawn from twelve years of experience. Demetia Home Care will cover aggressive behavior, coping strategies, memory aids, communication aids, and support services. There is a space at the end of each chapter for the reader to record special or humorous moments with their loved ones. And it will address the empty nester experience after the loss of a loved one—to a nursing facility or to death—rarely covered in other books of this genre. This life-lesson of care giving is not meant to destroy us but meant to remind us to take care of ourselves, forgive ourselves, accept ourselves. To know other people trudge up this same hill with us every day. To pay forward kindness in some measure. To know laughter has not abandoned us. At the end, to know some measure of joy. -- Tracy Cram Perkins

Download or read book A Tattoo on my Brain written by Daniel Gibbs and published by Cambridge University Press. This book was released on 2023-03-16 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dr Daniel Gibbs is one of 50 million people worldwide with an Alzheimer's disease diagnosis. Unlike most patients with Alzheimer's, however, Dr Gibbs worked as a neurologist for twenty-five years, caring for patients with the very disease now affecting him. Also unusual is that Dr Gibbs had begun to suspect he had Alzheimer's several years before any official diagnosis could be made. Forewarned by genetic testing showing he carried alleles that increased the risk of developing the disease, he noticed symptoms of mild cognitive impairment long before any tests would have alerted him. In this highly personal account, Dr Gibbs documents the effect his diagnosis has had on his life and explains his advocacy for improving early recognition of Alzheimer's. Weaving clinical knowledge from decades caring for dementia patients with his personal experience of the disease, this is an optimistic tale of one man's journey with early-stage Alzheimer's disease. Soon to be a documentary film on MTV/Paramount +.

Download or read book The Dying Body as a Lived Experience written by Alan Blum and published by Taylor & Francis. This book was released on 2016-10-04 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: The anxiety over death persists in everyday life- though often denied or repressed- lingering as an unconscious worry or intuition that typically seems to compromise one’s feelings of well-being and experience in a range of areas; coming out often as malaise, depression, and anger in much conduct. If one accepts the cliché that life is preparation for death, we must accept that the lived experience of the dying body is not highlighted merely in obvious cases of deterioration such as in the ageing or diseased body, but in everyday life as a normal phenomenon. This book proposes that sensitivity to this dimension can empower us to develop creative relationships to the vulnerability of others and to ourselves as well. Part One lays the groundwork for a study of the ways the aura and fear of death recurs as a constant premonition in life and how people try to deal with this uneasiness. Part Two then goes on to apply this focus to particular concerns and problems such as dementia, depression, aging, retirement, and a range of anxieties, frustrations and aggressions. The Dying Body as Lived Experience will be of interest to a wide interdisciplinary audience in the health sciences, in the sociology of health and illness, philosophy, bioethics and in the expanding field of medical humanities.