Download or read book The Challenge of Data Sharing written by United States. General Accounting Office and published by . This book was released on 2000 with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The challenge of data sharing results of a GAOsponsored symposium on benefit and loan programs report to the Committee on Governmental Affairs U S Senate written by and published by DIANE Publishing. This book was released on with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Principles and Obstacles for Sharing Data from Environmental Health Research written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-05-29 with total page 115 pages. Available in PDF, EPUB and Kindle. Book excerpt: On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects-making them both transparent and accessible to others-raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.
Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.
Download or read book Data Sharing written by Yousef Ibrahim Daradkeh and published by . This book was released on 2019 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Coherence of the information world is needed to approve technology concerning data sharing. This book gives to a wide range of readers the possibility to know what problems exist in the field. An international group of experts discuss the situations in their practices concerning the data exchange. Bio information, education protocols, and investigation of data bases gather at different information resources. These data are needed for protection, invariability and open access. In many cases, opposite goals are encountered and it is important to solve complex problems. The authors of the chapters found within this book give their solutions to different problems. These tools and methods have been described in different conditions of locality (from the developed to the developing world) and domains of practice (from art and research to government and schooling). This book is founded on many sources, such as books, papers, reports, data bases, legislative acts, etc. The editorial board and editors hope that this book will become a table book for readers and that they will often refer to it.
Download or read book Data Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2019-01-28 with total page 103 pages. Available in PDF, EPUB and Kindle. Book excerpt: In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at a remarkable rate. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to enhance research and training. International research agreements can serve many purposes, but data are always involved in these collaborations. The kinds of data in play within international research agreements varies widely and may range from financial and consumer data, to Earth and space data, to population behavior and health data, to specific project-generated dataâ€"this is just a narrow set of examples of research data but illustrates the breadth of possibilities. The uses of these data are various and require accounting for the effects of data access, use, and sharing on many different parties. Cultural, legal, policy, and technical concerns are also important determinants of what can be done in the realms of maintaining privacy, confidentiality, and security, and ethics is a lens through which the issues of data, data sharing, and research agreements can be viewed as well. A workshop held on March 14-16, 2018, in Washington, DC explored the changing opportunities and risks of data management and use across disciplinary domains. The third workshop in a series, participants gathered to examine advisory principles for consideration when developing international research agreements, in the pursuit of highlighting promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. The intent of the workshop was to explore, through an ethical lens, the changing opportunities and risks associated with data management and use across disciplinary domainsâ€"all within the context of international research agreements. This publication summarizes the presentations and discussions from the workshop.
Download or read book Agile Processes in Software Engineering and Extreme Programming written by Helen Sharp and published by Springer. This book was released on 2016-05-14 with total page 343 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book contains the refereed proceedings of the 17th International Conference on Agile Software Development, XP 2016, held in Edinburgh, UK, in May 2016. While agile development has already become mainstream in industry, this field is still constantly evolving and continues to spur an enormous interest both in industry and academia. To this end, the XP conference attracts a large number of software practitioners and researchers, providing a rare opportunity for interaction between the two communities. The 14 full papers accepted for XP 2016 were selected from 42 submissions. Additionally, 11 experience reports (from 25 submissions) 5 empirical studies (out of 12 submitted) and 5 doctoral papers (from 6 papers submitted) were selected, and in each case the authors were shepherded by an experienced researcher. Generally, all of the submitted papers went through a rigorous peer-review process.
Download or read book Research Data Sharing and Valorization written by Joachim Schöpfel and published by John Wiley & Sons. This book was released on 2022-09-21 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: As platforms for sharing, re-using and storing data, research data repositories are integral to open science policy. This book provides a comprehensive approach to these data repositories, their functionalities, uses, issues and prospects. Taking France as an example, the current landscape of data repositories is considered, including discussion of the idea of a national repository and a comparative study of several national systems. The international re3data directory is outlined and a collection of six case studies of model repositories, both public and private, are detailed (CDS, Data INRAE, SEANOE, Nakala, Figshare and Data Mendeley). Research Data Sharing and Valorization also includes appendices containing a number of websites and reference texts from the French Ministry of Higher Education, Research and Innovation, and the CNRS. To the authors’ knowledge, it is the first book to be entirely devoted to these new platforms and is aimed at researchers, teachers, students and professionals working with scientific and technical data and information.
Download or read book Reflections on Sharing Clinical Trial Data written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2020-10-20 with total page 163 pages. Available in PDF, EPUB and Kindle. Book excerpt: On November 18 and 19, 2019, the National Academies of Sciences, Engineering, and Medicine hosted a public workshop in Washington, DC, titled Sharing Clinical Trial Data: Challenges and a Way Forward. The workshop followed the release of the 2015 Institute of Medicine (IOM) consensus study report Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk, and was designed to examine the current state of clinical trial data sharing and reuse and to consider ways in which policy, technology, incentives, and governance could be leveraged to further encourage and enhance data sharing. This publication summarizes the presentations and discussions from the workshop.
Download or read book Blockchain Technology Applications and Challenges written by Sandeep Kumar Panda and published by Springer Nature. This book was released on 2021-04-30 with total page 307 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book discusses the various open issues of blockchain technology, such as the efficiency of blockchain in different domains of digital cryptocurrency, smart contracts, smart education system, smart cities, cloud identity and access, safeguard to cybersecurity and health care. For the first time in human history, people across the world can trust each other and transact over a large peer-to-peer networks without any central authority. This proves that, trust can be built not only by centralized institution but also by protocols and cryptographic mechanisms. The potential and collaboration between organizations and individuals within peer networks make it possible to potentially move to a global collaborative network without centralization. Blockchain is a complex social, economic and technological phenomenon. This questions what the established terminologies of the modern world like currency, trust, economics and exchange would mean. To make any sense, one needs to realize how much insightful and potential it is in the context and the way it is technically developed. Due to rapid changes in accessing the documents through online transactions and transferring the currency online, many previously used methods are proving insufficient and not secure to solve the problem which arises in the safe and hassle-free transaction. Nowadays, the world changes rapidly, and a transition flow is also seen in Business Process Management (BPM). The traditional Business Process Management holds good establishment last one to two decades, but, the internal workflow confined in a single organization. They do not manage the workflow process and information across organizations. If they do so, again fall in the same trap as the control transfers to the third party that is centralized server and it leads to tampering the data, and single point of failure. To address these issues, this book highlights a number of unique problems and effective solutions that reflects the state-of-the art in blockchain Technology. This book explores new experiments and yields promising solutions to the current challenges of blockchain technology. This book is intended for the researchers, academicians, faculties, scientists, blockchain specialists, business management and software industry professionals who will find it beneficial for their research work and set new ideas in the field of blockchain. This book caters research work in many fields of blockchain engineering, and it provides an in-depth knowledge of the fields covered.
Download or read book Enhancing Access to and Sharing of Data Reconciling Risks and Benefits for Data Re use across Societies written by OECD and published by OECD Publishing. This book was released on 2019-11-26 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: This report examines the opportunities of enhancing access to and sharing of data (EASD) in the context of the growing importance of artificial intelligence and the Internet of Things. It discusses how EASD can maximise the social and economic value of data re-use and how the related risks and challenges can be addressed. It highlights the trade-offs, complementarities and possible unintended consequences of policy action – and inaction. It also provides examples of EASD approaches and policy initiatives in OECD countries and partner economies.
Download or read book The Law and Ethics of Data Sharing in Health Sciences written by Marcelo Corrales Compagnucci and published by Springer Nature. This book was released on 2024-01-02 with total page 211 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing – broadly defined as the exchange of health-related data among multiple controllers and processors – has gained increased relevance in the health sciences over recent years as the need and demand for collaboration has increased. This includes data obtained through healthcare provisions, clinical trials, observational studies, public health surveillance programs, and other data collection methods. The practice of data sharing presents several notable challenges, however. Compliance with a complex and dynamic regulatory framework is essential, with the General Data Protection Regulation being a prominent example in a European context. Recent regulatory developments related to clinical trial transparency, trade secrecy, data access, AI training data, and health data spaces further contribute to the difficulties. Simultaneously, government initiatives often encourage scientists to embrace principles of “open data” and “open innovation.” The variety of regulations in this domain has the potential to impede widespread data sharing and hinder innovation. This edited volume, therefore, compiles comparative case studies authored by leading scholars from diverse disciplines and jurisdictions. The book aims to outline the legal complexities of data sharing. By examining real-world scenarios from diverse disciplines and a global perspective, it explores the normative, policy, and ethical dilemmas that surround data sharing in the health sciences today. Chapter Patient Perspectives on Data Sharing, Chapter Supplementary Measures and Appropriate Safeguards for International Transfers of Health Data after Schrems II are available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.
Download or read book Real World Applications of Game Theory and Optimization written by Dun Han and published by Frontiers Media SA. This book was released on 2024-08-16 with total page 205 pages. Available in PDF, EPUB and Kindle. Book excerpt: This research topic centers on the practical application of game theory and optimization methods to address complex challenges in real-world contexts. At its core, game theory provides a framework for analyzing strategic interactions among rational decision-makers, while optimization techniques are designed to seek the most favorable outcomes. These tools have proven to be powerful assets across a wide range of domains, from economics and computer science to social sciences and engineering. The following objectives guide this exploration: (i) Understanding Game Theory and Optimization in Real-world Contexts: This objective involves investigating how these mathematical constructs are applied to model and resolve problems across various fields. (ii) Analyzing the Effectiveness of Game Theory and Optimization Techniques: This involves studying real-world case studies and practical applications with the goal of evaluating the performance and efficiency of these methods in practice. (iii) Identifying Potential Areas for Effective Application of Game Theory and Optimization: This objective aims to pinpoint sectors or disciplines that may significantly benefit from the application of these mathematical techniques. The goal of this Research Topic in Frontiers in Physics aims to produce a comprehensive understanding of the real-world applications of game theory and optimization, highlighting their practical impact and potential for future use. It will provide valuable insights for professionals and researchers working in the fields where these techniques can be applied and contribute to the body of knowledge in game theory and optimization. Potential topics include but are not limited to the following: 1. Economics and Business: How are game theory and optimization used to make strategic business decisions and to understand economic phenomena? 2. Computer Science: How do these techniques contribute to areas like network design, machine learning, and algorithm development? 3. Social Sciences: How can game theory and optimization help in understanding social dynamics, designing policies, and resolving conflicts? 4. Engineering and Operations Research: How are these techniques utilized in system design, process optimization, and decision-making?
Download or read book Data Mining and Big Data written by Ying Tan and published by Springer Nature. This book was released on with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Data Management Technologies and Applications written by Markus Helfert and published by Springer. This book was released on 2015-10-30 with total page 212 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book constitutes the thoroughly refereed proceedings of the Third International Conference on Data Technologies and Applications, DATA 2014, held in Vienna, Austria, in August 2014. The 12 revised full papers were carefully reviewed and selected from 87 submissions. The papers deal with the following topics: databases, data warehousing, data mining, data management, data security, knowledge and information systems and technologies; advanced application of data.
Download or read book Privacy work written by Frank Hendrickx and published by Kluwer Law International B.V.. This book was released on 2023-06-12 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: The right to privacy is a fundamental right. Along with the related right to personal data protection, it has come to take a central place in contemporary employment relations and shows significant relevance for the future of work. This thoroughly researched volume, which offers insightful essays by leading European academics and policymakers in labour and employment law, is the first to present a thoroughly up-to-date Europe-wide survey and analysis of the intensive and growing interaction of workplace relations systems with developments in privacy law. With abundant reference to the EU’s General Data Protection Regulation, the case law of the European Court of Human Rights, and the work of the International Labour Organisation, the book proceeds as a series of country chapters, each by a recognised expert in a specific jurisdiction. Legal comparison is based on a questionnaire circulated to the contributors in advance. Each country chapter addresses the national legal weight of such issues and topics as the following: interaction of privacy and data protection law; legitimacy, purpose limitation, and data minimisation; transparency; role of consent; artificial intelligence and automated decision-making; health-related data, including biometrics and psychological testing; monitoring and surveillance; and use of social media. A detailed introductory overview begins the volume. The research for this book is based on a dynamic methodology, founded in scientific desk research and expert networking. Recognising that the need for further guidance for privacy at work has been demonstrated by various European and international bodies, this book delivers a signal contribution to the field for social partners, practitioners, policymakers, scholars, and all other stakeholders working at the crossroads of privacy, data protection, and labour law.
Download or read book OECD Urban Studies Smart City Data Governance Challenges and the Way Forward written by OECD and published by OECD Publishing. This book was released on 2023-10-13 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: Smart cities leverage technologies, in particular digital, to generate a vast amount of real-time data to inform policy- and decision-making for an efficient and effective public service delivery. Their success largely depends on the availability and effective use of data.
