Download or read book Choosing Down Syndrome written by Chris Kaposy and published by MIT Press. This book was released on 2018-04-06 with total page 237 pages. Available in PDF, EPUB and Kindle. Book excerpt: An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective. The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome. Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome. Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.

Download or read book The Best Little Boy in the World written by Andrew Tobias and published by Ballantine Books. This book was released on 1993-05-11 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: The classic account of growing up gay in America. "The best little boy in the world never had wet dreams or masturbated; he always topped his class, honored mom and dad, deferred to elders and excelled in sports . . . . The best little boy in the world was . . . the model IBM exec . . . The best little boy in the world was a closet case who 'never read anything about homosexuality.' . . . John Reid comes out slowly, hilariously, brilliantly. One reads this utterly honest account with the shock of recognition." The New York Times "The quality of this book is fantastic because it comes of equal parts honesty and logic and humor. It is far from being the story of a Gay crusader, nor is it the story of a closet queen. It is the story of a normal boy growing into maturity without managing to get raped into, or taunted because of, his homosexuality. . . . He is bright enough to be aware of his hangups and the reasons for them. And he writes well enough that he doesn't resort to sensationalism . . . ." San Francisco Bay Area Reporter

Download or read book The Baby Boy Syndrome written by Aaron Fields and published by . This book was released on 2021-05-27 with total page 34 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Raising a Rare Girl written by Heather Lanier and published by Penguin. This book was released on 2021-07-06 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: “A remarkable book . . . I found myself thinking that all expectant and new parents should read it.” —Michelle Slater A New York Times Book Review Editors' Choice In Raising a Rare Girl, Lanier explores how to defy the tyranny of normal and embrace parenthood as a spiritual practice that breaks us open in the best of ways. Like many women of her generation, when Heather Lanier was expecting her first child she did everything by the book in the hope that she could create a SuperBaby, a supremely healthy human destined for a high-achieving future. But her daughter Fiona challenged all of Lanier’s preconceptions. Born with an ultra-rare syndrome known as Wolf-Hirschhorn, Fiona received a daunting prognosis: she would experience significant developmental delays and might not reach her second birthday. The diagnosis obliterated Lanier’s perfectionist tendencies, along with her most closely held beliefs about certainty, vulnerability, God, and love. With tiny bits of mozzarella cheese, a walker rolled to library story time, a talking iPad app, and a whole lot of pop and reggae, mother and daughter spend their days doing whatever it takes to give Fiona nourishment, movement, and language. Loving Fiona opens Lanier up to new understandings of what it means to be human, what it takes to be a mother, and above all, the aching joy and wonder that come from embracing the unique life of her rare girl.

Download or read book What Is It Like to Be Me written by Alenka Klemenc and published by Jessica Kingsley Publishers. This book was released on 2013-03-28 with total page 98 pages. Available in PDF, EPUB and Kindle. Book excerpt: Join Greg, a young boy with Asperger's syndrome (AS), as he tells us all about the world as he sees and experiences it. We learn about all the things he loves, including his routine and numbers, as well as his special interest in batteries (he even has a rectangular one!). Greg also tells us about the things that he finds challenging, from a change in his beloved routine to reading facial expressions, and how these things can sometimes leave him upset and overwhelmed. By explaining the way he feels and how best to calm him down when it all gets too much, Greg helps us to understand AS and how it affects the way he views the people and objects around him. With comprehensive sections for parents and professionals on AS and the impact it can have on the family unit and life in the wider community, this charmingly illustrated book helps to increase awareness and understanding of Asperger's syndrome. It will be of interest to families of children with autism spectrum disorders, as well as teachers and other professionals working with children on the autism spectrum.

Download or read book An Oral History of the Special Olympics in China Volume 2 written by William P. Alford and published by Springer Nature. This book was released on 2020-01-01 with total page 574 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book contains the oral histories that were inspired by the work of the Special Olympics in conjunction with the 50th anniversary of its founding. The foreword and prefatory materials provide an overview of the Special Olympics and its growth in the Peoples Republic of China. The sections that follow record interview transcripts of individuals with intellectual disabilities living in Shanghai. In addition to chronicling the involvement of these individuals and their families in the Special Olympics movement, the interview transcripts also capture their daily lives and how they have navigated school and work.

Download or read book The Sissy Boy Syndrome and the Development of Homosexuality written by Richard Green and published by . This book was released on 1987 with total page 416 pages. Available in PDF, EPUB and Kindle. Book excerpt: Uses a 15-year study of two groups of boys and their parents to examine the impact of early sexual role behavior on the development of homosexuality

Download or read book Expecting Adam written by Martha Beck and published by Harmony. This book was released on 2011-08-02 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: NEW YORK TIMES BESTSELLER • A candid and moving memoir of how one woman’s pregnancy forced her to confront her definition of how to live a successful life “Slyly ironic, frequently hilarious, [Martha] Beck’s memoir charts the journey from being smart to becoming wise.”—Time This edition includes a new afterword about Adam. From the moment Martha and her husband, John, accidentally conceived their second child, all hell broke loose. They were a couple obsessed with success. After years of matching IQs and test scores with less driven peers, they had two Harvard degrees apiece and were gunning for more. They’d plotted out a future in the most vaunted ivory tower of academe. But when their unborn son, Adam, was diagnosed with Down syndrome, doctors, advisers, and friends in the Harvard community warned them that if they decided to keep the baby, they would lose all hope of achieving their carefully crafted goals. Fortunately, that’s exactly what happened. By the time Adam was born, Martha and John were propelled into a world in which they were forced to redefine everything of value to them, put all their faith in miracles, and trust that they could fly without a net. And it worked. Expecting Adam captures the abject terror and exhilarating freedom of facing impending parenthood, being forced to question one’s deepest beliefs, and rewriting life’s rules.

Download or read book The Boy Who Loved Too Much written by Jennifer Latson and published by Simon and Schuster. This book was released on 2017-06-20 with total page 309 pages. Available in PDF, EPUB and Kindle. Book excerpt: The acclaimed, poignant story of a boy with Williams syndrome, a condition that makes people biologically incapable of distrust, a “well-researched, perceptive exploration of a rare genetic disorder seen through the eyes of a mother and son” (Kirkus Reviews). What would it be like to see everyone as a friend? Twelve-year-old Eli D’Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. On the cusp of adolescence, Eli lacks the innate skepticism that will help him navigate coming-of-age more safely—and vastly more successfully. In “a thorough overview of Williams syndrome and its thought-provoking paradox” (The New York Times), journalist Jennifer Latson follows Eli over three critical years of his life, as his mother, Gayle, must decide whether to shield Eli from the world or give him the freedom to find his own way and become his own person. Watching Eli’s artless attempts to forge connections, Gayle worries that he might never make a real friend—the one thing he wants most in life. “As the book’s perspective deliberately pans out to include teachers, counselors, family, friends, and, finally, Eli’s entire eighth-grade class, Latson delivers some unforgettable lessons about inclusion and parenthood,” (Publishers Weekly). The Boy Who Loved Too Much explores the way a tiny twist in a DNA strand can strip away the skepticism most of us wear as armor, and how this condition magnifies some of the risks we all face in opening our hearts to others. More than a case study of a rare disorder, The Boy Who Loved Too Much “is fresh and engaging…leavened with humor” (Houston Chronicle) and a universal tale about the joys and struggles of raising a child, of growing up, and of being different.

Download or read book Transgressing Boundaries written by Elizabeth F. Oldfield and published by Rodopi. This book was released on 2013 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fictions written between 1939 and 2005 by indigenous and white (post)colonial women writers emerging from an African–European cultural experience form the focus of this study. Their voyages into the European diasporic space in Africa are important for conveying how African women’s literature is situated in relation to colonialism. Notwithstanding the centrality of African literature in the new postcolonial literatures in English, the accomplishments of the indigenous writer Grace Ogot have been eclipsed by the critical attention given to her male counterparts, while Elspeth Huxley, Barbara Kimenye, and Marjorie Oludhe Macgoye, who are of Western cultural provenance but adopt an African perspective, are not accommodated by the genre of ‘expatriate literature’. The present study of both indigenous and white (post)colonial women’s narratives that are common to both categories fills this gap. Focused on the representation of gender, identity, culture, and the ‘Other’, the texts selected are set in Kenya and Uganda, and a main concern is with the extent to which they are influenced by setting and intercultural influences. The ‘African’ woman’s creation of textuality is at once the expression of female individualities and a transgression of boundaries. The particular category of fiction for children as written by Kimenye and Macgoye reveals the configuration of a voice and identity for the female ‘Other’ and writer which enables a subversive renegotiation of identity in the face of patriarchal traditions.

Download or read book The Explosive Child written by Ross W. Greene and published by Harper Collins. This book was released on 2005 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Provides a sensitive, practical approach to managing a child's severe noncompliance. temper outbursts and verbal or physical aggression at home and school. May also be useful for parents of children with oppositional defiant disorder (ODD).

Download or read book Changed by a Child written by Barbara Gill and published by Harmony. This book was released on 1998-08-17 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising a child with a disability can often be more isolating and frustrating than any parent ever imagines. Finally, here is a book that honestly describes the inner needs and range of issues parents with disabled children face. Changed by a Child invites parents to take a moment for themselves. Each of the brief readings offers comfort and hope as they capture the unique challenges and joys of raising a disabled child.

Download or read book Losing Patience written by James Peinkofer and published by . This book was released on 2014 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: All it takes is two or three violent shakes -- in as little as five seconds by an angry parent or caregiver -- to punish or quiet a crying child. Shaken Baby Syndrome (SBS) is the leading cause of abuse related deaths among infants. Nearly one-third of shaken babies die, with as high as 80 percent of survivors suffering permanent brain damage. InLosing Patience, James Peinkofer provides an encompassing look into the famous and recent cases (Virginia Jaspers, Patience Gill, and Louise Woodward) and key medical personnel that helped shape and define Shaken Baby Syndrome. He identifies the victimology (which infants and children are most vulnerable), what to look out for in a caregiver, and what a family should do if they suspect SBS. He also provides prevention efforts, ways to soothe a crying baby, and stories from the families and survivors. Losing Patience is a must-read for every parent, grandparent, and caregiver. The life that's saved may be your tiny loved one's.

Download or read book The First Breath written by Olivia Gordon and published by Pan Macmillan. This book was released on 2019-06-13 with total page 347 pages. Available in PDF, EPUB and Kindle. Book excerpt: ‘Fascinating and moving.' - Adam Kay, author of This is Going to Hurt A BBC Radio 4 A Good Read choice This is a story about the cutting-edge medicine that has saved a generation of babies. It's about the love and fear a parent feels for a child they haven’t yet met. It's about doctors, mothers, fathers and babies as together they fight for the first breath. The First Breath is a book about motherhood and medicine. Olivia Gordon decided to find out how, exactly, modern science saved her son’s life. Crossing medical memoir with popular science, The First Breath is an investigation into the pioneering fetal and neonatal care bringing a new generation into the world, who would not have lived if they had been born only a few decades ago. The First Breath explores the female experience of medicine and details the relationship mothers develop with doctors who hold not only life and death in their hands, but also the very possibility of birth. From the dawn of fetal medicine to neonatal surgery and the exploding field of perinatal genetics, The First Breath tells of fear, bravery and love. Olivia Gordon takes the reader behind the closed doors of the fetal and neonatal intensive care units, resuscitation rooms and operating theatres at some of the world’s leading children’s hospitals, unveiling the untold story of how doctors save the sickest babies.

Download or read book Child Abuse and Neglect Research written by and published by . This book was released on 1978 with total page 428 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Oski s Pediatric Certification and Recertification Board Review written by Carmen Coombs and published by Lippincott Williams & Wilkins. This book was released on 2011-12-21 with total page 640 pages. Available in PDF, EPUB and Kindle. Book excerpt: Oski's Pediatric Certification and Recertification Board Review provides comprehensive coverage of all of the areas focused on in the board exam. Features include more than 300 board-style review questions, a full-color design and illustrations, and numerous Points to Remember.

Download or read book The Kennedy Family and the Story of Mental Retardation written by Edward Shorter and published by Temple University Press. This book was released on 2000 with total page 282 pages. Available in PDF, EPUB and Kindle. Book excerpt: According to Edward Shorter, just forty years ago the institutions housing people with mental retardation (MR) had become a national scandal. The mentally retarded who lived at home were largely isolated and a source of family shame. Although some social stigma still attaches to the people with developmental disabilities (a range of conditions including what until recently was called mental retardation), they now actively participate in our society and are entitled by law to educational, social, and medical services. The immense improvement in their daily lives and life chances came about in no small part because affected families mobilized for change but also because the Kennedy family made mental retardation its single great cause. Long a generous benefactor of MR-related organizations, Joseph P. Kennedy made MR the special charitable interest of the family foundation he set up in the 1950s. Although he gave all of his children official roles, he involved his daughter Eunice in performing its actual work--identifying appropriate recipients of awards and organizing the foundation's activities. With unique access to family and foundation papers, Shorter brings to light the Kennedy family's strong commitment to public service, showing that Rose and Joe taught their children by precept and example that their wealth and status obligated them to perform good works. Their parents expected each of them to apply their considerable energies to making a difference. Eunice Kennedy Shriver took up that charge and focused her organizational and rhetorical talents on putting MR on the federal policy agenda. As a sister of the President of the United States, she had access to the most powerful people in the country and drew their attention to the desperate situation of families affected by mental retardation. Her efforts made an enormous difference, resulting in unprecedented public attention to MR and new approaches to coordinating medical and social services. Along with her husband, R. Sargent Shriver, she made the Special Olympics a international, annual event in order to encourage people with mental retardation to develop their skills and discover the joy of achievement. She emerges from these pages as a remarkable and dedicated advocate for people with developmental disabilities. Shorter's account of mental retardation presents an unfamiliar view of the Kennedy family and adds a significant chapter to the history of disability in this country. Author note: Edward Shorter is a Professor at the University of Toronto where he holds the Hannah Chair in the History of Medicine. He is the author of A History of Psychiatry from the Era of the Asylum to the Age of Prozac, as well as many other books in the fields of history and medicine.