Download or read book Survey on Company Practices Related to Genetic Testing written by Health Insurance Association of America and published by . This book was released on 1991 with total page 18 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Assessing Genetic Risks written by Institute of Medicine and published by National Academies Press. This book was released on 1994-01-01 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.
Download or read book Final Progress Report written by and published by . This book was released on 2008 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Our multidisciplinary research team for this project involved collaboration between the Department of Psychiatry and Behavioral Medicine at the Medical College of Wisconsin (MCW) and the Department of Family and Community Medicine at the University of New Mexico Health Sciences Center (UNM HSC). Our research team in Wisconsin was led by Laura Roberts, M.D., Principal Investigator, and included Scott Helberg, MLS (Project Coordinator), Kate Green Hammond, Ph. D. (Consultant), Krisy Edenharder (Research Coordinator), and Mark Talatzko (Research Assistant). Our New Mexico-based team was led by Teddy Warner, Ph. D., Co-Principal Investigator and UNM Site Principal Investigator, and included Suzanne Roybal (Project Assistant), Darlyn Mabon (Project Assistant), Kate Green Hammond, PhD (Senior Research Scientist on the UNM team from 2004 until January, 2007), and Paulette Christopher (Research Assistant). In addition, computer technical and web support for the web-based survey conducted on a secure server at the University of New Mexico was provided by Kevin Wiley and Kim Hagen of the Systems and Programming Team of the Health Sciences Center Library and Information Center. We stated 3 aims in the grant proposal: (1) To collect web survey reports of the ethical perspectives, concerns, preferences and decision-making related to genetic testing using surveys from employees at: (a) Los Alamos National Laboratory (LANL); (b) Sandia National Laboratories (SNL); and (c) the University of New Mexico Health Sciences Center (UNMHSC); (2) To perform an extensive literature search and the extant survey data to develop evidence-based policy recommendations for ethically sound genetic testing associated with research and occupational health activities in the workplace; and, (3) To host a conference at the Medical College of Wisconsin to provide employers, workers, health professionals, researchers, the public, and the media an opportunity to consider ethical issues involved in genetic testing in the context of the workplace.
Download or read book Genetic Monitoring and Screening in the Workplace written by and published by . This book was released on 1990 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt: Examines the potential applications and limitations of genetic testing in the workplace. Evaluates a 1989 survey of 1,500 companies, 50 utilities companies and 33 unions concerning the use of genetic testing.
Download or read book Genetic Monitoring and Screening in the Workplace written by and published by . This book was released on 1990 with total page 46 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Genetic Tests and Health Insurance written by and published by DIANE Publishing. This book was released on 1993-06 with total page 85 pages. Available in PDF, EPUB and Kindle. Book excerpt: A survey of commercial insurers, Blue Cross and Blue Shield plans and HMO1s that offer individual or medically underwritten group policies, and their attitude toward reimbursement for genetic tests or policies for using tests results in underwriting. Summarizes information about cystic fibrosis and presents additional results that pertain to the broader topic of health insurers1 practices and attitudes toward genetic information and genetic tests for diseases other than cystic fibrosis. 22 tables and charts.
Download or read book Direct to Consumer Genetic Testing written by National Research Council and published by National Academies Press. This book was released on 2011-01-16 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: Today, scores of companies, primarily in the United States and Europe, are offering whole genome scanning services directly to the public. The proliferation of these companies and the services they offer demonstrate a public appetite for this information and where the future of genetics may be headed; they also demonstrate the need for serious discussion about the regulatory environment, patient privacy, and other policy implications of direct-to-consumer (DTC) genetic testing. Rapid advances in genetic research already have begun to transform clinical practice and our understanding of disease progression. Existing research has revealed a genetic basis or component for numerous diseases, including Parkinson's disease, Alzheimer's disease, diabetes, heart disease, and several forms of cancer. The availability of the human genome sequence and the HapMap, plummeting costs of high-throughput screening, and increasingly sophisticated computational analyses have led to an explosion of discoveries of linkages between patterns of genetic variation and disease susceptibility. While this research is by no means a straight path toward better public health, improved knowledge of the genetic linkages has the potential to change fundamentally the way health professionals and public health practitioners approach the prevention and treatment of disease. Realizing this potential will require greater sophistication in the interpretation of genetic tests, new training for physicians and other diagnosticians, and new approaches to communicating findings to the public. As this rapidly growing field matures, all of these questions require attention from a variety of perspectives. To discuss some of the foregoing issues, several units of the National Academies held a workshop on August 31 and September 1, 2009, to bring together a still-developing community of professionals from a variety of relevant disciplines, to educate the public and policy-makers about this emerging field, and to identify issues for future study. The meeting featured several invited presentations and discussions on the many technical, legal, policy, and ethical questions that such DTC testing raises, including: (1) overview of the current state of knowledge and the future research trajectory; (2) shared genes and emerging issues in privacy; (3) the regulatory framework; and (4) education of the public and the medical community.
Download or read book Cells and Surveys written by National Research Council and published by National Academies Press. This book was released on 2001-01-19 with total page 388 pages. Available in PDF, EPUB and Kindle. Book excerpt: What can social science, and demography in particular, reasonably expect to learn from biological information? There is increasing pressure for multipurpose household surveys to collect biological data along with the more familiar interviewer-respondent information. Given that recent technical developments have made it more feasible to collect biological information in non-clinical settings, those who fund, design, and analyze survey data need to think through the rationale and potential consequences. This is a concern that transcends national boundaries. Cells and Surveys addresses issues such as which biologic/genetic data should be collected in order to be most useful to a range of social scientists and whether amassing biological data has unintended side effects. The book also takes a look at the various ethical and legal concerns that such data collection entails.
Download or read book Direct to consumer Genetic Testing written by Albert Blankley and published by . This book was released on 2013 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt: "New technology presents difficulties for policy makers in that it is impossible to determine every subsequent impact of a novel technology when it is introduced to society. Direct-to-consumer (DTC) genetic testing exemplifies this problem while presenting the additional complication of having an impact on both individual and public health. Little research has been done on what consumer perceptions of information presented to them are. Some studies have demonstrated a need for further work and expert consensus has identified issues with advertisements but no research has been done on consumer perceptions. A cohort of faculty and staff at the Rochester Institute of Technology (RIT) were presented with a screenshot of a website from a leader in the DTC genetic testing industry and asked about their perceptions of the genetic tests presented on that page. The survey was distributed via email and presented using RIT Clipboard software. 103 responses to the survey were received and analyzed. There was a wide range in the answers provided to questions but several themes emerged upon analysis. This population was significantly more educated than the general U.S. population. Many respondents indicated some form of knowledge in science and or technology, either through formal education or work experience. The responses indicated a significant lack of understanding of the information presented by the company. Some respondents demonstrated a misunderstanding of the basic concepts underlying the information presented and a failure to correctly interpret the advertisement. These results indicate a potential need for policies regarding the structure, content and interpretation of these advertisements. Further research should focus on establishing similar results for other genetic tests and DTC genetic testing companies as well as developing methodologies to assess retention of information and economic and political acceptance of potential regulation."--Abstract.
Download or read book Genetic Testing A Survey of Quality Assurance and Proficiency Standards written by OECD and published by OECD Publishing. This book was released on 2007-10-31 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt: This report presents the results of a survey of over 800 genetic testing laboratory directors in 18 OECD countries. It provides the first detailed overview of the availability and extent of molecular genetic testing across OECD member countries.
Download or read book Risky Business written by Elaine Draper and published by Cambridge University Press. This book was released on 1991-08-30 with total page 330 pages. Available in PDF, EPUB and Kindle. Book excerpt: At a time when more corporate employers are using genetic information as a cornerstone of their hiring practices, when workers find their chromosomes considered alongside their resumes, the ramifications of genetic testing demand further examination. Risky Business analyzes health screening in the workplace - three major types of testing are examined: genetic screening in which job applicants and employees are tested for inherited traits that may predispose them to the disease:genetic monitoring that aims to detect genetic damage among current employees that could indicate exposure to dangerous chemicals; and teratogenic risk in which laboratory cultures and animals are used to provide evidence of the effects of chemical exposure on humans.
Download or read book Genetic Tests and Health Insurance written by and published by . This book was released on 1993-01 with total page 78 pages. Available in PDF, EPUB and Kindle. Book excerpt: A survey of commercial insurers, Blue Cross and Blue Shield plans and HMO's that offer individual or medically underwritten group policies, and their attitude toward reimbursement for genetic tests or policies for using tests results in underwriting. Summarizes information about cystic fibrosis and presents additional results that pertain to the broader topic of health insurers' practices and attitudes toward genetic information and genetic tests for diseases other than cystic fibrosis. 22 tables and charts.
Download or read book Practical Ethics for Students Interns and Residents written by Charles Junkerman (M.D.) and published by University Publishing Group.. This book was released on 2008 with total page 92 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Direct to consumer Genetic Tests written by Trevor Hecht and published by . This book was released on 2012 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 2006, the Government Accountability Office (GAO) investigated companies selling direct-to-consumer (DTC) genetic tests and testified that these companies made medically unproven disease predictions. Although new companies have since been touted as being more reputable, experts remain concerned that the test results mislead consumers. This book examines the genetic tests currently on the market; the misleading test results themselves; the deceptive marketing techniques utilized; and other questionable practices.
Download or read book Genetic Testing and Gene Therapy written by March of Dimes Birth Defects Foundation and published by . This book was released on 1992 with total page 38 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book A Survey of Genetic Counseling Professionals in the Southeastern United States written by Delores James and published by . This book was released on 2019-05-31 with total page 282 pages. Available in PDF, EPUB and Kindle. Book excerpt: Abstract: This study was part of an Ethical, Legal, and Social Implications of the Human Genome Project (ELSI) grant funded by the Department of Energy (DOE) and the National Institutes of Health (NIH) . It was conducted under the aegis of the Morehouse School of Medicine in Atlanta, Georgia, and the University of Florida College of Medicine in Gainesville, Florida. As part of the project, the current study sought to answer the following questions: 1) What are the qualifications and training of professionals in the southeastern United States who provide genetic counseling? 2) Who routinely does and who should do genetic counseling? and 3) What are the educational methods used by the different health professionals in genetic counseling? A self-administered mail survey was sent to 325 potential genetic counseling professionals in the southeastern United States (Alabama, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, South Carolina, and Tennessee) . Two hundred four persons volunteered for the study. Genetic associates (31%), physicians (30%), and nurses represent the three largest groups of health professionals involved in the genetic counseling process. Genetic counseling is usually a team activity. The majority of respondents reported that social workers are not and should not routinely be involved in genetic counseling. Genetic associates are well trained in human genetics and counseling techniques, but like physicians and nurses have much room for improvement in the educative aspect of counseling. Physicians have more years of experience (13 years) doing genetic counseling than genetic associates (6 years) and nurses (6 years) but the bulk of their training apparently comes from supervised clinical training rather than formal courses in human genetics, counseling techniques, and educational methods and principles. Nurses and genetic associates have comprable years of experience but nurses lack the formal courses in human genetics and counseling techniques. The majority of all respondents had no formal training in educational methods and principles. Educational techniques such as assessing clients' educational level and asking patients to repeat information in their own words were not always utilized. Recognizing professional limitations and formal training in human genetics are the only two factors perceived to increase counseling effectiveness. Policy recommendations are given. Dissertation Discovery Company and University of Florida are dedicated to making scholarly works more discoverable and accessible throughout the world. This dissertation, "A Survey of Genetic Counseling Professionals in the Southeastern United States: Actual Versus Perceived Roles" by Delores Corinne Suzette. James, was obtained from University of Florida and is being sold with permission from the author. A digital copy of this work may also be found in the university's institutional repository, IR@UF. The content of this dissertation has not been altered in any way. We have altered the formatting in order to facilitate the ease of printing and reading of the dissertation.
Download or read book Genetics Health and Society written by Brea L. Perry and published by Emerald Group Publishing. This book was released on 2015-07-16 with total page 330 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume focuses on critical issues surrounding the intersection of genetics, health, and society. It provides a critical examination of sociological and biomedical approaches to genomics, including strengths and limitations of each perspective.
