Download or read book Sickle Cell Disease and My Life Struggles written by Carolyn Johnson and published by . This book was released on 2015-07-07 with total page 78 pages. Available in PDF, EPUB and Kindle. Book excerpt: My heart felt like it was about to explode from the pain. As the nurse quickly left the room, I then became more irate. I began beating the walls and crying "Please, please, someone help me!" At this time, someone came and closed the door to my room and by doing that made me more irate. I began to scream so loud I thought I would spit my vocals out.
Download or read book Living with Sickle Cell Disease written by Judy Gray Johnson and published by . This book was released on 2012-05-01 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Judy Gray was four when the pain first struck. As mysterious as it was excruciating, Judy's anguish confounded the local doctor, who advised her mother to apply liniment. It was not until Judy was a teenager that another doctor informed her aunt of the real cause of Judy's agony - something called sickle cell anemia. The social mores of that time, however, dictated that adults discussed nothing of substance with children. So Judy learned little about her ailment other than it could cause her to die. A frightened Judy simply put sickle cell disease out of her mind and suffered in silence as she went on with her life. Readers will follow Judy's journey through college, a teaching career, a short-lived marriage, and the raising of a daughter while enduring severe pain episodes. All the while, exhaustion was her constant companion. Living with Sickle Cell Disease: The Struggle to Survive is a story of Judy Gray Johnson's perseverance in the face of living with a little-understood chronic illness.
Download or read book Alexia s World written by Alexia Tennent and published by Tennflex Wellness. This book was released on 2019-11-10 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alexia's World is about a little girl living with sickle cell disease. She is passionate and full of life. While she is aware of her limitations, she places no limits on herself. She is funny, creative, energetic, bold, authentic, kind and compassionate. Her mom, who also has the disease, is her hero and best friend. Together they form a formidable team. They focus on wellness to control the symptoms of the disease. Alexia and her mom also help other children living with the disease to thrive despite the disease. The book chronicles her journey living with sickle cell disease. She speaks about the ups and downs of her life, including the struggles her family faces navigating the healthcare system and the joy of finding what has helped to improve her health-related quality of life. Alexia now lives relatively symptom free.
Download or read book The Early Life of Jeomie East written by Phyllis East and published by . This book was released on 2002-03 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt: This Book is a combination of Life, Love, Animals, Angels, The Beauty of Nature you ask how did Angels come into my life? It is very interesting. A number of stories will keep you reading. Angels that helped me as a child. And more. One is about three Angels that came to me in the hospital. And you have to read A Little Touch Of Heaven. It will touch your heart. And give you hope.
Download or read book Portrait Of A Miracle written by Perry Collins and published by Xulon Press. This book was released on 2020-11-29 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the personal account of true events from one who has been divinely favored. It is the story of one born with a crippling illness and yet experienced triumphs and blessings that oftentimes defied explanation. It is a time of painfully learning limitations and at the same time stretching the boundaries of life which fate sought to hold captive. This story is a true illustration of a life whose journey went through struggles with torturous pains, high fevers combined with the threat of heart attack, stroke and general organ failure. I was on a roller coaster ride of exciting highs and excruciatingly painful lows. Through divine favor all of these things were laid to rest giving me over 27 years without a single crisis and free from all symptoms. I didn't take any medications throughout this period. God took control of my life and turned me into a living witness that He is Lord over life and death. From age thirty-two to present I've experienced things that I never dreamed would be possible and the awakening to God's mind blowing presence has propelled me to heights I couldn't have imagined. I came to realize that God was orchestrating a beautiful love affair with me that has the potential to touch the heart of the unbeliever as well as encourage God's community of faith into further opening their minds to the wonderful possibilities that the omnipotent, omniscient and omnipresent God of our salvation can provide. God's miracles are still available today as much as they were when Jesus walked in the flesh. If you have doubts then this book is for you. Simply put Perry is a sinner saved by the grace, love and mercy of our God over and over again. He was born to parents whom both carried the sickle cell gene. They had the trait and so, consequently, he and his baby brother drew the short straw out of their ten children and were born with Hemoglobin type SS which is sickle cell disease. From toddler to teenager he grew up slowly learning his limitations. By adulthood he had a good handle on controlling his emotions. Perry has been blessed with a lovely wife, five beautiful daughters, two honorable son in-laws, eight gorgeous grandchildren and three great grandchildren.
Download or read book A Sick Life written by Tionne "T-Boz" Watkins and published by Rodale. This book was released on 2017-09-12 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: A candid memoir of fame, strength, family, and friendship from the lead singer of TLC As the lead singer of Grammy-winning supergroup TLC, Tionne "T-Boz" Watkins has seen phenomenal fame, success, and critical acclaim. But backstage, she has lived a dual life. In addition to the balancing act of juggling an all-consuming music career and her family, Tionne has struggled since she was a young girl with sickle-cell disease--a debilitating and incurable condition that can render her unable to perform, walk, or even breathe. A Sick Life chronicles Tionne's journey from a sickly young girl from Des Moines who was told she wouldn't live to see 30 through her teen years in Atlanta, how she broke into the music scene, and became the superstar musician and sickle-cell disease advocate she is today. Through Tionne's tough, funny, tell-it-like-it-is voice, she shares how she found the inner strength, grit, and determination to live her dream, despite her often unpredictable and debilitating health issues. She dives deep into never-before-told TLC stories, including accounts of her friendship with Lisa "Left-Eye" Lopes and her tragic death. Tionne's unvarnished discussion of her remarkable life, disease, unending strength, and ability to power through the odds offers a story like no other.
Download or read book My Infamous Life written by Albert "Prodigy" Johnson and published by Simon and Schuster. This book was released on 2012-02-07 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A memoir about a life almost lost and a revealing look at the dark side of hip hop's golden era ... a story of struggle, survival, and hope down the mean streets of New York City"--Dust flap jacket.
Download or read book Burning Bright written by Maryam Awaisu and published by iUniverse. This book was released on 2014-11-13 with total page 243 pages. Available in PDF, EPUB and Kindle. Book excerpt: Burning Bright is not a story about statistics, but of an over-achieving young lady, who is determined not to let sickle cell anemia stand in her way. Without notice, difficulties that Nadia Habeeb did not foresee complicate her health and love life, changing everything immensely. With the walls of life itself closing in on her, will she stand conqueror this time? If she does, what will be her fate back home in Nigeria, with a closed-off heart, and physical challenge? This is a story of a family struggling to maintain faith and hope in the face of severe emotional challenges, social upheaval, medical necessity, and the paradox of humanity. Set within the complexities of Nigerian culture, it is the story of young people trying to make their way in a world they didn't make. It is also a story of pain and redemption, of love lost and found, generational conflict, and the emergence of true faith.
Download or read book A Doctor in a Patient s Body written by Simone C. Uwan and published by . This book was released on 2018-11-10 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a wonderful educational journey written by someone with Sickle Cell Disease who trained while being sick to become a medical doctor. The author uses humor to tell her story. She shares about many things including making it through school with usual and unusual disability accommodations, natural things and simple techniques you can use to protect your health that are not found in textbooks, her experiences navigating the healthcare system, and even how to attract people to you, to name a few. This is a book that everyone with a chronic illness, or who knows someone with a chronic illness, should have. It is especially crucial for those with Sickle Cell Disease and chronic pain, because it reads like a survivor manual.
Download or read book The Politics of Sickle Cell and Thalassaemia written by Elizabeth N. Anionwu and published by . This book was released on 2001 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle cell disorder (SCD) and thalassaemia are inherited blood disorders which have only recently gained serious attention among health professionals and policy makers. In this text, Anionwu (nursing, Thames Valley U.) and Atkin (U. of Leeds) explore issues regarding these disorders in the UK, and the broader problems faced by minority ethnic communities in acquiring adequate health care and support. Coverage includes a clinical introduction to haemoglobinopathies; screening and diagnosing within the context of the "new genetics," including associated ethical dilemmas and problems; general problems faced by patients and their families, and their daily coping strategies; current shortfalls in providing care; examples of existing good practice; strategies and struggles from the historical development of haemoglobinopathy services in the UK; and opportunities and threats for the future. c. Book News Inc.
Download or read book Sickle Cell Natural Healing written by Tamika Moseley and published by AuthorHouse. This book was released on 2013-09-26 with total page 89 pages. Available in PDF, EPUB and Kindle. Book excerpt: After spending every three months of her newborn's life in the hospital managing his sickle cell disease, Tamika Moseley knew she had to change what she was doing or the hospital would be her second home. In this deeply personal book, Tamika shares her story of the difficult journey she took to find natural ways to treat her son's debilitating disease. Three years since she started using herbs to minimize his sickle cell crises, her son is living a normal, healthy and pain-free life. Whether you have sickle cell disease or the trait, this book will show you what your body needs and how to treat your symptoms so that pain is no longer a part of your vocabulary. As Tamika likes to say, "Knowledge is power!" Sickle Cell Natural Healing: A Mother's Journey gives you the benefit of the wisdom one fearless and determined mother collected so that others suffering with this disease can thrive.
Download or read book The Enculturated Gene written by Duana Fullwiley and published by Princeton University Press. This book was released on 2011-11-07 with total page 369 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the 1980s, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell "mild" in a social setting where public health priorities and economic austerity programs have forced people to improvise informal strategies of care. Duana Fullwiley shows how geneticists, who were fixated on population differences, never investigated the various modalities of self-care that people developed in this context of biomedical scarcity, and how local doctors, confronted with dire cuts in Senegal's health sector, wittingly accepted the genetic prognosis of better-than-expected health outcomes. Unlike most genetic determinisms that highlight the absoluteness of disease, DNA haplotypes for sickle cell in Senegal did the opposite. As Fullwiley demonstrates, they allowed the condition to remain officially invisible, never to materialize as a health priority. At the same time, scientists' attribution of a less severe form of Senegalese sickle cell to isolated DNA sequences closed off other explanations of this population's measured biological success. The Enculturated Gene reveals how the notion of an advantageous form of sickle cell in this part of West Africa has defined--and obscured--the nature of this illness in Senegal today. Some images inside the book are unavailable due to digital copyright restrictions.
Download or read book Soar written by Gail Campbell Woolley and published by Agate Publishing. This book was released on 2017-12-12 with total page 195 pages. Available in PDF, EPUB and Kindle. Book excerpt: “This is a book about life—about living it ravenously, fully, joyously, unendingly, even if you have a death sentence.” —Donna Brazile, former chair, Democratic National Committee When Gail Campbell Woolley was seven, a pediatrician told her mother that Gail suffered from sickle cell anemia, a rare blood disease, and that she would be dead by age thirty-five. While others may have responded to this horrifying news by descending into a fog of self-pity, Gail went in the opposite direction. She decided to live an eventful, exciting life that ultimately included—despite a troubled home life and the systemic racism and sexism of the late twentieth century—academic success, an impressive career, a long and loving marriage, and the ability to leave her unmistakable stamp on every person she met. By the time she finally succumbed to her disease at age fifty-eight in 2015, she had ground that doctor’s words into dust. Soar, written in the last two years of her life, is Woolley’s powerfully inspiring story, and its publication checks the last item off her extraordinary bucket list, which also included traveling to every continent except Antarctica. Written in an engaging, no-nonsense voice with a directness that reflects her many years in journalism, Woolley’s remarkable story not only will move readers to root for this irrepressible, quietly heroic woman but also will push readers to reassess their own approach to life. “An inspiration for anyone confronting life’s challenges. Gail has left a legacy of courage and compassion, and her memoir represents a voice that desperately needs to be heard in America right now.” —Marc Morial, president and CEO, National Urban League
Download or read book My Life Struggles Growing Up written by Shantain Campbell and published by Xlibris Corporation. This book was released on 2022-09-06 with total page 72 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book is intended as a testimony to the body of Christ, that indeed, God is forever faithful. Scripture says in Psalm 89:2, “For I have said, ‘Mercy shall be built up forever; your faithfulness you shall establish in the very heavens.’” Whenever we pray, He hears us. He has promised never to leave us nor forsake us. We trust this book will inspire a sense of hope for those in despair, as well as increase faith in the faithless.
Download or read book Sickle Cell Disease in Clinical Practice written by Jo Howard and published by Springer. This book was released on 2015-02-12 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Disease is the most common genetic disease world wide and in the UK. It has marked geographical variation in its distribution in the UK, with a concentration in London and other major conurbations (Birmingham and Manchester). In these areas, specialist centres have become established offering expert, up to date care for both inpatients and out patients with Sickle Cell Disease. Although patient numbers are increasing outside these areas, the expertise of health professionals can be patchy. This book aims to provide a user friendly, accessible resource for areas with smaller numbers of patients, to allow them to provide equitable care with the larger well established centres. Sickle Cell Disease can be associated with acute life threatening complications, when clear, easily available advice is needed, and with chronic long term complications which may need liaison with other health professionals. Clear treatment protocols for all the common complications of sickle cell disease, are outlined here, with summaries of key evidence and references.
Download or read book The Immortal Life of Henrietta Lacks written by Rebecca Skloot and published by Crown. This book was released on 2010-02-02 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.
Download or read book Disease Proof written by David L. Katz, M.D. and published by Penguin. This book was released on 2013-09-26 with total page 229 pages. Available in PDF, EPUB and Kindle. Book excerpt: “If you want to build better health and a better future, this book makes an excellent tool kit.”—David A. Kessler, MD, author of The End of Overeating and former commissioner of the FDA It sometimes seems as if everyone around us is being diagnosed with a chronic illness—and that we might soon join them. In Disease-Proof, leading specialist in preventive medicine Dr. David Katz draws upon the latest scientific evidence and decades of clinical experience to explain how we can slash our risk of every major chronic disease—heart disease, cancer, stroke, diabetes, dementia, and obesity—by an astounding 80%. Dr. Katz arms us with skillpower: a proven, user-friendly set of tools that helps us make simple behavioral changes that have a tremendous effect on our health and well-being. Inspiring, groundbreaking, and prescriptive, Disease-Proof proves making lasting lifestyle changes is easier than we think.
