Download or read book Rethinking Informed Consent in the Big Data Age written by Adam Andreotta and published by . This book was released on 2025-02 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Ethics of Biomedical Big Data written by Brent Daniel Mittelstadt and published by Springer. This book was released on 2016-08-03 with total page 478 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.
Download or read book Privacy Big Data and the Public Good written by Julia Lane and published by Cambridge University Press. This book was released on 2014-06-09 with total page 343 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data access is essential for serving the public good. This book provides new frameworks to address the resultant privacy issues.
Download or read book Rethinking Informed Consent in Bioethics written by Neil C. Manson and published by Cambridge University Press. This book was released on 2007-03-29 with total page 15 pages. Available in PDF, EPUB and Kindle. Book excerpt: Informed consent is a central topic in contemporary biomedical ethics. Yet attempts to set defensible and feasible standards for consenting have led to persistent difficulties. In Rethinking Informed Consent in Bioethics, first published in 2007, Neil Manson and Onora O'Neill set debates about informed consent in medicine and research in a fresh light. They show why informed consent cannot be fully specific or fully explicit, and why more specific consent is not always ethically better. They argue that consent needs distinctive communicative transactions, by which other obligations, prohibitions, and rights can be waived or set aside in controlled and specific ways. Their book offers a coherent, wide-ranging and practical account of the role of consent in biomedicine which will be valuable to readers working in a range of areas in bioethics, medicine and law.
Download or read book Codes of Ethics and Ethical Guidelines written by Kelly Laas and published by Springer Nature. This book was released on 2022-01-03 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book investigates how ethics generally precedes legal regulation, and looks at how changes in codes of ethics represent an unparalleled window into the research, innovation, and emerging technologies they seek to regulate. It provides case studies from the fields of engineering, science, medicine and social science showing how professional codes of ethics often predate regulation and help shape the ethical use of emerging technologies and professional practice. Changes in professional ethics are the crystallization of ongoing conversation in scientific and professional fields about how justice, privacy, safety and human rights should be realized in practice where the law is currently silent. This book is a significant addition to this area of practical and professional ethics and is of particular interest to practitioners, scholars, and students interested in the areas of practical and applied ethics.
Download or read book Bit by Bit written by Matthew J. Salganik and published by Princeton University Press. This book was released on 2019-08-06 with total page 448 pages. Available in PDF, EPUB and Kindle. Book excerpt: This essential guide to doing social research in this fast-evolving digital age explains how the digital revolution is transforming the way social scientists observe behavior, ask questions, run experiments, and engage in mass collaborations.
Download or read book Responsible Digital Health written by Dorian Peters and published by Frontiers Media SA. This book was released on 2022-03-31 with total page 110 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Oxford Handbook of Networked Communication written by Brooke Foucault Welles and published by Oxford University Press. This book was released on 2020-01-24 with total page 676 pages. Available in PDF, EPUB and Kindle. Book excerpt: Communication technologies, including the internet, social media, and countless online applications create the infrastructure and interface through which many of our interactions take place today. This form of networked communication creates new questions about how we establish relationships, engage in public, build a sense of identity, and delimit the private domain. The ubiquitous adoption of new technologies has also produced, as a byproduct, new ways of observing the world: many of our interactions now leave a digital trail that, if followed, can help us unravel the rhythms of social life and the complexity of the world we inhabit--and thus help us reconstruct the logic of social order and change. The analysis of digital data requires partnerships across disciplinary boundaries that--although on the rise--are still uncommon. Social scientists and computer scientists have never been closer in their goals of trying to understand communication dynamics, but there are not many venues where they can engage in an open exchange of methods and theoretical insights. This handbook brings together scholars across the social and technological sciences to lay the foundations of communication research in the networked age, and to provide a canon of how research should be conducted in the digital era. The contributors highlight the main theories currently guiding their research in digital communication, and discuss state-of-the-art methodological tools, including automated text analysis, the analysis of networks, and the use of natural experiments in virtual environments. Following a general introduction, the handbook covers network and information flow, communication and organizational dynamics, interactions and social capital, mobility and space, political communication and behavior, and the ethics of digital research.
Download or read book Privacy Big Data and the Public Good written by Julia Lane and published by Cambridge University Press. This book was released on 2014-06-09 with total page 343 pages. Available in PDF, EPUB and Kindle. Book excerpt: Massive amounts of data on human beings can now be analyzed. Pragmatic purposes abound, including selling goods and services, winning political campaigns, and identifying possible terrorists. Yet 'big data' can also be harnessed to serve the public good: scientists can use big data to do research that improves the lives of human beings, improves government services, and reduces taxpayer costs. In order to achieve this goal, researchers must have access to this data - raising important privacy questions. What are the ethical and legal requirements? What are the rules of engagement? What are the best ways to provide access while also protecting confidentiality? Are there reasonable mechanisms to compensate citizens for privacy loss? The goal of this book is to answer some of these questions. The book's authors paint an intellectual landscape that includes legal, economic, and statistical frameworks. The authors also identify new practical approaches that simultaneously maximize the utility of data access while minimizing information risk.
Download or read book Rethinking Childhood written by Peter B. Pufall and published by Rutgers University Press. This book was released on 2004 with total page 316 pages. Available in PDF, EPUB and Kindle. Book excerpt: Being a child in American society can be problematic. In "Rethinking Childhood," 20 contributors from such disciplines as anthropology, government, education, and religion provide a multidisciplinary view of childhood by listening and understanding the ways children shape their own futures.
Download or read book Learning Analytics in Higher Education written by Jaime Lester and published by Routledge. This book was released on 2018-08-06 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: Learning Analytics in Higher Education provides a foundational understanding of how learning analytics is defined, what barriers and opportunities exist, and how it can be used to improve practice, including strategic planning, course development, teaching pedagogy, and student assessment. Well-known contributors provide empirical, theoretical, and practical perspectives on the current use and future potential of learning analytics for student learning and data-driven decision-making, ways to effectively evaluate and research learning analytics, integration of learning analytics into practice, organizational barriers and opportunities for harnessing Big Data to create and support use of these tools, and ethical considerations related to privacy and consent. Designed to give readers a practical and theoretical foundation in learning analytics and how data can support student success in higher education, this book is a valuable resource for scholars and administrators.
Download or read book The Big Data Agenda written by Annika Richterich and published by University of Westminster Press. This book was released on 2018-04-13 with total page 156 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book highlights that the capacity for gathering, analysing, and utilising vast amounts of digital (user) data raises significant ethical issues. Annika Richterich provides a systematic contemporary overview of the field of critical data studies that reflects on practices of digital data collection and analysis. The book assesses in detail one big data research area: biomedical studies, focused on epidemiological surveillance. Specific case studies explore how big data have been used in academic work. The Big Data Agenda concludes that the use of big data in research urgently needs to be considered from the vantage point of ethics and social justice. Drawing upon discourse ethics and critical data studies, Richterich argues that entanglements between big data research and technology/ internet corporations have emerged. In consequence, more opportunities for discussing and negotiating emerging research practices and their implications for societal values are needed.
Download or read book Rethinking Aging written by Nortin M. Hadler, M.D. and published by Univ of North Carolina Press. This book was released on 2011-09-12 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: For those fortunate enough to reside in the developed world, death before reaching a ripe old age is a tragedy, not a fact of life. Although aging and dying are not diseases, older Americans are subject to the most egregious marketing in the name of "successful aging" and "long life," as if both are commodities. In Rethinking Aging, Nortin M. Hadler examines health-care choices offered to aging Americans and argues that too often the choices serve to profit the provider rather than benefit the recipient, leading to the medicalization of everyday ailments and blatant overtreatment. Rethinking Aging forewarns and arms readers with evidence-based insights that facilitate health-promoting decision making. Over the past decades, Hadler has established himself as a leading voice among those who approach the menu of health-care choices with informed skepticism. Only the rigorous demonstration of efficacy is adequate reassurance of a treatment's value, he argues; if it cannot be shown that a particular treatment will benefit the patient, one should proceed with caution. In Rethinking Aging, Hadler offers a doctor's perspective on the medical literature as well as his long clinical experience to help readers assess their health-care options and make informed medical choices in the last decades of life. The challenges of aging and dying, he eloquently assures us, can be faced with sophistication, confidence, and grace.
Download or read book Stakeholders and Ethics in Healthcare written by Lisa A. Martinelli and published by Routledge. This book was released on 2022-03-20 with total page 267 pages. Available in PDF, EPUB and Kindle. Book excerpt: This ground-breaking book uses organizational ethics and stakeholder theory to explore the ethical accountability of leadership in healthcare organizations to their distinct vulnerable stakeholder communities. The book begins with a discussion of the moral agency of healthcare organizations and introduces stakeholder theory. It then looks at key ethical challenges in relation to the confidentiality and privacy of healthcare data, before turning to child health and interventions around issues such as obesity, maltreatment, and parenting. The book ends by focusing on ethics of care in relation to older people and people with disabilities. An insightful contribution to thinking about ethics for contemporary healthcare management and leadership, this interdisciplinary book is of interest to readers with a background in healthcare, business and management, law, bioethics, and theology.
Download or read book Rethinking Inclusion and Transformation in Special Education written by Efstratopoulou, Maria and published by IGI Global. This book was released on 2022-06-24 with total page 348 pages. Available in PDF, EPUB and Kindle. Book excerpt: Diversity creates a rich environment for ideas to evolve into new and more refined forms. This pedagogical approach can help students to appreciate and value all forms of diversity and enrich learning. There is a need for administrators in education to institute policies that will support diversity and inclusion within special education classrooms. Rethinking Inclusion and Transformation in Special Education explores the latest findings on how children learn by discussing global policies and educational practices, considering professional expectations, establishing parent relationships that enhance communication, creating an effective learning environment that meets all students’ needs, and using technology wisely. Covering topics such as language development promotion, school leadership practices, and long-term skill support, this book is essential for special education teachers, diversity officers, school administrators, instructional designers, curriculum developers, academicians, researchers, and upper-level students.
Download or read book Data Protection and Privacy Volume 10 written by Ronald Leenes and published by Bloomsbury Publishing. This book was released on 2017-12-28 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: The subjects of Privacy and Data Protection are more relevant than ever with the European General Data Protection Regulation (GDPR) becoming enforceable in May 2018. This volume brings together papers that offer conceptual analyses, highlight issues, propose solutions, and discuss practices regarding privacy and data protection. It is one of the results of the tenth annual International Conference on Computers, Privacy and Data Protection, CPDP 2017, held in Brussels in January 2017. The book explores Directive 95/46/EU and the GDPR moving from a market framing to a 'treaty-base games frame', the GDPR requirements regarding machine learning, the need for transparency in automated decision-making systems to warrant against wrong decisions and protect privacy, the riskrevolution in EU data protection law, data security challenges of Industry 4.0, (new) types of data introduced in the GDPR, privacy design implications of conversational agents, and reasonable expectations of data protection in Intelligent Orthoses. This interdisciplinary book was written while the implications of the General Data Protection Regulation 2016/679 were beginning to become clear. It discusses open issues, and daring and prospective approaches. It will serve as an insightful resource for readers with an interest in computers, privacy and data protection.
Download or read book The Ethics of Medical Data Donation written by Jenny Krutzinna and published by Springer. This book was released on 2019-01-16 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.
