Download or read book Perspectives on Palliative Care for Children and Young People written by Rita Pfund and published by CRC Press. This book was released on 2017-11-22 with total page 496 pages. Available in PDF, EPUB and Kindle. Book excerpt: Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.

Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Download or read book Oxford Textbook of Palliative Care for Children written by Richard Hain and published by Oxford University Press. This book was released on 2021-03-24 with total page 535 pages. Available in PDF, EPUB and Kindle. Book excerpt: The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.

Download or read book Paediatric Palliative Medicine written by Richard Hain and published by Oxford University Press. This book was released on 2016 with total page 349 pages. Available in PDF, EPUB and Kindle. Book excerpt: A concise and practical guide to caring for children with life-limiting conditions, 'Paediatric Palliative Medicine' covers the common symptoms and challenging issues healthcare professionals are likely to encounter, and includes a detailed drug formulary for quick reference.

Download or read book Palliative Care in Pediatric Oncology written by Joanne Wolfe and published by Springer. This book was released on 2017-12-20 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: This textbook is the first to focus on comprehensive interdisciplinary care approaches aimed at enhancing the wellbeing of children with cancer and their families throughout the illness experience. Among the topics addressed are the epidemiology of pediatric cancer distress, including physical, emotional, social, and spiritual dimensions; the role of the interdisciplinary team; communication and advance care planning; symptom prevention and management; care at the end of life; family bereavement care; and approaches to ease clinician distress. The contributing authors are true experts and provide guidance based on the highest available level of evidence in the field. The book has not only an interdisciplinary but also an international perspective; it will appeal globally to all clinicians caring for children with cancer, including physicians, nurses, psychosocial clinicians, and chaplains, among others.

Download or read book Care Planning in Children and Young People s Nursing written by Doris Corkin and published by John Wiley & Sons. This book was released on 2011-08-24 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: Care Planning in Children and Young People's Nursing addresses a selection of the most common concerns that arise when planning care for infants, children and young people within the hospital and community setting. Clear and detailed, this text reflects both the uniqueness and diversity of contemporary children's nursing and utilizes images and case studies to provide a holistic insight into the practice of care planning through the reporting of best available evidence and current research, policy and education. Divided into sections for ease of reference, Care Planning in Children and Young People’s Nursing explores both the theory and practice of care planning. Chapters on the principles of care planning include issues such as managing risk, safeguarding children, ethical and legal implications, integrated care pathways, interprofessional assessment, and invaluable parent perspectives. Additional chapters on the application of planning care examine the practical aspects of a wide range of specific conditions including cystic fibrosis, obesity, cardiac/renal failure and HIV/AIDS. Each chapter is interactive, with questions, learning activities and points for discussion creating an engaging and enquiry-based learning approach. Care Planning in Children and Young People’s Nursing is a definitive resource, reflecting innovative practice which is suitable for undergraduate and postgraduate nurse education.

Download or read book Death Dying and Palliative Care in Children and Young People written by Alison M. Rodriguez and published by Taylor & Francis. This book was released on 2023-04-07 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: Death, Dying and Palliative Care in Children and Young People: Perspectives from Health Psychology examines the issues relevant to children and young people living with serious illness and their families by taking a closer look at the literature and knowledge around the processes of care, health, well-being and development through a health psychology lens. The text introduces readers to the general palliative and holistic care needs of children and young people along with the nuances of caring relationships. The chapters discuss the vulnerabilities encountered in living with serious illness and facing a shortened life prognosis, being at the end of life, and issues relative to the historical concept of the ‘good death’ or ‘dying well’, grief, and bereavement. The author examines how individual and familial experiences can be multi-layered, which can consequently influence perceptions and behaviours. The text therefore offers a deep exploration of the varied ways in which people draw on different resources to navigate their palliative care lived experiences. The book will be beneficial to the students of, and individuals interested in, psychology and nursing along with other health and social care courses. It will further be of interest to individuals interested in gaining more understanding of the experiential aspects of death, dying and palliative care in children and young people from health psychology perspectives.

Download or read book A Textbook of Children s and Young People s Nursing E Book written by Edward Alan Glasper and published by Elsevier Health Sciences. This book was released on 2021-03-19 with total page 738 pages. Available in PDF, EPUB and Kindle. Book excerpt: This innovative textbook provides a concise and accessible guide for undergraduate students specializing in children and young people's nursing in the UK and further afield. Each chapter has been fully updated to reflect current knowledge and practice. The wide range of topics covered includes all the essentials, such as contemporary child health policy and legal issues; knowledge and skills for practice; and caring for children with special needs. Students will learn how to recognize the deteriorating child, use procedural play and distraction, and consider the mental health of children and young people. A Textbook of Children's and Young People's Nursing is written by multidisciplinary experts, rooted in child-centred healthcare within a family context, and draws upon best contemporary practice. It is an invaluable resource that will help nursing students provide effective, evidence-based care. - Key points, summary boxes and clearly defined aims, objectives and learning outcomes to support learning - Conversation boxes to enliven the text - Patient scenarios to relate theory to practice - New chapters on skin health and the use of therapeutic play - Suggestions for seminar discussion topics to help teachers - Resource lists and online resources for further study or research - Online slides to complement chapters within book

Download or read book Palliative Care Nursing of Children and Young People written by Rita Pfund and published by CRC Press. This book was released on 2018-10-08 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Children's palliative care is an evolving specialty and as such our knowledge base cannot remain static. This book constantly challenges the reader to critically analyze their own practices and beliefs within an evidence-based framework and as such makes a valuable contribution to the growing body of knowledge on this important subject." - Susan Fowler-Kerry, in the Foreword. This book caters for readers from different working environments and levels of experience. It is ideal for paediatric nurses with no specialist palliative care knowledge, and also for palliative care nurses with no specialist paediatric experience. Other healthcare professionals and therapists working with children, young people and their families will also find this book invaluable. It will also be ideal for undergraduate and postgraduate health and social care students, and professionals involved in children's hospices, community services and charity groups. "This book captures not just the rapidly evolving evidence base, but also as many current developments as possible and applies them in a meaningful way to the care of infants, children, and young people living with life-limiting illness, and their families. It offers an overview of contemporary issues and helps to stimulate the type of dialogue that can bring about the actions that will make a real difference for the children, young people and families in our care." - Rita Pfund, in the Preface.

Download or read book Music Therapy in Children and Young People s Palliative Care written by Anna Ludwig and published by Jessica Kingsley Publishers. This book was released on 2019-08-21 with total page 186 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book brings together music therapists who have worked in the challenging and rewarding world of children's palliative care. Examining techniques from working just with the breath, to technological advances in music therapy such as assistive recording and electronic downloading, it highlights the benefits music therapy can bring when working alongside children and young people. Drawing on the knowledge of expert music therapists, the book provides accessible guidance that practitioners can apply to their own work, including on professional development as part of a multi-disciplinary team, service evaluation, and managing publicity in the hospice setting. It addresses work with different client groups, such as teenagers, and discusses therapy with family members, including siblings. Music therapists and healthcare practitioners will be provided with the tools to reflect on their own professional challenges and deepen their understanding of the important role of music therapy in this sector.

Download or read book Improving Palliative Care for Cancer written by National Research Council and published by National Academies Press. This book was released on 2001-10-19 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.

Download or read book Essential Nursing Care for Children and Young People written by Chris Thurston and published by Routledge. This book was released on 2014-03-14 with total page 483 pages. Available in PDF, EPUB and Kindle. Book excerpt: Essential Nursing Care for Children and Young People is the definitive guide for all nursing and healthcare students and professionals caring for children and young people. Designed to meet the 2010 NMC competency standards for pre-registration nurses, the textbook supports you through the process of caring for children and young people with varied needs and conditions across all healthcare settings. A practical, patient-centred approach is taken throughout, with the ‘voices’ of children, their families and their carers used to tie theoretical knowledge to the real experience of providing care. The inclusion of the latest research and health and social care policies ensures that you are fully in line with the latest clinical practice, whilst the book’s activities and exercises allow you to regularly check your understanding and develop confidence during your journey from student to nursing professional. Main features: Course-Focused Approach – pedagogy and content designed specifically for all three years of the child nursing degree programme. Contemporary Content – research note features and policy integrated throughout to give you instant access to the latest evidence-based practice. Illustrated Throughout – this highly accessible text regularly uses pictures and diagrams to highlight key issues. Voices – include authentic experiences of children, young people, parents, carers and professionals to help develop a patient-focused attitude to care. Pertinent A&P – includes coverage of all relevant anatomy and physiology for child and young person nursing courses. Practice Guidelines – provide practical guidance on everyday procedures for your quick reference. Activities and Answers – allow you to check your knowledge and build confidence. Specialist Authors – each chapter is written by leading experts in each area. Essential Nursing Care for Children and Young People is the ideal main textbook for all undergraduate child and young person nursing students, as well as professionals wanting to ensure they are using the latest practice. This text is also relevant to any student or professional involved in the health and social care of children and young adults.

Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Download or read book Children s Palliative Care in Africa written by Justin Amery and published by . This book was released on 2009 with total page 448 pages. Available in PDF, EPUB and Kindle. Book excerpt: Childen's palliative care has developed rapidly as a discipline, as health care professionals recognize that the principles of adult palliative care may not always be applicable to children at the end of life. The unique needs of dying children are particularly evident across Africa, where the scale of the problem is overwhelming, and the figures so enormous that they are barely comprehensible: over 400,000 children in Africa died from AIDS in 2003, and out of the 166,000 children a year diagnosed with cancer, 85% of these are in the developing world. Despite the enormous need, provision of children's palliative care in Africa is almost non-existent, with very few health workers trained and confident to provide care for dying children. The challenges of providing palliative care in this setting are different to those in more developed countries, contending with the shortage of physical and human resources in addition to the vast scope of the care needed. Written by a group with wide experience of caring for dying children in Africa, this book provides practical, realistic guidance by improving access to, and delivery of, palliative care in this demanding setting. It looks at the themes common to palliative care--including communication, assessment, symptom management, psychosocial issues, ethical dilemmas, end of life care, and tips for the professional on compassion and conservation of energy--but always retains the focus on the particular needs of the health care professional in Africa. While containing some theory, the emphasis is on practical action throughout the book. Children's Palliative Care in Africa provides health care professionals working in Africa, and other resource-poor settings, with the confidence, knowledge, and capacity to improve care for the terminally ill child in constrained and demanding environments.

Download or read book Textbook of Interdisciplinary Pediatric Palliative Care written by Joanne Wolfe and published by Elsevier Health Sciences. This book was released on 2011-01-26 with total page 514 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Textbook of Interdisciplinary Pediatric Palliative Care, by Drs. Joanne Wolfe, Pamela Hinds, and Barbara Sourkes, aims to inform interdisciplinary teams about palliative care of children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth. This comprehensive product takes a first-of-its-kind team approach to the unique needs of critically ill children. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families. If you deal with the complex care of critically ill children, this reference provides a uniquely integrated perspective on complete and effective care. Respect interdisciplinary perspectives, and provide the most comprehensive care. Use an integrated approach to address the physical, psychological, social, and spiritual needs of children and their families. Understand and heed your strengths and vulnerabilities in order to provide the best care for your patients. Recognize the necessity of linking hospital-based palliative care with community resources. Implement consistent terminology for use by the entire palliative care team. Access the full text online with regular updates and supplemental text and image resources.

Download or read book Essentials of Nursing Children and Young People written by Jayne Price and published by SAGE Publications Limited. This book was released on 2023-12-15 with total page 660 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a one-stop shop for the vast majority of children and young people′s nursing students. The editors for the new edition are Jayne Price from Kingston University, Orla McAlinden from Queen′s University Belfast, and Zoë Veal from UWE Bristol, all with vast experience in nursing children and young people. A high level of research has gone into developing and refining the key features for this edition, such as updated voices and implementing new NMC standards. This book maps to the content of the majority of pre-registration child nursing programmes, and by adopting a 5 part structure it clearly covers the core parts of training and practice that you will need: Part 1): Principles of nursing children and young people Part 2): Wellbeing and development Part 3): Caring for children and young people with acute health care needs and injury Part 4): Caring for children and young people with complex and high dependency needs Part 5): Being a professional children and young people′s nurse