Download or read book People Living with Advanced Dementia in Nursing Care Homes Baseline Results from a Feasibility Trial of the Namaste Care Intervention written by Katherine Froggatt and published by . This book was released on 2017 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Background: Identification of valid, reliable and clinically relevant measures of quality of dying for palliative care trials is challenging. Self-reports and/or proxy reporting by professional or family carers has limitations. An alternative is measurement of general functioning (physical activity level or sleep patterns) evaluated with objective methods such accelerometers. There is increasing use of accelerometers in research, but little has considered this as an outcome measure for people with advanced dementia at the end of life. Aim: To determine the acceptability and utility of accelerometers as a proxy outcome of quality of dying in people with advanced dementia, and to estimate physical activity and sleep characteristics. Methods: 32 participants, from 6 nursing homes from the NAMASTE trial (a feasibility trial to improve the quality of dying for people with advanced dementia), wore a wrist band accelerometer (GENEActiv) for a maximum of 28 days. We estimated levels of physical activity and sleep characteristics (duration and efficiency). We used descriptive analyses and hierarchical linear models to describe and estimate activity and sleep. Acceptability of the accelerometer was ascertained by length of time worn and feedback from the resident, family or care staff. Results: The accelerometer was acceptable: 30 (94%) participants wore the actigraph continuously following the protocol (28 days) (1 participant withdrew from the study; 1 participant stopped wearing the device whilst in hospital). On average, measurements were available for 23.4 days (SD=2.8). No adverse effects were reported. Participants were generally inactive: they spent 98% of each day with low levels of activity

Download or read book The End Of Life Namaste Care Program for People with Dementia written by Joyce Simard Msw and published by . This book was released on 2022-07-25 with total page 296 pages. Available in PDF, EPUB and Kindle. Book excerpt: This innovative care program blends nursing care and meaningful activities to promote peaceful and relaxing end-of-life experiences for older adults with late-stage dementia. The first program created specifically for this hardest-to-serve population, Namaste Care also meets the latest regulatory guidelines for person-centered activity programming. The author has developed the program to be adaptable to individual as well as group settings, from nursing home to bedside at home. With this practical guide, skilled nursing facilities, assisted living settings, memory care communities, and hospices can easily and affordably implement a Namaste Care program not only to improve resident quality of life but also to increase family involvement and strengthen staff morale. New to the revised edition: Detailed descriptions of Namaste Care (NC) Group Program and the NC Individual Program, and instructions for implementing NC in any setting More case studies and stories to illustrate creative uses of Namaste Care and effective results Further international focus, incorporating programs and perspectives from Australia, the U.K., Europe, as well as Singapore and Indonesia. In-depth description of the physical setting and supplies needed for an effective NC program. Completely updated references

Download or read book A Group Intervention to Improve Quality of Life for People with Advanced Dementia Living in Care Homes the Namaste Feasibility Cluster RCT written by and published by . This book was released on 2020 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Dignity Therapy written by Harvey Max Chochinov and published by OUP USA. This book was released on 2012-01-04 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: Maintaining dignity for patients approaching death is a core principle of palliative care. Dignity therapy, a psychological intervention developed by Dr. Harvey Max Chochinov and his internationally lauded research group, has been designed specifically to address many of the psychological, existential, and spiritual challenges that patients and their families face as they grapple with the reality of life drawing to a close. In the first book to lay out the blueprint for this unique and meaningful intervention, Chochinov addresses one of the most important dimensions of being human. Being alive means being vulnerable and mortal; he argues that dignity therapy offers a way to preserve meaning and hope for patients approaching death. With history and foundations of dignity in care, and step by step guidance for readers interested in implementing the program, this volume illuminates how dignity therapy can change end-of-life experience for those about to die - and for those who will grieve their passing.

Download or read book The End of life Namaste Care Program for People with Dementia written by Joyce Simard and published by Gwasg y Bwthyn. This book was released on 2013 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offers simple and practical ways for direct care staff to provide holistic end-of-life care for people with advanced dementia. --Publisher.

Download or read book Person Centred Practice in Nursing and Health Care written by Brendan McCormack and published by John Wiley & Sons. This book was released on 2016-08-08 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: Person-centred Practice in Nursing and Health Care is a comprehensive and practical resource for all nurses and healthcare practitioners who want to develop person-centred ways of working. This second edition which builds on the original text Person Centred Nursing, has been significantly revised and expanded to provide a timely and topical exploration of an important subject which underpins all nursing and healthcare, edited by internationally renowned experts in the field. Person-centred Practice in Nursing and Health Care looks at the importance of person-centred practice (PCP) from a variety of practice, strategic, and policy angles, exploring how the principles of PCP underpin a variety of perspectives, including within leadership and in the curriculum. The book explores not only a range of methodologies, but also covers a variety of different healthcare settings and contexts, including working within mental health services, acute care, nursing homes, the community, and working with children and people with disabilities. Key features: Significantly updated and expanded since the previous edition, taking into account the considerable changes in recent health care advancements, including the ‘Francis’ report Builds on previous perspectives of person-centredness in nursing and applies them in a broader nursing and health care context Includes a stronger exploration on the role of the service-user Shows the use of life-story and narrative approaches as a way of putting the individual’s identity at the heart of the care relationship Includes learning features such as links to current practice developments and reflective questions

Download or read book Assessment Scales for Advanced Dementia written by Ladislav Volicer and published by . This book was released on 2015 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: As internationally recognised pioneers in their field, Drs Volicer and Hurley have brought critical attention to the unique issues and needs of people in the advanced stages of dementia. In this book, they bring together a culmination of more than 20 years of research on late-stage dementia, providing the best evidence-based measurement scales available for researchers and care providers who are seeking to improve care for people in the final stages of this increasingly prevalent disease.

Download or read book Challenging Behaviour in Dementia written by Graham Stokes and published by Taylor & Francis. This book was released on 2017-07-05 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: Understanding socially disruptive behavior in dementia is never easy. Most explanations offer neither solace nor solutions for families and carers, and treatment is often characterized by policies of control and containment. The result of Graham Stokes' 15 years of clinical work with people who are challenging, this book: disputes the traditional medical model of dementia and asserts that if we reach behind the barrier of cognitive devastation and decipher the cryptic messages, it can be shown that much behavior is not meaningless but meaningful. It contrasts the medical interpretation that sees anti-social behavior as mere symptoms of disease with a person-centered interpretation that resonates change and resolution. It offers a radical and innovative interpretation of challenging behavior consistent with the new culture of dementia care, focusing on needs to be met rather than problems to be managed.

Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Download or read book Primary Care for Older People written by Steve Iliffe and published by . This book was released on 2000 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: Primary Care for Older People is a contemporary reference work on health problems in later life written exclusively by primary care professionals for primary care professionals that: integrates nursing and medical perspectives on clinical practice and service organisation. understands that well-intentioned changes in practice and service provision can have harmful effects on patients, professionals and the health service is still able to offer positive guidance to individual practitioners, practices and Primary Care Groups, about best practice and innovative multi-disciplinary care for an ageing population. It is aimed at doctors, nurses, health visitors and social workers who are trying to combine care of individuals with an understanding of the needs of whole communities. Its themes are relevant to teachers in different professional disciplines, to members of Primary Care Group and Trust Boards, to planners and managers of primary care services, as well as to practitioners. The authors bring to this book their experience in general practice and community nursing, their expertise in service development and management, and their awareness of primary care research. Dr. Steve Iliffe has been an inner-city general practitioner in London since 1978, and is Reader in General Practice at the Royal Free and University College Medical School, where he is co-director of the Centre for Ageing Population Studies (CAPS) and manages the Primary Care for Older People research and development programme. He can be contacted at [email protected]. Vari Drennan has been a community health service manager , specialist health visitor for older people and health visitor since 1980 and is currently a senior lecturer in primary care nursing in the Department of Primary Care and Population Sciences at the Royal Free and University College Medical School. She can be contacted at [email protected],

Download or read book Questionnaire Research written by Mildred L Patten and published by Routledge. This book was released on 2016-10-04 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: • Provides step-by-step guidance for students who will be conducting their first surveys to collect factual information, measure attitudes, and evaluate products, services, and programs using questionnaires. • Each chapter is structured around easy-to-follow guidelines. • Numerous examples illustrate the guidelines. The examples are on timely topics of interest to students. • This short book is an ideal supplement for guiding students through a class project. At the end of Chapter 1, they write the objectives for their questionnaires. They then follow the guidelines in subsequent chapters to complete their project. • Exercises at the end of each chapter allow students to practice their newly acquired skills. • Students learn that using questionnaires in research is both an art and a science—with principles that need to be followed for efficient, effective data collection. • Thoroughly field-tested for student interest and comprehension, this book is sure to please both you and your students. • We’ve had highly positive feedback from the numerous professors who have adopted this book to guide students in conducting term projects.

Download or read book Pleasure in the Daily Lives of People Living with Advanced Dementia in a Long term Care Facility written by Malini Laxmi Persaud and published by . This book was released on 2009 with total page 568 pages. Available in PDF, EPUB and Kindle. Book excerpt: According to the Canadian Study of Health and Aging most of the 12,630 Canadians living with advanced dementia reside in long-term care facilities. This number is rising due to an aging population. The purpose of this study is to address an identified gap in our knowledge about what creates pleasure in people with advanced dementia, through first understanding family caregivers' ways of eliciting and interpreting positive emotions in their relatives and then having the personal support worker (PSW) try these same approaches to see if similar responses are achieved. This study used a qualitative multiple case study design. Data collection methods included digitally recorded interviews and video-recorded observations of interactions between residents and caregivers. A case is defined as a resident with moderately to severely advanced dementia. Each case had two informants: a family member and a PSW meeting inclusion criterion. There were seven cases. The resident participants spanned a range from moderately advanced to severely advanced dementia. Data analysis used both inductive and deductive coding with sensitizing concepts of selfhood, personhood, continuity of personality and well-being.The results of this study centred on four main themes related to the research questions about the sources and indicators of pleasure and the potential for PSWs to replicate what family members did with residents. Some sources of pleasure were lost, some were maintained and new ones developed post-illness in all of the residents. Both family members and PSWs were knowledgeable about sources and indicators of pleasure for the people with dementia they were involved with. The analysis demonstrated that for individuals with very advanced dementia, the concept of pleasure or enjoyment is not applicable. The family members of the two residents with very advanced dementia used music, touch and sweets to elicit a pleasurable response but the resident did not display indicators of pleasure in response; instead, the residents responded with grasping or other responses which require further research to understand fully. Future research should build upon these findings in order to further understand the concept of positive affect: pleasure, interest and enjoyment in people with advanced dementia of the Alzheimer type.

Download or read book Bathing Without a Battle written by Ann Louise Barrick PhD and published by Springer Publishing Company. This book was released on 2008-03-10 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt: 2008 AJN Book of the Year Winner! Like its popular predecessor, the new edition of Bathing Without a Battle presents an individualized, problem-solving approach to bathing and personal care of individuals with dementia. On the basis of extensive original research and clinical experience, the editors have developed strategies and techniques that work in both institution and home settings. Their approach is also appropriate for caregiving activities other than bathing, such as morning and evening care, and for frail elders not suffering from dementia. For this second edition, the authors have included historical material on bathing and substantially updated the section on special concerns, including: Pain Skin care Determining the appropriate level of assistance Transfers The environment An enhanced final section addresses ways to support caregivers by increasing their understanding of the care recipient's needs and their knowledge of interventions to improve care and comfort. It also emphasizes self-care and system-level changes to promote person-directed care. Several chapters include specific insights and wisdom from direct caregivers.

Download or read book Health and Wellbeing in Late Life written by Prasun Chatterjee and published by Springer Nature. This book was released on 2019-09-06 with total page 195 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book takes a multidisciplinary approach to provide a holistic understanding of late old age, and situates the aged person within the context of family, caregivers, clinical and other institutions. All through the book, the author discusses preparedness for an aging individual as well as the society in the Indian context. The book highlights inevitable but mostly neglected health issues like depression, dementia, fall, and frailty and provides detailed analyses of solutions that are practicable in low resource settings. It also brings up intergenerational differences and harmony in the context of holistic care of older Indians. Alongside clinical perspectives, the book uses narratives of elderly patients to dwell on the myriad of problems and issues that constitute old age healthcare. Demonstrating cases that range from the most influential to the most underprivileged elderly in India, the book enlightens multiple caregivers—doctors, nurses, and professional caregivers as well as family members—about the dynamic approach required in dealing with complex issues related to late old age. The narratives make the book relatable and interesting to non-academic readers, with important lessons for gerontological and geriatric caregiving. It is also of use to older adults in preparing for active aging.

Download or read book The Pool Activity Level PAL Instrument for Occupational Profiling written by Jackie Pool and published by Jessica Kingsley Publishers. This book was released on 2011-10-15 with total page 221 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Pool Activity Level (PAL) Instrument is widely used as the framework for providing activity-based care for people with cognitive impairments, including dementia. The Instrument is recommended for daily living skills training and activity planning in the National Institute for Clinical Excellence Clinical Guidelines for Dementia (NICE 2006), and has been proven valid and reliable by a recent research study. It is an essential resource for any practitioner or carer wanting to provide fulfilling occupation for clients with cognitive impairments. This fourth edition of The Pool Activity Level (PAL) Instrument for Occupational Profiling includes a new section on using the PAL Checklist to carry out sensory interventions, together with the photocopiable Instrument itself in a new easy-to-use format, and plans that help to match users' abilities to activities. It includes the latest research on the use of the PAL Instrument in a range of settings, and new case studies, as well as information about how a new online PAL tool complements and supports the book. The book also contains suggestions for activities, together with information on obtaining the necessary resources and guidance for carrying out the activities with individuals of different ability levels, as revealed by the PAL Checklist.

Download or read book Oxford Textbook of Palliative Social Work written by Terry Altilio MSW, ACSW, LCSW and published by Oxford University Press. This book was released on 2011-03-23 with total page 847 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Oxford Textbook of Palliative Social Work is a comprehensive, evidence-informed text that addresses the needs of professionals who provide interdisciplinary, culturally sensitive, biopsychosocial-spiritual care for patients and families living with life-threatening illness. Social workers from diverse settings will benefit from its international scope and wealth of patient and family narratives. Unique to this scholarly text is its emphasis on the collaborative nature inherent in palliative care. This definitive resource is edited by two leading palliative social work pioneers who bring together an array of international authors who provide clinicians, researchers, policy-makers, and academics with a broad range of content to enrich the guidelines recommended by the National Consensus Project for Quality Palliative Care.

Download or read book Palliative Care for Older People written by Lieve Van Den Block and published by Oxford University Press, USA. This book was released on 2015 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offering not only insights into the current state of policy work around the world; it also offers examples of good practice and recommendations for the future. Recommendations that can inspire, support, and direct healthcare policy and decision-making at organisational, regional, national and international levels.