Download or read book Parent Perspectives of Neonatal Intensive Care at the End of life and Subsequent Bereavement and Coping Experiences After Infant Death written by Erin R. Currie and published by . This book was released on 2014 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: Introduction: Little is known about parent experiences with end-of-life and palliative care consultation in the neonatal intensive care unit (NICU). The purpose of this study was to: (a) describe parent experiences related to their infant's NICU hospitalization, end-of-life care, and palliative care consultation, and (b) parents' bereavement and coping experiences after infant death. Methods: A descriptive qualitative approach was used to explore and describe parent experiences during their infant's hospitalization in the NICU and bereavement and coping experiences after infant death. Ten parents (seven mothers and three fathers) of infants who had previously died in the NICU were recruited using convenience sampling methods until data saturation was met. Background information was obtained from a demographic questionnaire. Interview data were analyzed using qualitative content analysis. Results: In-person semi-structured interviews revealed two major themes with five categories. "Life and Death in the NICU Environment" was the first major theme with the following categories: (a) the ups and downs of parenting in the NICU, (b) decisionmaking challenges in the NICU, and (c) parent support. "Life after Loss" was the second major theme that emerged from the interviews with the following categories: (a) living with loss and (b) coping with grief over time. Conclusions: "Being a parent" was extremely important for these participants regardless of the infant's prognosis. Nurses played a critical role in facilitating parenting in the NICU. Parents encountered various challenges in the NICU and reported several sources of support that helped them through the hospitalization. Although barriers to initiating palliative care consultation were present, palliative care was a helpful source of support for parents in the NICU. Living with infant loss was a catastrophic and life-changing event for these parents. Coping with infant death proved to be a complex process that evolved over time. Parents oscillated between focusing on the loss and living in a world without their infant. The results from this study suggest there are areas for improvement in the provision of end-of-life and palliative care in the NICU that may be addressed by further research efforts and changes in practice and policy.
Download or read book Perinatal and Pediatric Bereavement in Nursing and Other Health Professions written by Beth Perry Black, PhD, RN and published by Springer Publishing Company. This book was released on 2015-09-10 with total page 406 pages. Available in PDF, EPUB and Kindle. Book excerpt: [This] is a story of love, hope, and healing. There are 18 chapters covering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they go on living. This book is a collection of clinical wisdom, theoretical knowledge and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement. --Betty Ferrell, PhD, RN, MA, FAAN, FPCN, CHPN From the Foreword This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and the nurses and other healthcare providers who provide care to those involved. Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book will enhance the expertise of clinicians caring for bereaved women and their families. It Includes case studies, interview excerpts, graphics and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for students preparing for the Pediatric Loss Certification exam. Key Features: Provides high-level but accessible information from renowned scholars in perinatal and pediatric loss Disseminates the newest theoretical frameworks that can be used to create interventions and develop research Includes case studies demonstrating how theory is applicable to research and practice Facilitates critical thinking with different and even competing perspectives Serves as a valuable resource for Pediatric Loss Certification (NBCHPN) preparation
Download or read book Merenstein Gardner s Handbook of Neonatal Intensive Care E Book written by Sandra Lee Gardner and published by Elsevier Health Sciences. This book was released on 2020-02-05 with total page 1267 pages. Available in PDF, EPUB and Kindle. Book excerpt: Co-authored by an interprofessional collaborative team of physicians and nurses, Merenstein & Gardner’s Handbook of Neonatal Intensive Care, 9th Edition is the leading resource for interprofessional, collaborative care of critically ill newborns. It offers comprehensive coverage with a unique interprofessional collaborative approach and a real-world perspective that make it a practical guide for both nurses and physicians. The new ninth edition features a wealth of expanded content on delivery-room care; new evidence-based care "bundles"; palliative care in the NICU; interprofessional collaborative care of parents with depression, grief, and complicated grief; and new pain assessment tools. Updated high-quality references have also been reintegrated into the book, making it easier for clinicians to locate research evidence and standards of care with minimal effort. These additions, along with updates throughout, ensure that clinicians are equipped with the very latest clinical care guidelines and practice recommendations — all in a practical quick-reference format for easy retrieval and review. UNIQUE! Core author team of two physicians and two nurses gives this internationally recognized reference a true interprofessional collaborative approach that is unmatched by any other resource. Consistent organization within clinical chapters include Physiology/Pathophysiology, Etiology, Prevention, Data Collection (History, Signs and Symptoms, and Laboratory Data), Treatment/Intervention, Complications, and Parent Teaching sections. UNIQUE! Color-highlighted point-of-care clinical content makes high-priority clinical content quick and easy to find. UNIQUE! Parent Teaching boxes outline the relevant information to be shared with a patient’s caregivers. Critical Findings boxes outline symptoms and diagnostic findings that require immediate attention to help the provider prioritize assessment data and steps in initial care. Case studies demonstrate how to apply essential content to realistic clinical scenarios for application-based learning. NEW! Updated content throughout reflects the latest evidence-based practice, national and international guidelines, and current protocols for interprofessional collaborative practice in the NICU. NEW! Up-to-date, high-quality references are now reintegrated into the text for quick retrieval, making it easier for clinicians to locate research evidence and standards of care with minimal effort. NEW! Expanded content on delivery-room care includes the impact of staffing on quality of care, delayed cord clamping, resuscitation, and more. NEW! Coverage of the new evidence-based care "bundles" keeps clinicians up to date on new guidelines that have demonstrated improved outcomes of very preterm infants. NEW! Coverage of new pain assessment tools equips NICU providers with essential resources for maintaining patient comfort. NEW! Expanded coverage of palliative care in the NICU provides the tools needed to ensure patient comfort. NEW! Expanded coverage of interprofessional collaborative care of parents with depression, grief, and complicated grief prepares clinicians for this essential area of practice.
Download or read book Mothers Bereaved by Stillbirth Neonatal Death or Sudden Infant Death Syndrome written by Frances M. Boyle and published by Routledge. This book was released on 2018-10-26 with total page 141 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 1997, this volume studied families bereaved by perinatal or infant death, including factors both preceding and following the experience and its effect on areas such as marriage, mental health and future conception, based on interviews with 194 women living in south-eastern Queensland, Australia. Tracing the natural history of the first thirty months of their loss, all mothers completed semi-structured interviews and standardized questionnaires at two, eight, fifteen and thirty months following the baby’s death. The study aims to explain and explore these effects and to suggest some potential recommendations for the care and support of women who experience stillbirth, neonatal death or SIDS.
Download or read book Neonatal Intensive Care Unit Infants Parental Stress Couple and Family Impact written by Victoria A. Grunberg and published by . This book was released on 2016 with total page 72 pages. Available in PDF, EPUB and Kindle. Book excerpt: The birth of a child is an exciting and challenging time for parents. The first few years following birth involve an adjustment period as parents work together to balance work, family, infant care, and self-care. Approximately 7 - 15% of parents will have an infant who will spend some amount of time in a Neonatal Intensive Care Unit (NICU). These parents experience the typical stressors associated with parenthood plus the additional stress of worrying about their infant’s survival, development, and/or long-term health. After NICU discharge, parents are sent home to care for an ill and/or preterm infant and often continue to worry about rehospitalizations, ongoing health issues, and the long-term consequences of the experience. The impact of the NICU experience and subsequent infant health issues on parental and family outcomes is an understudied area that merits research attention. The current study examined how the NICU experience and subsequent infant health problems that may follow during the first three years after discharge affects parental stress, couple functioning, and family dynamics. A variable known to attenuate stress and family outcomes (i.e., family resources) was included to study the contribution of this factor. Parents with infants who had been discharged from the NICU six months to three years ago were recruited via the Internet and posted flyers (N = 199). Parents reported objective indicators of their infants’ health during the NICU admission and at the present time, parenting stress, family burden, couple functioning, and access to family resources. Both parents were invited to participate to gain a more comprehensive picture of perspectives and experiences, and to compare responses of mothers and fathers. However, women (n = 182; 91.5%) greatly outnumbered men (n = 17; 8.5%) almost eleven to one in the sample making comparisons of mothers and fathers statistically underpowered. Multivariate regression analyses revealed that a shorter length of stay in the NICU, less infant rehospitalizations, and additional infant diagnoses following discharge were significant positive predictors of increased parental stress. Moreover, a higher number of medical devices used by the infant at discharge and fewer infant rehospitalizations were associated with poorer couple functioning. Infant use of extracorporeal membrane oxygenation (ECMO) during the NICU stay, a greater number of medical devices used by the infant during the NICU stay, the more specialists seen in the first year post-discharge, and the more medications currently prescribed, were all associated with greater family burden. Family resources did not significantly moderate (i.e., change or strengthen) the relationships between infant health and each outcome; however, fewer family resources was associated with increased parental stress, poorer couple functioning, and greater family burden. Analysis of covariance (ANCOVA) was used to examine sex differences and although no differences were found, analyses were greatly underpowered and should be interpreted with caution. Results suggest that infant health severity, the associated burden of care, and family resources are important contributors for parental and family adjustment. Family-focused interventions that incorporate information and skills on managing their child’s health issues, communication between medical providers and parents, transitioning home from the NICU, ways to adaptively coping strategies, and ways to overcome barriers to resources and treatment may be effective mechanisms to prevent negative psychosocial sequelae among NICU parents and families following discharge. Additional implications and future directions are discussed.
Download or read book Merenstein Gardner s Handbook of Neonatal Intensive Care written by Sandra Lee Gardner and published by Elsevier Health Sciences. This book was released on 2015-04-30 with total page 1136 pages. Available in PDF, EPUB and Kindle. Book excerpt: Merenstein & Gardner's Handbook of Neonatal Intensive Care, 8th Edition, is the leading resource for collaborative, interprofessional critical care of newborns. Co-authored by physicians and nurses, it offers concise, comprehensive coverage with a unique multidisciplinary approach and real-world perspective that make it an essential guide for both neonatal nurses and physicians. The 8th edition features the latest neonatal research, evidence, clinical guidelines, and practice recommendations - all in a practical quick-reference format for easy retrieval and review of key information. UNIQUE! Multidisciplinary author and contributor team consists of two physicians and two nurses, with each chapter written and reviewed by a physician-nurse team to ensure that information mirrors current, real-world practice in a neonatal intensive care unit. Critical Findings boxes and tables outline symptoms and diagnostic findings that require immediate attention, helping you prioritize assessment data and steps in initial care. UNIQUE! Clinical content highlighted in color allows you to quickly scan for information that directly affects patient care. UNIQUE! Parent Teaching boxes highlight relevant information to share with a patient's caregivers. Clinical images, graphs, and algorithms illustrate clinically relevant concepts in neonatal intensive care. Streamlined references include only the most current or classic sources. NEW! Coverage of the latest neonatal research, evidence, clinical guidelines, and practice recommendations addresses topics such as: women with chronic illnesses becoming pregnant; maternal obesity; hypotension and shock in premature infants; pain and sedation; dedicated feeding sets vs. IVs for safety; MRSA; pediatric stroke; autism screening; discharge coordination; and more. NEW! The latest AAP recommendations and guidelines for hypoglycemia, jaundice, herpes, respiratory syncytial virus, and neonatal transport team composition. EXPANDED! Revised Evidence-Based Clinical Practice chapter focuses on evidence-based practice and quality improvement and the role of qualitative research in EBP. EXPANDED! Updated Infection in the Neonate chapter features new GBS guidelines and CRP research.
Download or read book Attending to Values at Stake when a Child is Dying written by Stephanie Avery and published by . This book was released on 2019 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Existing literature has identified that health care providers significantly shape the experiences of parents at the end-of-life in the pediatric intensive care unit. However, there is a gap in the literature of the specific nursing influence on parental experiences of a child's death in this context. Employing the interpretive descriptive methodology, this qualitative study was designed to explore parents' moral experiences of nursing care at the end-of-life in the pediatric intensive care unit, and was analyzed through a lens of nursing ethics. Face-to-face, semi-structured interviews were conducted with eleven parents (six mothers and five fathers) of six children who died in a pediatric intensive care unit at a university-affiliated tertiary hospital in Eastern Canada. Study results revealed close connections between parents' abilities to meaningfully parent a child through their death and the nursing care that they received at the end-of-life, and highlighted the varying helpful guiding roles that nurses adopted at different moments in parental experiences. Results also indicated that parents attributed immense value to feeling that nurses cared-for-and-about their child and the parents themselves, since this made parents feel that their child's death mattered to the nurses whom they had formed relationships with. This study enhances our understanding of the individualized nature of parents' moral experiences of nursing care at the end-of-life in the pediatric intensive care unit, and study results suggest implications for nursing practice, education, and research.
Download or read book Stillbirth Yet Still Born written by Deborah L Davis and published by Fulcrum Publishing. This book was released on 2014-08-01 with total page 134 pages. Available in PDF, EPUB and Kindle. Book excerpt: When your baby dies before birth, you experience an extraordinary grief. You never get to hear your baby's voice nor see life in your baby's eyes. Still, your baby lived. Your baby came into this world. Your baby's existence is important and real. This small book offers tailored information and support for parents experiencing the early hours, days, and weeks that follow the death and birth of their beloved baby. Stillbirth is always a devastating shock, a heartbreaking collision of birth and death that leaves parents helpless. In this accessible book, you will find comfort and ideas for affirming and honoring your precious baby's life.
Download or read book End of life Decisions in Dutch Neonatal Intensive Care Units written by Anton Albert Eduard Verhagen and published by Uitgeverij Paris. This book was released on 2008 with total page 135 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Perinatal Palliative Care written by Erin M. Denney-Koelsch and published by Springer Nature. This book was released on 2020-02-05 with total page 443 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader. Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care. Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.
Download or read book Infants in Crisis written by Glenn Affleck and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: The emotional impact of having a newborn hospitalized in an intensive care unit is immense. The parents' perceptions of the child's fragility and of their role in the vulnerable child's life represent important facts of the crisis in which the infant and the parents are involved. Such early stress marks the child's later development which may include chronic ailments and learning disabilities. This book explores a whole spectrum of psychological questions raised by the birth of medically fragile infants, from the parents' ability to restore a sense of meaning and mastery in the face of the profound challenges confronting them, to the importance of social support and coping strategies, and finally, to the crisis of newborn intensive care in the context of the marital relationship.
Download or read book Parental Perspectives on Grief and Loss Following Perinatal Death written by Kerry Jones and published by LAP Lambert Academic Publishing. This book was released on 2013-01 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: Seventeen babies a day die in the UK, yet existing research suggests that stillbirth and neonatal loss remains a marginal topiC. There is a need to explore how men and women experience the stillbirth or neonatal death of their child. While the professional literature discusses such deaths, it is unclear from where these perspectives are derived, professionals or parents. This book addresses parents perspectives and seeks to develop a greater of the meaning of the death of a child following stillbirth and neonatal death. This serves to provide valuable insight for professionals who work with bereaved parents, whilst also adding to existing research about bereavement and the multidisciplinary orientations to understanding death and grief in contemporary western societies. Though this has particular relevance to an academic audience, it would serve further to support bereaved parents as they attempt to derive meaning from reading other men's and women's bereavement experiences.
Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Download or read book Carrying Them with Us written by David M. Engelstad and published by Fortress Press. This book was released on 2019-02-01 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: Carrying Them with Us: Living through Pregnancy and Infant Loss is a reflection on what pastors David Engelstad and Catherine Malotky have learned since the day in 1984 when their eight-week-old daughter Erin died of Sudden Infant Death Syndrome. Drawing on their own loss, they offer themselves as companions to parents who struggle to deal with the end of an eagerly anticipated pregnancy or the death of a joyfully welcomed baby. Readers will find in Carrying Them with Us comfort and wisdom, a spiritual perspective, and practical guidance. The authors also invite into this journey the caregivers--family, clergy and medical professionals, and friends--who accompany grieving parents. The book is organized around five questions the authors have found central to many parents' unfolding story: (1) How can this have happened? (2) Why do I feel like this? (3) How do I keep going? (4) What do I make of life after this? And (5) Who am I becoming? Engelstad and Malotky show readers a path from devastating sadness toward healing, a way for grieving parents to keep going and, one day, to embrace new life.
Download or read book The Lazarus Case written by John D. Lantos and published by JHU Press. This book was released on 2001 with total page 287 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this volume, John Lantos weaves a story that captures the dilemmas of modern medical practice. He draws on his experience in neonatal medicine, paediatrics and medical ethics to explore ethical dilemmas through one poignant representative situation.
Download or read book Parental Loss and Grief in the Neonatal Intensive Care Unit written by Emily Reuvers and published by . This book was released on 2018 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Premature and ill infants are admitted to neonatal intensive care units (NICU) for specialized medical and nursing care. Infants admitted to NICUs require the use of life sustaining technology and care from a multidisciplinary health care team. While in hospital, an infant's prognosis and expected outcomes can dramatically change. Depending on the circumstances of their infant's health, parents may choose to withdraw life sustaining treatment, or alternatively, face a future reality with the potential of long-term impact related to their infant's diagnosis. Parents with an infant in the NICU experience many different types of losses which can generate a grief response. The purpose of this thesis is to explore parental loss and grief in the NICU. A systematic review of qualitative evidence modelled on the Joanna Briggs Institute method (2014) was completed. This approach included a systematic and rigorous approach to the searching, critical appraisal, and aggregation procedures. Four databases (CINAHL, Medline, PsycINFO, Nursing and Allied Health) were systematically searched using pre-identified search criteria. Two reviewers were involved in the search and screening, and three additional reviewers were used to identify included articles. This search process resulted in five studies being included in the review. Five themes were identified from the original research studies: support, not knowing what to expect, hospital practices, communication, and coming through grief. The results of this systematic review of qualitative evidence demonstrate that loss and grief have been described by parents in the NICU, both in the presence and absence of neonatal death.
Download or read book A Gathering of Angels written by Victoria Leland and published by . This book was released on 2010-01-01 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Author Vicki Leland was a nurse in a busy Neonatal Intensive Care Unit (NICU) in 2006--a particularly tough year--when she met five families whose babies had died in the NICU. They touched her life in unexpected and inspiring ways, and they became "angels" to--souls who appear in our lives at times of crisis and walk alongside us as we journey through grief. In A Gathering of Angels, Leland has collected writings from these five women on different aspects of grief. The result is a heartfelt book that shows how real people respond to grief. The women share their intensely personal stories, creating an incredibly universal book that will speak to readers from all walks of life who have lost a baby. Reflections include: Feeling Robbed, Guilt, Grieving Mothers vs. Grieving Fathers, My Faith Has Been Tested, Peace...and the Sundial.
