Download or read book Our Lung Transplant Love Story a Memoir written by Tammy P. Stafford and published by . This book was released on 2022-11-30 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Your lungs will decline" is the maddening phrase we heard from two prestigious university hospitals when discussing my husband's health. Steve was diagnosed at Duke University in 2012 with a rare autoimmune disease that destroyed his lungs leaving him breathless and oxygen dependent. Doctors declared his only hope for survival as Double Lung Transplant. This is our inspiring lung transplant love story of how God gifted us a miracle through the most difficult surgery of modern medicine during the most challenging time for lung patients, the Covid-19 Pandemic of 2020. Our real-life experience will make you laugh and cry, hold your loved one closer and see the beauty in trusting Jesus.
Download or read book Salt in My Soul written by Mallory Smith and published by Random House. This book was released on 2019-03-12 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Download or read book Exhale written by David Weill MD and published by Post Hill Press. This book was released on 2021-05-11 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: A young father with a rare form of lung cancer who has been turned down for a transplant by several hospitals. A kid who was considered not “smart enough” to be worthy of a transplant. A young mother dying on the waiting list in front of her two small children. A father losing his oldest daughter after a transplant goes awry. The nights waiting for donor lungs to become available, understanding that someone needed to die so that another patient could live. These are some of the stories in Exhale, a memoir about Dr. Weill’s ten years spent directing the lung transplant program at Stanford. Through these stories, he shows not only the miracle of transplantation, but also how it is a very human endeavor performed by people with strengths and weaknesses, powerful attributes, and profound flaws. Exhale is an inside look at the world of high-stakes medicine, complete with the decisions that are confronted, the mistakes that are made, and the story of a transplant doctor’s slow recognition that he needed to step away from the front lines. This book is an exploration of holding on too tight, of losing one’s way, and of the power of another kind of decision—to leave behind everything for a fresh start.
Download or read book My Every Breath written by Karen Emilson and published by . This book was released on 2019-06-19 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: The compelling story of a woman's lifelong battle with Cystic Fibrosis and her astonishing resilience despite a double lung transplant and a senseless murder.Anna Maynard was diagnosed with Cystic Fibrosis when she was six months old, at a time when average life expectancy for children afflicted with the genetic disorder was only fourteen years. Throughout her tumultuous childhood, Anna found for a life of normalcy and despite the death of her older sister, France-who succumbed to the same disease-Anna pursued her dream to live a long, productive life with courage, determination and hope.
Download or read book To Catch My Breath written by Buddy Norris and published by High Bridge Books. This book was released on 2022-05-25 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a routine visit to the optometrist revealed an inflamed nerve, Buddy Norris didn't worry about it. He figured antibiotics could handle something like that. Buddy didn't realize that he and his wife, Amy, were about to plunge into a life-or-death battle that would take them on a complex journey in search of hope, faith, and a new set of lungs. In 2010, doctors diagnosed Buddy with idiopathic pulmonary fibrosis (IPF), which inevitably results in death from respiratory failure without a double lung transplant - a transplant Buddy wouldn't qualify to receive. To Catch My Breath is an unflinchingly honest account of one man's struggle with an array of doctors, hospitals, and a system that seemed determined to beat him. It's also a story of courage and perseverance for anyone facing an organ transplant. In this book, Buddy reveals the tough realities of waiting for an organ and the challenges transplant recipients face after surgery. His story provides down-to-earth information for people awaiting transplants, and it honors the families of organ donors brave enough to leave their lungs, hearts, or kidneys on earth after they left. Through his and Amy's memories, Buddy weaves an intimate and powerful testimony to God's providence, his wife's faithfulness, and his own unbroken spirit.
Download or read book Partners 4 Life written by Jim Uhrig and published by iUniverse. This book was released on 2014-03 with total page 139 pages. Available in PDF, EPUB and Kindle. Book excerpt: Early in 2008, doing ordinary, mundane things like tying his shoes and walking up steps literally took author Jim Uhrig's breath away. He had trouble breathing, and it seemed as though he could never catch his breath. That was the beginning of a long journey for Uhrig, who shares his story in Partners 4 Life. In this memoir, he narrates the path his life took after being diagnosed with the incurable idiopathic pulmonary fibrosis and undergoing a subsequent lung transplant in April of 2009. Uhrig not only discusses his diagnosis and treatment, but also places special emphasis on the partners-from his personal life, his business, and his sports activities-who provided him with inspiration and help and played an integral role in his survival. He includes his partners in medicine, the donor and her family, caregivers, and special angels. Uhrig's story relates how he tackled his lung disease and transplant with the same fervor he lived life. Partners 4 Life communicates the saving grace of an organ transplant as well as the power of positive thinking.
Download or read book The Encore written by Charity Tillemann-Dick and published by Simon and Schuster. This book was released on 2017-10-03 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this “heartrending, passionate, and surprisingly humorous account of the conjunction between art and death” (Andrew Solomon, New York Times bestselling author), acclaimed opera singer Charity Tillemann-Dick recounts her remarkable journey from struggling to draw a single breath to singing at the most prestigious venues in the world after receiving not one but two double lung transplants. Charity Tillemann-Dick was a vivacious young American soprano studying at the celebrated Franz Liszt Academy of Music in Budapest when she received devastating news: her lungs were failing, her heart was three and a half sizes too big, and she would die within five years. Medical experts advised Charity to abandon her musical dreams, but if her time was running out, she wanted to spend it doing what she loved. In just three years, she endured two double lung transplants and had to slowly learn to breathe, walk, talk, eat, and sing again. With new lungs and fierce determination, she eventually fell in love, rebuilt her career, and reclaimed her life. More than a decade after her diagnosis, she has a chart-topping album, performs around the globe, and is a leading voice for organ donation. Weaving Charity’s extraordinary tale of triumph with those of opera’s greatest heroines, The Encore illuminates the indomitable human spirit and is “an uplifting story of overcoming significant odds to fulfill a dream” (Kirkus Reviews).
Download or read book Little Matches written by Maryanne O'Hara and published by HarperCollins. This book was released on 2021-04-20 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Gripping and true in all ways. This fine, affecting memoir will stay with me for a very long time.”—Meg Wolitzer, author of The Female Persuasion “In this vividly written memoir novelist O’Hara shares a painful but ultimately beautiful account of her daughter Caitlin’s life with cystic fibrosis. . . . Her compelling story will resonate with anyone seeking a light in the darkest depths of grief.”—Library Journal In the vein of The Year of Magical Thinking and Beautiful Boy, an emotionally raw and inspiring memoir that illuminates a mother’s grief over the loss of her adult child and considers the hope of soulful connections that transcend the boundary of life and death. When their only child was diagnosed with cystic fibrosis (CF) at the age of two, Maryanne O’Hara and her husband were told that Caitlin could live a long life or be dead in a matter of months. Thirty-one years later, Caitlin lost her battle with this devastating disease following an excruciating two-year wait on the transplant list and a last-minute race to locate a pair of healthy lungs. The sudden spiral of events left Maryanne in an existential crisis, searching to find an answer to the eternal question: Why we are here? During her final years, Caitlin had become a source of wisdom and comfort for her mother—the partner with whom she shared a deep spiritual quest to understand what it meant to have a soul. After Caitlin’s passing, Maryanne began to notice signs—poignant, persistent synchronicities that seemed to lean toward proof of Caitlin’s enduring presence. Weaving together a series of interconnected meditations with illuminating glimpses of life rendered via text messages, e-mails, and journal entries, Little Matches is a profound reflection on life and death, motherhood, the pain of chronic uncertainty, and finding inspiration in the unexpected sparks that light our way through the darkness.
Download or read book Because He Believed written by Michael Germaine and published by . This book was released on 2020-04-03 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: Because He Believed is a true story about a Miracle. Michelle Germain found herself in a state of disbelief when she heard that her husband, Michael, needed a double-lung transplant to live. She was told that he would survive the surgery on total life support, but after that, no one could predict his outcome. That's the conversation that kept replaying in her mind as their family waited during Michael's double-lung transplant surgery. There was no turning back. That was the harsh reality of their lives.Because He Believed is a story about a young family that had to hold a true faith as they came together in support of a lung condition that no doctor could treat. Michael Germain never saw himself dying at the young age of 53. He had an incredibly strong will to live. Michael is a faithful man and relied on his belief in God. Because of the love and support shared amongst family members and the help of a spiritual intuitive healer, Annette Bruchu, and a religious holistic healer, Sister Anita Germain, health and hope are restored as well as the miracle of life to Michael and his family. The Germain family remained steadfast through the transplant, but it was the years to follow that rocked their whole lives. Through tears and triumphs, small steps became big victories as this family overcame many hardships along their journey. Many lessons are learned as their beliefs, faith, and resilience are tested. Because He Believed takes readers along an emotional journey of body, mind, and spirit.
Download or read book Breath written by Carly-Jay Metcalfe and published by Univ. of Queensland Press. This book was released on 2024-02-27 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: A triumphant story of hope and survival I am dying. I know that I' m dying, despite not having been told by my doctors that I am dying. I know I am dying because I' m in the dying room. Carly-Jay Metcalfe was born with cystic fibrosis, survived a double-lung transplant at the age of twenty-one and faced a rare cancer at the age of thirty. What she has endured should have killed her, but her humour, courage and optimism became her best survival skills. From her hospitalised childhood to her many friendships, loves and losses, Carly-Jay describes the fickle nature of life with candour and warmth. She writes with compelling insight about organ donation, opioid addiction and survivor's guilt, while still managing to find joy amongst the wreckage. Breath is a stunningly frank and darkly funny memoir about living, dying and trying to breathe. &‘ The only thing more remarkable than Carly-Jay Metcalfe' s story, is the way she tells it. This book is a love letter to the sublime human mess called life; an invitation to pay attention to every precious lungful.' Beejay Silcox
Download or read book Blow the House Down written by Charles Tolchin and published by iUniverse. This book was released on 2000-07-29 with total page 266 pages. Available in PDF, EPUB and Kindle. Book excerpt: What is it like to receive a life-saving organ transplant? On April 13, 1997, I received new lungs. Blow the House Down details my story. It illustrates how Cystic Fibrosis affected my life and how I fought it. This book reflects the immense generosity of so many people, including my donor and her family; my family and friends; people who donate to Cystic Fibrosis research and drive major scientific breakthroughs; and doctors, nurses, and physical therapists who toil hard day in and day out to restore our health. Together, we each have the power to cure disease. Charles Tolchin received a double lung transplant in April of 1997. He now works in advertising for OgilvyInteractive, a division of Ogilvy & Mather. He has been published in National Lampoon Magazine, CBS Healthwatch.com, and the Congressional Record. For fun, he skis, plays ice-hockey, and lifts weights.
Download or read book Transplanted written by Allison Watson and published by Nimbus+ORM. This book was released on 2019-06-03 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: A poignant, witty memoir of learning to cope with a frightening genetic disease—and of a life transformed thanks to an organ donor. When Allison Watson awoke that day, she knew she was in a hospital bed. That's all. She had no idea how much time had passed since she’d seen her family. When she tried to focus, her vision was blurry, and when she tried to wave someone down, she became so exhausted she thought she was dying. Hours later, when Watson was able to communicate, she asked a nurse if the news was good or bad. “It’s good news,” the nurse replied. “You had your lung transplant four days ago.” Many cystic fibrosis patients are living longer today, thanks, in part, to transplants—though they are not easy to obtain. In this candid memoir, Watson describes living under the shadow of this incurable disease; her special bond with her sister, Amy, who also grew up with CF; and her life-altering surgery in Toronto in 2014. ; the r. Nor was the road to full recovery. In this book, Watson, who cycled across Canada with her brother in 2008 to raise awareness of CF, describes her journey. “Watson tells her resilient story of living with cystic fibrosis (CF), her progressive lung damage, the stress of waiting for an organ donor, her lifesaving transplant and life in the almost five years since her major surgery.” —The Guardian (Prince Edward Island, Canada)
Download or read book Close to My Heart written by Robert Emmet and published by Mission Point Press. This book was released on 2020-05-25 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: We all experience extraordinary highs and lows in life. Having Robert Emmet's doctor tell him he had until Christmas to live was one of Emmet's darkest moments. The diagnosis: an incurable disease called IPF - Idiopathic Pulmonary Fibrosis. The disease was taking over Emmet's lungs. At first, Emmet was in denial. Then slowly he came to understand that the only way to survive the disease was to replace both of his lungs. Preparing for that monumental task, including the most important step - finding a lung donor - and then experiencing the intricate surgery and recovery, are explained fully here by Emmet ... inspirational lessons of perseverance and joy. This is a story of powerful intent, the strength to fight for one's survival, and the love of all things human. And yet it's also an intimate patient's perspective of what happens when all of the stars align just right. In it you'll find humorous moments, unexpected twists and turns, and even zany, eye-opening hospital procedures. In Emmet's case, they all combined to save a life.
Download or read book I Call My New Lung Tina written by Shirley E. Jewett and published by Trafford Publishing. This book was released on 2002 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: No one ever wants to hear that they have a disease, especially one as fatal as severe pulmonary hypertension. This book takes readers through Shirley Jewett's experience, providing insight into the ways patients can take responsibility for their health and medical treatments. It is far more than a feel good book about one woman's journey to the other side of a death sentence. It is an instructional manual of survival. Click here to read about Taking Flight: Inspirational Stories In Lung Transplantation compiled by Joanne Schum Click here to read about The Lung Transplantation Handbook (Second Edition): A Guide For Patients by Karen A. Couture
Download or read book A Change of Heart written by Claire Sylvia and published by Grand Central Publishing. This book was released on 1998-03-01 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: After a heart and lung transplant operation, dancer Claire Sylvia discovered that new organs were not the only thing she inherited. Never having liked such foods as beer and chicken nuggets, she suddenly started craving them. After an extraordinary dream, she seeks out the family of her donor -- a teenaged boy who died in a motorcycle accident -- and learns that it is indeed possible for two souls to merge in one body. "This is a story that must be told and heard...a fascinating example of how cellular memory can outlive physical death". -- Deepak Chopra, M.D.
Download or read book Scars Tell Stories written by Doug Lagasse and published by . This book was released on 2020-09-25 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: Inspiring stories of courage in the face of illness and of hope when all looks bleak. Dan tells his personal journey fighting cystic fibrosis, receiving a heart/double lung transplant and his battle with a litany of other illnesses - in nine different countries! Discover how our scars can become trophies of victory. Be encouraged with deeper truths about life and death, that give promise and not despair. Live!
Download or read book Neurotribes written by Steve Silberman and published by Penguin. This book was released on 2016-08-23 with total page 562 pages. Available in PDF, EPUB and Kindle. Book excerpt: This New York Times–bestselling book upends conventional thinking about autism and suggests a broader model for acceptance, understanding, and full participation in society for people who think differently. What is autism? A lifelong disability, or a naturally occurring form of cognitive difference akin to certain forms of genius? In truth, it is all of these things and more—and the future of our society depends on our understanding it. Wired reporter Steve Silberman unearths the secret history of autism, long suppressed by the same clinicians who became famous for discovering it, and finds surprising answers to the crucial question of why the number of diagnoses has soared in recent years. Going back to the earliest days of autism research, Silberman offers a gripping narrative of Leo Kanner and Hans Asperger, the research pioneers who defined the scope of autism in profoundly different ways; he then goes on to explore the game-changing concept of neurodiversity. NeuroTribes considers the idea that neurological differences such as autism, dyslexia, and ADHD are not errors of nature or products of the toxic modern world, but the result of natural variations in the human genome. This groundbreaking book will reshape our understanding of the history, meaning, function, and implications of neurodiversity in our world.
