Download or read book Life after the Diagnosis written by Steven Pantilat and published by Da Capo Lifelong Books. This book was released on 2017-02-14 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: A renowned expert in palliative care, who is featured in the Netflix documentary, End Game, Dr. Pantilat delivers a compassionate and sensitive guide to living well with serious illness. In Life After the Diagnosis, Dr. Steven Z. Pantilat, a renowned international expert in palliative care demystifies the medical system for patients and their families. He makes sense of what doctors say, what they actually mean, and how to get the best information to help make the best medical decisions. Dr. Pantilat covers everything from the first steps after the diagnosis and finding the right caregiving and support, to planning your future so your loved ones don't have to. He offers advice on how to tackle the most difficult treatment decisions and discussions and shows readers how to choose treatments that help more than they hurt, stay consistent with their values and personal goals, and live as well as possible for as long as possible.
Download or read book Living Well After an Alzheimer s Diagnosis written by P. Murali Doraiswamy, M.D. and published by St. Martin's Press. This book was released on 2011-08-30 with total page 157 pages. Available in PDF, EPUB and Kindle. Book excerpt: Previously published as part of THE ALZHEIMER'S ACTION PLAN. What would you do if your mother was having memory problems? Five million Americans have Alzheimer's disease, with a new diagnosis being made every seventy-two seconds, with millions more at risk. Although experts agree that early diagnosis and treatment are essential, families don't know where to turn for authoritative, state-of-the-art advice and answers to all of their questions. Now, combining the insights of a world-class physician and an award-winning social worker, Living Well After an Alzheimer's Diagnosis tells you the truth about Alzheimer's treatment, living well with early-stage Alzheimer's, finding peace of mind during the middle years, and answers the 40 most common questions. Clear, compassionate, and empowering, Living Well After an Alzheimer's Diagnosis is a must-read.
Download or read book The Living Well with Dementia Course written by Richard Cheston and published by Routledge. This book was released on 2019-04-25 with total page 121 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Living Well with Dementia Course: A Workbook for Facilitators will be an indispensable guide to providing support to people after they have received a dementia diagnosis. The workbook provides facilitators with a realistic but positive approach to helping people with dementia understand and adjust to their condition, helping them to live as well as possible. This workbook outlines the Living Well with Dementia course, a post-diagnostic course for people who have recently received a diagnosis of dementia. Its session-by-session structure, along with e-resources including handouts for course participants, will help facilitators provide a realistic but positive approach to support after a diagnosis. Aimed at facilitators, and drawing on the authors’ many years of clinical and research experience, The Living Well with Dementia Course workbook will be of great assistance to healthcare professionals and support workers in many different settings, including specialist NHS dementia services, primary care services and the voluntary and community sector.
Download or read book living well after diagnosis written by Alzheimer's Society and published by . This book was released on 2013 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Dementia Guide written by Alzheimer's Society and published by . This book was released on with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt: The dementia guide is for anyone who has recently been told they have dementia. This could be any type of dementia, such as Alzheimer's disease or vascular dementia. It will also be useful to the close friends and family of someone with dementia. It covers areas including about dementia, treatments, living well, planning ahead, and services and support. It is for people in England, Wales and Northern Ireland.
Download or read book Oxford Textbook of Cognitive Neurology and Dementia written by Masud Husain and published by Oxford University Press. This book was released on 2018-10-29 with total page 513 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume covers the dramatic developments that have occurred in basic neuroscience and clinical research in cognitive neurology and dementia. It is based on the clinical approach to the patient, and provides essential knowledge that is fundamental to clinical practice.
Download or read book Alzheimer s Dementia For Dummies written by American Geriatrics Society (AGS) and published by John Wiley & Sons. This book was released on 2016-04-25 with total page 464 pages. Available in PDF, EPUB and Kindle. Book excerpt: Your sensitive, authoritative guide to Alzheimer's and dementia If a loved one has recently been diagnosed with dementia or Alzheimer's disease, it's only natural to feel fraught with fear and uncertainty about what lies ahead. Fortunately, you don't have to do it alone. This friendly and authoritative guide is here to help you make smart, informed choices throughout the different scenarios you'll encounter as a person caring for someone diagnosed with dementia or Alzheimer's disease. From making sense of a diagnosis to the best ways to cope with symptoms, Alzheimer's and Dementia For Dummies is the trusted companion you can count on as you navigate your way through this difficult landscape. Affecting one's memory, thinking, and behavior, dementia and Alzheimer's disease can't be prevented, cured, or slowed—but a diagnosis doesn't mean you have to be left helpless! Inside, you'll find out how to make sense of the symptoms of dementia and Alzheimer's disease, understand the stages of the illnesses, and, most importantly, keep your loved one safe and comfortable—no matter how severe their symptoms are. Find out what to expect from Alzheimer's and dementia Discover what to keep in mind while caring for someone with Alzheimer's or dementia Uncover symptoms, causes, and risk factors of Alzheimer's and dementia Learn the critical information needed to help manage these illnesses Whether you're new to caring for a person affected by Alzheimer's or dementia or just looking for some answers and relief on your journey, this is the trusted resource you'll turn to again and again.
Download or read book Living Well with Mitochondrial Disease written by Cristy Balcells and published by . This book was released on 2012 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living Well with Mitochondrial Disease helps make sense of mitochondrial disease (Mito), an overwhelming and complex group of diagnoses that has grown exponentially in recent years. The most common metabolic disorder, thought to be more common than cystic fibrosis and broader-reaching than most genetic diseases, Mito can affect babies, children, and teens from birth or at any point during their development. Previously healthy adults, as well as adults with a history of unexplained fatigue, are increasingly receiving a Mito diagnosis. Some children with autism spectrum disorders who have medical issues such as digestive difficulties and fatigue are also being identified as having a mitochondrial disorder. This guide is the first book about Mito written for patients and thier families. It takes readers from understanding how the mitochondria work (they are the powerhouse of the cell, providing energy for the entire body), how people with mitochondrial defects are diagnosed and treated, to how to live well when you, your child, or someone you love is struggling with disabling symptoms. Topics include: the journey to diagnosis; the biochemistry of Mito; practical advice for the specific needs of children and adults; understanding and managing symptoms; where to find specialists and support; treatment approaches; and autism and Mito. Writing from the perspective of both a parent and nurse, the author shows adult patients, parents, family members, and caregivers how to achieve the best quality of life possible. Readers will feel empowered as they come to understand the causes of Mito, learn to manage the symptoms, avoid emergencies and make appropriate lifestyle choices.
Download or read book Dementia Reimagined written by Tia Powell and published by Penguin. This book was released on 2020-09-01 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
Download or read book Live Your Life Not Your Diagnosis written by Andrea Wildenthal Hanson and published by Morgan James Publishing. This book was released on 2018-04-17 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: An inspiring and empowering guide to changing your mindset, feeling better, and living a full life after receiving a troubling diagnosis. Discussing everything from diet and exercise to stress and emotion management, Live Your Life, Not Your Diagnosis provides tools readers can use immediately to help them feel better while living with a diagnosis. Written by a master certified mindset coach who was diagnosed with multiple sclerosis in 2000, readers won’t find negative, scary stories about how a diagnosis will hurt them. Instead, they will find stories of bravery, wellness, support, and detailed steps on how they too can live their life—not their diagnosis. Praise for Live Your Life, Not Your Diagnosis “Powerful and empowering. Hanson shares a fresh, brand new, systemic guide to reframing one’s perspective and living with a difficult diagnosis.” —Sandra Bond Chapman, PhD, Founder and Chief Director, Center for BrainHealth, distinguished University Professor, author of Make Your Brain Smarter “A spectacular book. . . . The lessons [Andrea] teaches and the exercises she provides will help anyone who is struggling with any type of medical diagnosis or challenge.” —Brooke Castillo, Master Certified Coach and Founder of The Life Coach School “A true guide on how to listen to our bodies, connect to them, nurture ourselves, and understand the power of our mindset. . . . A must-read for anyone diagnosed with multiple sclerosis. Love it!” —Katherine Treadway, LCSW, MSCIR, CRND
Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.
Download or read book How to Live Well with Chronic Pain and Illness written by Toni Bernhard and published by Simon and Schuster. This book was released on 2015-10-06 with total page 355 pages. Available in PDF, EPUB and Kindle. Book excerpt: Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: • Mindfulness exercises to mitigate physical and emotional pain • Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations • Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.
Download or read book After the Diagnosis written by Julian Seifter and published by Simon and Schuster. This book was released on 2011-08-16 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: A heartfelt lesson on the art of living well through serious illness. Dr. Julian Seifter understands the difficulty of managing a chronic condition in our health-obsessed world. When he found out he was suffering from diabetes, he was an ambitious medical resident who thought he could run away from his diagnosis. Good health was part of his self-image, and acknowledging that he needed treatment seemed like a kind of failure. In his practice, however, as he helped his patients come to terms with serious conditions, he began to understand that there were different, better ways to approach a life-altering diagnosis. In this frank account of his experiences both as a doctor and as a patient, he shares the many lessons he has learned.--From publisher description.
Download or read book Living Well with a Hidden Disability written by Stacy Taylor and published by . This book was released on 1999 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: For those who live with a hidden disability, such as chronic pain, depression, or a range of other conditions often misunderstood, downplayed, or even dismissed by others, this book offers practical suggestions for surviving rough times, coping with negative reactions, and dealing with employment issues, as well as strategies to manage pain, find a helpful therapist, rebuild self-esteem, and strengthen the body, mind, and soul.
Download or read book Dear Alzheimer s written by Keith Oliver and published by Jessica Kingsley Publishers. This book was released on 2019-04-18 with total page 354 pages. Available in PDF, EPUB and Kindle. Book excerpt: How to live a full and rewarding life after a dementia diagnosis. Keith Oliver was diagnosed with young onset dementia at the age of 55. Unaware at the time that dementia could affect people of this age, Keith set out to increase public awareness of the condition and dispel the myths about the illness. Using a unique diary format, this intimate and empowering memoir captures what everyday life with dementia is like, offering both a candid look at its struggles, and a profoundly moving account of Keith's journey to live a full life afterwards.
Download or read book Living with Cancer written by Vicki A. Jackson and published by JHU Press. This book was released on 2017-05-16 with total page 363 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patients at every stage will find Living with Cancer a comprehensive, thoughtful, and accessible guide for navigating the illness and its treatment.
Download or read book Living Well with a Serious Illness written by Robin Bennett Kanarek and published by JHU Press. This book was released on 2023-04-04 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: A practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand • what palliative care entails • how to access the support they need when going through a serious illness • what questions to ask medical professionals • how to navigate advanced care planning • definitions of common terminology used with end-of-life planning • the importance of spiritual care, coping strategies, and emotional support • how to become an advocate for palliative care This book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spirit—the core tenet of palliative care.
