Download or read book Interaction Patterns Between Parents with Advanced Cancer in Hospice and Their Adolescent Children written by Denice Colette Sheehan and published by . This book was released on 2007 with total page 137 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Cancer profoundly affects the lives of those with the diagnosis and their families. When the life of a parent is threatened by advanced cancer, the children are faced with living their lives first with a seriously ill parent and then without the physical presence of the parent. The purpose of this study was to develop a theoretical framework to describe interaction patterns between parents with advanced cancer and their adolescent children. The sample included 26 particpants from 9 families; 7 parents with advanced cancer enrolled in a hospice program, 9 spouses, and 10 adolescents (12-18 years old). Grounded theory methods using unstructured interviews were used to illuminate the processes ill parents and adolescents used to manage their lives within the context of the parent's impending death, and to respond to changes over time. The adolescents and their ill parents described a process of becoming closer to each other by spending more time together. Participants described their experiences as a conscious effort made in direct responses to the parent's impending death. Limited time together was the core concept that lef to spending more time together and developing means to extending their time together after the parent's death. For some adolescents the process culminated in a choice to give up their time with their ill parents when dying became too difficult to watch. The ill parents made a concerted effort to remain close to their adolescents after death by writing letters to them, and by giving them other tangible objects by which to remember them. Several ill mothers identified specific women to serve as guides and role models for their daughters after the mother's death. There are a number of direct implications for clinical practice that arose from this study. Generally, adolescents need guidance in traversing this new and unexpected experience of facing their parent's impending death from clinicians who convey empathy and understanding and help adolescents begin a conversation with the ill parent. Clinicians should be aware that friends are a major source of support and should appreciate their contributions by including them in adolescent support groups."--Abstract.
Download or read book Life Interrupted written by Farya Phillips and published by . This book was released on 2013 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: It is estimated that close to 55, 000 children may experience the death of a parent from cancer each year in the United States. Families with children facing the death of a parent from cancer are a potentially vulnerable population often overlooked by health care professionals (HCP), and understudied by researchers. Little is currently know about how having a parent with advanced cancer affects children and adolescents. These youth experience many losses when a parent is diagnosed with advanced cancer, the loss of a healthy parent, the loss of both parent’s emotional and physical availability, and the loss of normalcy in their family lives. Research suggests that adolescents have been the most negatively affected group when faced with a parent’s illness. This dissertation will provide a comprehensive examination of the effects of advanced parental cancer on adolescents. A theoretical model will be presented as a guiding framework. This model is based on a prior systematic review of literature involving factors influencing children and adolescent’s adjustment to parental cancer. The first article is a systematic review of the current state of empirical literature on the impact of a parent’s advanced cancer on children and adolescents. Article 2 offers an inductive content analysis of 7 in depth qualitative interviews with adolescent’s living with a parent diagnosed with advanced cancer. The core construct that organized study results was weaving cancer into our lives. Our findings shed light on how families managed when the “terminal phase” of cancer stretched on for many years. Implications for HCP’s include the need to facilitate family interventions that provide parents and adolescents with a venue to communicate and process the impact of cancer on their lives. Article three utilized a hermeneutic phenomenological approach to discover the lived experience of adolescent’s facing advanced parental cancer. Four essential themes emerged from the analysis: Life interrupted, Being there, Managing emotions, Positives prevail. The findings in this study underscore the significant impact an advanced cancer diagnosis can make on a family system and suggest that the experience may also have the potential of creating opportunities for growth and well being. These findings indicate that some adolescents are able to find meaning in these difficult circumstances which helps shape their growing identity. The themes of positive growth and gratitude that emerged from this dissertation suggest that this is a potentially powerful protective factor that adolescents use to maintain positive adjustment during a parent’s protracted illness. Researchers and HCP’s can build on these findings to closely examine the potential for gratitude as a construct in intervention programs for families facing parental cancer.
Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.
Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Download or read book Handbook of Parenting Children and parenting written by Marc H. Bornstein and published by Psychology Press. This book was released on 2002 with total page 600 pages. Available in PDF, EPUB and Kindle. Book excerpt: [All orders originating from Japan must order through Maruzen International Co., Ltd.: TEL: +81-3-3275-8582; FAX: +81-3-3275-9072; http://www.maruzen.co.jp] NEW! CD-ROM, Handbook of Parenting, Second Edition, Volumes 1-5-$150.00 (see below) Completely revised and expanded from four to five volumes, this new edition of the Handbook of Parenting appears at a time that is momentous in the history of parenting. Parenting and the family are today in a greater state of flux, question, and redefinition than perhaps ever before. We are witnessing the emergence of striking permutations on the theme of parenting: blended families, lesbian and gay parents, and teen versus fifties first-time moms and dads. One cannot but be awed on the biological front by technology that now not only renders postmenopausal women capable of childbearing, but also presents us with the possibility of designing babies. Similarly on the sociological front, single parenthood is a modern day fact of life, adult child dependency is on the rise, and parents are ever less certain of their own roles, even in the face of rising environmental and institutional demands that they take increasing responsibility for their offspring. The Handbook of Parenting concerns itself with: *different types of parents--mothers and fathers, single, adolescent, and adoptive parents; *basic characteristics of parenting--behaviors, knowledge, beliefs, and expectations about parenting; *forces that shape parenting--evolution, genetics, biology, employment, social class, culture, environment, and history; *problems faced by parents--handicap, marital difficulties, drug addiction; and *practical concerns of parenting--how to promote children's health, foster social adjustment and cognitive competence, and interact with school, legal, and public officials. Contributors to the Handbook of Parenting have worked in different ways toward understanding all these diverse aspects of parenting, and all look to the most recent research and thinking in the field to shed light on many topics every parent wonders about. Each chapter addresses a different but central topic in parenting; each is rooted in current thinking and theory, as well as classical and modern research in that topic; each has been written to be read and absorbed in a single sitting. In addition, each chapter follows a standard organization, including an introduction to the chapter as a whole, followed by historical considerations of the topic, a discussion of central issues and theory, a review of classical and modern research, forecasts of future directions of theory and research, and a set of conclusions. Of course, contributors' own convictions and research are considered, but contributions to this new edition present all major points of view and central lines of inquiry and interpret them broadly. The Handbook of Parenting is intended to be both comprehensive and state of the art. As the expanded scope of this second edition amply shows, parenting is naturally and closely allied with many other fields.
Download or read book Improving Palliative Care for Cancer written by National Research Council and published by National Academies Press. This book was released on 2001-10-19 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.
Download or read book Palliative Care in Pediatric Oncology written by Joanne Wolfe and published by Springer. This book was released on 2017-12-20 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: This textbook is the first to focus on comprehensive interdisciplinary care approaches aimed at enhancing the wellbeing of children with cancer and their families throughout the illness experience. Among the topics addressed are the epidemiology of pediatric cancer distress, including physical, emotional, social, and spiritual dimensions; the role of the interdisciplinary team; communication and advance care planning; symptom prevention and management; care at the end of life; family bereavement care; and approaches to ease clinician distress. The contributing authors are true experts and provide guidance based on the highest available level of evidence in the field. The book has not only an interdisciplinary but also an international perspective; it will appeal globally to all clinicians caring for children with cancer, including physicians, nurses, psychosocial clinicians, and chaplains, among others.
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Download or read book Clinical Case Studies for the Family Nurse Practitioner written by Leslie Neal-Boylan and published by John Wiley & Sons. This book was released on 2011-11-28 with total page 432 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical Case Studies for the Family Nurse Practitioner is a key resource for advanced practice nurses and graduate students seeking to test their skills in assessing, diagnosing, and managing cases in family and primary care. Composed of more than 70 cases ranging from common to unique, the book compiles years of experience from experts in the field. It is organized chronologically, presenting cases from neonatal to geriatric care in a standard approach built on the SOAP format. This includes differential diagnosis and a series of critical thinking questions ideal for self-assessment or classroom use.
Download or read book Social Aspects of Care written by Nessa Coyle and published by Oxford University Press. This book was released on 2016 with total page 137 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Social Aspects of Care' provides an overview of financial and mental stress illness places, not just on the patient, but on the family as well. This volume contains information on how to support families in palliative care, cultural considerations important in end-of-life care, sexuality and the impactof illness, planning for the actual death, and bereavement.
Download or read book Advanced Cancer written by and published by . This book was released on 1992 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Ethical Conduct of Clinical Research Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2004-07-09 with total page 445 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.
Download or read book Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer written by National Cancer Policy Forum and published by National Academies Press. This book was released on 2014-05-18 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer is the summary of a workshop convened by the Institute of Medicine's National Cancer Policy Forum in July 2013 to facilitate discussion about gaps and challenges in caring for adolescent and young adult cancer patients and potential strategies and actions to improve the quality of their care. The workshop featured invited presentations from clinicians and other advocates working to improve the care and outcomes for the adolescent and young adult population with cancer. Cancer is the leading disease-related cause of death in adolescents and young adults. Each year nearly 70,000 people between the ages of 15 and 39 are diagnosed with cancer, approximately 8 times more than children under age 15. This population faces a variety of unique short- and long-term health and psychosocial issues, such as difficulty reentering school, the workforce, or the dating scene; problems with infertility; cardiac, pulmonary, or other treatment repercussions; and secondary malignancies. Survivors are also at increased risk for psychiatric conditions such as anxiety, depression, substance abuse, and suicide and may have difficulty acquiring health insurance and paying for needed care. Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer discusses a variety of topics important to adolescent and young adult patients with cancer, including the ways in which cancers affecting this group differ from cancers in other age groups and what that implies about the best treatments for these cancer patients. This report identifies gaps and challenges in providing optimal care to adolescent and young adult patients with cancer and to discuss potential strategies and actions to address them.
Download or read book Paediatric Palliative Medicine written by Richard Hain and published by Oxford University Press. This book was released on 2016 with total page 349 pages. Available in PDF, EPUB and Kindle. Book excerpt: A concise and practical guide to caring for children with life-limiting conditions, 'Paediatric Palliative Medicine' covers the common symptoms and challenging issues healthcare professionals are likely to encounter, and includes a detailed drug formulary for quick reference.
Download or read book Maternal Child Nursing Care E Book written by Shannon E. Perry and published by Elsevier Health Sciences. This book was released on 2022-03-05 with total page 1643 pages. Available in PDF, EPUB and Kindle. Book excerpt: Master the essentials of maternity and pediatric nursing with this comprehensive, all-in-one text! Maternal Child Nursing Care, 7th Edition covers the issues and concerns of women during their childbearing years and children during their developing years. It uses a family-centered, problem-solving approach to patient care, with guidelines supported by evidence-based practice. New to this edition is an emphasis on clinical judgment skills and a new chapter on children with integumentary dysfunction. Written by a team of experts led by Shannon E. Perry and Marilyn J. Hockenberry, this book provides the accurate information you need to succeed in the classroom, the clinical setting, and on the Next Generation NCLEX-RN® examination. - Focus on the family throughout the text emphasizes the influence of the entire family in health and illness. - Expert authors of the market-leading maternity and pediatric nursing textbooks combine to ensure delivery of the most accurate, up-to-date content. - Information on victims of sexual abuse as parents and human trafficking helps prepare students to handle these delicate issues. - Nursing Alerts highlight critical information that could lead to deteriorating or emergency situations. - Guidelines boxes outline nursing procedures in an easy-to-follow format. - Evidence-Based Practice boxes include findings from recent clinical studies. - Emergency Treatment boxes describe the signs and symptoms of emergency situations and provide step-by-step interventions. - Atraumatic Care boxes teach students how to manage pain and provide competent care to pediatric patients with the least amount of physical or psychological stress. - Community Focus boxes emphasize community issues, provide resources and guidance, and illustrate nursing care in a variety of settings. - Patient Teaching boxes highlight important information nurses need to communicate to patients and families. - Cultural Considerations boxes describe beliefs and practices relating to pregnancy, labor and birth, parenting, and women's health. - Family-Centered Care boxes draw attention to the needs or concerns of families that students should consider to provide family-centered care.
Download or read book Interdisciplinary Pediatric Palliative Care written by Joanne Wolfe and published by Oxford University Press. This book was released on 2022-01-11 with total page 625 pages. Available in PDF, EPUB and Kindle. Book excerpt: Interdisciplinary Pediatric Palliative Care provides a uniquely integrated, comprehensive resource about palliative care for seriously ill children and their families. The field of palliative care is based on the fundamental principle that an interdisciplinary team is optimal in caring for patients and their families throughout the illness trajectory. The text integrates themes including goals of care, discipline-specific roles, cultural and spiritual considerations, evidence-based outcomes, and far more. It emphasizes the value of words and high-quality communication in palliative care. Importantly, content acknowledges challenging periods between team members, and how those can ultimately benefit team, patient, and family care outcomes. Each chapter includes the perspective of the family of a seriously ill child in the form of a vignette to promote care team understanding of this crucial perspective. This second edition is founded on a wealth of evidence that reflects the innovations in pediatric palliative care science over the past 10 years, including initiatives in clinical care, research, and education. Interdisciplinary Pediatric Palliative Care is appropriate for all pediatric palliative clinicians (PPC), including physicians, nurses, psychosocial clinicians, chaplains, and many others. All subspecialists who deliver care to seriously ill children, will find this book a must-have for their work. Advance Praise for Interdisciplinary Pediatric Palliative Care, Second Edition "This new edition is as much a testament to pediatric palliative care's remarkable evolution as a field as it is a quintessential playbook for providing the high-quality holistic and compassionate care that families with seriously ill children desperately want. Every page thoughtfully weaves together how interprofessional teams can contribute collaboratively to learning about and supporting the preferences, needs and priorities of the precious patients and families in their circle of care. It is a must read for all practitioners to enhance their palliative care understanding, appreciation and ability as a foundation for optimizing quality of life in practice." - Rebecca Kirch, JD, Executive Vice President of Policy and Programs, National Patient Advocate Foundation "This book offers a truly contemporary and comprehensive view of the entire field of pediatric palliative care. The focus on social determinants of health, cultural humility, and disparities in care could not be timelier, and the section highlighting conflict and conflict resolution should be required reading. The continued and purposeful inclusion of interdisciplinary clinicians in producing each chapter models the palliative care team itself-an approach in which all voices are necessary as we seek to provide the most compassionate care possible." - Rachel Thienprayoon, MD, MSCS, FAAP, FAAHPM, Associate Professor of Anesthesia, Medical Director, StarShine Hospice and Palliative Care, Cincinnati Children's Hospital Medical Center
Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
