Download or read book Hidden Consequences of Success in Pediatrics written by Janneke Hatzmann and published by . This book was released on 2009 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: CONTEXT: The number of parents who care for a chronically ill child is increasing. Because of advances in medical care, parental caring tasks are changing. A detailed description of parental health-related quality of life will add to the understanding of the impact of caring for a chronically ill child. This will contribute to pediatric family care. OBJECTIVE: Our goal was to determine the health-related quality of life of parents of chronically ill children compared with parents of healthy schoolchildren. DESIGN, SETTING, AND PARTICIPANTS: A survey of 533 parents of children with chronic conditions (10 diagnosis groups, children aged 1-19 years, diagnosed less than 1 year ago, living at home) and 443 parents of schoolchildren was conducted between January 2006 and September 2007. Parents were approached through Emma Children's Hospital (which has a tertiary referral and a regional function) and through parent associations. The comparison group included parents of healthy schoolchildren. Healthrelated quality of life was assessed with the TNO-AZL Questionnaire for Adult's Health Related Quality of Life. MAIN OUTCOME MEASURE: Health-related quality of life measures gross and fine motor function, cognitive functioning, sleep, pain, social functioning, daily activities, sexuality, vitality, positive and depressive emotions, and aggressiveness. The healthrelated quality of life of the study group was compared with that of the comparison group, and effect sizes were estimated. The percentages of parents at risk for a low health-related quality of life were compared with the 25th percentile scores of the comparison group. RESULTS: Parents of chronically ill children had a significantly lower health-related quality of life. Subgroup analysis showed lower health-related quality of life on sleep, social functioning, daily activities, vitality, positive emotions, and depressive emotions in disease-specific groups. On average, 45% of the parents were at risk for health-related quality-of-life impairment. CONCLUSIONS: Parents of chronically ill children report a seriously lower health-related quality of life, which should receive attention and supportive care if necessary. A family-centered approach in pediatrics is recommended.
Download or read book Encyclopedia of Family Health written by Martha Craft-Rosenberg and published by SAGE. This book was released on 2011-01-20 with total page 1145 pages. Available in PDF, EPUB and Kindle. Book excerpt: Including entries from disciplines across the social sciences, this two-volume set provides coverage of a variety of issues related to the theory, research, practice and policy of health within a family context.
Download or read book Nursing Diagnosis Manual written by Marilynn E. Doenges and published by F.A. Davis. This book was released on 2022-02-01 with total page 2030 pages. Available in PDF, EPUB and Kindle. Book excerpt: Identify interventions to plan, individualize, and document care. Updated with the latest diagnoses and interventions from NANDA-I 2021-2023, here’s the resource you’ll turn to again and again to select the appropriate diagnosis and to plan, individualize, and document care for more than 800 diseases and disorders. Only in the Nursing Diagnosis Manual will you find for each diagnosis…defining characteristics presented subjectively and objectively - sample clinical applications to ensure you have selected the appropriate diagnoses - prioritized action/interventions with rationales - a documentation section, and much more!
Download or read book How Children Succeed written by Paul Tough and published by Houghton Mifflin Harcourt. This book was released on 2012 with total page 261 pages. Available in PDF, EPUB and Kindle. Book excerpt: Why do some children succeed while others fail? The story we usually tell about childhood and success is the one about intelligence: success comes to those who score highest on tests, from preschool admissions to SATs. But in How Children Succeed, Paul Tough argues that the qualities that matter most have more to do with character: skills like perseverance, curiosity, conscientiousness, optimism, and self-control. How Children Succeed introduces us to a new generation of researchers and educators who, for the first time, are using the tools of science to peel back the mysteries of character. Through their stories—and the stories of the children they are trying to help—Tough traces the links between childhood stress and life success. He uncovers the surprising ways in which parents do—and do not—prepare their children for adulthood. And he provides us with new insights into how to improve the lives of children growing up in poverty. Early adversity, scientists have come to understand, not only affects the conditions of children’s lives, it can also alter the physical development of their brains. But innovative thinkers around the country are now using this knowledge to help children overcome the constraints of poverty. With the right support, as Tough’s extraordinary reporting makes clear, children who grow up in the most painful circumstances can go on to achieve amazing things. This provocative and profoundly hopeful book has the potential to change how we raise our children, how we run our schools, and how we construct our social safety net. It will not only inspire and engage readers, it will also change our understanding of childhood itself.
Download or read book Lewis s Child and Adolescent Psychiatry written by Andrés Martin and published by Lippincott Williams & Wilkins. This book was released on 2017-08-04 with total page 2821 pages. Available in PDF, EPUB and Kindle. Book excerpt: For 25 years, Lewis's Child and Adolescent Psychiatry has been the cornerstone of every child and adolescent psychiatrist’s library. Now, three colleagues of Dr. Lewis at the world-renowned Yale Child Study Center, have substantially updated and revised this foundational textbook for its long-awaited fifth edition, the first in ten years. Encyclopedic in scope, it continues to serve as a broad reference, deftly encompassing and integrating scientific principles, research methodologies, and everyday clinical care.
Download or read book Sleep and Development written by Mona El-Sheikh and published by Oxford University Press. This book was released on 2011-02-22 with total page 452 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recent estimates indicate that 13% to 27% of children have sleep problems as reported by their parents. Considering the profound impact that disrupted sleep can have on family functioning and processes, it is critical that researchers and clinicians understand how to identify sources and contexts related to sleep disruptions and their consequences. This book is the first to integrate knowledge and approaches from numerous disciplines to focus on the sleep and development of children across adjustment and cognitive domains.
Download or read book JIMD Reports Volume 44 written by Eva Morava and published by Springer. This book was released on 2019-01-07 with total page 119 pages. Available in PDF, EPUB and Kindle. Book excerpt: JIMD Reports publishes case and short research reports in the area of inherited metabolic disorders. Case reports highlight some unusual or previously unrecorded feature relevant to the disorder, or serve as an important reminder of clinical or biochemical features of a Mendelian disorder.
Download or read book Textbook of Interdisciplinary Pediatric Palliative Care written by Joanne Wolfe and published by Elsevier Health Sciences. This book was released on 2011-01-26 with total page 514 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Textbook of Interdisciplinary Pediatric Palliative Care, by Drs. Joanne Wolfe, Pamela Hinds, and Barbara Sourkes, aims to inform interdisciplinary teams about palliative care of children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth. This comprehensive product takes a first-of-its-kind team approach to the unique needs of critically ill children. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families. If you deal with the complex care of critically ill children, this reference provides a uniquely integrated perspective on complete and effective care. Respect interdisciplinary perspectives, and provide the most comprehensive care. Use an integrated approach to address the physical, psychological, social, and spiritual needs of children and their families. Understand and heed your strengths and vulnerabilities in order to provide the best care for your patients. Recognize the necessity of linking hospital-based palliative care with community resources. Implement consistent terminology for use by the entire palliative care team. Access the full text online with regular updates and supplemental text and image resources.
Download or read book Know Your Blood Know Your Health written by Kristin Grayce McGary and published by Simon and Schuster. This book was released on 2020-04-07 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: A guide to accurate, individualized blood test analysis for improving personal health and avoiding disease • Explains the differences between conventional lab reference ranges for blood tests and functional analysis and why the difference is important to your health • Reveals what healthy blood should look like and the critical markers that signal the very beginnings of a health problem, including thyroid dysfunction and inflammation • Provides recommendations for bringing blood markers back to an optimal healthy range through diet and supplementation Your blood holds the clues you need to maintain vibrant health. Yet a standard blood lab panel--the most widely used diagnostic tool in Western medicine--may not reveal subclinical imbalances or the earliest beginnings of disease. Your lab work results may come back “normal,” even though you have lingering symptoms of allergies, pain, headaches, fatigue, inflammation, depression, food cravings, PMS, or gas and bloating. This is because the reference ranges, to which you are being compared, are gathered from sources such as textbooks, averages based on outdated guess-work, or a small number of people who aren’t even well. You could be a tenth of a point away from a disease pattern, but diagnostic protocol won’t sound the alarm until you are “lab high” on a particular test. In Know Your Blood, Know Your Health, Kristin Grayce McGary explains the benefits of a Functional Blood Chemistry Analysis (FBCA), which looks at far more markers than standard blood tests and interprets your results against healthy ranges. Using real-life stories and examples, the author explains the basics of healthy blood and how a functional blood test provides a baseline for personal health and a powerful tool for disease prevention. You will learn what is meant by a standard Complete Blood Count (CBC), find clues to strengthen your immune system, and discover which markers indicate inflammation. McGary details what different reference ranges mean and highlights the importance of a full thyroid panel for women. She reveals how health issues such as insulin resistance, high cholesterol, and anemia have specific patterns in blood chemistry. She also provides recommendations for bringing markers back to an optimal healthy range through diet and supplementation and offers a road map to using your unique blood chemistry to design a customized healthcare plan to optimize your health.
Download or read book Pediatric Palliative Care written by Stefan J. Friedrichsdorf and published by MDPI. This book was released on 2019-02-08 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children
Download or read book Cystic Fibrosis written by Stephanie Duggins Davis and published by Springer Nature. This book was released on 2020-05-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a comprehensive overview of the multisystem disease, cystic fibrosis, for both pediatric and adult patients. Written by experts in the field, the text outlines the progressive nature of CF as well as the impact of this autosomal recessive disease on the respiratory, gastrointestinal, endocrine, rheumatologic, and renal systems, as well as the patient’s mental health. The book begins with a chapter describing the history of cystic fibrosis and how the face of this life-shortening disease has changed over the past several decades. The following chapters elucidate the pathophysiology of how cystic fibrosis impacts each organ system. Current management and therapeutics are detailed with step-by-step guidelines for clinicians. This book is unique in that it highlights the entire person, not just the respiratory system, with detailed inclusion of the patient perspectives throughout, informing practice standards and considerations. This is an ideal guide for pediatric and adult physicians who care for patients with cystic fibrosis, as well as respiratory therapists, physical therapists, nurses, nutritionists, and pharmacists who care for these patients.
Download or read book Neurocognitive Development Disorders and Disabilities written by and published by Elsevier. This book was released on 2020-09-25 with total page 428 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is one volume of a two-volume work on neurocognitive development, focusing separately on normative and non-normative development. The disorders and disabilities volume focuses on disorders of intellectual abilities, language, learning memory as well as psychiatric developmental disorders. The developmental aspects of neurological diseases in children is also covered. Chapters discuss when and how these disorders develop, the genetics and neurophysiology of their operation, and their evaluation and assessment in clinical practice. Assessment, treatment, and long-term outcome are provided as well as advances in methods and tools for assessment. This book will serve as a comprehensive reference to researchers in cognitive development in neuroscience, psychology, and medicine, as well as to clinicians and allied health professionals focused on developmental disabilities (child neurologists, pediatric neuropsychologists, child psychiatrists, speech and language therapists, and occupational therapists.) Summarizes research on neurocognitive developmental disorders and disabilities Includes disorders of intellectual abilities, language, learning, memory, and more Separately covers developmental aspects of neurological diseases in children Features advances in methods and tools of assessment Reviews patient care, rehabilitation, and long-term outcomes Provides interdisciplinary information of use to both researchers and clinicians
Download or read book The New Pediatrics written by Dorothy Pawluch and published by Routledge. This book was released on 2017-07-05 with total page 188 pages. Available in PDF, EPUB and Kindle. Book excerpt: When antibiotics became readily available in the 1950s, the danger of life-threatening infectious childhood diseases virtually disappeared. In that era, pediatricians broadened the core professional task of their specialty--the prevention and treatment of such diseases--to incorporate the behavioral and psychosocial problems of children and adolescents. Pediatricians themselves began to refer to this changing emphasis as the "new pediatrics," and to see the trend as a natural progression of their specialty into new areas of care. At the same time there arose widespread disaffection among practicing general pediatricians, defection to other areas of practice, and a decline in the popularity of pediatrics as a specialty choice.In analyzing the emergence of the new pediatrics as a case study within medical sociology, Pawluch shows how professional concerns and interests infl uence debate around social problems. As sociologists began to take greater interest in the problems of childhood, and as children's lives became increasingly medicalized--as some have argued--it is at least in part because of pediatricians' willingness to endorse medical defi nitions for certain social problems and to provide treatment for them.Pawluch's underlying concern is that medical professionals have begun to make claims for authority in the definition of what constitutes the social problems of childhood. Among the topics she examines are the "dissatisfied pediatrician syndrome," the potential for a crisis in oversupply of pediatricians and competing providers of services, the push for expansion into new areas of care, and possible future developments in this specialty.
Download or read book Pediatric Nonadherence written by Victor Fornari and published by Springer. This book was released on 2024-07-14 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nonadherence to pediatric recommendations is a pervasive challenge to the growth, development, and wellbeing of children. Nearly half of all youth and their parents suffer the consequences of misunderstanding, forgetting, ignoring or refusing professional medical advice regarding children. Addressing this widespread dilemma, this unique and comprehensive title explores a variety of different pediatric problems that impact children, adolescents and their families. Clinical case vignettes are provided to highlight particular considerations, and a description of the most up-to-date strategies to solve the dilemma of nonadherence to pediatric care is provided. Indeed, technology is emphasized as an important and innovative means of tracking, interfacing and gathering individual data and facilitating improved pediatric adherence. No one intervention strategy can be applied to solve nonadherence of pediatric patients. Research studies have concluded that successful efforts to enhance adherence rely on a number of important elements. First and foremost is nurturing a trusting relationship between the patient, the family and the clinician, which strengthens the therapeutic alliance. Following that is making sure that the patient and family fully understand the nature of the illness and the recommendations. Effective and clear communication is critical between the health professionals, the patient and the family. When the health professional understands who the patient and the family are on a deeper level, then adherence may be improved. It is imperative that the clinicians take into account the individual patient and families’ cultural, social and community context, as well as their beliefs and support systems. An atmosphere of shared collaboration and mutual respect will improve open communication and the promotion of adherence and positive outcomes. An important thread throughout each chapter is the impact of health care disparities, diversity and equity. The contributors to Pediatric Nonadherence represent a wide range of nationally and internationally recognized experts in their area of pediatric sub-specialization and practice. A major contribution to the clinical literature, this timely title will be of great interest to pediatricians, family practitioners, medical students, residents, fellows, physician assistants, and nurse practitioners.
Download or read book Helping Children Succeed written by Paul Tough and published by Random House. This book was released on 2016-05-26 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: In his international bestseller How Children Succeed, Paul Tough introduced us to research showing that personal qualities like perseverance, self-control and conscientiousness play a critical role in children’s success. Now, in Helping Children Succeed, he outlines the practical steps that adults – from parents and teachers to policymakers and philanthropists – can take to improve the chances of every child, however adverse their circumstances. And he mines the latest research in psychology and neuroscience to show how creating the right environments, both at home and at school, can instil personal qualities vital for future success.
Download or read book Transforming the Workforce for Children Birth Through Age 8 written by National Research Council and published by National Academies Press. This book was released on 2015-07-23 with total page 587 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children are already learning at birth, and they develop and learn at a rapid pace in their early years. This provides a critical foundation for lifelong progress, and the adults who provide for the care and the education of young children bear a great responsibility for their health, development, and learning. Despite the fact that they share the same objective - to nurture young children and secure their future success - the various practitioners who contribute to the care and the education of children from birth through age 8 are not acknowledged as a workforce unified by the common knowledge and competencies needed to do their jobs well. Transforming the Workforce for Children Birth Through Age 8 explores the science of child development, particularly looking at implications for the professionals who work with children. This report examines the current capacities and practices of the workforce, the settings in which they work, the policies and infrastructure that set qualifications and provide professional learning, and the government agencies and other funders who support and oversee these systems. This book then makes recommendations to improve the quality of professional practice and the practice environment for care and education professionals. These detailed recommendations create a blueprint for action that builds on a unifying foundation of child development and early learning, shared knowledge and competencies for care and education professionals, and principles for effective professional learning. Young children thrive and learn best when they have secure, positive relationships with adults who are knowledgeable about how to support their development and learning and are responsive to their individual progress. Transforming the Workforce for Children Birth Through Age 8 offers guidance on system changes to improve the quality of professional practice, specific actions to improve professional learning systems and workforce development, and research to continue to build the knowledge base in ways that will directly advance and inform future actions. The recommendations of this book provide an opportunity to improve the quality of the care and the education that children receive, and ultimately improve outcomes for children.
Download or read book Medical Child Abuse written by Thomas A. Roesler and published by . This book was released on 2009 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Thomas A. Roesler, MD, FAAP and Carole Jenny, MD, MBA, FAAP make the case that the term Munchausen syndrome by proxy should be retired permanently and replaced with a commonsense appreciation that children can be abused by their parents in the medical environment. Physicians who find themselves providing unnecessary and harmful medical care can see the abuse for what it is, another way parents can harm children. the book offers the first detailed and comprehensive description of treatment for this form of child maltreatment.
