Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Download or read book Patient Safety and Quality written by Ronda Hughes and published by Department of Health and Human Services. This book was released on 2008 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
Download or read book Family Caregiving in Mental Illness written by Harriet P. Lefley and published by SAGE Publications, Incorporated. This book was released on 1996-01-19 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the trend of deinstitutionalization, family members are finding themselves increasingly in the position of primary caregivers to mentally ill adults - a role for which they are often untrained and unprepared. This volume explores the experiences of these caregivers. The author: discusses the characteristics and conceptual models related to mental illness; surveys the experience of mental illness in the context of the family life cycle and developmental stages of the illness; appraises the burdens on the family including social stigma, refusal of treatment, stress and the relationship between the mentally ill and caregivers within the family; and reviews family responses including coping strategies and professional and
Download or read book Caregiver Family Therapy written by Sarah Honn Qualls and published by American Psychological Association (APA). This book was released on 2013 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for an older family member with physical or cognitive impairments is a difficult, strenuous process. Caregivers often struggle to balance their own needs with those of the care recipient. Their relationships with family, friends, coworkers, and even the care recipient can suffer as well. As a result, family members often seek professional help to guide them through the caregiving process. This book presents Caregiver Family Therapy (CFT), a systems approach to treating families that care for an aging adult. CFT consists of three core stages: Identifying the problem Structuring caregiver roles Ensuring caregiver self-care Transition stages bridge one core stage to the next, helping caregivers structure care for the older adult, examine the impact of caregiving role structures, and consider broader effects of caregiving. As new challenges arise, the stages are repeated and the CFT process begins anew. Full of rich clinical examples, this book will help therapists and other service providers meet the complex, diverse needs of caregiving families.
Download or read book Bridging the Family Care Gap written by Joseph E. Gaugler and published by Academic Press. This book was released on 2021-01-26 with total page 496 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bridging the Family Care Gap explores expected future shortages of family caregivers of older persons and identifies potential solutions. The book examines the sustainability and availability of care management models and whether they can be effectively scaled up to meet community needs. It identifies newly emerging policy initiatives at local, state, and federal levels. The book addresses the state of family caregiving science, dissemination and implementation of promising programs and supports, technological innovations, and other strategies to offset the family care gap. This edited volume also explores lay healthcare workers as guides, interpreters, and advocates in healthcare systems that provide continuity of contact for family caregivers. Details threats to family caregiving-sociodemographic, chronic disease, and socioeconomic challenges Presents solutions to the caregiving gap in a systematic, synthesized manner Addresses the intersection of family caregiving and technology Discusses chronic disease management to offset and reduce the need for family caregiving Describes models of caregiver support in work settings Reimagines the delivery of long-term services and supports with novel initiatives
Download or read book The Family Caregiver s Guide written by Harriet Hodgson and published by BQB Publishing. This book was released on 2015-09-07 with total page 211 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for a loved one at home. What’s really involved? And what does it mean for your family and future? Tens of millions of Americans have had these questions and more as they prepare for this unsettling yet necessary task. The Family Caregiver’s Guide fills in the gaps, connecting the dots between research and real life. Drawing on the author’s extensive caregiving experience, this book provides strategies to care for your loved one, inside and out, as well as for yourself—including how to use your natural skills in your new role, and which skills you may need to add. You’ll discover how to set up your home for caregiving, including a safety checklist, equipment suggestions, and words you should know. And for those days that are more than a handful, you’ll find positive affirmations, a section on facing and accepting illness, and smart steps at the end of each chapter, in case you need guidance in a hurry. Caregiving has both rewards and challenges. But through it all, you’ll discover what’s most important—that caregiving is love in action.
Download or read book Already Toast written by Kate Washington and published by Beacon Press. This book was released on 2021-03-16 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.
Download or read book Activities for the Family Caregiver written by Scott Silknitter and published by R.O.S. Therapy Systems. This book was released on 2016-03-16 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caregiving is hard. For most families, it is an unexpected change to your life that you make without question because you are caring for a loved one. Let us help you make things a little easier with common sense and proven ideas. A unique blend of decades of long term care experience and quality of life experience and two decades of caring for a loved one at home led to the Activities for the Family Caregiver: Caregiving 101 book. The book offers information and insight to enhance quality of life for family caregivers and their loved ones. Whether it is heart disease, cancer, stroke, COPD, ALS, Parkinson's, dementia, Alzheimer's or any issue where you are forced to care for someone, we can help. Learn new communication and engagement strategies to improve time spent with your loved one. Gain new insight as you learn the "how to's" and "why" techniques of activities of daily living and leisure. Discover how to turn daily activities and routines into opportunities to start some joy. Written by nationally-recognized leaders, Activities for the Family Caregiver: Lewy Body Dementia: How to Engage / How to Live provides much-needed information to address the unique social needs of those with LBD and those who care for them. TOPICS COVERED IN THIS BOOK Lewy Body Dementia Overview Family, Friends and the Benefits of Activities Know Your Loved One-Information Gathering and Assessment Communicating and Motivating for Success Customary Routines and Preferences Planning and Executing Activities Leisure Activity Categories - Types, Topics, and Tips Activities of Daily Living - Tips and Suggestions Home Preparation Personal History Form
Download or read book Dying at Home written by Andrea Sankar and published by JHU Press. This book was released on 2024-02-20 with total page 485 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This will be the third edition of this title, heavily updated from the 1999 second edition"--
Download or read book The Caregiving Trap written by Pamela D. Wilson and published by . This book was released on 2015-10-06 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Caregiving Trap" combines the authentic life and professional experience of Pamela D. Wilson, who provides recommendations for overwhelmed and frustrated caregivers who themselves may one day need care. "The Caregiving Trap" includes stories about Pamela's actual personal and professional experience along with end of chapter exercises to support caregivers. Common caregiving issues include: A sense of duty and obligation to provide care that damages family relationships Emotional and financial challenges resulting in denial of care needs Ignorance of predictive events that result in situations of crises or harm Delayed decision making and lack of planning resulting in limited choices Minimum standards of care supporting the need for advocacy
Download or read book The Invisible Patient the Emotional Financial and Physical Toll on Family Caregivers written by Annalee Kruger and published by . This book was released on 2021-08-27 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: How can caregivers fulfill their role as a caregiver without losing themselves in the process? Fulfilling the role of family caregiver is hard work, even if chosen willingly as an act of love to another. While the emotional, physical, and spiritual toll of caregiving is well documented, the high level of self-love and self-care required within the caregiver to successfully put the needs of others first without self-destructing is not. Caregiving can be a rewarding experience for all involved, but the stress of being a caregiver can lead to burnout and exhaustion and, in some cases, financial peril IF an Aging Plan is not in place. Consequently, the stress involved in caregiving causes caregivers to put themselves and their well-being in the background and focus on their needs last. Contributing to the level of stress is the fact that many caregivers are financially contributing to their aging loved ones' needs while also caring for that loved one. All this ongoing self-sacrifice causes a phenomenon known as compassion fatigue, leading caregivers to become the "invisible patient." In The Invisible Patient, senior care advisor and caregiver advocate Annalee Kruger teaches caretakers how to appreciate the blessings of being a caregiver while also looking after themselves. It is not a luxury for caregivers to practice strong self-care -- it is a necessity. Caregiving can be a positive experience IF families better understand aging, understand the disease their loved one has, learn how to improve family communication, and have an Aging Plan. The Invisible Patient provides inspiration, encouragement, and step-by-step guidance to ease the caregiving journey. Kruger leaves no stone unturned, providing personal anecdotes and scenarios about the caregiving process, and includes numerous references and resources in this guide to caring for the caregiver.
Download or read book Family Caregiving Across the Lifespan written by Eva Kahana and published by SAGE Publications. This book was released on 1994-03-16 with total page 447 pages. Available in PDF, EPUB and Kindle. Book excerpt: Published in cooperation with the Center for Practice Innovations, Mandel School of Applied Social Sciences, Case Western Reserve University Increased life expectancy, the deinstitutionalization of persons with mental illness, the rise of home health care, and advances in medical technology have resulted in greater numbers of dependent people requiring care by family members. The frail elderly, the chronically mentally ill, and the physically disabled are examples of such groups who now receive their daily care in the community. How do families accept the burden of this care? What are the physical and emotional demands of such caregiving? Are the families prepared to assume this role? Family Caregiving Across the Lifespan considers the broad spectrum of chronic illnesses that necessitate family caregiving throughout the lifespan and expands the caregiving paradigm by including in its focus both members of the caregiving dyad and significant non-family caregivers. It also explores the social context in which care is provided--an entire section of the volume is devoted to discussions of the interface between informal and formal caregivers and society at large. Among the other subjects this volume addresses are the negative consequences of family caregiving, the value of providing support to caregivers, and caregivers of persons living with AIDS. Family Caregiving Across the Lifespan is important reading for those in social work, nursing, family medicine, and clinical psychology. "Family Caregiving Across the Lifespan represents a significant milestone in the continuing maturation of this vital area of long-term care. The title is an understatement of the authors′ accomplishments. . . .Rather than offering narrow boxes or labels, the book invites the reader to join in a broadened perspective on caregiving so that it can more fully reflect the richness of the lives of all involved. . . .For those who encounter Family Caregiving Across the Lifespan as part of their continuing study of caregiving, the book provides the integrating milestone of caregiving literature." --Journal of Case Management "This volume is a useful compendium of articles on family caregiving. The fourteen chapters in this volume address many important topics in family caregiving. One of the book′s major contributions is its clarification that family caregiving to frail or chronically ill people has no age limitation, although there are unique issues at different points in the development of individuals and families. The book has exceptional merit. It expands our understanding of family caregiving, provides important ideas for future research, offers research findings that enhance our understanding of family care, and presents a very useful review of the literature. This book would be a beneficial addition to the library of all researchers in the area of caregiving. They will discover worthwhile conceptualizations and gain new insights that can inform their research. Practitioners should also benefit from this collection. The chapters addressing interaction between forma land informal caregivers should give practitioners a deeper understanding of how to be more effective in dealing with informal caregivers and care recipients." -Ageing & Society "One paper [in this volume] deserves particular notice because it attempts to do what many of the authors feel is most critical in caregiving research but also most difficult, namely, to analyze the effectiveness of caregiving, the effect of provision of care on elder health outcomes. This is an important and original conceptualization of the problem..." -Steven M. Albert, Contemporary Gerontology "This book is both unique and valuable because it embraces Brody′s observation that family caregiving is not limited to a specific segment of the life span. Moreover, the book is not limited to filial caregiving, but entertains an impressive variety of contexts of family caregiving. . . . This book will be a valuable text in graduate-level courses." --Journal of Marriage and the Family
Download or read book The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness written by Louis D. Burgio and published by Oxford University Press. This book was released on 2016-01-07 with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt: The vast majority of care provided to adults and elders with chronic illness is given in the home, most often by family members. The caregiver's role is daunting; caregiving is often referred to as a 'career,' requiring long hours and arduous tasks. Primary caregivers show higher rates of morbidity and mortality, and caregiving is a major source of stress and burden to caregiving families. Presently, very little support is available to caregivers from either State or Federal agencies. However, awareness of this worsening problem is growing among health professionals and policy makers. The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness is written for individuals in the helping professions who are in roles that interface with or serve family caregivers who are supporting an adult or elder with a chronic condition. The volume includes eight disease-specific chapters written by experts from various disciplines. Each discusses the caregiving role and includes a thorough review of the literature on the characteristics of caregivers and care-recipients, including related care needs, issues, and challenges unique to that chronic illness. Chapters also review the extant literature on caregiver interventions. An Evidence Table is included in each of these chapters so that the reader can easily judge the quality of evidence supporting the intervention studies. Finally, each chapter includes two case studies describing common problems encountered by caregivers, along with descriptions of interventions used to address these problems. The final chapter summarizes the state of the science on caregiving roles and caregiver interventions and discusses the most relevant challenges and barriers faced by today's caregivers and caregiver advocates. This book will be valuable to clinicians and those in the helping professions, as well as academics and researchers with an interest in the study of family caregiving and caregiver interventions, and to health administrators, public officials, and policy makers concerned with chronic illness care and management.
Download or read book Family Caregiving in the New Normal written by Joseph E. Gaugler and published by Academic Press. This book was released on 2015-05-08 with total page 404 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future. This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment. A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care. - Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers - Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades - Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives - Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models - Examines how existing efficacious models can more effectively reach and serve individual families
Download or read book Family Support and Family Caregiving across Disabilities written by George H.S. Singer and published by Routledge. This book was released on 2014-06-11 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family members provide the majority of care for individuals with disabilities in the United States. Recognition is growing that family caregiving deserves and may require societal support, and evidence-based practices have been established for reducing stress associated with caregiving. Despite the substantial research literature on family support that has developed, researchers, advocates and professionals have often worked in separate categorical domains such as family support for caregiving for the frail elderly, for individuals with mental illness, or for people with development disabilities. Family Support and Family Caregiving across Disabilities addresses this significant limitation through cross-categorical and lifespan analyses of family support and family caregiving from the perspectives of theory and conceptual frameworks, empirical research, and frameworks and recommendations for improvements in public policy. The book also examines children with disabilities, children with autism, adults with schizophrenia, and individuals with cancer across the life cycle. This book was published as a two-part special issue in the Journal of Family Social Work.
Download or read book Family Caregiving and the Older American Act written by United States. Congress. Senate. Special Committee on Aging and published by . This book was released on 2001 with total page 118 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Family Caregiving written by Brett H. Lewis and published by iUniverse. This book was released on 2012-09 with total page 174 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family Caregiving explores one of the most precious and fulfilling gifts of love that can be given to a family member or a friend and also one of the most difficult tasks to undertake. The difficulty increases in magnitude because many family caregivers have no formal medical training other than basic first aid. In most cases, all of their medical knowledge has come from their own life experiences with personal illnesses, accidents, and medications. In Family Caregiving, author Brett Lewis shares his insights and the bounty of information that he learned acting as a family caregiver for both his father and his close friend. He explains that even though caregiving is stressful, being prepared and knowledgeable can reduce stress levels and better position a family member for caregiving success. A caregiver should have a thorough understanding of the patient's personal and family medical history, current symptoms, and medical conditions. It is critical to learn how to interact effectively with medical personnel; to become familiar with hospital/rehabilitation center processes and protocols; and to learn about basic medical terminology, equipment, and procedures. By sharing candid, real-world experiences including his mistakes Lewis provides a step-by-step guide that can enable the family caregiver to better navigate the journey of caregiving.
