Download or read book Critically Impaired Infants and End of Life Decision Making written by Neera Bhatia and published by Routledge. This book was released on 2015-06-05 with total page 279 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decisions to withdraw or withhold life-sustaining treatment are contentious, and offer difficult moral dilemmas to both medical practitioners and the judiciary. This issue is exacerbated when the patient is unable to exercise autonomy and is entirely dependent on the will of others. This book focuses on the legal and ethical complexities surrounding end of life decisions for critically impaired and extremely premature infants. Neera Bhatia explores decisions to withdraw or withhold life-sustaining treatment from critically impaired infants and addresses the controversial question, which lives are too expensive to treat? Bringing to bear such key issues as clinical guidance, public awareness, and resource allocation, the book provides a rational approach to end of life decision making, where decisions to withdraw or withhold treatment may trump other competing interests. The book will be of great interest and use to scholars and students of bioethics, medical law, and medical practitioners.
Download or read book Critically Impaired Infants and End of Life Decision Making written by Neera Bhatia and published by Routledge. This book was released on 2015-06-05 with total page 247 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decisions to withdraw or withhold life-sustaining treatment are contentious, and offer difficult moral dilemmas to both medical practitioners and the judiciary. This issue is exacerbated when the patient is unable to exercise autonomy and is entirely dependent on the will of others. This book focuses on the legal and ethical complexities surrounding end of life decisions for critically impaired and extremely premature infants. Neera Bhatia explores decisions to withdraw or withhold life-sustaining treatment from critically impaired infants and addresses the controversial question, which lives are too expensive to treat? Bringing to bear such key issues as clinical guidance, public awareness, and resource allocation, the book provides a rational approach to end of life decision making, where decisions to withdraw or withhold treatment may trump other competing interests. The book will be of great interest and use to scholars and students of bioethics, medical law, and medical practitioners.
Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.
Download or read book Preterm Birth written by Institute of Medicine and published by National Academies Press. This book was released on 2007-05-23 with total page 791 pages. Available in PDF, EPUB and Kindle. Book excerpt: The increasing prevalence of preterm birth in the United States is a complex public health problem that requires multifaceted solutions. Preterm birth is a cluster of problems with a set of overlapping factors of influence. Its causes may include individual-level behavioral and psychosocial factors, sociodemographic and neighborhood characteristics, environmental exposure, medical conditions, infertility treatments, and biological factors. Many of these factors co-occur, particularly in those who are socioeconomically disadvantaged or who are members of racial and ethnic minority groups. While advances in perinatal and neonatal care have improved survival for preterm infants, those infants who do survive have a greater risk than infants born at term for developmental disabilities, health problems, and poor growth. The birth of a preterm infant can also bring considerable emotional and economic costs to families and have implications for public-sector services, such as health insurance, educational, and other social support systems. Preterm Birth assesses the problem with respect to both its causes and outcomes. This book addresses the need for research involving clinical, basic, behavioral, and social science disciplines. By defining and addressing the health and economic consequences of premature birth, this book will be of particular interest to health care professionals, public health officials, policy makers, professional associations and clinical, basic, behavioral, and social science researchers.
Download or read book Critically Ill Children and the Law written by James Cameron and published by Taylor & Francis. This book was released on 2023-12-12 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: A series of recent high-profile court cases has demonstrated the inadequacy of current laws in addressing issues relating to medical treatment decisions involving seriously ill children. The challenges of determining that life-sustaining medical treatment is not in a young child’s best interests have resulted in criticism of the best interests principle. This book explores the theoretical foundations of the best interests principle, and alternatives offered in the academic literature, to allow readers to understand why the principle remains contentious despite its prevalence. It provides theoretical background, exploration of what occurs in practice, and proposes a novel approach to address these challenges. Frameworks for decision-making identified in the academic literature are used to examine the application of the best interests principle in practice in England and Wales, Australia, and New Zealand through a review of the case law and qualitative research with paediatric doctors. The exploration of current practice allows readers to understand the challenges of applying the best interests principle, but also the need to retain a focus on the child. Readers are introduced to a human-rights based approach, which ensures that the focus remains on upholding the child’s best interests but also provides a more comprehensive explanation of the situation. Progressing the debate around end-of-life decision-making and children, the book will be a valuable resource for academics, researchers and policy-makers. It will also provide practical guidance to both legal and medical practitioners in managing disputes about the provision of life-sustaining treatment.
Download or read book Death Or Disability written by Dominic Wilkinson and published by Oxford University Press. This book was released on 2013-01-24 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dominic Wilkinson combines philosophy, medicine, and science to explore the profound and contentious ethical issues facing those who work with critically ill children and infants. He addresses questions about the accuracy of predictions for future quality of life; about when to allow children to die; and about how much say parents should have.
Download or read book Deficiencies and Missed Opportunities to Formulate Clinical Guidelines in Australia for Withholding Or Withdrawing Life Sustaining Treatment in Severely Disabled and Impaired Infants written by Neera Bhatia and published by . This book was released on 2016 with total page 12 pages. Available in PDF, EPUB and Kindle. Book excerpt: This paper examines the few, but important legal and coronial cases concerning withdrawing or withholding life-sustaining treatment from severely disabled or critically impaired infants in Australia. Although sparse in number, the judgements should influence common clinical practices based on assessment of best interests but these have not yet been adopted. In particular, although courts have discounted assessment of quality of life as a legitimate component of determination of best interests this remains a prominent component of clinical guidelines. In addition, this paper highlights the lack of uniform clinical guidelines available to medical professionals and parents in Australia when making end-of-life decisions for severely ill infants. Thus, it is argued here that there is a need for an overarching prescriptive uniform framework or set of guidelines in end-of-life decision-making for impaired infants. This would encourage greater transparency, consistency, and some degree of objectivity in an area that often appears subjective.
Download or read book Neonatal Care for Nurses and Midwives written by Victoria Kain and published by Elsevier Health Sciences. This book was released on 2022-11-08 with total page 546 pages. Available in PDF, EPUB and Kindle. Book excerpt: Increased focus on international data, evidence-based research and exemplars for the principles of best practice New chapters Care of the normal newborn Care of the neonate with congenital abnormality Extensively revised content on neonatal nutrition and fluid management
Download or read book Critically Ill Children and the Law written by James Cameron and published by . This book was released on 2023 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A series of recent high-profile court cases has demonstrated the inadequacy of current laws in addressing issues relating to medical treatment decisions involving seriously ill children. The challenges of determining that life-sustaining medical treatment is not in a young child's best interests have resulted in criticism of the best interests principle. This book explores the theoretical foundations of the best interests principle, and alternatives offered in the academic literature, to allow readers to understand why the principle remains contentious despite its prevalence. It provides theoretical background, exploration of what occurs in practice, and proposes a novel approach to address these challenges. Frameworks for decision-making identified in the academic literature are used to examine the application of the best interests principle in practice in England and Wales, Australia, and New Zealand through a review of the case law and qualitative research with paediatric doctors. The exploration of current practice allows readers to understand the challenges of applying the best interests principle, but also the need to retain a focus on the child. Readers are introduced to a human-rights based approach, which ensures that the focus remains on upholding the child's best interests but also provides a more comprehensive explanation of the situation. Progressing the debate around end-of-life decision-making and children, the book will be a valuable resource for academics, researchers and policy-makers. It will also provide practical guidance to both legal and medical practitioners in managing disputes about the provision of life-sustaining treatment"--
Download or read book Medical Futility in Paediatrics written by Kartina A. Choong and published by Trivent Publishing. This book was released on 2019-12-31 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book addresses the issues and challenges raised by the high-profile cases of Charlie Gard and Alfie Evans. The individual chapters, which complement one other, were written by scholars with expertise in Law, Medicine, Medical Ethics, Theology, Health Policy and Management, English Literature, Nursing and History, from the UK, Australia, Canada, the Czech Republic, France, Germany, India, Spain, Turkey and the USA. The following are among the key questions explored in the book. Is the courtroom an appropriate forum for resolving conflicts relating to medical futility in paediatrics? If so, should parental rights be protected by confining judicial powers only to cases where there is a risk of significant harm to the infant; or should the "best interests" test continue to be recognised as the "gold standard" for paediatric cases? If not, should mediation be used instead, but how well would this alternative method of dispute resolution work for medical futility conflicts? Further, should social media be deployed to garner support, and should outsiders who are not fully acquainted with the medical facts refrain from intervening? And, how are comparable situations likely to be managed in different countries? What lessons can be learned from them as well as from religious perspectives?
Download or read book How Matters written by Sanne Prins and published by . This book was released on 2024 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "End-of-life decisions, more specifically decisions about whether to continue or discontinue the patient’s life-sustaining treatment, are among the most difficult decisions to make. Decision-making is emotionally overwhelming and complex for all involved in the communication- and decision-making process, especially when it concerns life and death decisions for another human being. These situations confront healthcare providers and family members of critically ill patients with the limitations of medical possibilities and human knowledge. In these situations, there is no way out but rather only a way through. As such, how matters. How physicians and family members of critically ill patients together make end-of-life decisions, how they communicate about these decisions, and how physicians learn to conduct such complex end-of-life conversations, can significantly impact the experiences and outcomes for patients, family members, and healthcare providers. In this thesis, we therefore obtained in-depth insights into end-of-life communication- and decision-making practices in intensive care units. We aimed to increase knowledge and awareness of how physicians actually communicate with the family members of critically ill neonates, children, and adults during real-life end-of-life conversations. Additionally, we explored how physicians perceive their own communication and how they (wish to) learn to communicate with family members of critically ill patients in end-of-life conversations. Based on our overall conclusions, we propose three ‘shifts’ in communication. We also propose corresponding learning methods, to not only move toward effective end-of-life communication with families but also to move toward a valuing communication culture in intensive care medicine."--
Download or read book Neonatal Intensive Care Nursing written by Glenys Boxwell (Connolly) and published by Routledge. This book was released on 2019-11-01 with total page 691 pages. Available in PDF, EPUB and Kindle. Book excerpt: Thoroughly revised and updated, this new edition of Neonatal Intensive Care Nursing is a comprehensive, evidence-based text for nurses and allied health professionals caring for sick newborn infants. This user-friendly text focuses on the common problems and related care occurring within the neonatal specialty. All previous chapters have been thoroughly updated and new content includes chapters on, for example, organisation of neonatal care, assessment of the neonate, the premature and low birth weight neonate as well as palliative care. In addition, the book now includes a broad and in-depth web-based companion comprising online resources, case studies with answer guides and learning activities. This accessible and interactive approach enables nurses to recognise, rationalise and understand clinical problems using an evidence-based approach. Divided into four parts, the book provides an overview of neonatal care, and a detailed look at the physical and emotional wellbeing of neonate and family, a range of clinical aspects of neonatal care, and key practices and procedures. Neonatal Intensive Care Nursing will be essential reading for both new and experienced nurses, allied health professionals and students learning about neonatal care including those undertaking qualifications in the neonatal specialism and pre-registration students taking relevant modules or placements.
Download or read book Medical Law and Ethics written by Jonathan Herring and published by Oxford University Press, USA. This book was released on 2020-04-15 with total page 703 pages. Available in PDF, EPUB and Kindle. Book excerpt: Medical Law and Ethics covers the core legal principles, key cases, and statutes that govern medical law alongside the key ethical debates and dilemmas that exist in the field. Carefully constructed features highlight these debates, drawing out the European angles, religious beliefs, and feminist perspectives which influence legal regulations. Other features such as 'a shock to the system', 'public opinion' and 'reality check' introduce further socio-legal discussion and contribute to the lively and engaging manner in which the subject is approached. Online resources This book is accompanied by the following online resources: - Complete bibliography and list of further reading - Links to the key cases mentioned in the book - A video from the author which introduces the book and sets the scene for your studies - Links to key sites with information on medical law and ethics - Answer guidance to one question per chapter
Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Download or read book Pediatric Psycho oncology written by Lori Wiener and published by Oxford University Press, USA. This book was released on 2015 with total page 433 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric Psycho-Oncology is a comprehensive handbook that provides best practice models for the management of psychological, cognitive, and social outcomes of adolescents living with cancer and their families. Chapters cover a wide range of topics including psychological aspects of particular pediatric cancers and their treatments, how to talk to a child and family at critical times during the disease course, genetic testing, individual, family, educational, psychological and psychiatric interventions, and caring for international patients . Each chapter highlights the necessity of embracing an interdisciplinary approach to ensure that each child has the best options for living with cancer and, when cure is not possible, that death occurs with as much dignity as possible for the child and family. An extensive resource section is appended to provide information on written, online, video, community, national and international services and programs. This book features contributions from experts designed to help clinicians review, anticipate and respond to emotional issues that often arise in the context of treating pediatric cancer patients. Numerous cross-references and succinct tables and figures make this concise reference easy to use. Pediatric Psycho-Oncology is an ideal resource for helping pediatric oncologists and nurses recognize when it may be best to refer patients to their mental health colleagues and for those who are establishing pediatric oncology services or adding psychosocial components to existing clinics.
Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
Download or read book Code of Ethics for Nurses with Interpretive Statements written by American Nurses Association and published by Nursesbooks.org. This book was released on 2001 with total page 42 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pamphlet is a succinct statement of the ethical obligations and duties of individuals who enter the nursing profession, the profession's nonnegotiable ethical standard, and an expression of nursing's own understanding of its commitment to society. Provides a framework for nurses to use in ethical analysis and decision-making.
