Download or read book Comparing Genomic Data Sharing Policies from the National Institutes of Health Global Alliance and Reg4All written by Katherine L. Kwong and published by . This book was released on 2014 with total page 41 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genomic data sharing has become increasingly important with "big data" genomics. Successful genomic data sharing requires multiple stakeholders cooperating with one another. Using discourse analysis, I compared three proposed genomic data sharing policies created by the National Institutes of Health, Reg4All and the Global Alliance for Genomics and Health. Data producers, data users, funders, participants, and end users were differently involved in the policy development process leading to policies that prioritize different needs and interests in genomic data sharing. The NIH policy satisfies the interests of data users and funders; Reg4All's policy focuses on participants, end users, and data users, and the Global Alliance policy represents a compromise leaving all stakeholders somewhat satisfied. This analysis highlights how the policy options benefit the different stakeholders and suggests ways to create a system that more evenly addresses the concerns and interests of all stakeholders, allowing for more equitable genomic data sharing.

Download or read book The International Legal Governance of the Human Genome written by Chamundeeswari Kuppuswamy and published by Routledge. This book was released on 2009-06-09 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores international governance of the human genome from a human rights perspective and challenges paradigms of property that are entrenched in relevant international instruments.

Download or read book Transborder Data Flows and Data Privacy Law written by Christopher Kuner and published by OUP Oxford. This book was released on 2013-05-09 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written by a renowned expert on data protection law, this work examines the history, policies, and future of transborder data flow regulation, and is the only text to provide a detailed legal analysis of its global implications.