Download or read book The Multiple Sclerosis Manifesto written by Julie Stachowiak, PhD and published by Demos Medical Publishing. This book was released on 2009-12-22 with total page 357 pages. Available in PDF, EPUB and Kindle. Book excerpt: An empowering guide for increasing your quality of life, navigating challenges, and embracing opportunities Julie Stachowiak, PhD is the About.com Guide to Multiple Sclerosis. As an epidemiologist who is also a person living with MS, Julie has an in-depthunderstanding about the scientific developments around MS and the personal side of living with a chronic illness. In the Multiple Sclerosis Manifesto, Julie shows you how to create your own personal MS manifesto and provides practical tools and reassurance to help you ìget betterî in your life, from optimizing medical care and managing symptoms, to strengthening relationships, dealing with emotions, and embracing activism. Committed to making the hard parts easier and the good parts last longer, Julie show you how to figure out what you need, identify opportunities, understand challenges, and get your needs met. With the Multiple Sclerosis Manifesto, youíll know how to: Create your personal mission statement Protect yourself by learning more about medications you are currently taking or considering to take Determine what you want in a doctor and how to evaluate the doctor you have Celebrate your successesóand why itís essential that you do Make disclosing your MS status to friends, family and others easier Find a support group

Download or read book ChronicBabe 101 written by Jenni Grover and published by Createspace Independent Publishing Platform. This book was released on 2017-09-03 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you struggling to reclaim your identity after getting sick? Frustrated with relationships that have gone sour, or a career that's stalled out? Ready to feel more savvy, sexy, and confident as you navigate your chronic illness journey? It's time to learn how to be a ChronicBabe! This course-in-a-book contains ten lessons in essential areas that women with chronic illness need to address in order to craft a life beyond chronic illness - to become more than professional patients. Through personal stories, expert interviews, encouraging exercises, and hundreds of resources, author Jenni Grover teaches sick chicks how to become total babes! Jenni was 25 when her world was turned upside down by fibromyalgia, anxiety, asthma, and a handful of other chronic conditions. She has used her experience to build an online community for women with chronic illness who want to be more than professional patients-who want to feel empowered despite serious illness. Since 2005, Jenni has taught thousands of women how to take charge of their lives through her website, videos, and speeches around the world. In ChronicBabe 101, she schools you on relationships, career, emotional well-being, sexuality, personal organization, and so much more. Lessons in the book include: - It All Starts with Learning to Practice Acceptance - Learn to Kick Those Bad Habits to the Curb - It's Time to Turn Around Negative Thinking - Establish Healthy Boundaries to Create Confidence - Learn to Love Your Body Again - Build Your "Team" to Maximize Support - Strengthen Personal Relationships to Weave a Safety Net - Adapt Your Education and Career to Boost Success - Become a Talented Communicator - Get Organized: Tips, Tricks, Tools, and Systems Experts interviewed in ChronicBabe 101 include: - Toni Bernhard, author of How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers - Caryn Feldman, Ph.D., clinical psychologist at the Shirley Ryan Ability Lab (formerly Rehabilitation Institute of Chicago) Center for Pain Management - Kerri Morrone Sparling, award-winning chronic illness advocate in the diabetes community and creator of the SixUntilMe blog ...and many more!

Download or read book A Woman s Guide to Living with Heart Disease written by Carolyn Thomas and published by Johns Hopkins University Press. This book was released on 2017-11-28 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Whether you're a freshly diagnosed patient, a woman who's been living with heart disease for years, or a practitioner who cares about women's health, A Woman's Guide to Living with Heart Disease will help you feel less alone and advocate for better health care.

Download or read book Official Gazette of the United States Patent and Trademark Office written by and published by . This book was released on 2007 with total page 844 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Fighting Parkinson s and Winning written by Howard Shifke and published by Createspace Independent Publishing Platform. This book was released on 2017-11-16 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "After reading this book and following Howard's recipe for some time now, I can only say this book is worth each and every word. It is highly valuable and, by the way, I feel much better now and my symptoms have almost disappear so far. I recommend to anyone who is seeking some alternative path to his treatment on Parkinson's." - Amazon Kunde, Amazon Verified Purchaser. "Howard's Recipe For Recovery is a breath of fresh air; If you do the recipe you will be on the road to recovery, the same road the cured walked before us, six of them so far in the past seven years. How full of hope is that?! The first sign that things were turning around for me was that my sense of smell came back after twenty years. Now where before there was despair I'm so thankful to have hope and the means to make it happen...now there are tears of joy! It's a great book...Don't miss it! Hope fulfilled is priceless and it's in your hand. Buy the book!!!!" - Thomas J., Amazon Verified Purchaser. "This book is the fascinating story of his recovery, and the recovery of others over the years afterwards, using his Recipe...Although there are a few individual, poorly substantiated claims of curing Parkinson's, this is the only one I know of that has cured multiple identified individuals of this "incurable" disease. We owe Howard a great deal of gratitude for his generosity in sharing his Recipe with us here and on his extensive website. His Recipe is likely to be the best cure available over the next decade." - prestonpdx, Amazon Verified Purchaser. Howard Shifke fully recovered from Parkinson's Disease. This memoir presents Howard's story of getting Parkinson's and provides a detailed account of how he won the fight against it. The memoir tells the story of what it was like for Howard to live day-to-day with Parkinson's, getting through the daily challenges and misgivings as well as how he looked toward the future with hope. Howard suffered with internal tremors; extremely poor balance; Bradykinesia (walking -- hunched forward, shuffled feet, arms did not swing); rigidity (arms, legs and upper back were tight and extremely painful); constipation; inability to stand up straight, to get out of a chair without using arms, to go up and down stairs without holding railing; difficulty getting a utensil to his mouth when trying to eat; falling asleep in middle of the day; frozen face; inability to write or to type with two hands; extreme fatigue. In the fall of 2009, Howard Shifke was diagnosed with Parkinson's Disease. His mother had Parkinson's for twenty-four years before dying in 2007, just two years prior to Howard diagnosis of Parkinson's. Having watched her physically deteriorate from the disease and mentally deteriorate from the medications was difficult and frightening.Howard did not want to end up the way his mother had ended up with the disease. Fortunately, in 1999, Howard had started studying alternative healing and Traditional Chinese Medicine. In the ten years leading up to his diagnosis, he had learned the body has the ability to heal itself. As a result, Howard decided he would endeavor to recover from Parkinson's, and he developed an alternative treatment methodology called his Parkinson's Recipe for Recovery(R). Nine months later, he won the fight against Parkinson's with his full recovery. In Howard's two neurologist visits subsequent to his full recovery, his neurologist put him through all of the tests used for the original diagnosis. Both times, his neurologist documented in Howard's medical records that there were no signs or symptoms of Parkinson's Disease.Howard has been symptom free fully recovered from Parkinson's since June 12, 2010.

Download or read book Rosie Lee Tompkins written by Lawrence Rinder and published by . This book was released on 2020-02 with total page 206 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book How to Be Sick written by Toni Bernhard and published by Simon and Schuster. This book was released on 2010-05-10 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: This life-affirming, instructive, and thoroughly inspiring book is a must-read for anyone who is - or who might one day be - sick. It can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or life-threatening illness. Authentic and graceful, How to be Sick reminds us of our limitless inner freedom, even under high degrees of suffering and pain. The author - who became ill while a university law professor in the prime of her career - tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice - and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. And whether we ourselves are ill or not, we can learn these vital arts from Bernhard's generous wisdom in How to Be Sick.

Download or read book You Don t Look Sick written by Joy H. Selak and published by Demos Medical Publishing. This book was released on 2013 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.

Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by New Harbinger Publications. This book was released on 2018-03-01 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.

Download or read book What Doesn t Kill You written by Tessa Miller and published by Henry Holt and Company. This book was released on 2021-02-02 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Should be read by anyone with a body. . . . Relentlessly researched and undeniably smart." —The New York Times Named one of BuzzFeed's "Best Books of 2021" What Doesn't Kill You is the riveting account of a young journalist’s awakening to chronic illness, weaving together personal story and reporting to shed light on living with an ailment forever. Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a years-long nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better. Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications. Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Download or read book How to Create and Sustain Groups that Thrive written by Ann Steiner, Ph.D. and published by Routledge. This book was released on 2020-05-25 with total page 271 pages. Available in PDF, EPUB and Kindle. Book excerpt: How to Create and Sustain Groups That Thrive is an accessible manual for group leaders of all kinds, from psychotherapy groups to discussion groups. This thoroughly updated third edition of the author’s popular group psychotherapy guide provides a wealth of tools for starting and maintaining groups, including sample group agreements, a screening and preparation system, and an innovative collaborative goal setting system. The book also discusses the importance of online ‘netiquette’ as well as an overview of diversity and inclusion concepts in group work, offering a range of modifiable leadership and facilitation interventions that can be tailored to meet the needs of specific groups. Specifically designed to help both seasoned group therapists and clinicians who find themselves leading groups, How to Create and Sustain Groups That Thrive is an easy-to-use, fully practical resource for a variety of mental health professionals.

Download or read book Women and Fibromyalgia written by Barbara Keddy and published by iUniverse. This book was released on 2007-07 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Dr. Keddy captures the patient's experience of living and coping with suffering in the poignant interviews with twenty women who have fibromyalgia, herself included." -Dr. Jock Murray, medical humanities and neurology professor, Dalhousie University Medical School Fibromyalgia, a musculoskeletal condition characterized by widespread chronic pain and fatigue, specific tender points, and sleep disturbance, is a major medical and social concern for physicians, employers, workers' compensation boards, and the insurance industry. But what about those who suffer from the condition? Drawing on her own experiences as well as the stories of twenty other women living with the challenges of fibromyalgia, Barbara A. Keddy, RN, PhD, discusses current theories of causes and types of treatments. She also speculates about why this condition is more prominent among women than men. By sharing these stories, Keddy highlights the invisibility of the daily difficulties fibromyalgia sufferers face. With its uniquely personal perspective, Women and Fibromyalgia validates Keddy's experience and offers hope for her and others that they will someday take back control of their bodies.

Download or read book Finding a New Normal written by Suzan Linn Jackson and published by . This book was released on 2019-12-14 with total page 182 pages. Available in PDF, EPUB and Kindle. Book excerpt: This guide provides inspiration, advice on emotional coping, and support on living your best life with chronic illness from someone who's been there. The emphasis in this book is on LIVING your life, not just enduring it.

Download or read book The New Sjogren s Syndrome Handbook written by Sjogren's Syndrome Foundation and published by Oxford University Press, USA. This book was released on 2004-10-18 with total page 283 pages. Available in PDF, EPUB and Kindle. Book excerpt: Afflicting nearly four million Americans, Sjogren's syndrome is an autoimmune disease that commonly causes dryness of the eyes, mouth, and nose, and that can lead to complications including profound fatigue, depression, and lymphoma. While there is no cure for Sjogren's, much can be done to alleviate the suffering of patients. This extensively revised handbook offers everything you need to know to cope with this disease. The New Sjogren's Syndrome Handbook, Third Edition is a comprehensive and authoritative guide, produced by the Sjogren's Syndrome Foundation and its medical advisors and edited by physician Daniel J. Wallace, a leading authority on auto-immune disorders. This expanded edition provides readers with the best medical and practical information on this disorder, bringing together the current thinking about Sjogren's in an easily readable and understandable book. The handbook illuminates the major clinical aspects of the syndrome and is loaded with practical tips and advice to assist those seeking information. Indeed, it offers a wide-ranging look at the many faces of Sjogren's, covering diagnosis, the various organ systems that can be affected, the possible psychological problems, and the many treatment options, as well as an appendix listing the resources available for patients with the disease. It is a valuable aid that patients can use while discussing their illness with their physician and an excellent resource for family members. And because Sjogren's is greatly underdiagnosed, this handbook is a particularly valuable resource for healthcare professionals. The most reliable and informative guide available, The New Sjogren's Syndrome Handbook, Third Edition is the first place for patients to look when they have questions about this little known but serious chronic disease.

Download or read book The Chronic Illness Workbook written by Patricia Fennell and published by Albany Health Management Publishing. This book was released on 2012 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: THE CHRONIC ILLNESS WORKBOOK brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic apsects as well.

Download or read book Life Disrupted written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2011-02-01 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

Download or read book The Pterrible Pteranodon A Powers Beyond Their Steam Story written by Tom M. Franklin and published by Powers Beyond Their Steam. This book was released on 2021-05-31 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: A steam-driven mechanical pteranodon is out of control over Victorian-era London and the Queen is not amused! Ib believes his luck has changed for the better when he gets the chance to be an eccentric professor's assistant. However, when the professor's gearwork pterosaur comes to life and escapes into the skies, Ib wonders what else can go wrong. Then Her Majesty's Royal Guard gives Ib and the professor two days to capture their renegade machine or end up in prison. When the professor is arrested, it is left to Ib to come up with an extraordinary plan to save them all!