Download or read book Challenges and Choices for Patient Carer and Professional at the End of Life written by Catherine Proot and published by Routledge. This book was released on 2021-03-17 with total page 195 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with Uncertainty gives a broad perspective on the complexities and challenges of the practice of end-of-life care, as well as the perceived benefits and limitations of medical intervention. Drawn from research and clinical and pastoral experience, the book examines the feelings associated with the end of life, highlighting the demands that people are faced with and their consequences. It moves into the difficult area of people who feel defeated by their illness and can or want to live no longer, as well as the family, caregivers and professionals who surround them. These perspectives have been built upon around a hundred narratives of lived experience, combined with the wider clinical and practical range of voices. A topical post-script Lessons from Covid-19 captures the choices and challenges on a personal, professional and systemic level which the pandemic acutely revealed with a multiplicity of examples. This will be essential reading for students and professionals in palliative and end-of-life care. Families and friends will also benefit from this book as they try to come to terms with the delicate but universal issues of death and dying.
Download or read book Challenges and Choices for Patient Carer and Professional at the End of Life written by Catherine Proot and published by Routledge. This book was released on 2021-03-18 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with Uncertainty gives a broad perspective on the complexities and challenges of the practice of end-of-life care, as well as the perceived benefits and limitations of medical intervention. Drawn from research and clinical and pastoral experience, the book examines the feelings associated with the end of life, highlighting the demands that people are faced with and their consequences. It moves into the difficult area of people who feel defeated by their illness and can or want to live no longer, as well as the family, caregivers and professionals who surround them. These perspectives have been built upon around a hundred narratives of lived experience, combined with the wider clinical and practical range of voices. A topical post-script Lessons from Covid-19 captures the choices and challenges on a personal, professional and systemic level which the pandemic acutely revealed with a multiplicity of examples. This will be essential reading for students and professionals in palliative and end-of-life care. Families and friends will also benefit from this book as they try to come to terms with the delicate but universal issues of death and dying.
Download or read book Life to be Lived written by Catherine Proot and published by Oxford University Press, USA. This book was released on 2013-10 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: Life to be Lived examines the process of adjustment that patients and their families go through when they face the end of life. Personal research and case-based examples provide a candid look at the challenges from dealing with options from symptom and pain control to adjusting to the psychosocial implications of being ill.
Download or read book Care of the Dying Patient written by David A. Fleming and published by University of Missouri Press. This book was released on 2010-04-15 with total page 172 pages. Available in PDF, EPUB and Kindle. Book excerpt: Originally published as a series of articles in Missouri medicine.
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Download or read book Patient Safety and Quality written by Ronda Hughes and published by Department of Health and Human Services. This book was released on 2008 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
Download or read book Palliative Care written by Diane E. Meier and published by John Wiley & Sons. This book was released on 2010-03-29 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: Palliative Care is the first book to provide a comprehensive understanding of the new field that is transforming the way Americans deal with serious illness. Diane E. Meier, M.D., one of the field's leaders and a recipient of a MacArthur Foundation "genius award" in 2009, opens the volume with a sweeping overview of the field. In her essay, Dr. Meier examines the roots of palliative care, explores the key legal and ethical issues, discusses the development of palliative care, and presents ideas on policies that can improve access to palliative care. Dr. Meier's essay is followed by reprints of twenty-five of the most important articles in the field. They range from classic pieces by some of the field's pioneers, such as Eric Cassel, Balfour Mount, and Elizabeth Kübler-Ross, to influential newer articles on topics such as caregiving and cost savings of palliative care. The reprints cover a wide range of topics including: Why the care of the seriously ill is so important Efforts to cope with advanced illness Legal and ethical issues Pain management Cross-cultural issues Philosophical perspective The demand for palliative care has been nothing short of stunning—largely because of palliative care's positive impact on both the quality and the cost of care provided to seriously ill individuals. By providing a wide-ranging perspective on this growing field, this book will serve as a guide for developing meaningful approaches that will lead to better health care for all Americans.
Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
Download or read book Counseling Clients Near the End of Life written by James L. Werth, Jr., PhD and published by Springer Publishing Company. This book was released on 2012-12-05 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: "I found this book to be a well-written, sensitively presented, and important resource for those engaged in this critical area of work. Thank you, Dr. Werth, for making such a substantial contribution to this field."--Journal of Palliative Care "[This book offers] over 20 contributors, all with impeccable credentials, covering many perspectives that we need to consider more frequently and in greater depth...There is much that awaits you in this book."--Illness, Crisis, and Loss "Counseling Clients Near the End of Life is a marvelous resource for mental health providers who are searching for useful information in areas such as the following: resolving ethical dilemmas; assisting clients in planning for the end of life; counseling caregivers of clients who are near the end of life; and assisting people in dealing with grief. The editor of this work, Dr. James Werth, has done a splendid job of gathering various experts to share their perspectives on end of life care and choices at this time of life--and he has also written an excellent chapter on counseling clients who are dying." Gerald Corey, EdD, ABPP Professor Emeritus of Human Services and Counseling California State University, Fullerton This highly accessible guide to counseling people who are terminally ill and their families fills a critical need in the counseling literature. Written for front-line mental health professionals and counseling graduate students, the text integrates research with practical guidance. It is replete with the experiences of contributing authors who are leaders in counseling terminally ill individuals , real-life case examples, clinical pearls of wisdom, and tables of practice pointers that provide quick access to valuable knowledge. The text offers information that is requisite for all counselors who provide services to persons who are terminally ill and their families. It addresses common issues that influence different types of counseling approaches, such as how the age, ethnicity, or religion of a client affects counselor conceptualizations and actions. The book discusses how to manage symptoms of depression, anxiety, and cognitive impairment near the end of life. It explains how advance directives can be used to assist dying individuals and their loved ones. The counseling needs of family members before and after death are addressed as well as counseling loved ones experiencing complicated grief. The text also examines the particular concerns of counselors regarding self-care and the benefits of working as part of a professional team. Woven throughout are important considerations such as cultural diversity, ethical challenges, laws, and regulations; and advocacy at client and social policy levels. Readers will also benefit from the inclusion of additional references for more in-depth study. Key Features: Integrates research with practical and accessible information Provides clinical ìpearlsî that can be put to use immediately Provides a reader-friendly format that includes real-life case studies and tables with important pointers Describes the counseling experiences of leading practitioners that include examples of successful and unsuccessful interventions Based on a comprehensive framework developed by a Working Group of the American Psychological Association
Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Download or read book Choices in Palliative Care written by Arthur Blank and published by Springer Science & Business Media. This book was released on 2007-07-21 with total page 249 pages. Available in PDF, EPUB and Kindle. Book excerpt: Choices in Palliative Care brings together leading experts to spotlight core issues in the field and identify ways PC can fill gaps in current care systems. This far-sighted volume redefines palliative care as interdisciplinary and integrative, bridging acute and long-term care to respond to clients’ evolving needs. Those teaching health service delivery courses will find this material especially useful.
Download or read book End of Life Care Issues Guidebook written by Caroline Young (MPH.) and published by UniversityOfHealthCare. This book was released on 2005 with total page 282 pages. Available in PDF, EPUB and Kindle. Book excerpt: Understanding the psychological, social, and spiritual needs at the end of life is crucial for today's health care providers. The goal of this guidebook is to provide an overview of end-of-life care, with an emphasis on the team approach to care.
Download or read book Palliative Care A Practical Guide for the Health Professional written by Kathryn Boog and published by Elsevier Health Sciences. This book was released on 2007-10-23 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book encourages health professionals to reconceptualise their practice in the light of the fact that their patients are deteriorating and dying, supporting them in their dichotomous role which involves affirming that person's life whilst acknowledging that that life is ending. Professionals are encouraged to think laterally, to be creative in their use of their core skills, and to use their life skills and experience to change the focus of their interventions. By making these changes, those involved with caring for the dying will be able to address issues related to burnout and feeling de-skilled. The authors share their considerable experience with the reader - what works for both patient and carer/professional when working in this field. By providing workable solutions, they empower those in disempowering situations, such as when working with terminally ill children and adults. The book is truly holistic and client-centred in its approach, upholding the philosophy of palliative care. Aimed at all who interact with children and adults who have a life-limiting condition or who are dying Offers practical examples of approaches to dilemmas and emotional issues commonly face by those working in palliative care Encourages professionals to think laterally, to be creative in their use of core skills, and to use their life skills and experience to change the focus of their interventions Moves the emphasis away from the medical model to the emotional and spiritual influences on quality of life Offers clear, workable guidelines and demonstrates practical solutions, based on proven theory and experience, to problems encountered on a day-to-day basis by patients and those coming into contact with them
Download or read book End of Life Choices written by Fiona Randall and published by Oxford University Press. This book was released on 2010 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: Developments are taking place in palliative care in which 'patient choice' has become a central idea, and patients have an enlarged idea of their best interests. This book creates debate among all those involved in care of the terminally ill, including specialists, policy makers, researchers and ethicists.
Download or read book Challenges to the Global Issue of End of Life Care written by Pierre Mallia and published by Springer Nature. This book was released on 2022-02-10 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book addresses the problems faced by people and hospitals dedicated to providing optimal end-of-life care and asks whether ethicists can function as experts on this subject. Though ethics consultation is a growing practice in medical contexts, difficult questions surrounding the role of ethicists in professional decision-making remain. The chapters in this book examine the nature and plausibility of moral expertise, the relationship between character and expertise, the nature and limits of moral authority, the question of how one might become a moral expert, and the trustworthiness of moral testimony. This volume not only engages with the growing literature in the debate on end-of-life care but also offers new perspectives from both academics and practitioners. Such perspectives include ways on how to get together to optimize end-of-life care. This book is of particular interest to bioethicists, clinicians, ethics committees, students of social epistemology, patient groups, and institutions, especially religious, who may not be sufficiently imparting the social teachings of end-of-life care. It also shows how they are indeed stakeholders for what is today called ‘a good death’. These new essays advance discussions and provide practical information on dying as well as acting as a guide to those interested in actively effecting change.
Download or read book Professional Nursing E Book written by Beth Black and published by Elsevier Health Sciences. This book was released on 2016-04-20 with total page 376 pages. Available in PDF, EPUB and Kindle. Book excerpt: Appropriate for use in early courses in baccalaureate curricula; in RN-to-BSN and RN-to-MSN courses; and as a resource for practicing nurses and graduate students, Professional Nursing: Concepts & Challenges, 8th Edition equips students and new nurses to positively impact their careers and the nursing profession. This leading text details what it means to be a professional nurse — the history, values and standards, and commitment to life-long learning. This edition features new information on QSEN, Electronic Health Record information, the effect of social media in nursing, and updated information on the Affordable Care Act. Valuable learning aids throughout every chapter include: case studies, cultural challenges, evidence-based practice, critical thinking, interviews, professional profiles, historical notes, nursing research, concepts & challenges, and ideas for further exploration. This edition discusses the current state of the nursing profession, standards and scope of practice, transition into professional practice, health care delivery systems, and future challenges for the nursing profession. Evidence-based Practice boxes highlight problems identified in patient care, the nursing researcher’s questions and research, the results of that research, and the resultant recommendations for care. Considering Culture boxes highlight the impact of culture on the way in which nurses fulfill their roles and the way in which patients experience healthcare. Interview boxes explore the issues of culture and faith from the perspectives of leaders in those fields. Thinking Critically Challenges present questions or scenarios for in-depth consideration of relevant issues. Case Study boxes feature scenarios involving relevant issues in patient care. Discusses the implications of social media on nursing, including ethics and boundaries. Historical Notes highlight little-known stories of heroisms in the nursing profession. Key terms are bolded where defined in the text. A Glossary is included at the end of the text. Learning outcomes are presented at the chapter openings. Concepts and Challenges and Ideas for Further Exploration at the end of the chapters help you in review and test prep.
Download or read book Advance Care Planning in End of Life Care written by Keri Thomas and published by Oxford University Press. This book was released on 2018 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: Advance Care Planning (ACP) is an essential part of end of life care in the UK and most developed countries. It enables more people to live well and die as they would choose, and has significant implications for the individual person, their family and carers, and our wider society. In the context of an ageing population and increasing possibilities for medical interventions, ACP is a particularly important aspect of quality care. Expanded and fully updated throughout, this new edition gives a comprehensive overview of ACP and explores a wide range of issues and practicalities in providing end of life care. Written by experts from around the world, the book takes a comprehensive look at the subject by exploring the wide range of issues and practicalities in providing ACP; framing the purpose, process, and outcomes of these plans; and providing an important update on national and international research, policy and practice. Chapters also discuss values, goals and priorities, and include detailed case examples to aid best practice. This book is an invaluable resource for all clinicians involved in the caring for people in their final stages of life. It is of particular value to GPs, palliative care specialists, geriatricians, social care teams, researchers and policy leads interested in improving end of life care.
