Download or read book Childhood Cancer and Functional Impacts Across the Care Continuum written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2021-09-09 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Since the late 1960s, the survival rate in children and adolescents diagnosed with cancer has steadily improved, with a corresponding decline in the cancer-specific death rate. Although the improvements in survival are encouraging, they have come at the cost of acute, chronic, and late adverse effects precipitated by the toxicities associated with the individual or combined use of different types of treatment (e.g., surgery, radiation, chemotherapy). In some cases, the impairments resulting from cancer and its treatment are severe enough to qualify a child for U.S. Social Security Administration disability benefits. At the request of Social Security Administration, Childhood Cancer and Functional Impacts Across the Care Continuum provides current information and findings and conclusions regarding the diagnosis, treatment, and prognosis of selected childhood cancers, including different types of malignant solid tumors, and the effect of those cancers on childrenâ (TM)s health and functional capacity, including the relative levels of functional limitation typically associated with the cancers and their treatment. This report also provides a summary of selected treatments currently being studied in clinical trials and identifies any limitations on the availability of these treatments, such as whether treatments are available only in certain geographic areas.

Download or read book Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer written by National Cancer Policy Forum and published by National Academies Press. This book was released on 2014-05-18 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer is the summary of a workshop convened by the Institute of Medicine's National Cancer Policy Forum in July 2013 to facilitate discussion about gaps and challenges in caring for adolescent and young adult cancer patients and potential strategies and actions to improve the quality of their care. The workshop featured invited presentations from clinicians and other advocates working to improve the care and outcomes for the adolescent and young adult population with cancer. Cancer is the leading disease-related cause of death in adolescents and young adults. Each year nearly 70,000 people between the ages of 15 and 39 are diagnosed with cancer, approximately 8 times more than children under age 15. This population faces a variety of unique short- and long-term health and psychosocial issues, such as difficulty reentering school, the workforce, or the dating scene; problems with infertility; cardiac, pulmonary, or other treatment repercussions; and secondary malignancies. Survivors are also at increased risk for psychiatric conditions such as anxiety, depression, substance abuse, and suicide and may have difficulty acquiring health insurance and paying for needed care. Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer discusses a variety of topics important to adolescent and young adult patients with cancer, including the ways in which cancers affecting this group differ from cancers in other age groups and what that implies about the best treatments for these cancer patients. This report identifies gaps and challenges in providing optimal care to adolescent and young adult patients with cancer and to discuss potential strategies and actions to address them.

Download or read book Cancer in Adolescents and Young Adults written by Archie W. Bleyer and published by Springer Science & Business Media. This book was released on 2007-09-23 with total page 538 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the first comprehensive book devoted exclusively to cancer in adolescents and young adults. It compiles medical, epidemiological, biological, psychological, and emotional issues of young adults’ oncology. The emphasis is on the differences of the "same" cancer in younger and older patients. Model programs specially designed to care for patients in the age group and surveillance of long-term adverse effects are reviewed.

Download or read book Cancer Incidence and Survival Among Children and Adolescents written by and published by . This book was released on 1999 with total page 194 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Cancer and the Family written by Lea Baider and published by . This book was released on 1996-05-27 with total page 440 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume is the result of many years of clinical research by medical and health care professionals working with cancer patients and their families. It demonstrates the impact of cancer at different stages of a patient's life, and how certain factors influence treatment and management.

Download or read book My Parent Has Cancer and It Really Sucks written by Marc Silver and published by Sourcebooks, Inc.. This book was released on 2013-03-05 with total page 221 pages. Available in PDF, EPUB and Kindle. Book excerpt: Let's face it, cancer sucks. This book provides real-life advice from real-life teens designed to help teens live with a parent who is fighting cancer. One million American teenagers live with a parent who is fighting cancer. It's a hard blow for those already navigating high school, preparing for college, and becoming increasingly independent. Author Maya Silver was 15 when her mom was diagnosed with breast cancer in 2001. She and her dad, Marc, have combined their family's personal experience with advice from dozens of medical professionals and real stories from 100 teens—all going through the same thing Maya did. The topic of cancer can be difficult to approach, but in a highly designed, engaging style, this book gives practical guidance that includes: How to talk about the diagnosis (and what does diagnosis even mean, anyway?) The best outlets for stress (punching a wall is not a great one, but should it happen, there are instructions for a patch job) How to deal with friends (especially one the ones with 'pity eyes') Whether to tell the teachers and guidance counselors and what they should know (how not to get embarrassed in class) What happens in a therapy session and how to find a support group if you want one A special section for parents also gives tips on strategies for sharing the news and explaining cancer to a child, making sure your child doesn't become the parent, what to do if the outlook is grim, and tips for how to live life after cancer. My Parent Has Cancer and It Really Sucks allows teens to see that they are not alone. That no matter how rough things get, they will get through this difficult time. That everything they're feeling is ok. Essays from Gilda Radner's "Gilda's Club" annual contest are an especially poignant and moving testimony of how other teens dealt with their family's situation. Praise for My Parent Has Cancer and It Really Sucks: "Wisely crafted into a wonderfully warm, engaging and informative book that reads like a chat with a group of friends with helpful advice from the experts." —Paula K. Rauch MD, Director of the Marjorie E. Korff Parenting At a Challenging Time Program "A must read for parents, kids, teachers and medical staff who know anyone with cancer. You will learn something on every page." —Anna Gottlieb, MPA, Founder and CEO Gilda's Club Seattle "This book is a 'must have' for oncologists, cancer treatment centers and families with teenagers." —Kathleen McCue, MA, LSW, CCLS, Director of the Children's Program at The Gathering Place, Cleveland, OH "My Parent Has Cancer and It Really Sucks provides a much-needed toolkit for teens coping with a parent's cancer." —Jane Saccaro, CEO of Camp Kesem, a camp for children who have a parent with cancer

Download or read book Cancer Care for Adolescents and Young Adults written by Daniel Kelly and published by John Wiley & Sons. This book was released on 2008-04-30 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cancer in Adolescents and Young Adults is a practical guide to cancer care in adolescents and young adults. It considers the impact of diagnosis on individuals, and their families, as well as examining the impact on the health professionals responsible for their care. There are sections focussing on the adolescent’s experience of cancer and ongoing care needs during treatment, and on life after cancer, including rehabilitation and palliative care. • Builds on the forthcoming NICE guidelines on Supportive Cancer Care for Children & Young People, and recent Department of Health guidelines & policy initiatives • Adopts an integrated inter-professional approach • Contains evidence-based contributions from leading professionals in cancer care Cancer in Adolescents and Young Adults is an essential resource for all those involved with the provision of care and support for adolescents and young adults with cancer. About the Editors: Dr Daniel Kelly is Reader in Cancer & Palliative Care, Middlesex University, London. Dr Faith Gibson is Senior Lecturer in Children’s Nursing Research, Institute of Child Health, Great Ormond Street Hospital and King’s College London.

Download or read book Nursing Research Using Phenomenology written by Mary De Chesnay and published by Springer Publishing Company. This book was released on 2014-11-13 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: Phenomenology recognizes that...the work of a nurse is the work of an embodied subject, a feeling and knowing and experiencing person in relationship to another embodied subject, the patient, who is another feeling and knowing and experiencing person. Phenomenology in nursing will be concerned with the subjective, living person in her or his lived body in the experience of health and illnessóboth nurse and patient. As such, it could have radical effects. óJeffrey McCurry, Director, Simon Silverman Phenomenology Center Duquesne University, Pittsburgh, Pennsylvania (From the Foreword) Phenomenology is a descriptive approach to obtaining knowledge that focuses on capturing the essence of human experience through the point of view of a distinct individual. As a form of qualitative nursing research, it provides a perspective apart from that of empirical sciences, which see the human mind and body as physical or material objects open to study only through empirical science and treatable only through physical remedies. This "how-to" book describes the foundations of phenomenology and the specifics of how to conduct nursing research using phenomenological designs. It is part of an innovative series for novice researchers and specialists alike focusing on state-of-the-art methodologies from a nursing perspective. Authored by international scholars of qualitative nursing research, the book elucidates the theoretical rationale for using phenomenology, describes its components, and delineates a plan to conduct studies that includes appropriate methods, ethical considerations, and potential pitfalls. The book provides guidance for writing a research proposal that justifies the importance or potential impact of a study and describes how to conduct interviews that best elicit information. It focuses on achieving rigor in phenomenological research in regard to accuracy and replicability, and discusses different types of data collection and analysis and when to use them. Appendices include a list of qualitative research journals, textbooks, and other resources for more in-depth study. Chapters provide helpful advice on interviewing and data analysis. The book will be of value to novice and experienced nurse researchers, graduate teachers and students, in-service educators and students, and nursing research staff at health care institutions. Key Features: Comprises the first "how-to" guide to conducting qualitative phenomenological research from a nursing perspective Presents a comprehensive plan for conducting studies and appropriate measures, ethical considerations, and potential challenges Guides readers in construction of a research proposal that justifies the importance or potential impact of a study Provides examples of interviews that best elicit information

Download or read book Childhood Cancer in Britain written by Charles Stiller and published by OUP Oxford. This book was released on 2007-02-15 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cancer is diagnosed in about 140 per million children in Britain each year. There is a 1 in 500 chance that a child will be affected in the first 15 years of life, the most frequently occurring types of cancer being leukaemia and brain tumours. This book covers the descriptive epidemiology of childhood cancer in Britain, based on the unique work of the National Registry of Childhood Tumours, the largest population-based specialist childhood cancer registry in the world. The book provides a detailed account of national incidence and survival rates for childhood cancer in Britain during 1991-2000, and trends during 1966-2000. There is also an account of childhood mortality for the period 1965-2004. The diagnoses are classified throughout according to the International Classification of Childhood Cancer, the first time the third edition of this standard classification has been used for prevalence of incidence, survival and mortality data. The chapter on incidence rates is relevant to planning of health service provision and design of research studies on aetiology, whilst the chapter on trends in incidence is relevant to the possible effects of changes in environmental and other risk factors. In addition to comprehensive tables of rates, age-incidence graphs are provided for all the major types of childhood cancer, and possible artefacts are also discussed. The survival data demonstrates how clinical progress over the past 40 years has led to a major increase in the number of cancer survivors. The role of the Registry, covering history, methodology, current and future uses, is also discussed. This definitive work is the culmination of decades of epidemiological research and is essential reading for anyone involved in paediatric oncology or cancer epidemiology.

Download or read book Dealing with Dying Death and Grief during Adolescence written by David E. Balk and published by Routledge. This book was released on 2014-02-18 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: For some, life’s introduction to death and grief comes early, and when it does it can take many forms. Not only does Dealing with Dying, Death, and Grief during Adolescence tackle them all, it does so with David Balk’s remarkable sensitivity to and deep knowledge of the pressures and opportunities adolescents face in their transition from childhood to adulthood. In seamless, jargon-free language, Balk brings readers up to date with what we know about adolescent development, because over time such changes form the backstory we need to comprehend the impact of death and bereavement in an adolescent’s life. The book’s later chapters break down the recent findings in the study of life-threatening illness and bereavement during adolescence. And, crucially, these chapters also examine interventions that assist adolescents coping with these difficulties. Clinicians will come away from this book with both a grounded understanding of adolescent development and the adolescent experience of death, and they’ll also gain specific tools for helping adolescents cope with death and grief on their own terms. For any clinician committed to supporting adolescents facing some of life’s most difficult experiences, this integrated, up-to-date, and deeply insightful text is simply the book to have. David E. Balk is professor in the department of health and nutrition sciences at Brooklyn College (CUNY), where he directs the graduate program in thanatology. He is the author of Adolescent Development: Early Through Late Adolescence, Helping the Bereaved College Student, and several other books on death and bereavement. He is also co-editor of the 2nd edition of the Handbook of Thanatology (Routledge, 2013).

Download or read book WHO guidelines on physical activity and sedentary behaviour written by and published by World Health Organization. This book was released on 2020-11-20 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Pediatric Psycho oncology written by Lori Wiener and published by Oxford University Press, USA. This book was released on 2015 with total page 433 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric Psycho-Oncology is a comprehensive handbook that provides best practice models for the management of psychological, cognitive, and social outcomes of adolescents living with cancer and their families. Chapters cover a wide range of topics including psychological aspects of particular pediatric cancers and their treatments, how to talk to a child and family at critical times during the disease course, genetic testing, individual, family, educational, psychological and psychiatric interventions, and caring for international patients . Each chapter highlights the necessity of embracing an interdisciplinary approach to ensure that each child has the best options for living with cancer and, when cure is not possible, that death occurs with as much dignity as possible for the child and family. An extensive resource section is appended to provide information on written, online, video, community, national and international services and programs. This book features contributions from experts designed to help clinicians review, anticipate and respond to emotional issues that often arise in the context of treating pediatric cancer patients. Numerous cross-references and succinct tables and figures make this concise reference easy to use. Pediatric Psycho-Oncology is an ideal resource for helping pediatric oncologists and nurses recognize when it may be best to refer patients to their mental health colleagues and for those who are establishing pediatric oncology services or adding psychosocial components to existing clinics.

Download or read book Community Clinical Oncology Program COOP written by Alice Collins Hamm and published by . This book was released on 1985 with total page 34 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Pediatric Oncology Nursing written by Pamela S. Hinds and published by Springer Nature. This book was released on 2020-01-23 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents the current state of the nursing science in topics relevant to the care of pediatric oncology patients and their families across the treatment trajectory and is framed within a precision health framework. The spectrum of topics covered is wide, including, for example, symptom management, self-care management, exercise and physical activity, family-centered care, palliative care, the role of the nurse in treatment decision making, patient and nurse resiliency, survivorship, and genetic counseling. Throughout, there is a focus on the implications of research for nursing practice, highlighting which elements of the available evidence are ready for translation into practice and which are not. In addition, careful attention is paid to the role that nursing can play in further advancing science through clinical research. The authors are leading experts from across the globe. The book will be of special interest for pediatric oncology nurses, including direct care nurses, research nurses, and nursing leaders, and will also be a stimulating source for researchers and non-oncology nurses.

Download or read book Measurement of Stress Trauma and Adaptation written by B. Hudnall Stamm and published by . This book was released on 1996 with total page 468 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Pediatric and Adolescent Osteosarcoma written by Norman Jaffe and published by Springer. This book was released on 2012-02-25 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric and Adolescent Osteosarcoma provides a historical review of the nature of osteosarcoma and the conflict that accompanied the introduction of adjuvant therapy for osteosarcoma culminating in accepted and prevailing methods of current therapy. It outlines concepts in Epidemiology and Etiology, and provides chapters on pathology and radiologic characteristics of osteosarcoma, surgical therapy tailored specifically for treatment of primary tumors in pediatric/adolescent age group, treatment of pulmonary and extra pulmonary metastases and complications, as well as the role of radiation therapy. The volume concludes with a review of differences and similarities in the management of osteosarcoma in adults as compared to pediatrics / adolescents and new laboratory and animal investigations currently in progress to develop effective diagnostic and therapeutic approaches to improve the outcome. In essence the scope and intensive coverage of the book provides a historical perspective of the advances made over the past 30 years and emerging concepts and prospects for new diagnostic and therapeutic approaches. This is based upon past experiences and new discoveries. It also provides a unique opportunity for pediatric and adult medical oncologists, physicians in training, orthopedic surgeons, pathologists, radiologists, radiotherapists, oncology nurses and allied professionals involved in the care of pediatric/adolescent patients with osteosarcoma to become acquainted with prevailing methods of treatment and new and evolving concepts and developments.

Download or read book Cancer in Adolescents and Young Adults written by Archie Bleyer and published by Springer. This book was released on 2016-11-17 with total page 831 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the second edition of the only book to be devoted exclusively to the total cancer picture in adolescents and young adults (AYA), now expanded from the age range 15-29 to that of 15–39 years. For each of the diverse spectrum of cancers encountered in the AYA group, the epidemiology, natural progression, diagnostic approaches, and treatment options are described, with special emphasis on strategies for early detection and prevention. Comparison is made with management of both younger and older patients, and model programs are presented that address common diagnostic, staging, treatment, and psychosocial shortcomings in the AYA group. Detailed attention is also paid to principles and practices of care, with consideration of psychosocial and quality of life issues, social support systems, rehabilitation, late effects, insurance, and economic aspects of health care, among other topics. The authors make compelling arguments for integrated strategies that allow young adults to benefit from the combined expertise of pediatric and adult oncologists in systems that identify both the complex disease and the social issues specific to this population. The proposed models of care include relationships with other specialties that do not specifically target this age group, i.e., infectious disease, endocrinology, pulmonary medicine, nephrology, gastroenterology, thoracic and abdominal surgery, urology, otolaryngology, and neurosurgery. New patterns of communication are advocated and endorsed as essential for productive interaction involving these specialties. References are extensive and are oriented toward users in pediatric hematology-oncologymedical oncology, radiation oncology, surgical oncology, gynecologic oncology, oncology nursing, psycho-oncology, social work, epidemiology, public health and health services research. The contributing authors are from the United States, the United Kingdom, Canada, Italy, France, Israel, Switzerland and Australia, Germany, Japan and the Netherlands.p>