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Book Brain Injury Advocates

Download or read book Brain Injury Advocates written by Susan C. Hultberg and published by Createspace Independent Pub. This book was released on 2012 with total page 357 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this groundbreaking book, tbi survivor advocate Sue Hultberg explores the lives, struggles, and issues of people with traumatic and other acquired brain injuries. She examines the origins of the acquired brain injury human and civil rights movement, and she presents an analysis of the key policy and priority agenda for people with brain injuries. She describes how individuals with brain injuries set out to engage in independent policy advocacy at the all-survivor Brain Injury Network. She also singles out some of the advocacy-related work of several dozen other brain injury survivors who work, write, or volunteer in and for the brain injury survivor community. The author draws on her own personal, twenty-five-year-plus, post-tbi journey. She recounts her transformation from accident victim, to traumatic brain injury (tbi) survivor, to community policy advocate, and she expands on what it takes to be a good brain injury survivor advocate (SABI). The author explains why patients with brain injuries need the medical community to emphasize a post traumatic brain injury syndrome brain injury classification. She also argues that children should never play tackle football or other contact sports (such as boxing) because the risk of sustaining concussions or other brain injury is just too great. She discusses the poverty, harassment, lack of needed services, and stigma that individuals in the brain injury community encounter. She asserts that such terms as brain damaged, brain injury victim, and persistent vegetative state are politically incorrect. She shares policies that could improve quality of life for people with brain injuries who live in nursing homes or other assisted living facilities. She also outlines a selection of protective laws that could shield society from brain injuries. The author details how important privacy protections for people with brain injuries are undermined by the U.S. government, online social communities, and some medical and other professionals. She also elaborates on how the apparent confusion in concussion (mild traumatic brain injury) and postconcussion definitions, diagnosis, and treatment are making life more difficult for many individuals with brain injuries. The book caps off with an exploration of the various fundamental human rights that individuals with cognitive, physical, and other disabilities from brain injuries have, including the rights to privacy, safety, happiness, liberty, and up-to-date and adequate medical care. This well-researched book by a TBI survivor author who has professional and scholarly credentials contains an appendix listing books and other materials by individuals with brain injuries. There is also a cross-referenced index. This book is about people with acquired brain injuries from aneurysm, anoxic or hypoxic injury, illness, stroke, toxin, trauma, or tumor. It is intended for survivors of brain injuries who have turned the corner in their recovery and who want to pay back by helping our community. It is also a must-read book for every advocate, family caregiver, policy maker, professional, program manager, service provider, system administrator, or other brain injury, third-party stakeholder.

Book The PATBI Program  Protection and Advocacy for Persons with Traumatic Brain Injury

Download or read book The PATBI Program Protection and Advocacy for Persons with Traumatic Brain Injury written by Protection and Advocacy for Persons with Traumatic Brain Injury (Conn.) and published by . This book was released on 2006 with total page 6 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book Brain Injury Medicine

    Book Details:
  • Author : David B. Arciniegas, MD
  • Publisher : Demos Medical Publishing
  • Release : 2012-08-27
  • ISBN : 1617050571
  • Pages : 1549 pages

Download or read book Brain Injury Medicine written by David B. Arciniegas, MD and published by Demos Medical Publishing. This book was released on 2012-08-27 with total page 1549 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brain Injury Medicine - which includes free ebook access with every print purchase - is a clear and comprehensive guide to all aspects of the management of traumatic brain injury-from early diagnosis and evaluation through the post-acute period and rehabilitation. An essential reference for physicians and other health care professionals who work with patients with brain injury, the book focuses on assessment and treatment of the wider variety of clinical problems these patients face and addresses many associated concerns such as epidemiology, ethical issues, legal issues, and life-care planning. Written by over 190 acknowledged leaders, the text covers the full spectrum of the practice of brain injury medicine including principles of neural recovery, neuroimaging and neurodiagnostic testing, prognosis and outcome, acute care, rehabilitation, treatment of specific populations, neurologic and other medical problems following injury, cognitive and behavioral problems, post-trauma pain disorders, pharmacologic and alternative treatments, and community reentry and productivity. Brain Injury Medicine, 2nd Edition Features: The acknowledged gold standard reference-brings together knowledge, experience, and evidence-based medicine Comprehensive and current-completely revised, updated, and expanded to include emerging topics and the latest clinical and research advances Multi-disciplinary focus-expert authorship from a wide range of specialties promotes a holistic team approach to a complex, many-faceted condition Covers the entire continuum of care from early diagnosis and assessment through acute management, rehabilitation, associated medical and quality of life issues, and functional outcomes New to the Second Edition: Three new Associate Editors from related disciplines provide added expertise Five new sections: acute rehabilitative care, pediatric TBI, special senses, autonomic and other organ system problems, post-trauma pain disorders 25 new chapters running the gamut from health policy to biomechanics, to military TBI to pediatric issues and more Print + Digital Access: Purchase price includes enhanced e-book containing the complete and fully searchable text plus additional digital-only content

Book Brain Injury Survival Kit

Download or read book Brain Injury Survival Kit written by Cheryle Sullivan and published by Demos Medical Publishing. This book was released on 2008-08-20 with total page 188 pages. Available in PDF, EPUB and Kindle. Book excerpt: This practical, easy-to-use book gives brain injury survivors, their families, and their loved ones the strategies they need to boost brain function and live well. The book is a compendium of tips, techniques, and life-task shortcuts that author Sullivan, a medical doctor and brain injury survivor, has compiled from personal experience.

Book Gray Matters

Download or read book Gray Matters written by Heidi Lerner and published by AuthorHouse. This book was released on 2006-09-15 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: Intriguing Book of Poetry Published by a Brain Injury Survivor Gray Matters, Brain Injury: The Inside Perspective is a book filled with poetic insights of a woman who lived through a near-fatal brain injury. Her intimate knowledge and sense of humor can help survivors cope, as well as better understand their injuries and themselves. This book gives a personal sense or Inside Perspective of brain injury, thus enabling readers to better understand brain injury survivors. Brain injury occurs around the world in a variety of circumstances; in sports events, motor-vehicle accidents, terrorist attacks & war (and the list goes on)... According to the International Brain Injury Association, head injury is the leading cause of death and disability worldwide. Thirty percent of the soldiers that have returned from Iraq and are returning from Afghanistan have Traumatic Brain Injuries; more than two percent of the United States' population has sustained a Traumatic Brain Injury. Even with brain injury being so widespread, it is still hard to identify people living with the complications of this “invisible disability.” Ms. Lerner knows that the lack of awareness regarding brain injury makes survivors’ lives quite problematic. Writing Gray Matters was aimed at easing the integration of survivors back into the community. With a creative flair, she informs her readers about brain injury; she strikes a chord by sharing personal changes, loss and challenges, thus giving readers a sense of what it is like to walk in the shoes of a brain injury survivor. The chapters of the book cover topics including: brain injury, the symptoms of injury, rehabilitation, the brain, academic rehab, recreational therapy (including nature & the ocean's healing influence) and brain injury peer support. This book will considerably help brain injury survivors to better understand their injury and themselves, it will also aid them by being better understood by others. Gray Matters has helped family members and friends to better understand their loved ones. This book can also be a great asset to rehab professionals, by giving them a more intimate understanding of the dilemmas of a brain injury; for only when you know what an individual’s problem is, can you treat it. Gray Matters offers an articulate, introspective and sometimes humorous view of what it is like to suffer a near-fatal blow to the head and live with its complications. The author presents a thorough, subjective viewpoint as well as a professional and objective understanding of brain injury. Gray Matters presents a deeper understanding of the inner-workings of the mind and how in many ways, brain injury effects life as we know it.

Book Head Cases

    Book Details:
  • Author : Michael Paul Mason
  • Publisher : Macmillan + ORM
  • Release : 2008-04-01
  • ISBN : 1429953748
  • Pages : 320 pages

Download or read book Head Cases written by Michael Paul Mason and published by Macmillan + ORM. This book was released on 2008-04-01 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Head Cases takes us into the dark side of the brain in an astonishing sequence of stories, at once true and strange, from the world of brain damage. Michael Paul Mason is one of an elite group of experts who coordinate care in the complicated aftermath of tragic injuries that can last a lifetime. On the road with Mason, we encounter survivors of brain injuries as they struggle to map and make sense of the new worlds they inhabit. Underlying each of these survivors' stories is an exploration of the brain and its mysteries. When injured, the brain must figure out how to heal itself, reorganizing its physiology in order to do the job. Mason gives us a series of vivid glimpses into brain science, the last frontier of medicine, and we come away in awe of the miracles of the brain's workings and astonished at the fragility of the brain and the sense of self, life, and order that resides there. Head Cases "[achieves] through sympathy and curiosity insight like that which pulses through genuine literature" (The New York Sun); it is at once illuminating and deeply affecting.

Book Evaluating the HRSA Traumatic Brain Injury Program

Download or read book Evaluating the HRSA Traumatic Brain Injury Program written by Committee on Traumatic Brain Injury and published by . This book was released on 2006 with total page 354 pages. Available in PDF, EPUB and Kindle. Book excerpt: A traumatic brain injury (TBI)—a brain injury caused by a sudden jolt, blow, or penetrating head trauma that disrupts the function of the brain—can happen to anyone. The effects of a TBI vary from person to person, depending on the force dynamics of injury and the patient's anatomy and physiology. People with TBI-related disabilities and their family members and caregivers need comprehensive, coordinated, person-centered systems of care that attend to their changing needs long after their acute injury has been treated medically. At least 5.3 million Americans are estimated to have a TBI-related disability. The Health Resources and Services Administration's (HRSA) TBI Program, initially authorized by the Traumatic Brain Injury Act of 1996 (P.L. 104-106) and reauthorized by the Children's Health Act of 2000 is a modest federal program with broad ambitions: a $9 million grants program aimed at motivating states to create systems improvement on behalf of persons with TBI with disabilities and their families. In 2004, the federal Office of Management and Budget (OMB) questioned the effectiveness of the HRSA TBI Program, noting that there had been no regular independent evaluations of the program's effects on TBI patients and their families. To address these concerns, HRSA contracted with the Institute of Medicine (IOM) in the spring of 2005 to conduct a study: (1) to assess the impact of the HRSA Program on how state systems are working or failing to work in support of individuals with TBI; and (2) to advise HRSA on how it could improve the program to best serve individuals with TBI and their families. The IOM appointed an 11-member Committee on Traumatic Brain Injury to perform the study. This report presents the IOM Committee on Traumatic Brain Injury's assessment of the HRSA TBI Program's impact and recommendations for improving the program.

Book Good Practice in Brain Injury Case Management

Download or read book Good Practice in Brain Injury Case Management written by Jackie Parker and published by Jessica Kingsley Publishers. This book was released on 2006-05-15 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brain injury case management involves the care and support of brain-injured individuals and their families in a range of areas, from personal injury litigation to the planning of treatment and therapy regimes. Good Practice in Brain Injury Case Management provides a guide to effective case management, outlining all the key issues that professionals working with brain-injured people will need to know, from understanding what brain injury actually is and how it feels to experience it to strategies for rehabilitation, assessing risk and implementing support plans. The contributors are drawn from a wide range of disciplines, including social work, neuropsychology, occupational therapy and legal practice, and offer information and advice in clear jargon-free. This is an essential handbook for case managers and all other professionals working with brain injured people.

Book Coping with Mild Traumatic Brain Injury

Download or read book Coping with Mild Traumatic Brain Injury written by Diane Roberts Stoler Ed.D. and published by Penguin. This book was released on 1997-11-01 with total page 356 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mild traumatic brain injury is one of the most commonly misdiagnosed problems in the United States today. Symptoms can mimic those of a stroke, depression, or chronic fatigue syndrome. Authors Stoler and Hill offer clear information on the different types of brain injury, as well as the treatment options available.

Book Family Support Programs and Rehabilitation

Download or read book Family Support Programs and Rehabilitation written by Louise Margaret Smith and published by Springer Science & Business Media. This book was released on 1995-06-30 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: This reference offers practical guidelines for dealing with the major neurobehavioral problems associated with traumatic brain injury (TBI). Chapters summarize the important neuropsychological changes associated with TBI and describes rehabilitation strategies proven effective in managing brain-injured patients.

Book Brain Injury Connection

    Book Details:
  • Author : Brain Injury Association of Georgia
  • Publisher :
  • Release : 2000
  • ISBN :
  • Pages : 124 pages

Download or read book Brain Injury Connection written by Brain Injury Association of Georgia and published by . This book was released on 2000 with total page 124 pages. Available in PDF, EPUB and Kindle. Book excerpt: A directory of brain injury services and resources in Georgia.

Book Living with Brain Injury

    Book Details:
  • Author : Philip Fairclough
  • Publisher : Jessica Kingsley Publishers
  • Release : 2002-07-15
  • ISBN : 1846422035
  • Pages : 175 pages

Download or read book Living with Brain Injury written by Philip Fairclough and published by Jessica Kingsley Publishers. This book was released on 2002-07-15 with total page 175 pages. Available in PDF, EPUB and Kindle. Book excerpt: `The book describes a potted history of Phillip's journey, and mainly focuses on the practical aspects of brain injury, rehabilitation, returning home and to work. If you have little or no knowledge of brain injury then this book is a good starting point, both for the brain injured person or their family/friends.' - Encephalitis Information Resource `This is an excellent book for both patients and staff to read and the message of hope is "whilst life will change after brain injury I need not necessarily be the end of quality life. There really is life after brain surgery.' - Stroke Newsletter `Fairclough's frank discussion of sexual problems following traumatic brain injury (TBI) and his feelings about the loss of his role as the family breadwinner will resonate with many male readers...Fairclough does not overtly seek to inspire or impress the reader, yet he communicates that not only can one's life continue after head injury, but also it can be a good and meaningful life at that.' -Brain Injury Journal `The book is clearly set out, easy to read, good value and has some useful references. This is a book therapists could suggest to families to provide information from a patient's perspective as it provides more practical help than most, but I would recommend that they read it first.' -Physiotherapy Journal On November 7th 1994, Philip Fairclough fell fifteen feet from a ladder onto a concrete patio. The impact caused massive trauma to his head and the subsequent brain damage he suffered has radically changed his life. At first unable to dress himself, cross roads on his own or tell the time, Philip underwent an intensive course of rehabilitation and occupational therapy, which slowly restored many of the lost skills that he had once taken for granted. His account tells of the hurdles he faced and overcame while in residence at a rehabilitation centre, the difficulties of readapting to family life, and finally the emergence of his new vocation as a writer. Like most of us, Philip never expected that severe injury would happen to him - but from the first he decided not to give up. His courage, determination and the support of his family characterize this account, which interweaves his own story with practical information about brain injury. Members of the medical profession, physiotherapists, occupational therapists and counsellors will all find this account helpful and revealing - as will people affected personally by brain injury, and their families and friends.

Book Brain Injury and the Family

Download or read book Brain Injury and the Family written by Arthur Dell Orto and published by Chapman & Hall/CRC. This book was released on 2000-06 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: Conceived and written by two of the countrys leading authorities on the relationship of head injury and family matters, this book opens the frequently locked doors to accessible information. The format is a combination of original material, personal statements by survivors and their families, and structured experiences. The revision will retain its central theme of family-oriented treatment with a rehabilitative perspective.

Book Rights Come to Mind

    Book Details:
  • Author : Joseph Fins
  • Publisher : Cambridge University Press
  • Release : 2015-08-11
  • ISBN : 052188750X
  • Pages : 395 pages

Download or read book Rights Come to Mind written by Joseph Fins and published by Cambridge University Press. This book was released on 2015-08-11 with total page 395 pages. Available in PDF, EPUB and Kindle. Book excerpt: Joseph J. Fins calls for a reconsideration of severe brain injury treatment, including discussion of public policy and physician advocacy.

Book Brain Injury Survival Kit

    Book Details:
  • Author : Cheryle Sullivan M. D.
  • Publisher : ReadHowYouWant.com
  • Release : 2009-11
  • ISBN : 1458739740
  • Pages : 242 pages

Download or read book Brain Injury Survival Kit written by Cheryle Sullivan M. D. and published by ReadHowYouWant.com. This book was released on 2009-11 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brain Injury Survival Kit: 365 Tips, Tools, & Tricks to Deal with Cognitive Function Loss gives brain injury survivors, their families, and loved ones the strategies they need to improve brain function and quality of life. The book is a compendium of tips, techniques, and life-task shortcuts that author Cheryle Sullivan has compiled from her per...

Book Over My Head

    Book Details:
  • Author : Claudia L. Osborn
  • Publisher : Andrews McMeel Publishing
  • Release : 2000-03
  • ISBN : 9780740705984
  • Pages : 260 pages

Download or read book Over My Head written by Claudia L. Osborn and published by Andrews McMeel Publishing. This book was released on 2000-03 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hit by a car while bicycling Osborn, an internist at a Detroit hospital, suffered injuries. Recounts the struggles and frustrations of a gradually learning strategies to compensate for the lack of certain brain functions. An exceptionally well-written and engaging account. PW review.

Book Sports Related Concussions in Youth

Download or read book Sports Related Concussions in Youth written by National Research Council and published by National Academies Press. This book was released on 2014-02-04 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the past decade, few subjects at the intersection of medicine and sports have generated as much public interest as sports-related concussions - especially among youth. Despite growing awareness of sports-related concussions and campaigns to educate athletes, coaches, physicians, and parents of young athletes about concussion recognition and management, confusion and controversy persist in many areas. Currently, diagnosis is based primarily on the symptoms reported by the individual rather than on objective diagnostic markers, and there is little empirical evidence for the optimal degree and duration of physical rest needed to promote recovery or the best timing and approach for returning to full physical activity. Sports-Related Concussions in Youth: Improving the Science, Changing the Culture reviews the science of sports-related concussions in youth from elementary school through young adulthood, as well as in military personnel and their dependents. This report recommends actions that can be taken by a range of audiences - including research funding agencies, legislatures, state and school superintendents and athletic directors, military organizations, and equipment manufacturers, as well as youth who participate in sports and their parents - to improve what is known about concussions and to reduce their occurrence. Sports-Related Concussions in Youth finds that while some studies provide useful information, much remains unknown about the extent of concussions in youth; how to diagnose, manage, and prevent concussions; and the short- and long-term consequences of concussions as well as repetitive head impacts that do not result in concussion symptoms. The culture of sports negatively influences athletes' self-reporting of concussion symptoms and their adherence to return-to-play guidance. Athletes, their teammates, and, in some cases, coaches and parents may not fully appreciate the health threats posed by concussions. Similarly, military recruits are immersed in a culture that includes devotion to duty and service before self, and the critical nature of concussions may often go unheeded. According to Sports-Related Concussions in Youth, if the youth sports community can adopt the belief that concussions are serious injuries and emphasize care for players with concussions until they are fully recovered, then the culture in which these athletes perform and compete will become much safer. Improving understanding of the extent, causes, effects, and prevention of sports-related concussions is vitally important for the health and well-being of youth athletes. The findings and recommendations in this report set a direction for research to reach this goal.