Download or read book Always Another Mountain Living With Cystic Fibrosis written by Benjamin Easterday and published by Lulu.com. This book was released on 2018-04-05 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: Always Another Mountain is the whimsical life story of David Foster, an adventurer, an outdoors man, and a man afflicted with the debilitating lung disorder Cystic Fibrosis. This book is adapted from the screenplay and draws the reader in through film styled scene descriptions. The story is an inspirational love story with many notes of humor that will leave you the reader with a full range of emotions. David had a passion for life and a love of the outdoors which transcended the physical limitations brought on by this incurable disease. Foster wanted to leave this world better than he found it, and wanted his life to serve as an inspiration not only for those suffering from CF, but for all of us. This is a story that touches on triumphs and tragedies that all those afflicted with cystic fibrosis must face during their shortened lives, and specifically David FosterÕs life. ""I'm just like anyone else, I just cough a little more"" -DavidFoster

Download or read book Hidden Nature written by Alys Fowler and published by Hodder & Stoughton. This book was released on 2017-04-06 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'An emotional and compelling memoir, that left me inspired, both by her bravery in transforming her life, and by the unexpected beauty she finds along the way' Countryfile Magazine 'Fowler beautifully exposes her emotional fragility while also celebrating the unloved nature of buddleia, herons and even the water rats who take refuge among the locks.' i paper 'Fowler captures the beauty of the canal's dishevelled, neglected condition...' Times Literary Supplement 'Thoughtful and heartbreakingly honest ...Beautiful' Press Association 'An astounding memoir' Gay Star News 'Hidden Nature is one of the most thrilling things I've read in a long time' Waterways World 'She writes wonderfully about the species that have carved out a place for themselves amid the discarded shopping trolleys, condom packets and industrial waste' Guardian 'This candid book is as much about mapping the heart as it is about mapping the paths of waterways. Lovely.' Simple Things 'A beautiful memoir' Good Housekeeping 'Gentle, brave and acutely observant' Woman's Weekly Leaving her garden to the mercy of the slugs, the Guardian's award-winning writer Alys Fowler set out in an inflatable kayak to explore Birmingham's canal network, full of little-used waterways where huge pike skulk and kingfishers dart. Her book is about noticing the wild everywhere and what it means to see beauty where you least expect it. What happens when someone who has learned to observe her external world in such detail decides to examine her internal world with the same care? Beautifully written, honest and very moving, Hidden Nature is also the story of Alys Fowler's emotional journey and her coming out as a gay woman: above all, this book is about losing and finding, exploring familiar places and discovering unknown horizons.

Download or read book Taking Flight Inspirational Stories of Lung Transplantation More Journeys written by Lung Recipients Around the World and published by Trafford Publishing. This book was released on 2011-05-06 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: I have the back cover designer working on the wording for the back cover. I require no help.

Download or read book Hope on the Desert Road written by CM Davy and published by Christian Faith Publishing, Inc.. This book was released on 2022-08-01 with total page 155 pages. Available in PDF, EPUB and Kindle. Book excerpt: Life is hard. Raising children is hard. Raising a medically fragile child seems at times impossible. Thirteen years ago, my daughter was born with complex medical needs. As I wandered through this new landscape, I realized that there were no resources available for families like ours. In our journey, I have realized that we all have journeys. We all have days where there is little hope. We all have challenges, and we all need to find God in our journey. That is what this book is about""finding hope, finding faith, and finding God in the journey.

Download or read book Hodson and Geddes Cystic Fibrosis written by Andrew Bush and published by CRC Press. This book was released on 2015-07-24 with total page 699 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hodson and Geddes' Cystic Fibrosis provides everything the respiratory clinician, pulmonologist or health professional treating patients needs in a single manageable volume. This international and authoritative work brings together current knowledge and has become established in previous editions as a leading reference in the field. This fourth edition includes a wealth of new information, figures, useful videos, and a companion eBook. The basic science that underlies the disease and its progression is outlined in detail and put into a clinical context. Diagnostic and clinical aspects are covered in depth, as well as promising advances such as gene therapies and other novel molecular based treatments. Patient monitoring and the importance of multidisciplinary care are also emphasized. This edition: Features accessible sections reflecting the multidisciplinary nature of the cystic fibrosis care team Contains a chapter written by patients and families about their experiences with the disease Includes expanded coverage of clinical areas, including chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues Discusses management both in the hospital and at home Includes a new section on monitoring and discusses the use of databases to improve patient care Covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas Includes chapters devoted to nursing, physiotherapy, psychology, and palliative and spiritual care Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic science aspects of the subject and reflecting the multidisciplinary nature of the cystic fibrosis care team.

Download or read book Life Happens for You written by Denise Yahrling and published by . This book was released on 2019-11-12 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: ✨ "A young woman on a journey to her inner self: Although Denise suffers from Cystic Fibrosis, she refuses to let this chronic illness bring her down. On the contrary, she insists on living life to the fullest. In her early twenties she discovers her passion for traveling, shoulders her backpack and sets off to discover the world. Many trips will follow. And these journeys, the people who cross her path and her experiences will change Denise forever. With a poetic voice, light at times but serious at others, Denise lets us share in her life's ups and downs and shows us, that her disease, while difficult at times, has made her strong and brave. Because everything in life has a purpose - it is just up to us to find and surrender to it. Join Denise on her quest to find her own answers to life's questions in ,,Life happens for you"." ✨ Almost 2 years after its original publication in German, ,,Life happens for you" is now available to the English-speaking world. The first edition, that was able to be printed due to the help of many fantastic supporters during a successful crowdfunding campaign, the novel has already been able to help many people affected by Cystic Fibrosis, their families and those who are generally in search of meaning and hope in their lives. This edition contains an afterword, in which Denise describes what has happened since the release of the first edition in 2017. ✨ Denise's intention: "Many years ago the strong desire to write a book grabbed ahold of me. Especially in my youth and young adulthood I would have wished for a story with which I could have identified myself as a person affected by Cystic Fibrosis and which might have shown me that it is possible to live a fulfilled life despite this illness. Over time, my intention and the original idea slightly changed. In addition to my great love for writing and storytelling as my motivation, the writing of this book now has another motive. With this book I first and foremost want to reach and inspire those, who believe to have been disadvantaged in life by certain impairments, such as a chronic illness or other imaginable challenges, and who are discouraged by these impairments to lead a (self)fulfilled life. I would like to show these people, and every other reader, that it is never a question of ,,being punished by fate", but rather receiving a gift from life itself, because it is precisely from our greatest challenges in life that we draw the most strength. They are our possibility to grow and learn and look at the world from a completely different perspective. I want to show that life always happens for us and never against us." ✨ What readers say: "A friend of mine gave me your book recently. Thanks a lot for this book, that gets a chronically ill person out of the dark hole of ,,there's no point anymore". It took me becoming 50 years old to get support from a young woman, who showed me to not see the impossibilities, but instead to venture... and to not be the disease, but to have a disease..." "Denise, you've really created something wonderful with this book. (...) Your story encourages us to go our own way - no matter what our limitations may be. That you can also reach your goal through detours. That it is worth standing by one's own feelings and not making compromises when it comes to how we use the time we have been given. I think this message comes across very well and I hope that it will reach a lot of people." "Your book moved me a lot. It is written very emotionally and I was able empathize with you. I think and hope that it will encourage other people who also have a chronic disease. I can recommend the book to anyone who still has doubts or is afraid to start something new."

Download or read book Can t Eat Can t Breathe and Other Ways Cystic Fibrosis Has F d Me written by Jay Gironimi and published by Createspace Independent Publishing Platform. This book was released on 2013-09-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Jay Gironimi (rhymes with astronomy) is a man who can't eat and can't breathe. Can't Eat, Can't Breathe and Other Ways Cystic Fibrosis Has F#$%*d Me is not an inspirational story of triumph over adversity. But if you'd like to read a series of reflections on poop and mucus, it just might be the book for you.

Download or read book Living on Borrowed Time written by Debbie Pitts and published by Author House. This book was released on 2007-01-19 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: My book tells how I have struggled to live from day to day since my being diagnosed at six months of age. So you know I have lived a long time with this disease. It hadn't been easy.

Download or read book It s Been a Good Life Dad written by Jerry E. Hendon and published by iUniverse. This book was released on 2016-01-07 with total page 406 pages. Available in PDF, EPUB and Kindle. Book excerpt: It’s Been a Good Life, Dad!—My Son’s Struggle with Cystic Fibrosis portrays a young man—Kevin Hendon—who lived his eighteen years with cystic fibrosis ever present. The author, Jerry E. Hendon, tells the story of his son’s life in the first part of this biography. He presents the disease’s harsh truths and the severe limits—and of medicine’s ability to respond to the disease’s challenges. With equal clarity, though, he reveals the energy and determination his son showed in the face of his diagnosis. In the second part of It’s Been a Good Life, Dad!, Kevin’s poetry takes center stage. He shares his feelings of isolation and frustration. He ruminates on love, lust, and romance. He expresses his observations about friends and school. He reflects on the place of religion and family in his life. The final two sections of the book sample the recollections of people who knew Kevin and share the abiding influences of Kevin’s spirit in the wider community of those his life has touched. Whether you have cystic fibrosis or know someone who lives with this disease, you might find yourself turning the pages of this portrayal and feeling the temptation to echo the author’s despair when he said, “What a miserable life!” But in the face of this disease and in response to such tugs to give in to despair, Kevin’s responds, “Oh, no. It’s been a good life .... It’s been a good life.”

Download or read book 47 a Life with Cystic Fibrosis written by Simon Wiffen and published by . This book was released on 2020-06-24 with total page 104 pages. Available in PDF, EPUB and Kindle. Book excerpt: 47 / A Life With Cystic Fibrosis is a book of beautiful, intimate portraits exploring the reality of living with cystic fibrosis. Each subject offers an insight into their attitudes to life and their condition up to and beyond the median predicted survival rate of 47. Cystic fibrosis (CF) is a genetic condition that affects around 10,400 people in the UK. It affects the lungs, digestive system and other organs in the body. While CF requires a complex and lifelong combination of medication, treatments and physiotherapy there is currently no cure. It can be an incredibly isolating illness as due to cross infection, people with CF aren't allowed to meet in person. It's a life-limiting condition and the average life expectancy is currently 47 years old. With 47 / A Life With Cystic Fibrosis, Simon Wiffen set out to study how this number affects the attitudes and opinions of people diagnosed with CF at various stages of their journey. Over the course of a year he visited each person in this book, shot their portrait and chatted to them about their life, their attitude to the condition and their hopes and dreams for the future. He was fascinated to know whether these changed as people approached (and passed) 47. Each portrait is shot in the same style, with the same lighting and presented in black and white. This approach was chosen to remove the distraction and focus on the individual in the picture and their unique experience. CF is a complex, cruel and often misunderstood condition that requires lifelong care while not always having visible symptoms. As such it can be difficult for people to fully understand the severity of the condition. Life with CF requires a daily routine of medicine, treatments and physiotherapy along with a progressive loss of lung function that can often result in a need for organ transplants. It brings a combination of lifelong challenges that can produce incredibly strong and resilient personalities who have to face the realities of mortality every day. Anne Shinkwin, Director of Fundraising at The Cystic Fibrosis Trust said: "Simon's intimate portraits give a unique insight into the lives of some of the 10,400 people in the UK living with cystic fibrosis (CF). This book beautifully captures multiple voices and reveals the reality of living with a condition that shortens life. Although there is no cure for CF, advances in research are helping people to live longer. However, as these stories attest, CF remains a daily challenge." 47 / A Life With Cystic Fibrosis was originally published in paperback to 5 star reviews following a hugely successful Kickstarter campaign that smashed its target in just 8 hours. The book has been featured on BBC1 and in the Daily Express. In 2020 Simon was awarded the Unsung Hero Award at the AP Awards in recognition of his work on the project. 25% of profits from this book will go to support the incredible work that the Cystic Fibrosis Trust do every day to support those affected by CF and to help work towards a cure. Thank you. You can read more about this project at https://www.simonwiffenphotography.co.uk/projects/47-a-life-with-cystic-fibrosis/

Download or read book Health Height V World Congress on Mountain Medicine and High Altitude Physiology written by and published by Edicions Universitat Barcelona. This book was released on 2003 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Salt in My Soul written by Mallory Smith and published by Random House. This book was released on 2019-03-12 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.

Download or read book Five Feet Apart written by Rachael Lippincott and published by Simon & Schuster Books for Young Readers. This book was released on 2019-02-05 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now a major motion picture starring Cole Sprouse and Haley Lu Richardson! Goodreads Choice Winner, Best Young Adult Fiction of 2019 In this #1 New York Times bestselling novel that’s perfect for fans of John Green’s The Fault in Our Stars, two teens fall in love with just one minor complication—they can’t get within a few feet of each other without risking their lives. Can you love someone you can never touch? Stella Grant likes to be in control—even though her totally out of control lungs have sent her in and out of the hospital most of her life. At this point, what Stella needs to control most is keeping herself away from anyone or anything that might pass along an infection and jeopardize the possibility of a lung transplant. Six feet apart. No exceptions. The only thing Will Newman wants to be in control of is getting out of this hospital. He couldn’t care less about his treatments, or a fancy new clinical drug trial. Soon, he’ll turn eighteen and then he’ll be able to unplug all these machines and actually go see the world, not just its hospitals. Will’s exactly what Stella needs to stay away from. If he so much as breathes on Stella she could lose her spot on the transplant list. Either one of them could die. The only way to stay alive is to stay apart. But suddenly six feet doesn’t feel like safety. It feels like punishment. What if they could steal back just a little bit of the space their broken lungs have stolen from them? Would five feet apart really be so dangerous if it stops their hearts from breaking too?

Download or read book The Structures of Life written by National Institute of General Medical Sciences (U.S.) and published by NIGMS. This book was released on 1991 with total page 66 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book The Modern Voice of an Irish Immigrant written by Imelda Cummins DeMelkon and published by Strategic Book Publishing. This book was released on 2012-04-09 with total page 275 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Modern Voice of an Irish Immigrant is author Imelda Cummins-DeMelkon?s fascinating account of her experience growing up in Ireland as one of twelve children, and the struggle for autonomy and independence that led to her choice of immigration to the United States.The author speaks honestly of the conflicts she experienced as a child and the overzealous paternal control that dominated her young life. The reader follows the author?s journey as it weaves between her experiences in both countries. Ultimately, The Modern Voice of an Irish Immigrant shows us that through a deep commitment to personal growth, one can indeed emerge whole and able to enjoy a full and complete life.Among the highly interesting topics the book explores are the changing face of the Catholic Church in Ireland and the United States, the uniform wish of immigrants to recreate the best of the culture they left behind, what it is to be a conscientious parent, the reality of ill and aging parents, and finally, the joy of the discovery of a life that is worth the often challenging effort.

Download or read book A Song for Tomorrow written by Alice Peterson and published by Simon and Schuster. This book was released on 2017-02-09 with total page 375 pages. Available in PDF, EPUB and Kindle. Book excerpt: ‘An inspiring, uplifting novel about an extraordinary young woman who refuses to let anything stand in the way of her love and her dream’JULIE COHEN 'A wonderful book about the beautiful Alice Martineau that both inspired meand made me cry uncontrollably when I finished it' SUNDAY TIMES Tom fell in love with Alice the moment he saw her. He realises that being with her will not be easy, but she is a force of nature, a burst of sunlight in his otherwise ordinary world. Some people might look at Alice and think she has everything, but Alice knows she is not like other women. Her life is complicated, unpredictable, difficult. Alice does not like pity. All she wants to do – all she's ever wanted to do – is sing. Alice has been told not to follow her dreams. So has Tom. But when fate has already dealt a tough hand, it’s time to stop listening to everyone else and follow their hearts . . . ‘A heart-wrenching read ... A moving story of an extraordinary young woman and the triumph of her spirit against huge odds’ SUNDAY EXPRESS 'It's impossible to get to the end of this powerful and poignant story without a lump in the throat’ SUNDAY MIRROR ‘An extraordinary story that goes straight to the heart. Alice Peterson celebrates her namesake with great understanding and skill, acknowledging the frailties and strengths, the ambitions and the talent of an amazing young woman’ JANET ELLIS, author of THE BUTCHER'S HOOK 'What a beautiful, passionate story. I couldn’t physically put the book down… I had to keep on reading’ ALICE BEER ‘Touching and vivid… A book that will live on in the hearts of many’ CASILDA GRIGG ‘Brought Alice's soul to life. This book had me in tears, my favourite book of the year' LIZZY WARD THOMAS ‘An emotional, uplifting page-turner, inspired by the true story of the singer, Alice Martineau, that celebrates making every moment in life count, and never giving up’ JO CHARRINGTON, CAPITOL RECORDS 'If you read nothing else this year, please read this book! You won’t regret it' Reading between the pages... (blog)

Download or read book Cystic Fibrosis written by and published by . This book was released on 1962 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: