Download or read book Beyond Myalgic Encephalomyelitis Chronic Fatigue Syndrome written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-16 with total page 251 pages. Available in PDF, EPUB and Kindle. Book excerpt: Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.

Download or read book Myalgic Encephalomyelitis Chronic Fatigue Syndrome written by and published by CRC Press. This book was released on 2003-02-06 with total page 182 pages. Available in PDF, EPUB and Kindle. Book excerpt: An important medical milestone for anyone connected with ME/CFS! Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols includes a clinical definition (clinical diagnostic criteria) for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The clinical case definition was developed by an expert medical consensus panel of treating physicians, teaching faculty and world leaders in the research of ME/CFS. An expert subcommittee of Health Canada established the Terms of Reference for the consensus panel. The definition more adequately reflects the complexity of symptoms of a given patient’s pathogenesis and should establish ME/CFS as a distinct medical entity and help distinguish it from overlapping medical conditions in the absence of a definitive laboratory test. “The clinical definition will enable clinicians to make an early diagnosis which may assist in lessening the impact of ME/CFS in some patients,” said Dr. Bruce M. Carruthers, lead author of the definition. “It will reduce the expensive problem of patients being sent to many specialists before being diagnosed and will allow patients to receive appropriate treatments in a timely fashion.” The panel's clinical case definition determines that more of the prominent symptoms are compulsory and symptoms that share a common region of pathogenesis are grouped together for clarity. In addition to severe prolonged fatigue, the definition includes the hallmark symptoms of post-exertional malaise and/or fatigue, sleep dysfunction, pain, two or more of the given neurological/cognitive manifestations, and at least one of the given symptoms from two of the categories of autonomic, neuroendocrine, and immune manifestations. Diagnostic exclusions and common co-morbid entities are also given. The special issue of the Journal of Chronic Fatigue Syndrome also includes a discussion of prominent symptoms, clinical practice diagnostic and treatment guidelines based on the best available research evidence, and an overview of available research on ME/CFS. The expert panel of 11 physicians—who have diagnosed and/or treated more than 20,000 ME/CFS patients between them—has developed a clinical case definition that provides a flexible conceptual framework based on the characteristic patterns of symptom clusters, which reflect specific areas of pathogenesis. The expert subcommittee of Health Canada selected the expert consensus panel. Authors include: Dr. Bruce M. Carruthers, lead author of the consensus document; co-author of the draft of the original version of the ME/CFS clinical definition, diagnostic and treatment protocols document; internal medicine, Galiano, British Columbia. Dr. Anil Kumar Jain, co-author of the draft the original version of the ME/CFS consensus document, affiliate of Ottawa Hospital, Ontario. Dr. Kenny L. De Meirleir, Professor Physiology and Medicine, Vrije Universiteit Brussel, Brussels, Belgium; ME/CFS researcher and clinician; organizer of the World Congress on Chronic Fatigue Syndrome and Related Disorders; a board member of the American Association for Chronic Fatigue Syndrome; and co-editor of Chronic Fatigue Syndrome: Critical Reviews and Clinical Advances (Haworth) Dr. Daniel L. Peterson, affiliate of the Sierra Internal Medicine Associates in Incline Village, Nevada; ME/CFS researcher and clinician; a board member of the American Association for Chronic Fatigue Syndrome; and member of the International Chronic Fatigue Syndrome Study Group Dr. Nancy G. Klimas, Clinical Professor of Medicine in Microbiology/Immunology/Allergy and Psychology, University of Miami School of Medicine; ME/CFS researcher and clinician; a board member of the American Association for Chronic Fatigue Syndrome; and member of the federal CFS Coordinating Committee Dr. A. Martin Lerner, staff physician at William Beaumont Hospital in Royal Oak, Michigan; Clinical professor and former chief of the Division of Infectious Diseases at Wayne State University's School of Medicine; and ME/CFS researcher and clinician Dr. Alison C. Bested, haematological pathologist; former head of the Division of Haematology and Immunology at the Toronto East General and Orthopaedic Hospital; affiliate of the Environmental Health Clinic and Sunnybrook & Women's College Health Sciences Centre, Toronto, Ontario; ME/CFS researcher and clinician Dr. Pierre Flor-Henry, Clinical Professor of Psychiatry, University of Alberta; Clinical Director of General Psychiatry and Director of the Clinical Diagnostic and Research Centre, both based at Alberta Hospital in Edmonton, Alberta, Canada; ME/CFS brain researcher Dr. Pradip Joshi, internal medicine, Clinical Associate Professor of Medicine at Memorial University of Newfoundland in St. John's, Canada Dr. A. C. Peter Powles, Professor Emeritus, Faculty of Health Science, McMasters University, Hamilton; Professor, Faculty of Medicine, University of Toronto; Chief of Medicine and Sleep Disorders Consultant, St. Joseph's Health Centre, Toronto; Sleep Disorder Consultant at the Sleep Disorder Clinic at St. Joseph's Healthcare, Hamilton, and Central West Sleep Affiliation, Paris, Ontario Dr. Jeffrey A. Sherkey, family medicine, affiliate of the University Health Network, Toronto, Ontario; and diagnosed with chronic fatigue syndrome nearly 10 years ago Marjorie I. van de Sande, Consensus Coordinator; and Director of Education for the National ME/FM Action Network, Canada Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols also addresses diagnostic exclusions and common co-morbid entities. This groundbreaking book is must reading for anyone connected with the disease—personally or professionally.

Download or read book Pediatric Chronic Fatigue Syndrome written by Kenny De Meirleir and published by CRC Press. This book was released on 2007-02-07 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Help young CFS sufferers cope with this debilitating illness Chronic Fatigue Syndrome (CFS) is a debilitating illness that can have devastating effects for those afflicted, especially children and adolescents. Pediatric Chronic Fatigue Syndrome discusses this growing problem and its many facets in depth, including the mounting prevalence of incidents in the population and detailed explanations of diagnostic criteria. Case studies are provided to illustrate the issues those afflicted with CFS face, such as increasing isolation, decreasing school attendance, the length of time it typically takes to get diagnosed, and the impact on leisure activities. Current criteria for CFS were designed for use in adults, with few studies done on assessing how appropriate these criteria are for children and adolescents. Pediatric Chronic Fatigue Syndrome provides the criteria for first-time diagnosis of pediatric CFS and includes practical recommendations developed by the International Association of Chronic Fatigue Syndrome Pediatric Case Definition Working Group. This book closely examines the potential impact that Chronic Fatigue Syndrome has on child and adolescent functioning, psychological factors, social factors, and the suffering endured from symptoms. Guidelines are provided on ways ME-CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) can be addressed in primary practice. Topics in Pediatric Chronic Fatigue Syndrome include: ME/CFS CACFS (Chronic Fatigues Syndrome in Children and Adolescents) the common problem of Munchausen-by-proxy research on the psychosocial, family, and physical functioning comparing children and adolescents with CFS and those without CFS using theory in clinical practice guidelines on how ME/CFS can be addressed in primary practice overview of CFS aspects for healthcare professionals who may be called on to diagnose or treat the illness and more Pediatric Chronic Fatigue Syndrome is timely, important information for health professionals, researchers, counselors, caregivers, parents of children and adolescents with CFS, and patients with CFS.

Download or read book Chronic Fatigue Syndrome written by Patrick Englebienne and published by CRC Press. This book was released on 2002-02-27 with total page 317 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronic Fatigue Syndrome (CFS) is a complex, debilitating disorder, yet few current scientific biomedical books are available on the subject. The nonspecific symptoms, lack of diagnostic tests, and uncertainty as to the cause or causes of CFS make the disease that much more baffling. Chronic Fatigue Syndrome: A Biological Approach represents a monu

Download or read book What Nurses Know Chronic Fatigue Syndrome written by Lorraine Steefel, RN, MSN, DNP, CTN and published by Demos Medical Publishing. This book was released on 2011-09-15 with total page 186 pages. Available in PDF, EPUB and Kindle. Book excerpt: Live the best quality of life possible with this expert guide to chronic fatigue syndrome (CFS) CFS is not ìall in your head.î Written by a registered nurse and parent of a child with chronic fatigue, What Nurses Know: Chronic Fatigue Syndrome provides compassionate support and practical strategies for living well with this challenging and often unpredictable chronic illness. Using information drawn from research and reputable sources as well as insight from people dealing with CFS, Lorraine Steefel, RN, provides options for coping physically and emotionally so that you can move forward with your life. Youíll learn: What CFS is and how it effects your body How to find the right doctor and a supportive health care team The variety of available treatment options, from analgesics to complementary and alternative therapies Evidence-based advice on the best sleep, nutrition, and lifestyle practices to avoid flare-ups Tips for dealing with postexertional malaise (PEM), brain fog, and other symptoms How to cope when things get tough Packed with tips, tools, and resources, this user-friendly guide puts you on the road to recovery and is an essential resource for caregivers and loved ones. About the Series Nurses constantly straddle the line between the world of medicine and the patientís experience. This series offers down-to-earth, evidence-based advice from expert nurses who offer straightforward and practical guidance for dealing with all kinds of medical conditions.

Download or read book Strategies written by Tami Brady and published by Loving Healing Press. This book was released on 2008-01-01 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: A sufferer of both Chronic Fatigue Syndrome and Fibromyalgia, the author shares her personal experiences to help readers tailor their responses to symptoms and crisises.

Download or read book The Puzzle Solver written by Tracie White and published by Legacy Lit. This book was released on 2021-01-05 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Father, His Son, and an Unrelenting Quest for a Cure At the age of twenty-seven, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. Finally, even the sound of a footstep in his room became unbearable. The Puzzle Solver follows several years in which he desperately sought answers from specialist after specialist, where at one point his 6'3" frame dropped to 115 lbs. For years, he underwent endless medical tests, but doctors told him there was nothing wrong. Then, finally, a diagnosis: Chronic Fatigue Syndrome, also known as myalgic encephalomyelitis. In the 80s, when an outbreak of people immobilized by an indescribable fatigue were reported near Lake Tahoe, Nevada, doctors were at a loss to explain the symptoms. The condition would alternatively be nicknamed Raggedy Ann Syndrome or the Yuppie Disease, and there was no cure or answers about treatment. They were to remain sick. But there was one answer: Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition. In The Puzzle Solver, journalist Tracie White, who first wrote a viral and award-winning piece on Davis and his family in Stanford Medicine, tells his story. In gripping prose, she masterfully takes readers along on this journey with Davis to solve one of the greatest mysteries in medicine. In a piercing investigative narrative, closed doors are opened, and masked truths are exposed as Davis uncovers new proof confirming that Chronic Fatigue Syndrome is a biological disease. At the heart of this book is a moving story that goes far beyond medicine, this is a story about how the power of love -- and science -- can shine light in even the darkest, most hidden, corners of the world.

Download or read book Chronic Fatigue Syndrome written by Frankie Campling and published by OUP Oxford. This book was released on 2008-07-02 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronic fatigue syndrome (CFS) remains one of the most controversial illnesses, both in terms of its causes, and the best ways to treat the illness. For years, sufferers have had to deal with scepticism from their families, employers, and even health care professionals. The vast amount of conflicting advice that has been published up to now has served only to confuse sufferers, and professionals, even more. Chronic Fatigue Syndrome: The Facts presents a compassionate guide to this illness, providing sufferers and their families, with practical advice, based solely on scientific evidence. It is unique in being written by both a sufferer and a physician, both of whom have had extensive experience of talking to, and helping, patients. Included in the book is a detailed guide to self-help, written from a patient's perspective, but evidence-based. The book also deals with a number of special issues, advising on how to choose therapies and therapists, and how to deal with CFS in children. The book additionally includes an overview of the history of the illness, looking at the nature and causes of CFS, and the opportunities for the future. The book will be invaluable for sufferers from CFS, their friends and families, and the numerous health professionals who come into contact with sufferers from this illness.

Download or read book Biomedical Insights that Inform the Diagnosis of ME CFS written by Brett A. Lidbury and published by MDPI. This book was released on 2020-03-16 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a severe chronic health condition that is often misunderstood or ignored by health establishments. The lack of definitive diagnostic markers to separate ME/CFS patients from the healthy population as well as from other chronic disorders is problematic for both health professionals and researchers. A consortium of Australian researchers gathered to systematically understand ME/CFS, ranging from a deep analysis of clinical and pathology data to metabolomic profiles and the investigation of mitochondrial function. From this broad collaboration, a number of compelling insights have arisen that may form the basis of specific serum, blood, and/or urinary biomarkers of ME/CFS. This Special Edition reports on a conference centred on these biomedical discoveries, with other contributions, with a translation focus for predictive markers for ME/CFS diagnosis. By supporting health professionals with developments in diagnostics for this condition, the patients and their families will hopefully benefit from an improved recognition of the biomedical underpinnings of the condition and will be better able to access the care that is urgently required. This Special Edition contains a mix of speaker submissions and other accepted manuscripts that contributed to our objective of advancing biomedical insights to enable the accurate diagnosis of ME/CFS.

Download or read book Your Symptoms Are Real written by Benjamin H. Natelson, MD and published by Wiley. This book was released on 2007-09-24 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: Praise for Your Symptoms Are Real "Thank God for this book. It provides the help that millions of Americans with 'silent illnesses' like chronic fatigue and fibromyalgia have been waiting for. Dr. Natelson is a brilliant and compassionate clinician who covers the best treatments that medical science has to offer, along with a thorough consideration of complementary approaches. Short of cloning him, this book offers the specific help you need to work in partnership with your own physician." --Joan Borysenko, Ph.D., author of Minding the Body, Mending the Mind "Natelson is the kind of doctor every patient is looking for: smart, thoughtful, empathetic, and supportive. Reading Your Symptoms Are Real is the next best thing to having a world-renowned specialist managing your case." --Charles W. Lapp, M.D., Director of the Hunter-Hopkins Center and Assistant Consulting Professor at Duke University Medical Center "Do not throw up your hands and give up when one doctor after another tells you there is nothing wrong with you--instead, read this book! Benjamin Natelson is the person you have been looking for to guide you on your path to recovery." --Sandra Blakeslee, coauthor of The Body Has a Mind of Its Own "Natelson superbly incorporates research studies, clinical trials (even on drugs in development), and patient case reports in this book. If you are battling pain and fatigue symptoms but your tests are all normal, you will enjoy reading Natelson's pro-patient approach to explaining the real nature of your illness, his recommended treatment approaches, and how to cope with everything that is going on in your life." --Kristin Thorson, editor of the Fibromyalgia Network and President of the American Fibromyalgia Syndrome Association

Download or read book Chronic Fatigue Syndrome Me and Fibromyalgia the Long Awaited Cure written by David Mickel and published by Authors On Line Ltd. This book was released on 2004 with total page 80 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of this book is for David Mickel to share his findings in threating the conditions of chronic fatigue syndrome, ME and fibromyalgia. Includes testimonials from patients.

Download or read book Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis written by Sarah Myhill and published by Chelsea Green Publishing. This book was released on 2018 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Original edition published in 2017 by Hammersmith Books, London, United Kingdom"--T.p. verso.

Download or read book Chronic Fatigue Syndrome ME written by Elizabeth Turp and published by Jessica Kingsley Publishers. This book was released on 2011-04-15 with total page 243 pages. Available in PDF, EPUB and Kindle. Book excerpt: People with Chronic Fatigue Syndrome (CFS)/ME experience extreme tiredness and a range of other symptoms, including pain, headaches, impaired concentration and memory, anxiety, sleep problems, and palpitations. The condition can affect all areas of a sufferer's life and, in turn, the lives of those who are close to them. This book provides the families and friends of people with CFS/ME with an accessible introduction to the condition, and explains what can be done to support those who have it. It offers useful advice on how to help a loved one cope with the illness, and suggests ways to help them with everyday issues such as personal hygeine, nutrition, finances, and relationships. Recognising that coping with the impact of CFS/ME can be just as difficult for the relatives and friends of those with the condition, it addresses the emotional, social, and practical aspects of having a loved one with CFS/ME, explains how to understand the changes in their relationship with the sufferer, how to manage stress, and where to go for further help and support. The book also includes detailed case studies and practical advice from a wide range of people with mild, moderate, and severe CFS/ME, and their loved ones. This book offers much-needed information and support to the friends, families, and carers of people with CFS/ME. It will also be a useful resource for health professionals who wish to deepen their understanding of CFS/ME, including home helps, care staff, counsellors, therapists, doctors, and nurses.

Download or read book I Have Fibromyalgia Chronic Fatigue Syndrome But It Doesn t Have Me a Memoir written by Chantal K. Hoey-Sanders and published by . This book was released on 2011 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt: You are not alone, you can change your life and reverse this highly frustrating, emotionally confusing, very often unrecognized "invisible" illness, Fibromyalgia and Chronic Fatigue Syndrome. Chantal's book will bring you hope, insightful tips and positive results.

Download or read book The Fatigue and Fibromyalgia Solution written by Jacob Teitelbaum M.D. and published by Penguin. This book was released on 2013-08-06 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: The nation’s leading expert on chronic fatigue and fibromyalgia offers a practical and concise guide to restoring health and energy. Millions of Americans have turned to Dr. Jacob Teitelbaum’s landmark From Fatigued to Fantastic, the all-time best-selling book on combating disabling fatigue and fibromyalgia. Now, The Fatigue and Fibromyalgia Solution provides the most cutting-edge research and scientific information, offering the latest advances in treating chronic fatigue syndrome, fibromyalgia, and the baffling, often dismissed symptoms associated with these debilitating conditions. From the best strategies for using medications and nutritional supplements to the most recent alternative therapies and recommendations for lifestyle modifications, The Fatigue and Fibromyalgia Solution delivers extensive wisdom in a condensed volume, making it truly accessible. Dr. Teitelbaum also presents the simple-to-apply SHINE Protocol, addressing Sleep, Hormonal support, Infections, Nutritional support and Exercise. Helping all readers develop an individualized program, Dr. Teitelbaum has created a new lifeline for anyone seeking compassionate, proven approaches for restoring wellness and regaining optimal energy and vitality.

Download or read book ME CFS PVFS written by Dr. Charles Shepherd and published by . This book was released on 2018 with total page 147 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Joyful Recovery from Chronic Fatigue Syndrome Me written by Sasha Allenby and published by Strategic Book Publishing. This book was released on 2008-07 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drawing on cutting-edge science, this empowering book teaches solution-focused approaches to overcoming Chronic Fatigue Syndrome and Myalgic Encephalomyelitis through world-renowned Emotional Freedom Techniques.