Download or read book Writing the Self in Illness written by Amala Poli and published by Manipal Universal Press. This book was released on 2019-09-01 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: Writing the Self in Illness: Reading the Experiential Through the Medical Memoir is MUP’s refreshing venture into the developing fields of Medical and Health Humanities with an aim to consider the necessity of the narrative knowledge as complementary to the contemporary notions of well-being, illness, and healthcare. Is individual happiness contingent on health and well-being? How does one find happiness in the throes of illness? In the present-day scenario, wherein medical practice is largely dominated by evidence-based understanding, diagnostic language, and problem-solving methods, the discipline of Medical Humanities emerges with a reciprocal dialogue between Humanities, Social Sciences, Health, and Medicine. The study of varied experiential narratives – literary works and unmediated accounts of patients and healthcare professionals, is foregrounded in Medical Humanities to amplify knowledge and understanding about the complexity of encounters with illness and their transformational quality in a nuanced manner. Both thought-provoking and informative, this publication brings about the anecdotal form of personal narratives in the light of medical discourses along with the specific cultural context of the narrative. The present publication seeks to be an important reading for students and academics in the field of medical humanities, health professionals or medical practitioners, as well as scholars aspiring to venture into this flourishing field.
Download or read book The Invisible Kingdom written by Meghan O'Rourke and published by Penguin. This book was released on 2022-03-01 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
Download or read book Pain Woman Takes Your Keys and Other Essays from a Nervous System written by Sonya Huber and published by U of Nebraska Press. This book was released on 2017 with total page 206 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rate your pain on a scale of one to ten. What about on a scale of spicy to citrus? Is it more like a lava lamp or a mosaic? Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is not a record of the author's specific condition but an exploration that transcends pain's airless and constraining world and focuses on its edges from wild and widely ranging angles. Huber addresses the nature and experience of invisible disability, including the challenges of gender bias in our health care system, the search for effective treatment options, and the difficulty of articulating chronic pain. She makes pain a lens of inquiry and lyricism, finds its humor and complexity, describes its irascible character, and explores its temperature, taste, and even its beauty.
Download or read book The Wounded Storyteller written by Arthur W. Frank and published by University of Chicago Press. This book was released on 2013-10-18 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Updated second edition: “A bold and imaginative book which moves our thinking about narratives of illness in new directions.” —Sociology of Heath and Illness Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. A collective portrait of a so-called “remission society” of those who suffer from illness or disability, as well as a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory. Drawing on the work of such authors as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner’s battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilities. Their stories are more than accounts of personal suffering: They abound with moral choices and point to a social ethic. In this new edition Frank adds a preface describing the personal and cultural times when the first edition was written. His new afterword extends the book’s argument significantly, discussing storytelling and experience, other modes of illness narration, and a version of hope that is both realistic and aspirational. Reflecting on his own life during the creation of the first edition and the conclusions of the book itself, he reminds us of the power of storytelling as way to understand our own suffering. “Arthur W. Frank’s second edition of The Wounded Storyteller provides instructions for use of this now-classic text in the study of illness narratives.” —Rita Charon, author of Narrative Medicine “Frank sees the value of illness narratives not so much in solving clinical conundrums as in addressing the question of how to live a good life.” —Christianity Today
Download or read book The Wounded Self written by Nina Schmidt and published by Boydell & Brewer. This book was released on 2018 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: Takes the recent wave of German autobiographical writing on illness and disability seriously as literature, demonstrating the value of a literary disability studies approach.
Download or read book Good Days Bad Days written by Kathy Charmaz and published by Rutgers University Press. This book was released on 1991 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: Describing how chronic illness affects one's self-image, friends, and family, this book shares the experiences of people with serious chronic illnesses, and shows how they find the strength to carry on.
Download or read book Through the Shadowlands written by Julie Rehmeyer and published by Rodale Books. This book was released on 2017-05-23 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: Julie Rehmeyer felt like she was going to the desert to die. Julie fully expected to be breathing at the end of the trip—but driving into Death Valley felt like giving up, surrendering. She’d spent years battling a mysterious illness so extreme that she often couldn’t turn over in her bed. The top specialists in the world were powerless to help, and research on her disease, chronic fatigue syndrome, was at a near standstill. Having exhausted the plausible ideas, Julie turned to an implausible one. Going against both her instincts and her training as a science journalist and mathematician, she followed the advice of strangers she’d met on the Internet. Their theory—that mold in her home and possessions was making her sick—struck her as wacky pseudoscience. But they had recovered from chronic fatigue syndrome as severe as hers. To test the theory that toxic mold was making her sick, Julie drove into the desert alone, leaving behind everything she owned. She wasn’t even certain she was well enough to take care of herself once she was there. She felt stripped not only of the life she’d known, but any future she could imagine. With only her scientific savvy, investigative journalism skills, and dog, Frances, to rely on, Julie carved out her own path to wellness—and uncovered how shocking scientific neglect and misconduct had forced her and millions of others to go it alone. In stunning prose, she describes how her illness transformed her understanding of science, medicine, and spirituality. Through the Shadowlands brings scientific authority to a misunderstood disease and spins an incredible and compelling story of tenacity, resourcefulness, acceptance, and love.
Download or read book Writing the Self in Bereavement written by Reinekke Lengelle and published by Routledge. This book was released on 2021-01-07 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: Winner, ICQI 2022 Outstanding Qualitative Book Award In Writing the Self in Bereavement: A Story of Love, Spousal Loss, and Resilience, Reinekke Lengelle uses her abilities as a researcher, poet, and professor of therapeutic writing to tell a heartfelt and fearless story about her grief after the death of her spouse and the year and a half following his diagnosis, illness, and passing. This book powerfully demonstrates that writing can be a companion in bereavement. It uses and explains the latest research on coming to terms with spousal loss without being prescriptive. Integrated with this contemporary research are stories, poetry, and reflections on writing as a therapeutic process. The author unflinchingly explores a number of themes that are underrepresented in existing resources: how one deals with anger associated with loss, what a healthy response might be to unfinished business with the deceased, continuing conversations with the beloved (even for agnostics and atheists), ongoing sexual desire, and secondary losses. As a rare book where an author successfully combines a personal story, heart-rending poetry, up-to-date research on grief, and an evocative exploration of taboo topics in the context of widowhood, Writing the Self in Bereavement is uniquely valuable for those grieving a spouse or other loved one, those supporting others in bereavement, and those interested in the healing power of poetry and life writing. Researchers on death and dying, grief counsellors, and autoethnographers will also benefit from reading this resonant resource on love and loss.
Download or read book The Illness Narratives written by Arthur Kleinman and published by Basic Books. This book was released on 2020-10-13 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: From one of America's most celebrated psychiatrists, the book that has taught generations of healers why healing the sick is about more than just diagnosing their illness. Modern medicine treats sick patients like broken machines -- figure out what is physically wrong, fix it, and send the patient on their way. But humans are not machines. When we are ill, we experience our illness: we become scared, distressed, tired, weary. Our illnesses are not just biological conditions, but human ones. It was Arthur Kleinman, a Harvard psychiatrist and anthropologist, who saw this truth when most of his fellow doctors did not. Based on decades of clinical experience studying and treating chronic illness, The Illness Narratives makes a case for interpreting the illness experience of patients as a core feature of doctoring. Before Being Mortal, there was The Illness Narratives. It remains today a prescient and passionate case for bridging the gap between patient and practitioner.
Download or read book The Self in Health and Illness written by Frances Rapport and published by CRC Press. This book was released on 2018-10-08 with total page 295 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book contains a foreword by Elliot G Mishler - professor of Social Psychology, Department of Psychiatry, Harvard Medical School. Patients' views of their identity change with illness, as do health professionals' views of them. This book discusses how and why this happens, and examines how more awareness of this phenomenon can lead to better care. Providing examples from diverse clinical settings, "The Self in Health and Illness" brings together writers from a range of backgrounds including health science, anthropology, sociology, psychology, nursing, medical ethics and healthcare. It considers the narrative self (or constructions of identity) and its place within healthcare and the medical humanities, and assists in clarifying the understanding of 'self' in the context of illness, health and medicine. An enlightening read for all doctors, especially those with an interest in medical humanities, this anthology is also invaluable for undergraduate and postgraduate students of medical humanities, researchers in health sciences and medical ethics. It will also be of great interest to medical anthropologists, psychologists, psychiatrists and other healthcare professionals. 'If you ask people questions about their lives they tell stories that express some version of "who" they are. Within the healthcare field, narrative researchers from various health professions and social science disciplines have been particularly interested in the potential impact of disability and illness on patient identities. What we find here is an array of quite systematic approaches to the complexities with which people narrate, perform, and possibly transform their identities through their stories. This is a serious undertaking and the editors and authors of these papers treat it with deep respect for our common struggle to make sense of our lives by achieving identities we can live with.' - Elliot G Mishler, in the Foreword.
Download or read book How to Be Sick written by Toni Bernhard and published by Simon and Schuster. This book was released on 2010-05-10 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: This life-affirming, instructive, and thoroughly inspiring book is a must-read for anyone who is - or who might one day be - sick. It can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or life-threatening illness. Authentic and graceful, How to be Sick reminds us of our limitless inner freedom, even under high degrees of suffering and pain. The author - who became ill while a university law professor in the prime of her career - tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice - and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. And whether we ourselves are ill or not, we can learn these vital arts from Bernhard's generous wisdom in How to Be Sick.
Download or read book What Doesn t Kill You written by Tessa Miller and published by Henry Holt and Company. This book was released on 2021-02-02 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Should be read by anyone with a body. . . . Relentlessly researched and undeniably smart." —The New York Times Named one of BuzzFeed's "Best Books of 2021" What Doesn't Kill You is the riveting account of a young journalist’s awakening to chronic illness, weaving together personal story and reporting to shed light on living with an ailment forever. Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a years-long nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better. Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications. Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.
Download or read book The Collected Schizophrenias written by Esmé Weijun Wang and published by Penguin UK. This book was released on 2019-06-27 with total page 175 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Dazzling ... in her kaleidoscopic essays, memoir has been shattered into sliding and overlapping pieces ... mind-expanding' The New York Times Book Review Esmé Weijun Wang was officially diagnosed with schizoaffective disorder in 2013, although the hallucinations and psychotic episodes had started years before that. In the midst of a high functioning life at Yale, Stanford and the literary world, she would find herself floored by an overwhelming terror that 'spread like blood', or convinced that she was dead, or that her friends were robots, or spiders were eating holes in her brain. What happens when your whole conception of yourself is turned upside down? When you're aware of what is occurring to you, but unable to do anything about it? Written with immediacy and unflinching honesty, this visceral and moving book is Wang's story, as she steps both inside and outside of her condition to bring it to light. Following her own diagnosis and the many manifestations of schizophrenia in her life, she ranges over everything from how we label mental illness to her own use of fashion and make-up to present herself as high-functioning, from the failures of the higher education system to how factors such as PTSD and Lyme disease compounded her experiences. Wang's analytical, intelligent eye, honed as a former lab researcher at Stanford, allows her to balance research with haunting personal narrative. The Collected Schizophrenias cuts right to the core and provides unique insight into a condition long misdiagnosed and much misunderstood.
Download or read book Finding Freedom in Illness written by Peter Fernando and published by Shambhala Publications. This book was released on 2016-03-15 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: Buddhist wisdom for finding freedom and insight through spiritual practice in the midst of illness and pain. "Let your illness be your spiritual teacher!" Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eyeroll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's been there himself and because he backs up the statements with his own real experiences and with real wisdom from the Buddhist teachings. Peter starts by defusing the pernicious belief that anyone is somehow responsible for their illness: You're not "wrong" for being sick. Then, having gotten past self-blame, one can begin to learn self-kindness. From there, one moves to mindfulness practices and cultivating body awareness--even if body awareness is distasteful when the body isn't behaving the way you like. Further topics include getting intimate with dark emotions (fear, despair, the scary future, frustration, grief, etc.), learning equanimity (rejoicing in the good fortune of those who don't share your suffering), cultivating healthy relationships in the midst of everything, and practical advice for living with pain. Each chapter comes with one or more practices or guided meditations for putting the teachings into practice.
Download or read book Teach Us to Sit Still written by Tim Parks and published by Rodale. This book was released on 2012-07-03 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Teach Us to Sit Still is the visceral, thought-provoking, and inexplicably entertaining story of how Tim Parks found himself in serious pain, how doctors failed to help, and the quest he took to find his own way out. Overwhelmed by a crippling conditionwhich nobody could explain or relieve, Parks follows a fruitless journey through the conventional medical system only to find relief in the most unexpected place: a breathing exercise that eventually leads him to take up meditation. This was the very last place Parks anticipated finding answers; he was about as far from New Age as you can get. As everything that he once held true is called into question, Parks confronts the relationship between his mind and body, the hectic modern world that seems to demand all our focus, and his chosen life as an intellectual and writer. He is drawn to consider the effects of illness on the work of other writers, the role of religion in shaping our sense of self, and the influence of sports and art on our attitudes toward health and well-being. Most of us will fall ill at some point; few will describe that journey with the same verve, insight, and radiant intelligence as Tim Parks"--Provided by publisher.
Download or read book Writing Your Self written by Myra Schneider and published by A&C Black. This book was released on 2010-01-07 with total page 271 pages. Available in PDF, EPUB and Kindle. Book excerpt: A complete resource for life writing - one of the key genres studied within creative writing. >
Download or read book On Being Ill written by Virginia Woolf and published by Wesleyan University Press. This book was released on 2012-11-06 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Virginia Woolf’s daring essay on how illness transforms our perception, plus an essay by Woolf’s mother from the caregiver’s perspective: “Revelatory.” —Booklist This new publication of “On Being Ill” with “Notes from Sick Rooms” presents Virginia Woolf and her mother, Julia Stephen, in textual conversation for the first time in literary history. In the poignant and humorous essay “On Being Ill,” Woolf observes that though illness is part of every human being’s experience, it is not celebrated as a subject of great literature in the way that love and war are embraced by writers and readers. We must, Woolf says, invent a new language to describe pain. Illness, she observes, enhances our perceptions and reduces self-consciousness; it is “the great confessional.” Woolf discusses the taboos associated with illness, and she explores how it changes our relationship to the world around us. “Notes from Sick Rooms,” meanwhile, addresses illness from the caregiver’s perspective. With clarity, humor, and pathos, Julia Stephen offers concrete information that remains useful to nurses and caregivers today. This edition also includes an introduction to “Notes from Sick Rooms” by Mark Hussey, founding editor of Woolf Studies Annual, and a poignant afterword by Rita Charon, MD, founder of the field of Narrative Medicine. In addition, Hermione Lee’s brilliant introduction to “On Being Ill” offers a superb overview of Woolf’s life and writing. “Woolf’s inquiry into illness and its impact on the mind is paired with her mother’s observations about caring for the body. Julia Stephen . . . had no professional training but took to heart Florence Nightingale’s precept that every woman is a nurse and emulated Nightingale’s best-selling Notes on Nursing with her own “Notes from Sick Rooms.” In this long-overlooked, precise, and piquant little manual, Stephen is compassionate and ironic, observing that everyone deserves to be tenderly nursed while addressing the small evil of crumbs in bed. This unprecedented literary reunion of mother and daughter is stunning on many fronts, but physician and literary scholar Rita Charon focuses on the essentials in her astute afterword, writing that Woolf’s perspective as a patient and Stephen’s as a nurse together illuminate the goal of care—to listen, to recognize, to imagine, to honor.” —Booklist “Woolf and Stephen will certainly change the way readers think of illness.” —Publishers Weekly
