Download or read book Courage to Care written by Joanne Parrent and published by . This book was released on 2001 with total page 364 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's disease is often referred to as a family disease because of the constant emotional strain it places on family members as they watch their loved ones slowly slip away. But for those left with caring for their loved ones, the emotional, physical, and financial toll can be enormous so much so that most caregivers fail to take care of themselves and become depressed, ill and unable to continue their role as caregiver. Courage to Care: A Caregiver's Companion Through the Stages of Alzheimer's helps to ease the burden of those who have accepted this labor of love by providing them with knowledge and coping strategies to make it through each stage of this progressive and complicated disease. The book focuses not only on how to deal with the emotional issues associated with the disease, but provides specific advice on how to make life easier and more enjoyable for both the loved one and the caregiver.
Download or read book When Caring Takes Courage written by Mara Botonis and published by . This book was released on 2014-05-12 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Caring Takes Courage Professional caregivers have long had several choices when it comes to dementia care training resources and, likewise, family members could learn from other at-home non-professional caregivers. When Caring Takes Courage is unique in that it culls best practices from both groups and arranges them into an understandable go-to reference. When Caring Takes Courage follows the path of Alzheimer s disease from its onset, what the disease is and how to seek preliminary diagnosis, all the way to hospice care and all that happens in between. The book includes tips to help with everyday challenges such as bathing, toileting, managing medications and dealing with difficult behaviors. Readers will gain access to customizable tools such as: The Alzheimer s and Dementia Symptom Tracker, Alzheimer s Care Needs Calculator, Affording Alzheimer s Care in Today s Economy Worksheet, Alzheimer s at Home Weekly Care Planner and more. When Caring Takes Courage is intended to be USED not just simply READ, striving to serve Alzheimer s and Dementia caregivers as a constant companion on what can, at times, feel like a lonely journey. Helping caregivers impacted by the disease create better, brighter days with their loved ones. "
Download or read book Where s My Shoes written by Brenda Avadian and published by 1st Impression Publishing. This book was released on 2005 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explains the history of the rodeo, important rodeo figures, and different kinds of rodeos.
Download or read book Voices of Alzheimer s written by Healing Project and published by LaChance Publishing LLC. This book was released on 2007 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offers more than fifty true stories of lives being transformed by Alzheimer's, featuring essays written by patients, family, friends, spouses, and caregivers that have been touched by the disease.
Download or read book I Love You Who Are You written by Along The Way Press and published by . This book was released on 2011-10-27 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book In the Lingering Light written by Cynthia Fantasia and published by NavPress. This book was released on 2019-07-09 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer’s is a particularly cruel disease. It robs us of the people we love—slowly, subtly, but unrelentingly. Our love for them is tested as their needs increase and their recall decreases, and our own needs suffer neglect as more and more of our time and attention is given to our loved one. Cynthia Fantasia is a caregiver. In this deeply understanding and empowering work she walks you through the landscape of caregiving—for your loved one and for yourself. She introduces you to friends and fellow travelers who offer their own words of empathy and insight. And she slowly, subtly, but unrelentingly empowers you to live well as you care for your loved one in the lingering light.
Download or read book My Two Elaines written by Martin J Schreiber and published by Harper Horizon. This book was released on 2022-06-13 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can’t remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children. One part love story, one part practical advice, this compelling book includes several unique elements: Excerpts from Elaine’s journal, recounting her thoughts, concerns, and frustrations as the disease progresses A recurring feature called “What I Wish I’d Known,” which provides helpful takeaways for caregivers based on Marty’s observations about what he wishes he’d known sooner and done differently A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this disease--spouse, child, friend, or family member.
Download or read book Between Two Worlds written by Ellen P. Young and published by Prometheus Books. This book was released on 2010-08-25 with total page 207 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the first book to explore, through personal accounts and vignettes, the rare moments of humor that unexpectedly pop up during the caregiving of people suffering from Alzheimer''s and related dementia. Young brings the courageous experiences of care providers and relatives to life as they encounter the challenges of dealing with these seriously afflicted patients. At the same time she reveals the touching and gently humorous moments that go a long way to ease the tension and pain. While respectful of the plight of affected families and patients, Young gathers a timeless collection of "fear busters" that "access mirth" with touching chapters such as "Please Don''t Eat the Marigold," and "I''ve Just Found Out I''m in Baltimore." "By staring the Alzheimer''s monster down and even laughing a little in the face of it," Young says, "we bolster our courage and release the chemicals (endorphins) in ourselves to gain a sense of well-being in the face of adversity." A must for all caregivers and families, this is truly a book that, once started, cannot be put down.
Download or read book My Bert Has Alzheimer s written by Paula de Ronde and published by FriesenPress. This book was released on 2022-01-26 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: My Bert Has Alzheimer’s is an intimate, detailed account of a wife’s experience with her husband’s dementia. As Paula de Ronde quickly learned, life for two people — patient and caregiver - is thrown into disarray with a diagnosis of Alzheimer’s. Ambushed by the disease, it is a journey into the unknown, but one that features an abundance of love, hope, and support. There is no shying away from the horror of the disease, but its awfulness doesn’t strip from the experience of the powerful companions that accompany those enduring it — namely, love, laughter, and community. Thrust into the caregiver role for her other half who used to be her equal and best buddy, making all kinds of decisions together, Paula now enters a new world of uncertainty and chaos. There is no roadmap. Instead she learns that the disease is as individual as each person who contracts it. Here is a caregiver’s poignant and revealing story of the mental, physical, and emotional stress of caring for the love of her life, her Bert, as he gives over to his neurological disease. The caregiver’s life is far from easy. Yet fueled by love, which never wanes, each step of the way is handled with grace and the help of care partners. Alzheimer’s steals memories but also gives teaching moments. As the disease progresses Paula learns to be more tolerant, patient, compassionate and accepting of human frailties. Alzheimer’s releases an inner strength. She meets each challenge, finds a solution to each issue that arises, then passes on her new-found knowledge to others. She learns the value of having a support group. Alzheimer’s cements the old adage that laughter is the best medicine. Together she and her Bert become stronger than the disease. With humour, compassion, wisdom, and deep feeling, she describes this slice of their conjoined lives. More than a record of the impact of a disease this is, at its essence, also a love story.
Download or read book Dementia Reimagined written by Tia Powell and published by Avery. This book was released on 2019 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: The cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
Download or read book Caring for a Husband with Dementia written by Angela G. Gentile and published by Createspace Independent Publishing Platform. This book was released on 2015-03-17 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: A dementia diagnosis can frighten and devastate all who are affected. When a husband is diagnosed with dementia, his wife is at risk of becoming the "hidden patient." Sometimes the responsibilities of caring for a husband with dementia causes stress leading to caregiver burnout. Caregiving wives may feel trapped, obligated or compelled to go it alone at the expense of their own well-being. Others find many rewards in caring and give of themselves to a fault - "until death do us part." Asking for help can be difficult for caregivers, for many reasons. Gaining knowledge about dementia and its emotional impacts can provide comfort and improve confidence. Practical tips and solutions can offer hope in challenging situations. This survival guide and workbook is a vital companion for caregivers. You will refer to "Caring for a Husband with Dementia" often on your caregiving journey.
Download or read book The Language of Time written by Ashley Bendiksen and published by . This book was released on 2020-06-12 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: "My mother developed Alzheimer's at just 48. It didn't make any sense. Worse, there was no cure and no timeline. I became a caregiver overnight, endlessly aware of a heartbreaking new reality - tomorrow was no longer guaranteed. I needed to somehow slow down time, to find answers, to create a miracle (while still managing my own life as a woman in my 20s). At the very least, I had to do my best to capture it all before time ran out - archiving memories and learning all I could about courage, how to live, and how to love." Combining journal entries with transcribed conversations and emotive storytelling, The Language of Time is a real and honest expression of one daughter's sudden and unplanned journey as caregiver. It's a story of hope, strength, courage, and the unbreakable bond between a daughter and her mom. It's a story of womanhood, without the guidance of a mother. And it's a poignant reminder of the ever-passing moments of time with those we love. The Language of Time is a breakthrough memoir that will be appreciated by those who have been touched by caregiving, Alzheimer's/dementia, terminal illness, hospice, or loss of a parent. It shines a light on the unique circumstances of early onset Alzheimer's, and fulfilling the role of caregiver as a young adult. It's also filled with stories of facing life's challenges, love, family, gratitude, personal growth, and self-discovery.
Download or read book Do This Remembering Me written by Colette Bachand-Wood and published by Church Publishing, Inc.. This book was released on 2016-03-10 with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt: Memory loss should not be spiritual loss. “What do I do to help?” Alzheimer’s is the sixth leading cause of death in the United States, almost everyone knows someone with some form of dementia, yet few know how to answer that question, and very little material exists on providing spiritual care to adults with dementia-related diseases. Even seminaries rarely provide training or clinical pastoral education in this field. This book is an answer. It provides a hands-on manual that will give clergy, spiritual care providers, and family members an understanding of the ongoing spiritual needs of individuals with dementia, as well as practical tools such as how to create a religious service in a memory care unit and how one might plan a nursing home visit. Accessibly written, with real life applications and sample services for a variety of settings. More than just useful, the book inspires with shared stories that are tender, sad, funny—and sometimes all three at once, encouraging readers to develop spiritual care ministries for people with memory loss in congregations, homes, nursing facilities, or other communities—a ministry that will only gain in importance in the coming decade, as Baby Boomers age and the number of people with Alzheimer’s and dementia skyrockets.
Download or read book The Problem of Alzheimer s written by Jason Karlawish and published by St. Martin's Press. This book was released on 2021-02-23 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.
Download or read book Alzheimer s 911 written by Frena Gray-Davidson and published by Robert Reed Publishers. This book was released on 2009 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: With humor, sensitivity and clarity, Frena draws on her over 20 years as a hands-on caregiver taking the approach to look at the inner world of people with Alzheimer's (or any kind of dementia) similar to when she was a foreign correspondent in Asia and India- looking with fresh and curious eyes to understand the people from their perspective, without judgments.She shares secrets of successful dementia care giving and reveals the deep spiritual and emotion growth possible in dementia. Even within the losses of Alzheimer's, insightful caregivers can discover their possible radiance and humor. This journey of continuing inner growth can renew the purpose and courage of the caregiver, while bringing peace and resolution to the elder.Most importantly, Frena shows how the care giving journey can bestow a whole new set of wonderful life skills on the caregiver. She demonstrates that there is nothing in meditation, prayer and spiritual practice that you can't learn as a dementia caregiver. In addition, you can have a whole lot of fun.
Download or read book The Last Ocean written by Nicci Gerrard and published by Penguin. This book was released on 2020-08-11 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people who live with the condition and those of their loved ones After a diagnosis of dementia, Nicci Gerrard’s father, John, continued to live life on his own terms, alongside the disease. But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard, an award-winning journalist and author, recognized that it was not just the disease, but misguided protocol and harmful practices that cause such pain at the end of life. Gerrard was inspired to seek a better course for all who suffer because of the disease. The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones. Her lens is unflinching, but Gerrard honors her subjects and finds the beauty and the humanity in their seemingly diminished states. In so doing, she examines the philosophy of what it means to have a self, as well as how we can offer dignity and peace to those who suffer with this terrible disease. Not only will it aid those walking with dementia patients, The Last Ocean will prompt all of us to think on the nature of a life well lived.
Download or read book Undefeated Innocence written by Cheryl Crofoot Knapp and published by WestBow Press. This book was released on 2017-03-27 with total page 201 pages. Available in PDF, EPUB and Kindle. Book excerpt: Do you wonder where God is in Alzheimer's? Are you searching for hope in caregiving? I searched too--I lost both of my parents to Alzheimer's. They were its innocent victims. Caregiving for someone with Alzheimer's can be painfully brutal. We know how it ends. There is no cure. It doesn't get better. But I learned that we don't have to be defeated by it. And there is much grace and collateral beauty to be found in the journey. From broken memories to broken bones, Alzheimers catalyzed terror and defeat in my family. My parents were terrorized by the scrambling of their minds. We who loved them had to suffocate our feelings of defeat as they returned to innocence. As a caregiver, God allowed me to share in my parents passages back to undefeated innocence. I gained loving moments that I would have missed if I hadnt been involved and if I hadnt taken up the proper vantage point to see them. Undefeated Innocence offers hope to caregivers by weaving poignant personal experiences, humor, and biblical stories with a study of the Beatitudes. It answers Where is God? in Alzheimers. It confirms that caregiving experiences are abnormally normal, and its okay to store toothpaste in an underwear drawer. Undefeated Innocence reveals Gods grace through the storms and affirms that caregivers are not alone in wondering if life can return to a place of peace.
