Download or read book Grandpa and Lucy written by Edie Weinstein and published by Createspace Independent Publishing Platform. This book was released on 2017-10-16 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Edie Weinstein is a ninth grader at Visitation High School in Saint Paul, Minnesota. Edie wrote Grandpa and Lucy for a Girl Scout Silver Award Project to help more people, particularly youth, learn about dementia. She wanted to make it more enjoyable for young people to talk to their relatives or other older friends who have dementia. Because dementia can make someone's world shrink, Edie hopes Grandpa and Lucy can help some families become closer and broaden their world.
Download or read book A Story of a Marriage Through Dementia and Beyond written by Laurel Richardson and published by Routledge. This book was released on 2022-02-09 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Story of a Marriage Through Dementia and Beyond is the extraordinary, unflinching account from sociologist Laurel Richardson of her love and caregiving through the last period of her husband Ernest Lockridge's life - from his transient amnesia to his death from Lewy Body Dementia. Focusing on the lived experience of the caregiver through the loved one’s journey from mild cognitive impairment to death, the book gives the reader the experience of what the medical diagnoses mean and what has led up to the loss. It shows the complex, nuanced lives of a couple both living with the worst effects of a disease like Lewy Body Dementia, while maintaining, sometimes with hope and laughter, their loving connection nourished through a 40-year marriage. Dementia is a ‘silver tsunami’ - the third leading cause of death amongst senior populations. Richardson’s beautifully written book gives on-the-ground emotional support to those already in service as caregivers and helps prepare others for such service. Hospices, book clubs, and medical and allied professionals will find this book extraordinarily valuable. Weaving in autoethnographic and sociological methods and scholarship, as well as a list of reading and further resources for caregivers and scholars, this book will also appeal to courses in a wide range of disciplines and fields, including health communication, nursing and allied health, courses covering death and dying, end-of-life, and illness care, and, of course, scholars pursuing autoethnography, creative non-fiction, and qualitative methods.
Download or read book I Will Never Forget written by Elaine C. Pereira and published by iUniverse. This book was released on 2014 with total page 283 pages. Available in PDF, EPUB and Kindle. Book excerpt: It is painfully difficult to watch a loved one decline as dementia ravages their mind, destroying memories, rational thinking, and judgment. In her touching memoir, I Will Never Forget, Elaine Pereira shares the heartbreaking and humorous story of her mother’s incredible journey through dementia. Pereira begins with entertaining glimpses into her own childhood and feisty teenage years, demonstrating her mother’s strength of character. Years later, as Betty Ward started to exhibit bizarre behaviors and paranoia, Pereira was mystified by her mom’s amazing ability to mask the truth. Not until a revealing incident over an innocuous drapery rod did Pereira recognize the extent of her mother’s Alzheimer’s. As their roles shifted and a new paradigm emerged, Pereira transformed into a caregiver blindly navigating dementia’s unpredictable haze. But before Betty’s passing, she orchestrated a stunning rally to control her own destiny via a masterful, Houdini-like escape. I Will Never Forget is a powerful heartwarming story that helps others know that they are not alone in their journey. “Poignant, shocking, and honest … far more than just words on paper. If you or someone you know is living through the hell of dementia, you need this book!” —Ionia Martin, developer of Readful Things Reviews and Alzheimer’s caregiver
Download or read book Dancing with Dementia written by Christine Bryden and published by Jessica Kingsley Publishers. This book was released on 2005 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Dancing with Dementia is a vivid account of her experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband Paul, she continues to lead an active life nevertheless, and explains how professionals and carers can help. This book is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about.
Download or read book We Danced written by Scott M Rose and published by . This book was released on 2021-04-23 with total page 416 pages. Available in PDF, EPUB and Kindle. Book excerpt: This memoir shares the early, troubled years of the author's wife and transitions to their first meeting, relationship, and marriage. Frontotemporal Dementia, FTD, interrupted their love story. The author devotedly cared for his wife 'till her passing. He weaves in journals, letters, and posts and lays bare their life through her incurable diseas
Download or read book Mind Thief written by Han Yu and published by Columbia University Press. This book was released on 2021-03-02 with total page 487 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer’s disease, a haunting and harrowing ailment, is one of the world’s most common causes of death. Alzheimer’s lingers for years, with patients’ outward appearance unaffected while their cognitive functions fade away. Patients lose the ability to work and live independently, to remember and recognize. There is still no proven way to treat Alzheimer’s because its causes remain unknown. Mind Thief is a comprehensive and engaging history of Alzheimer’s that demystifies efforts to understand the disease. Beginning with the discovery of “presenile dementia” in the early twentieth century, Han Yu examines over a century of research and controversy. She presents the leading hypotheses for what causes Alzheimer’s; discusses each hypothesis’s tangled origins, merits, and gaps; and details their successes and failures. Yu synthesizes a vast amount of medical literature, historical studies, and media interviews, telling the gripping stories of researchers’ struggles while situating science in its historical, social, and cultural contexts. Her chronicling of the trajectory of Alzheimer’s research deftly balances rich scientific detail with attention to the wider implications. In narrating the attempts to find a treatment, Yu also offers a critical account of research and drug development and a consideration of the philosophy of aging. Wide-ranging and accessible, Mind Thief is an important book for all readers interested in the challenge of Alzheimer’s.
Download or read book Where the Light Gets In written by Kimberly Williams-Paisley and published by Crown. This book was released on 2016-04-05 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: “The relationship between a mother and daughter is one of the most complicated and meaningful there is. Kimberly Williams-Paisley writes about her own with grace, truth, and beauty as she shares her journey back to her mother in the wake of a devastating illness.” —Brooke Shields Many know Kimberly Williams-Paisley as the bride in the popular Steve Martin remakes of the Father of the Bride movies, the calculating Peggy Kenter on Nashville, or the wife of country music artist, Brad Paisley. But behind the scenes, Kim was dealing with a tragic secret: her mother, Linda, was suffering from a rare form of dementia that slowly crippled her ability to talk, write and eventually recognize people in her own family. Where the Light Gets In tells the full story of Linda’s illness—called primary progressive aphasia—from her early-onset diagnosis at the age of 62 through the present day. Kim draws a candid picture of the ways her family reacted for better and worse, and how she, her father and two siblings educated themselves, tried to let go of shame and secrecy, made mistakes, and found unexpected humor and grace in the midst of suffering. Ultimately the bonds of family were strengthened, and Kim learned ways to love and accept the woman her mother became. With a moving foreword by actor and advocate Michael J. Fox, Where the Light Gets In is a heartwarming tribute to the often fragile yet unbreakable relationships we have with our mothers.
Download or read book Dementia Reimagined written by Tia Powell and published by Avery. This book was released on 2019 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: The cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
Download or read book Dementia written by Stephen Lewis and published by . This book was released on 2021-04-20 with total page 376 pages. Available in PDF, EPUB and Kindle. Book excerpt: An extraordinary story demonstrating how the love between a dementia sufferer and her husband/caregiver sustained them even as the disease worked its way to its inevitable conclusion.
Download or read book The Problem of Alzheimer s written by Jason Karlawish and published by St. Martin's Press. This book was released on 2021-02-23 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.
Download or read book American Madness written by Richard Noll and published by Harvard University Press. This book was released on 2011-10-24 with total page 408 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 1895 there was not a single case of dementia praecox reported in the United States. By 1912 there were tens of thousands of people with this diagnosis locked up in asylums, hospitals, and jails. By 1927 it was fading away . How could such a terrible disease be discovered, affect so many lives, and then turn out to be something else? In vivid detail, Richard Noll describes how the discovery of this mysterious disorder gave hope to the overworked asylum doctors that they could at last explain—though they could not cure—the miserable patients surrounding them. The story of dementia praecox, and its eventual replacement by the new concept of schizophrenia, also reveals how asylum physicians fought for their own respectability. If what they were observing was a disease, then this biological reality was amenable to scientific research. In the early twentieth century, dementia praecox was psychiatry’s key into an increasingly science-focused medical profession. But for the moment, nothing could be done to help the sufferers. When the concept of schizophrenia offered a fresh understanding of this disorder, and hope for a cure, psychiatry abandoned the old disease for the new. In this dramatic story of a vanished diagnosis, Noll shows the co-dependency between a disease and the scientific status of the profession that treats it. The ghost of dementia praecox haunts today’s debates about the latest generation of psychiatric disorders.
Download or read book Jan s Story written by Barry Rex Petersen and published by Behler Publications. This book was released on 2010 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: CBS News correspondent Barry Petersen tells the tender story of his wife's battle with Early Onset Alzheimer's.
Download or read book Telling Tales About Dementia written by Lucy Whitman and published by Jessica Kingsley Publishers. This book was released on 2009-09-15 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: How does it feel when someone you love develops dementia? How do you cope with the shock, the stress and the grief? Can you be sure that you and your family will receive the support you need? In Telling Tales About Dementia, thirty carers from different backgrounds and in different circumstances share their experiences of caring for a parent, partner or friend with dementia. They speak from the heart about love and loss: 'I still find it hard to believe that Alzheimer's has happened to us,' writes one contributor, 'as if we were sent the wrong script.' The stories told here vividly reflect the tragedy of dementia, the gravity of loss, and instances of unsatisfactory diagnosis, treatment and care. But they contain hope and optimism too: clear indications that the quality of people's lives can be enhanced by sensitive support services, by improved understanding of the impact of dementia, by recognising the importance of valuing us all as human beings, and by embracing and sustaining the connections between us. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including relatives of people with dementia, social workers, medical practitioners and care staff.
Download or read book Breakfast Memories written by Kate Hanley and published by Green Place Books. This book was released on 2019-08-06 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Breakfast Memories is the story of a daughter's journey through her mom's dementia and her discovery of the power of memories stored in the soul. What prompted me to begin writing this book was the discovery of a pile of paper napkins that had been tucked away in a drawer on which my dad had written morning love poems to my mom. Every morning he placed one next to the breakfast that he had prepared for her. I found these napkins after my dad had died and my mom was in failing health at a local nursing home. The discovery of the napkins (sonnets) and sharing them with my mother was what brought her back from the darkness and despair of dementia.
Download or read book Unforgotten written by Bianca Brijnath and published by Berghahn Books. This book was released on 2014-07-01 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: As life expectancy increases in India, the number of people living with dementia will also rise. Yet little is known about how people in India cope with dementia, how relationships and identities change through illness and loss. In addressing this question, this book offers a rich ethnographic account of how middle-class families in urban India care for their relatives with dementia. From the husband who wakes up at 3 am to feed his wife ice-cream to the daughters who gave up employment for seven years to care for their mother with dementia, this book illuminates the local idioms on dementia and aging, the personal experience of care-giving, the functioning of stigma in daily life, and the social and cultural barriers in accessing support.
Download or read book Take Care Son written by Tony Husband and published by Hachette UK. This book was released on 2014-05-15 with total page 132 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Hi Dad . . . can we have a chat about your dementia . . . Can you remember how it started?' When Ron Husband started to forget things - dates, names, appointments . . . daft things, important things - it took a while to realise that this was 'a different form of forgetting'. But it was just the first sign of the illness that gradually took him away from the family he loved. This is the touching, illustrated story of Tony's father and how dementia slowly took him away from his family. The title is a reference to his last words to his son - on a day when Tony had spent the day in the care home with no sign of recognition. The book is framed as a chat between Tony and his dad, who fades away through the last few pages of the book. '... rather wonderful cartoon strips ... chronicling his father's dementia with loving charm and wit' Stephen Fry, Twitter
Download or read book Grandma and Me written by Beatrice Tauber Prior and published by Morgan James Publishing. This book was released on 2017-11-07 with total page 45 pages. Available in PDF, EPUB and Kindle. Book excerpt: A beautiful storybook that helps children understand their grandparent’s challenges, written by a nurse and a psychologist. The authors of Grandma and Me have combined their years of clinical experience to create a truly engaging, yet informative book for young children on the topics of Alzheimer’s and dementia. With beautiful artwork to capture children’s attention, Grandma and Me provides a gentle, age-appropriate portrait of Alzheimer’s disease in the context of a loving relationship between grandparent and grandchild—and provides tools that will help children continue to have a relationship with their loved one despite the disease. Grandma and Me addresses a difficult topic with compassion and understanding, and allows families to successfully navigate the journey ahead.
