Download or read book The Last Ten Days Academia Dementia and the Choice to Die written by Martha Risberg Brosio and published by Myers Education Press. This book was released on 2019-06-25 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Last Ten Days addresses the concerns of loved ones and caregivers, providing them not only with information but also acknowledging the sadness and frustration, the heartache and bittersweet memories experienced during this painful time. To these readers, the book says, “You are not alone.” The Last Ten Days: Academia, Dementia, and the Choice to Die is a heartrending memoir of love, scholarship, dignity, courage, and the choices one is forced to make when given the devastating diagnosis of a terminal illness. Spanning sixty years, this extraordinary book recounts the love story of Martha Risberg Brosio and her husband, Richard Brosio, Ph.D., a brilliant scholar and college professor whose communication skills dazzled all with whom he came in contact. Teenage sweethearts who went their separate ways after high school, Martha and Richard reconnected twenty-six years later over a friendly dinner that sparked into passionate love. They married in 1983, enjoying a vibrant life. Then tragedy struck. In late 2013, Richard was diagnosed with Primary Progressive Aphasia, a type of dementia similar to Alzheimer’s that affects the frontal and temporal lobes of the brain. The disease impacted Richard’s ability to communicate. Eventually, he would lose his verbal and processing skills. There was no cure. Determined to have a dignified death at the time and in the manner of his own choosing, Richard hastened his death two years after his diagnosis by voluntarily stopping eating and drinking, seeking only palliative and hospice care until the end. Reminiscent of Still Alice, The Notebook, Tuesdays with Morrie, and When Breath Becomes Air, The Last Ten Days grabs the heartstrings and gives a mighty tug.
Download or read book Voluntarily Stopping Eating and Drinking written by Timothy E. Quill and published by Oxford University Press. This book was released on 2021-07-27 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the 21st century, people in the developed world are living longer. They hope they will have a healthy longer life and then die relatively quickly and peacefully. But frequently that does not happen. While people are living healthy a little longer, they tend to live sick for a lot longer. And at the end of being sick before dying, they and their families are frequently faced with daunting decisions about whether to continue life prolonging medical treatments or whether to find meaningful and forthright ways to die more easily and quickly. In this context, some people are searching for more and better options to hasten death. They may be experiencing unacceptable suffering in the present or may fear it in the near future. But they do not know the full range of options legally available to them. Voluntary stopping eating and drinking (VSED), though relatively unknown and poorly understood, is a widely available option for hastening death. VSED is legally permitted in places where medical assistance in dying (MAID) is not. And unlike U.S. jurisdictions where MAID is legally permitted, VSED is not limited to terminal illness or to those with current decision-making capacity. VSED is a compassionate option that respects patient choice. Despite its strongly misleading image of starvation, death by VSED is typically peaceful and meaningful when accompanied by adequate clinician and/or caregiver support. Moreover, the practice is not limited to avoiding unbearable suffering, but may also be used by those who are determined to avoid living with unacceptable deterioration such as severe dementia. But VSED is "not for everyone." This volume provides a realistic, appropriately critical, yet supportive assessment of the practice. Eight illustrative, previously unpublished real cases are included, receiving pragmatic analysis in each chapter. The volume's integrated, multi-professional, multi-disciplinary character makes it useful for a wide range of readers: patients considering present or future end-of-life options and their families, clinicians of all kinds, ethicists, lawyers, and institutional administrators. Appendices include recommended elements of an advance directive for stopping eating and drinking in one's future if and when decision making capacity is lost, and what to record as cause of death on the death certificates of those who hasten death by VSED.
Download or read book Voluntarily Stopping Eating and Drinking written by Timothy E. Quill and published by Oxford University Press. This book was released on 2021 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: Many people who are experiencing unacceptable suffering or deterioration in the present, or who fear them in the near future, do not know their full range of options to hasten death. This is particularly true if they live in jurisdictions that do not allow a physician assisted death - over forty jurisdictions in the U.S. and most countries across the world. Though VSED is readily available, and not illegal, most people are unaware of it as an option. The informationin this book is vital to those considering their options either hypothetically or in real time, providing an integrated, balanced, and nuanced exploration of VSED with contributions from legal, medical, and ethical experts.
Download or read book The Inevitable written by Katie Engelhart and published by St. Martin's Press. This book was released on 2021-03-02 with total page 283 pages. Available in PDF, EPUB and Kindle. Book excerpt: “A remarkably nuanced, empathetic, and well-crafted work of journalism, [The Inevitable] explores what might be called the right-to-die underground, a world of people who wonder why a medical system that can do so much to try to extend their lives can do so little to help them end those lives in a peaceful and painless way.”—Brooke Jarvis, The New Yorker More states and countries are passing right-to-die laws that allow the sick and suffering to end their lives at pre-planned moments, with the help of physicians. But even where these laws exist, they leave many people behind. The Inevitable moves beyond margins of the law to the people who are meticulously planning their final hours—far from medical offices, legislative chambers, hospital ethics committees, and polite conversation. It also shines a light on the people who help them: loved ones and, sometimes, clandestine groups on the Internet that together form the “euthanasia underground.” Katie Engelhart, a veteran journalist, focuses on six people representing different aspects of the right to die debate. Two are doctors: a California physician who runs a boutique assisted death clinic and has written more lethal prescriptions than anyone else in the U.S.; an Australian named Philip Nitschke who lost his medical license for teaching people how to end their lives painlessly and peacefully at “DIY Death” workshops. The other four chapters belong to people who said they wanted to die because they were suffering unbearably—of old age, chronic illness, dementia, and mental anguish—and saw suicide as their only option. Spanning North America, Europe, and Australia, The Inevitable offers a deeply reported and fearless look at a morally tangled subject. It introduces readers to ordinary people who are fighting to find dignity and authenticity in the final hours of their lives.
Download or read book A Better Way of Dying written by Jeanne Fitzpatrick and published by Penguin. This book was released on 2010-01-26 with total page 175 pages. Available in PDF, EPUB and Kindle. Book excerpt: The fail-safe plan for ensuring one's final wishes are respected Advanced directives and living wills have improved our ability to dictate end-of-life care, but even these cannot guarantee that we will be allowed the dignity of a natural death. Designed by two sisters-one a doctor, one a lawyer-and drawing on their decades of experience, the five-step Compassion Protocol outlined in A Better Way of Dying offers a simple and effective framework for leaving caretakers concrete, unambiguous, and legally binding instructions about your wishes for your last days. Meant for people in every walk of life-from the elderly, to those in the early stages of mentally degenerative diseases like Alzheimer's, to healthy young people planning for an unpredictable future-this book creates space for a discussion we all must have if we wish to ensure comfort and control at the end of our lives..
Download or read book The Day I Die written by Anita Hannig and published by Sourcebooks. This book was released on 2022 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Day I Die is a major work of nonfiction that tackles the one issue we'll all eventually come to face-our final days, hours, and minutes. With clarity and empathy, award-winning anthropologist Anita Hannig uncovers the stigma against the practice of assisted dying, untangles the legalities and logistics of pursuing an assisted death in America today, and profiles the dedicated advocates and medical personnel involved. In intimate, lyrical detail, Hannig explains why someone might choose an assisted death and how that decision impacts their loved ones. In a time when nearly 80 percent of Americans die in hospitals and nursing homes, medical assistance in dying could transform the way we die for the better, allowing more people to define the terms of their own death"--
Download or read book Dementia Reimagined written by Tia Powell and published by Penguin. This book was released on 2020-09-01 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
Download or read book Physician Assisted Death written by James M. Humber and published by Springer Science & Business Media. This book was released on 1994-02-04 with total page 159 pages. Available in PDF, EPUB and Kindle. Book excerpt: Physician-Assisted Death is the eleventh volume of Biomedical Ethics Reviews. We, the editors, are pleased with the response to the series over the years and, as a result, are happy to continue into a second decade with the same general purpose and zeal. As in the past, contributors to projected volumes have been asked to summarize the nature of the literature, the prevailing attitudes and arguments, and then to advance the discussion in some way by staking out and arguing forcefully for some basic position on the topic targeted for discussion. For the present volume on Physician-Assisted Death, we felt it wise to enlist the services of a guest editor, Dr. Gregg A. Kasting, a practicing physician with extensive clinical knowledge of the various problems and issues encountered in discussing physician assisted death. Dr. Kasting is also our student and just completing a graduate degree in philosophy with a specialty in biomedical ethics here at Georgia State University. Apart from a keen interest in the topic, Dr. Kasting has published good work in the area and has, in our opinion, done an excellent job in taking on the lion's share of editing this well-balanced and probing set of essays. We hope you will agree that this volume significantly advances the level of discussion on physician-assisted euthanasia. Incidentally, we wish to note that the essays in this volume were all finished and committed to press by January 1993.
Download or read book Still Alice written by Lisa Genova and published by Simon and Schuster. This book was released on 2009-01-06 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: Feeling at the top of her game when she is suddenly diagnosed with early onset Alzheimer's Disease, Harvard psychologist Alice Howland struggles to find meaning and purpose in her everyday life as her concept of self gradually slips away. A first novel. Simultaneous.
Download or read book No One Has to Die Alone written by Lani Leary and published by Simon and Schuster. This book was released on 2012-04-10 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: "No One Dies Alone" offers accessible insights, practical tools, and personal stories to provide a sense of community, profound relief, and deep meaning for both caregiver and patient through illness, death, and bereavement.
Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.
Download or read book Decision Making Near the End of Life written by James L. Werth Jr. and published by Taylor & Francis. This book was released on 2008-10-20 with total page 417 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decision Making near the End of Life provides a comprehensive overview of the recent developments that have impacted decision-making processes within the field of end-of-life care. The most current developments in all aspects of major underlying issues such as public attitudes, the impact of media, bioethics, and legal precedent provide the background information for the text. The authors examine various aspects of end-of-life choices and decision-making, including communication (between and among family, medical personnel, the dying person), advance directives, and the emergence of hospice and palliative care institutions. The book also explores a variety of psychosocial considerations that arise in decision-making, including religion/spirituality, family caregiving, disenfranchised and diverse groups, and the psychological and psychiatric problems that can impact both the dying person and loved ones. Case studies and first-person stories about decision-making, written by professionals in the field, bring a uniquely personal touch to this valuable text.
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Download or read book Academic Clinical Nurse Educator Review Book written by Teresa Shellenbarger and published by Lippincott Williams & Wilkins. This book was released on 2019-11-18 with total page 331 pages. Available in PDF, EPUB and Kindle. Book excerpt: This official NLN guide is the only preparation book for the NLN Certified Academic Clinical Nurse Educator Examination (CNE®cl) that aligns with the NLN core competencies for academic clinical nurse educators and the test blueprint, giving you a competitive advantage. More than 500 multiple-choice questions with accompanying rationales provide essential review of test content and identify areas requiring further study, providing the preparation you need to excel on your exam. “Earning the CNE®cl certification demonstrates the nurse educator’s commitment to excellence and professional expertise in the role of an academic clinical nurse educator.”
Download or read book Dementia Studies written by Anthea Innes and published by SAGE. This book was released on 2009-03-05 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: What is dementia? How should we organize dementia care? This comprehensive book critically examines the main approaches to understanding dementia (bio-medical, social-psychological and socio-gerontological) and the main principles and ideologies of care. The book: • provides clarity on the gap between the utopian aspirations of care and the reality of care • opens up a series of questions about knowledge and treatment of dementia • argues for a transition from positions that place emphasis upon the individual or particular care services to the social, cultural and economic context Lively, informative and challenging, the book will be of interest to students of nursing, sociology of health & illness, social work and social gerontology. Anthea Innes teaches at the Dementia Services Development Centre, University of Stirling
Download or read book Dignity for Deeply Forgetful People written by Stephen G. Post and published by JHU Press. This book was released on 2022-05-31 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A new ethics guideline for caregivers of "deeply forgetful people" and a program on how to communicate and connect based on 30 years of community dialogues through Alzheimer's organizations across the globe"--
Download or read book Transforming Healthcare Education written by Philip C. Scibilia and published by Rowman & Littlefield. This book was released on 2020-03-16 with total page 111 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book sets the scene for the deliberations on ethics and its application to healthcare in the twenty-first century. The word ethics, in classical Greek, means the “beliefs of the people” the study of what is right and good in human conduct and the justification of such claims. Without a doubt this task is not simply about setting up a list of rights and wrongs. Rather, it is a discussion, a process that helps tease out the real issues and find and teach ethical solutions to complex practical problems. The centrality of the patient is of prime consideration in this book, and the health of the individual patient is the first consideration in the teaching considerations discussed. Applied ethics in healthcare may have lost sight of what traditional ethics was trying to accomplish: a good life for good people over a lifetime in society with others. We must put biomedical ethics into perspective and develop a truly comprehensive approach to health care ethics. On the practical level, we need structures integrating givers ethical perspectives. But, there seems to be a gap and significant perception differences among healthcare providers’ learning environments and actual professional situations. Hence, teaching ethics and healthcare providers values is important to bridge this gap.
