Download or read book The Construction of Disability and Risk in Genetic Counselling Discourse written by Roeher Institute and published by North York, Ont. : Roeher Institute. This book was released on 2002 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Challenges to the Human Rights of People with Intellectual Disabilities written by Frances Owen and published by Jessica Kingsley Publishers. This book was released on 2008-12-15 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: A book such as this both demonstrates the progress that has been made over recent years, and will also serve to enhance respect for the human rights of persons with intellectual disabilities in the years to come.' - From the Foreword by Orville Endicott This wide-ranging volume provides a multidisciplinary examination of human rights and the lives of people with intellectual disabilities. The book combines historical, psychological, philosophical, social, educational, medical and legal perspectives to form a unique and insightful account of the subject. Initial chapters explain the historical context of rights for people with intellectual disabilities, including the right to life, and propose a conceptual framework to inform contemporary practice. Contributors then explore the many theoretical and practical challenges that people with intellectual disabilities face, in exercising their civil rights, educational rights or participatory rights, for instance. The implications arising from these issues are identified and practical guidelines for support and accommodation are provided. This book will be an essential resource for practitioners, advocates, lawyers, policy-makers and students on disability courses.
Download or read book Towards a Common Approach to Thinking about and Measuring Social Inclusion written by Cameron Crawford and published by Institut Roeher = Roeher Institute. This book was released on 2003 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt: This paper provides an approach to thinking about & measuring the concept of social inclusion as it applies to people with disabilities. It is grounded on Roeher Institute research and on international research & models that point to two dimensions that together contribute to social inclusion for persons with disabilities: basic access to socially valued situations and the supports necessary to enable persons with disabilities to participate as valued equals in those situations. It describes supports for participation that are organized at the societal or systems level, and those organized at the individual level. The discussion then presents a way of measuring social inclusion that takes into account the access & support dimensions, pointing to the applicability of the particular example given (concerning employment) to other situations.
Download or read book Assessing Genetic Risks written by Institute of Medicine and published by National Academies Press. This book was released on 1994-01-01 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.
Download or read book Advanced Genetic Counseling written by Barbara B. Biesecker and published by . This book was released on 2019 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: Introduction to genetic counseling -- History of genetic counseling -- Practice definition and goals -- Characteristics of clients and genetic counseling -- Characteristics of counselors and genetic counseling -- Applying ethical theories to genetic counseling practice -- Conflict of interest and the code of ethics -- Relational genetic counseling -- Theories for genetic counseling practice -- Research in genetic counseling -- Genetic counseling in the genomic era.
Download or read book Disability and Mothering written by Cynthia Lewiecki-Wilson and published by Syracuse University Press. This book was released on 2011-09-14 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: Editors Lewiecki-Wilson and Cellio have put together the first book to focus on the intersecting spaces, both cultural and personal, of disability and mothering. Derived from the Latin for threshold, the word "liminal" calls attention to the book’s focus on the transitional moments and spaces where the personal and social, inside and outside, self and other converge. The volume features twenty-one previously unpublished essays by new as well as established scholars and community activists. Contributors, some of whom are themselves disabled or mothers of children with disabilities, present moving personal accounts and accessible scholarship grounded in historical study, experiential and retrospective analysis, interviews, social research, and feminist and disability studies theories. In their introduction, the editors survey the theoretical frameworks of feminism and disability studies, locating the points of overlap crucial to a study of disability and mothering. Organized in five sections, the book engages questions about reproductive technologies; diagnoses and cultural scripts; the ability to rewrite narratives of mothering and disability; political activism; and the tensions formed by the overlapping identities of race, class, nation, and disability. The essays speak to a broad audience—from undergraduate and graduate students in women’s studies and disability studies, to therapeutic and health care professionals, to anyone grappling with issues such as genetic testing and counseling, raising a child with a disability, or being disabled and contemplating starting a family.
Download or read book Genetic Testing written by Michael Arribas-Ayllon and published by Routledge. This book was released on 2013-03 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: Firmly grounded in empirical data, this book critically engages with the relational, moral and ethical issues surrounding genetic testing in contemporary society. Competing accounts of autonomy, responsibility and blame – by families, by professionals and in the public sphere – are analysed rigorously within a discourse-rhetorical framework, paying particular attention to the situated management of risks of knowing and risks of disclosure.
Download or read book Practical Genetic Counseling for the Laboratory written by McKinsey L. Goodenberger and published by Oxford University Press. This book was released on 2017 with total page 409 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is an essential manual for the future of genetic counselling. It codifies the theory and practice of laboratory genetic counselling in an accessible and comprehensive format. With contributions from laboratorians, geneticists, and genetic counsellors from more than 30 institutions, it offers a manual of standards and practices that will benefit students and counsellors at any career stage
Download or read book Familial Fitness written by Sandra M. Sufian and published by University of Chicago Press. This book was released on 2022-01-21 with total page 390 pages. Available in PDF, EPUB and Kindle. Book excerpt: Introduction. Disability and belonging in adoption history -- Expecting normality: 1918-1955. Exclusionary practices in the age of eugenics and child welfare ; Risk equivalence and the postwar family -- Working toward inclusion: 1955-1980. Love, acceptance, and the narrative of overcoming ; From overcoming to programmatic solutions -- Continued obstacles: 1980-1997. Institutional and structural barriers to the adoption of children with disabilities ; The limits of inclusion -- Epilogue. A usable past: thinking about contemporary practice in light of history.
Download or read book Studies in Law Politics and Society written by Austin Sarat and published by Emerald Group Publishing. This book was released on 2014-02-07 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: The articles in this 63rd volume of Studies in Law, Politics and Society cover cutting edge issues of major interest to policy makers, activists and interdisciplinary law scholars: family law, the way law deals with children, international human rights, and the way law deals with injury and damages claims.
Download or read book Chromosome Abnormalities and Genetic Counseling written by R.J. MKinlay Gardner and published by OUP USA. This book was released on 2012 with total page 650 pages. Available in PDF, EPUB and Kindle. Book excerpt: Advances in cytogenetics continue to crop up in wonderful ways, and we know exponentially more about chromosomes now than mere decades ago. Likewise, the necessary skills in offering genetic counseling continue to evolve. This new edition of Chromosome Abnormalities in Genetic Counseling offers a practical, up-to-date guide for the genetic counselor to marshal cytogenetic data and analysis clearly and effectively to families.
Download or read book Paralympics and Disability Sport written by Brett Smith and published by Routledge. This book was released on 2016-04-08 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: Academic research on the Paralympics and disability sport is growing. University courses, governing bodies, and sporting organisations are also witnessing a rise of interest in disabled sport. This book is therefore timely and of importance. Written by leading scholars, it addresses a variety of topics in relation to the Paralympics and disability sport. These include: the sociology of Paralympic sport; sport coaching at recreational and elite level; sport history and exercise rehabilitation; exercise participation; and future directions for disability sport research. Throughout the book, disability sport is both celebrated and critically examined. Critical questions are raised, and practical suggestions offered, about being a Paralympian, coaching athletes with a disability, and exercise as a form of rehabilitation. Empirical evidence is drawn from different people and various sports. These range from autoethnographic stories from a former Paralympian, to interviews with disability sport administrators, to observations of and interviews with coaches of athletes in the sports of adapted water skiing, para-swimming, and wheelchair basketball, rugby and tennis. The book will be of interest to sociologists of sport, sport coaches, sport and exercise psychologists, disability scholars, qualitative researchers, and disability sporting organisations. This book was published as a special issue of Qualitative Research in Sport, Exercise and Health.
Download or read book Genetics Disability and Deafness written by John V. Van Cleve and published by . This book was released on 2004 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pulitzer Prize-winning author Louis Menand begins this wide-ranging volume with an essay that extols diversity and warns of the dangers of modifying the human genome. Nora Groce reviews the ways that societies have defined disability and creates an interpretive framework for discussing the relationship between culture and disability. In essays devoted to historical perspective, Brian H. Greenwald comments upon the real "toll" taken by A. G. Bell's insistence upon oralism, while Joseph J. Murray weighs the nineteenth-century debate over whether deaf-deaf marriages should be encouraged. John S. Schuchman's chilling account of deafness and eugenics in the Nazi era adds wrenching reinforcement to the impetus to include disabled people in genetics debates. Mark Willis offers an intensely personal reflection on the complexities of genetic alteration, addressing both his heart condition and his blindness in surprisingly different ways. Anna Middleton extends Willis's concepts in her discussion of couples currently considering the use of genetic knowledge and technology to select for or against a gene that causes deafness. In the part on the science of genetics, Orit Dagan, Karen B. Avraham, Kathleen S. Arnos, and Arti Pandya clarify the choices presented by genetic engineering, and geneticist Walter E. Nance emphasizes the importance of science in offering individuals knowledge from which they can fashion their own decisions. In the concluding section, Christopher Krentz raises moral questions about the ever-continuing search for human perfection, and Michael Bérubé argues that disability should be considered democratically to ensure full participation of disabled people in all decisions that might affect them.
Download or read book Community Genetics and Genetic Alliances written by Aviad E. Raz and published by Routledge. This book was released on 2009-09-10 with total page 205 pages. Available in PDF, EPUB and Kindle. Book excerpt: The social and bioethical aspects of carrier testing and its assimilation by specific groups are examined through several qualitative case studies in traditional (religious, ethnic) as well as modern (secular-consumerist) communities in Israel and the U.S. Comparing the views of community members and health professionals, the analysis offers a new look on the relations between eugenics and "genetic responsibility."
Download or read book Sociological Abstracts written by Leo P. Chall and published by . This book was released on 2004 with total page 646 pages. Available in PDF, EPUB and Kindle. Book excerpt: CSA Sociological Abstracts abstracts and indexes the international literature in sociology and related disciplines in the social and behavioral sciences. The database provides abstracts of journal articles and citations to book reviews drawn from over 1,800+ serials publications, and also provides abstracts of books, book chapters, dissertations, and conference papers.
Download or read book Community based Rehabilitation written by World Health Organization and published by . This book was released on 2010 with total page 452 pages. Available in PDF, EPUB and Kindle. Book excerpt: Volume numbers determined from Scope of the guidelines, p. 12-13.
Download or read book Foucault and the Government of Disability written by Shelley Lynn Tremain and published by University of Michigan Press. This book was released on 2010-02-22 with total page 359 pages. Available in PDF, EPUB and Kindle. Book excerpt: Foucault and the Government of Disability is the first book-length investigation of the relevance and importance of the ideas of Michel Foucault to the field of disability studies-and vice versa. Over the last thirty years, politicized conceptions of disability have precipitated significant social change, including the landmark Americans with Disabilities Act in 1990, the redesign of urban landscapes, the appearance of closed-captioning on televisions, and the growing recognition that disabled people constitute a marginalized and disenfranchised constituency. The provocative essays in this volume respond to Foucault's call to question what is regarded as natural, inevitable, ethical, and liberating, while they challenge established understandings of Foucault's analyses and offer fresh approaches to his work. The book's roster of distinguished international contributors represents a broad range of disciplines and perspectives, making this a timely and necessary addition to the burgeoning field of disability studies.
