Download or read book Supporting Families who Care for Severely Disabled Children at Home written by Susan Cina and published by . This book was released on 1984 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Download or read book At the Double written by Rosemary Tozer and published by Jessica Kingsley Publishers. This book was released on 1999-01-01 with total page 76 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is based on the findings of a qualitative study of 24 families who each had two or more severely disabled children. Family life was explored, and particular difficulties, needs and strategies for managing day-to-day care were identified. With 'practice points' at the end of each chapter, this book will make informative reading for social services and health professionals, teachers and others working with disabled children and their families, as well as for those planning services and making policies which impact on them.
Download or read book Family Support written by and published by . This book was released on 1991 with total page 16 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Patient Safety and Quality written by Ronda Hughes and published by Department of Health and Human Services. This book was released on 2008 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
Download or read book Opportunities for Improving Programs and Services for Children with Disabilities written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-08-06 with total page 351 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.
Download or read book Positively Parents written by Bryony Beresford and published by . This book was released on 1994-01-01 with total page 125 pages. Available in PDF, EPUB and Kindle. Book excerpt: How do parents cope with the daily hassles and long-term strains of caring for a disabled child? How important are support networks for these parents? Do services help or hinder the coping process? These are some of the questions being voiced by practitioners, researchers, lay people and even parents themselves about families who are caring for and bringing up a disabled child.
Download or read book Disabled Village Children written by David Werner and published by . This book was released on 1987 with total page 680 pages. Available in PDF, EPUB and Kindle. Book excerpt: ... A book of information and ideas for all who are concerned about the well-being of disabled children. It is especially for those who live in rural areas where resources are limited ... Written by [the author] with the help of disabled persons and pioneers in rehabilitation in many countries, this book ... gives a wealth of clear, simple, but detailed information concerning most common disabilities of children: many different physical disabilities, blindness, deafness, fits, behavior problems, and developmental delay. It gives suggestions for simplified rehabilitation, low-cost aids, and ways to help disabled children find a role and be accepted in the community. Above all, the book helps us to realize that most of the answers for meeting these children's needs can be found within the community, the family, and in the children themselves. It discusses ways of starting small community rehabilitation centers and workshops run by disabled persons or the families of disabled children.-Back cover.
Download or read book Since Owen written by Charles R. Callanan and published by Johns Hopkins University Press. This book was released on 1990-05-01 with total page 488 pages. Available in PDF, EPUB and Kindle. Book excerpt: Discusses the causes of birth defects, describes genetic counseling, and covers the diagnosis, health care, education, legal rights, and adult life of handicapped children
Download or read book The Lost Art of Caring written by Leighton E. Cluff and published by JHU Press. This book was released on 2001-05-07 with total page 296 pages. Available in PDF, EPUB and Kindle. Book excerpt: In The Lost Art of Caring, Leighton E. Cluff, M.D., and Robert H. Binstock, Ph.D., bring together experts to address the importance of caring, the reasons why it has eroded, and measures that can strengthen caring as provided by health professionals, families, communities, and society.
Download or read book Unshared Care written by Caroline Glendinning and published by Routledge & Kegan Paul Books. This book was released on 1983 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: The vast majority of the 100,000 or so children with serious mental or physical disabilities in Britain today live at home with their families. A series of in-depth interviews carried out with a number of parents enabled the author to describe the extensive physical, practical and emotional demands made on those looking after their disabled child at home. In their own words, parents report how and when they learnt about their child's disability; the sheer physical work and mental effort of daily care which more often than not fall unremittingly on the child's mother; the feelings of isolation and the lack of information which are often relieved only by talking with parents of other disabled children. Unshared Care examines the community services available, revealing that, from the parents' point of view, the rhetoric of public concern is only barely matched by the practical support available. It shows that services are, all too often, insufficiently specialized and lacking in coherence.
Download or read book Supporting Family Care of Persons who are Developmentally Disabled written by Illinois. Governor's Planning Council on Developmental Disabilities and published by . This book was released on 1987 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book A Comparison of Support Networks and Service Needs of Rural and Nonrural Families with Severely Handicapped Children written by John Gerdtz and published by . This book was released on 1986 with total page 324 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Cerebral Palsy written by Freeman Miller and published by JHU Press. This book was released on 2006-05-08 with total page 537 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.
Download or read book Cash and care written by Glendinning, Caroline and published by Policy Press. This book was released on 2006-09-25 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recent social trends and policy developments have called into question the divide between the provision of income support and social care services. This book examines this in light of key trends. The book presents new evidence on the links between cash - whether from earnings from paid work, social security benefits, and payments for disabled people and carers - and social disadvantage, care and disability. It presents theoretical perspectives on the need for and provision of care, which some commentators have described as a 'new social risk' and offers new insights into traditional forms of risk, such as poverty, disability, access to credit and money management. It provides an analysis of childcare and informal support for sick, disabled or elderly people in the context of increasing female labour market participation and the introduction of cash allowances to pay for care and posits a new look at both disabled people and older people in their roles as active citizens, whose views and experiences should help shape both policy and practice. Cash and care is essential reading for students, lecturers and researchers in social policy, applied social science, social work, and health and social care.
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Download or read book News Digest written by and published by . This book was released on 1986 with total page 104 pages. Available in PDF, EPUB and Kindle. Book excerpt:
