Download or read book Public Policy in ALS MND Care written by Robert H. Blank and published by Springer Nature. This book was released on 2020 with total page 345 pages. Available in PDF, EPUB and Kindle. Book excerpt: Anyone interested in ALS/MND-physician, patient, or healthcare policy director -should read this book and learn from it. -Walter G. Bradley D.M., F.R.C.P., Professor and Chairman Emeritus, Miller School of Medicine, University of Miami, USA "This book illustrates the inequities in the accessibility of quality neurological care existing globally and which forms a major target for redress by the World Federation of Neurology and the World Health Organisation." -William M Carroll AM, MBBS, MD, FRACP, FRCP(E), President, World Federation of Neurology This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions. Robert H. Blank, PhD, (University of Maryland) is an adjunct Professor of Political Science at the University of Canterbury in Christchurch, New Zealand. He has been a frequent guest professor at Aarhus University in Denmark and at National Taiwan University in Taipei, Taiwan, and a Research Scholar at New College Florida. Jerome E. Kurent received his MD from the University of Cincinnati College of Medicine and completed residencies in Neurology and Internal Medicine at the Johns Hopkins Hospital. He completed fellowships in neuromuscular diseases and electromyography at the National Institutes of Health, followed by a Geriatrics Medicine fellowship at Harvard where he also received his MPH. Dr. Kurent joined the Medical University of South Carolina faculty in 1984, and is Professor of Neurology, Medicine and Psychiatry and Behavioral Sciences. David Oliver, MD., recently retired as Consultant Physician in Palliative Medicine at the Wisdom Hospice in Rochester, Kent where he developed an integrated service over 32 years. He is an Honorary Professor at the Tizard Centre at the University of Kent, where he supervises students and is involved in research
Download or read book Advances in neural reprogramming disease modeling and therapeutic insights written by Shong Lau and published by Frontiers Media SA. This book was released on 2023-08-21 with total page 175 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Palliative Care in Amyotrophic Lateral Sclerosis written by David Oliver and published by OUP Oxford. This book was released on 2014-03-20 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.
Download or read book Too Ill to Talk written by Penny Rhodes and published by Routledge. This book was released on 2014-07-10 with total page 265 pages. Available in PDF, EPUB and Kindle. Book excerpt: User involvement has become an important part of health policy initiatives during the last decade, but how realistic is the concept and do all users want to be involved? This book brings the voices of people with serious illness, and those caring for them, into debate about how far health and social care services can reflect the views of users. Providing an overview of the literature on user involvement, the book looks at the policy and professional context within which user involvement is undertaken, in particular user involvement in pallative care. The authors discuss two key concepts - palliative care and empowerment - and analyse the role of self-help groups and new information and communication technologies in this context. The book focuses on the detailed narratives of people coping with three life-threatening illnesses - cystic fibrosis, multiple sclerosis and motor neurone disease - and in this way the views and experiences of the 'user' are brought into play to critique current policy and practice. Addressing a current health services issue in a refreshingly critical manner the text challenges the assumption that user involvement is either easy to achieve or that it is necessarily welcomed by all parties. It will be valuable reading for students on health studies courses, health professionals and policy makers in health and social care.
Download or read book Evaluating Pharmaceuticals for Health Policy and Reimbursement written by Nick Freemantle and published by John Wiley & Sons. This book was released on 2008-04-15 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: “The challenge in all settings is to make the difficultdecisions in a way that is defensible, justifiable, ethical, andequitable” So write Nick Freemantle and Suzanne Hill in their introductionto this important discussion on decision making in thereimbursement of pharmaceuticals. Based around a programmesupported by the World Health Organization, chapters by leadingacademics involved in the research tackle such major issues asinternational pharmaceutical policy, tensions in licensingpolicies, priority setting, and relationships between thestakeholders. Chapters include Development of marketing authorisation procedures forpharmaceuticals Interpreting clinical evidence International pharmaceutical policy: health creation or wealthcreation? Development of fourth hurdle policies around the world Economic modelling in drug reimbursement Priority setting in health care: matching decision criteriawith policy objectives Tensions in licensing and reimbursement decisions: case ofriluzole for amytrophic lateral sclerosis Relationship between stakeholders: managing the war ofwords Medicine and the media: good information or misleadinghype? How to promote quality use of cost-effective medicines Using economic evaluation to inform health policy andreimbursement: making it happen and making it sustainable Pricing of pharmaceuticals Evaluating pharmaceuticals for health policy in low and middleincome country settings. Besides the controversial issues there is a wealth of practicalinformation including economic modelling and the experiences fromthe WHO programme, providing readers with workable examples. Thisis essential reading for clinical researchers in pharmaceuticalsand policy makers everywhere.
Download or read book Exercise to Prevent and Manage Chronic Disease Across the Lifespan written by Jack Feehan and published by Academic Press. This book was released on 2022-04-30 with total page 482 pages. Available in PDF, EPUB and Kindle. Book excerpt: Exercise to Prevent and Manage Chronic Disease Across the Lifespan provides evidence-based insights into the clinical utility of exercise in the management of disease across a broad range of specialties and diseases. The book offers research informed strategies for the integration of exercise into standard practice in fields such as neurology, endocrinology, psychiatry and oncology, as well as decision-making pathways and clinical scenarios to advance patient care. The book is divided by specialty and includes clinical scenarios to allow for the integration of information within practice. The book's synthesized research evidence allows practitioners to safely and effectively begin to capitalize on the benefits of exercise in their patients. - Provides broad insights into the evidence-based underpinnings of the use of exercise in a range of common diseases - Coverage includes the immune system, musculoskeletal disease, oncology, endocrinology, cardiology, respiratory diseases, and more - Includes a glossary, bibliography and summary figures for quick reference of information
Download or read book Palliative Care in Neurology Volume II written by Raymond Voltz and published by Frontiers Media SA. This book was released on 2022-03-11 with total page 112 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Motor Neuron Disease in Adults written by Mark B. Bromberg and published by Contemporary Neurology. This book was released on 2014-10-28 with total page 369 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Motor Neuron Disease in Adults' reviews new information from 1998 as it applies to all aspects of motor neuron disease. Articles included use evidence-based methods to ensure that the new information is solid and advances the topic. The book can be used by anyone who provides any type of care to ALS patients.
Download or read book Aminoff s Neurology and General Medicine written by Michael J. Aminoff and published by Elsevier. This book was released on 2014-02-18 with total page 1393 pages. Available in PDF, EPUB and Kindle. Book excerpt: Aminoff's Neurology and General Medicine is the standard and classic reference providing comprehensive coverage of the relationship between neurologic practice and general medicine. As neurologists are asked to consult on general medical conditions, this reference provides an authoritative tool linking general medical conditions to specific neurologic issues and disorders. This is also a valuable tool for the general practitioner seeking to understand the neurologic aspects of their medical practice. Completely revised with new chapters covering metastatic disease, bladder disease, psychogenic disorders, dementia, and pre-operative and post-operative care of patients with neurologic disorders, this new edition will again be the go-to reference for both neurologists and general practitioners. - The standard authoritative reference detailing the relationship between neurology and general medicine - 100% revised and updated with several new chapters - Well illustrated, with most illustrations in full color
Download or read book Clinical Neurology of Aging written by Martin L. Albert and published by Oxford University Press, USA. This book was released on 2011-03-03 with total page 662 pages. Available in PDF, EPUB and Kindle. Book excerpt: This clinically focused book is designed to help clinicians help older persons maintain that joy. Now divided into 9 comprehensive sections, this edition contains subjects ranging from geriatric assessment to pain management and palliative care.
Download or read book Clinical Neurology of Aging written by Martin Albert, MD, PhD, FAAN and published by Oxford University Press. This book was released on 2011-01-11 with total page 662 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical Neurology of Aging, Third Edition continues the tradition of the First (1984) and Second (1994) editions with 60 chapters written by the world's elite clinicians from neurology, geriatrics and research on all aspects of geriatric neurology. Aging does not automatically imply decline. Many older people find joy in their friendships and their willingness to look at the world with a calmer view than they may have had in youth. This clinically focused book is designed to help clinicians help older persons maintain that joy. Now divided into 9 comprehensive sections, the Third Edition contains subjects ranging from geriatric assessment to pain management and palliative care. Specific sections include: Introduction to Geriatric Neurology; Neurological Assessment in Aging; Cognitive Disorders in Aging; Motor Disorders in Aging; Neuropsychiatric Illness in Aging; Sensory Disturbance in Aging; Peripheral Neurology of Aging; Disease States in Elderly; and Neurological Therapeutics. With a deft touch, the editors - Drs. Martin Albert and Janice Knoefel - have incorporated the geriatric care perspective and a quality-oriented approach to health care throughout the volume. The result: the definitive reference, useful for all clinicians caring for older people and informative to those who set policies that affect research and clinical practice.
Download or read book Motor Neurone Disease written by Margaret Hunter and published by Routledge. This book was released on 2005-07-25 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: A clear and readable guide to both the medical facts related to Motor Neurone Disease and the psychological and social effects on sufferers and those who care for them. Includes information on the work of recently set-up support organizations.
Download or read book Motor Disorders written by David S. Younger and published by Rothstein Publishing. This book was released on 2014-10 with total page 1054 pages. Available in PDF, EPUB and Kindle. Book excerpt: Preeminent Neurology text extensively updated/expanded by 70 leading authorities,providing encyclopedic summary of scientific advances/new clinical practices; aiding in evaluation, diagnosis, and treatment of various motor disorders; and giving...
Download or read book Euthanasia Searching for the Full Story written by Timothy Devos and published by Springer Nature. This book was released on 2021-03-17 with total page 110 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book has been written by ten Belgian health care professionals, nurses, university professors and doctors specializing in palliative care and ethicists who, together, raise questions concerning the practice of euthanasia. They share their experiences and reflections born out of their confrontation with requests for euthanasia and end-of-life support in a country where euthanasia has been decriminalized since 2002 and is now becoming a trivial topic.Far from evoking any militancy, these stories of life and death present the other side of a reality needs to be evaluated more rigorously.Featuring multidisciplinary perspectives, this though-provoking and original book is intended not only for caregivers but also for anyone who questions the meaning of death and suffering, as well as the impact of a law passed in 2002. Presenting real-world cases and experiences, it highlights the complexity of situations and the consequences of the euthanasia law.This book appeals to palliative care providers, hematologists, oncologists, psychiatrists, nurses and health professionals as well as researchers, academics, policy-makers, and social scientists working in health care. It is also a unique resource for those in countries where the decriminalization of euthanasia is being considered. Sometimes shocking, it focuses on facts and lived experiences to challenge readers and offer insights into euthanasia in Belgium.
Download or read book Dignity Therapy written by Harvey Max Chochinov and published by OUP USA. This book was released on 2012-01-04 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: Maintaining dignity for patients approaching death is a core principle of palliative care. Dignity therapy, a psychological intervention developed by Dr. Harvey Max Chochinov and his internationally lauded research group, has been designed specifically to address many of the psychological, existential, and spiritual challenges that patients and their families face as they grapple with the reality of life drawing to a close. In the first book to lay out the blueprint for this unique and meaningful intervention, Chochinov addresses one of the most important dimensions of being human. Being alive means being vulnerable and mortal; he argues that dignity therapy offers a way to preserve meaning and hope for patients approaching death. With history and foundations of dignity in care, and step by step guidance for readers interested in implementing the program, this volume illuminates how dignity therapy can change end-of-life experience for those about to die - and for those who will grieve their passing.
Download or read book Palliative Care for Non cancer Patients written by Julia M. Addington-Hall and published by . This book was released on 2001 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: The specialty of palliative care has traditionally grown out of oncology and there has been little research into the needs of patients dying from causes other than cancer. Few non-cancer patients receive hospice in-patient, home care or day care although a good proportion of hospices say that their services are available to non-cancer patients. As a result, the importance of palliative care for non-cancer patients is now being increasingly recognized internationally, and in the UK a committee reporting to the Department of Health recommended that palliative care should be accessible to all patients who need such care. Palliative Care for Non-Cancer Patients considers the needs and experiences of patients dying from, for example, stroke, heart disease or dementia by,drawing on a range of disciplines and specialties in medicine. The provision of palliative care for patients dying from causes other than cancer raises a number of important questions for policy makers and purchasers. This book summarizes what is known about the needs of and appropriate service provision for people dying of causes other than cancer and begins to set a research agenda.
Download or read book Participatory Research in Palliative Care written by J. M. Hockley and published by Oxford University Press. This book was released on 2013 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: Participatory Research in Palliative Care discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care, as well as discusses the prominent issues currently faced in this methodology from a global perspective.
