Download or read book Prenatal Genetic Testing Abortion and Disability Justice written by Amber Knight and published by . This book was released on 2023 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Prenatal Genetic Testing, Abortion, and Disability Justice explores the intent and effects of prenatal screening in connection to women's bodily autonomy and disability rights, addressing themes at the intersection of genetic medicine, policymaking, critical disabilities studies, and political theory.
Download or read book Prenatal Testing and Disability Rights written by Erik Parens and published by Georgetown University Press. This book was released on 2000-09-28 with total page 392 pages. Available in PDF, EPUB and Kindle. Book excerpt: As prenatal tests proliferate, the medical and broader communities perceive that such testing is a logical extension of good prenatal care—it helps parents have healthy babies. But prenatal tests have been criticized by the disability rights community, which contends that advances in science should be directed at improving their lives, not preventing them. Used primarily to decide to abort a fetus that would have been born with mental or physical impairments, prenatal tests arguably reinforce discrimination against and misconceptions about people with disabilities. In these essays, people on both sides of the issue engage in an honest and occasionally painful debate about prenatal testing and selective abortion. The contributors include both people who live with and people who theorize about disabilities, scholars from the social sciences and humanities, medical geneticists, genetic counselors, physicians, and lawyers. Although the essayists don't arrive at a consensus over the disability community's objections to prenatal testing and its consequences, they do offer recommendations for ameliorating some of the problems associated with the practice.
Download or read book Prenatal Genetic Testing Abortion and Disability Justice written by Amber Knight and published by Oxford University Press. This book was released on 2023-03-23 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: The routinization of non-invasive prenatal genetic testing (NIPT) raises urgent questions about disability rights and reproductive justice. Supporters defend NIPT on the grounds that genetic information about the fetus helps would-be parents make better family planning choices. Prenatal Genetic Testing, Abortion, and Disability Justice challenges that assessment by exploring how NIPT can actually constrain pregnant women's options. Prospective parents must balance a complicated array of factors, including the familial, social, and financial support they can reasonably expect to receive if they choose to carry a disabled fetus to term and raise after birth, causing many pregnant women to "choose" termination. Focusing on the US, the book explores the intent and effects of prenatal screening in connection to women's bodily autonomy and disability rights, addressing themes at the intersection of genetic medicine, policymaking, critical disabilities studies, and political theory. Knight and Miller shift debates about reprogenetics from bioethics to political practice, as well as thoroughly critiquing the neoliberal state and the eugenic technologies that support it. Providing concrete suggestions for reforming medical practice, welfare policy, and cultural norms surrounding disability, this book highlights sites of necessary reform to envision how prospective parents can make truly free choices about prenatal genetic testing and selection abortion.
Download or read book Disability Health Law and Bioethics written by I. Glenn Cohen and published by Cambridge University Press. This book was released on 2020-04-23 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: Examines how the framing of disability has serious implications for legal, medical, and policy treatments of disability.
Download or read book Assessing Genetic Risks written by Institute of Medicine and published by National Academies Press. This book was released on 1994-01-01 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.
Download or read book Testing Women Testing the Fetus written by Rayna Rapp and published by Routledge. This book was released on 2004-11-23 with total page 376 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rich with the voices and stories of participants, these touching, firsthand accounts examine how women of diverse racial, ethnic, class and religious backgrounds perceive prenatal testing, the most prevalent and routinized of the new reproducing technologies. Based on the author's decade of research and her own personal experiences with amniocentesis, Testing Women, Testing the Fetus explores the "geneticization" of family life in all its complexity and diversity.
Download or read book Disability Studies in India written by Renu Addlakha and published by Taylor & Francis. This book was released on 2020-11-29 with total page 310 pages. Available in PDF, EPUB and Kindle. Book excerpt: Since the 1970s, the international disability rights movement, the United Nations and national governments across the world have attempted to ameliorate the status of the disabled population through a range of legislative and policy measures primarily in the areas of health, education, employment, accessible environments and social security. While the discourse in the disability sector in India has shifted from charity and welfare to human rights and entitlements, disability studies — as an interdisciplinary academic terrain that focuses on the contributions, experiences, history and culture of persons with disabilities — has not yet taken root. This volume collates some of the most recent pioneering work on disability studies from across the country. The essays presented here engage with the concept of disability from a variety of disciplinary positions, sociocultural contexts and subjective experiences within the overarching framework of the Indian reality. The contributors — including some with disabilities themselves — provide a well-rounded perspective, in shifting focus from disability as a medical condition only needing clinical intervention to giving it due social and academic legitimacy. This book outlines key issues that would be germane to any disability studies endeavour in India and South Asia, and will appeal to academics, activists, institutions, laypersons and professionals involved in social welfare, sociology, disability studies, women’s studies, psychiatry, rehabilitation, and social and preventive medicine.
Download or read book Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies written by Sorin Hostiuc and published by Academic Press. This book was released on 2018-08-07 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies offers thorough discussions on preconception carrier screening, genetic engineering and the use of CRISPR gene editing, mitochondrial gene replacement therapy, sex selection, predictive testing, secondary findings, embryo reduction and the moral status of the embryo, genetic enhancement, and the sharing of genetic data. Chapter contributions from leading bioethicists and clinicians encourage a global, holistic perspective on applied challenges and the moral questions relating the implementation of genetic reproductive technology. The book is an ideal resource for practitioners, regulators, lawmakers, clinical researchers, genetic counselors and graduate and medical students. As the Human Genome Project has triggered a technological revolution that has influenced nearly every field of medicine, including reproductive medicine, obstetrics, gynecology, andrology, prenatal genetic testing, and gene therapy, this book presents a timely resource. - Provides practical analysis of the ethical issues raised by cutting-edge techniques and recent advances in prenatal and reproductive genetics - Contains contributions from leading bioethicists and clinicians who offer a global, holistic perspective on applied challenges and moral questions relating to genetic and genomic reproductive technology - Discusses preconception carrier screening, genetic engineering and the use of CRISPR gene editing, mitochondrial gene replacement therapy, ethical issues, and more
Download or read book Signs and Symptoms of Genetic Conditions written by Louanne Hudgins and published by Oxford University Press. This book was released on 2014-05-30 with total page 561 pages. Available in PDF, EPUB and Kindle. Book excerpt: Connecting an abnormal physical exam to a possible genetic condition is a daunting and inexact task for any physician, be they a primary care provider, non-geneticist specialist, or fellowship-trained geneticist. Comprising 31 clinical protocols from the world's foremost clinical geneticists, Signs and Symptoms of Genetic Conditions provides a practical manual for the diagnosis and management of common human genetic conditions based on their presenting signs and/or symptoms. Each chapter examines a specific clinical finding and leads the user through a step-by-step approach to a differential diagnosis. To maximize clinical utility, this handbook features: · Prominent flow chart diagrams that graphically depict the diagnostic approach · Concise recommendations for laboratory and/or imaging studies · Health supervision and management strategies for the most common conditions associated with each presenting sign or symptom Whether for the student, resident, or seasoned clinician, Signs and Symptoms of Genetic Conditions will serve as a frontline resource for navigating differential diagnosis.
Download or read book No Easy Choice written by Ellen Painter Dollar and published by Presbyterian Publishing Corp. This book was released on 2012-01-31 with total page 207 pages. Available in PDF, EPUB and Kindle. Book excerpt: In No Easy Choice, Ellen Painter Dollar tells her gut-wrenching story of living with osteogenesis imperfecta (OI)a disabling genetic bone disorder that was passed down to her first childand deciding whether to conceive a second child who would not have OI using assisted reproduction. Her story brings to light the ethical dilemmas surrounding advanced reproductive technologies. What do procedures such as in vitro fertilization (IVF) and preimplantation genetic diagnosis (PGD) say about how we define human worth? If we avoid such procedures, are we permitting the suffering of our children? How do we identify a "good life" in a consumer society that values appearance, success, health, and perfection? Dollar considers multiple sides of the debate, refusing to accept the matter as simply black and white. Her book will help parents who want to understand and make good decisions about assisted reproduction, as well as those who support and counsel them, including pastors and medical professionals.
Download or read book Opioid Use Disorders in Pregnancy written by Tricia E. Wright and published by . This book was released on 2018-05-10 with total page 155 pages. Available in PDF, EPUB and Kindle. Book excerpt: Gain guidance and support when treating the high-risk population of women confronting (or battling) opioid-use disorders during pregnancy.
Download or read book The Tentative Pregnancy written by Barbara Katz Rothman and published by Penguin Group. This book was released on 1987 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Heritable Human Genome Editing written by The Royal Society and published by National Academies Press. This book was released on 2021-01-16 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: Heritable human genome editing - making changes to the genetic material of eggs, sperm, or any cells that lead to their development, including the cells of early embryos, and establishing a pregnancy - raises not only scientific and medical considerations but also a host of ethical, moral, and societal issues. Human embryos whose genomes have been edited should not be used to create a pregnancy until it is established that precise genomic changes can be made reliably and without introducing undesired changes - criteria that have not yet been met, says Heritable Human Genome Editing. From an international commission of the U.S. National Academy of Medicine, U.S. National Academy of Sciences, and the U.K.'s Royal Society, the report considers potential benefits, harms, and uncertainties associated with genome editing technologies and defines a translational pathway from rigorous preclinical research to initial clinical uses, should a country decide to permit such uses. The report specifies stringent preclinical and clinical requirements for establishing safety and efficacy, and for undertaking long-term monitoring of outcomes. Extensive national and international dialogue is needed before any country decides whether to permit clinical use of this technology, according to the report, which identifies essential elements of national and international scientific governance and oversight.
Download or read book Reproducing Reproduction written by Sarah Franklin and published by University of Pennsylvania Press. This book was released on 1998 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: Reproducing Reproduction addresses these debates in a range of sites in which reproduction is being redefined and argues persuasively for a renewed appreciation of the centrality of reproductive politics to cultural and historical change.
Download or read book With Liberty and Justice for All written by Ray Cziczo and published by Trafford Publishing. This book was released on 2004 with total page 70 pages. Available in PDF, EPUB and Kindle. Book excerpt: The final words of the "Pledge of Allegiance to the Flag", "With Liberty and Justice for All", are powerful words, as powerful as any words found in any of our national documents. Every day, millions of children say the "Pledge of Allegiance to the Flag" in schools throughout the country. They are words that stir the emotions and inspire individuals to great acts of courage. They are words that inspire patriotism and national spirit. Liberty and Justice often seem elusive. Liberty and Justice mean different things to different people. Many people feel freedom gives them the absolute right to do what they choose without regard to other people. For many people, justice is considered a legal judgement rather than a moral judgement. In the courts, when a judgement has been rendered, the decision may be legally correct, but not "morally" correct. Justice and Liberty are like beauty; they are in the "eyes of the beholder". It is time to reexamine what these words mean and what they should mean.
Download or read book Mutating Concepts Evolving Disciplines Genetics Medicine and Society written by L.S. Parker and published by Taylor & Francis US. This book was released on 2002-12-31 with total page 358 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume employs philosophical and historical perspectives to shed light on classic social, ethical, and philosophical issues raised with renewed urgency against the backdrop of the mapping of the human genome. Philosophers and historians of science and medicine, ethicists, and those interested in the reciprocal influence of science and other cultural practices will find the arguments and observations offered fascinating and indispensable.
Download or read book The Place of Families written by Linda C. McClain and published by Harvard University Press. This book was released on 2006-01-03 with total page 402 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this bold new book, Linda McClain offers a liberal and feminist theory of the relationships between family life and politics--a topic dominated by conservative thinkers. McClain agrees that stable family lives are vital to forming persons into capable, responsible, self-governing citizens. But what are the public values at stake when we think about families, and what sorts of families should government recognize and promote? Arguing that family life helps create the virtues and character required for citizenship, McClain shows that the connection between family self-government and democratic self-government does not require the deep-laid gender inequality that has historically accompanied it. Examining controversial issues in family law and policy--among them, the governmental promotion of heterosexual marriage and the denial of marriage to same-sex couples, the regulation of family life through welfare policy, and constitutional rights to reproductive freedom--McClain argues for a political theory of the family that embraces equality, defends rights as facilitating responsibility, and supports families in ways that respect men's and women's capacities for self-government.
