Download or read book Carville s Cure Leprosy Stigma and the Fight for Justice written by Pam Fessler and published by Liveright Publishing. This book was released on 2020-07-14 with total page 317 pages. Available in PDF, EPUB and Kindle. Book excerpt: The unknown story of the only leprosy colony in the continental United States, and the thousands of Americans who were exiled—hidden away with their “shameful” disease. The Mississippi River between Baton Rouge and New Orleans curls around an old sugar plantation that long housed one of America’s most painful secrets. Locals knew it as Carville, the site of the only leprosy colony in the continental United States, where generations of afflicted Americans were isolated—often against their will and until their deaths. Following the trail of an unexpected family connection, acclaimed journalist Pam Fessler has unearthed the lost world of the patients, nurses, doctors, and researchers at Carville who struggled for over a century to eradicate Hansen’s disease, the modern name for leprosy. Amid widespread public anxiety about foreign contamination and contagion, patients were deprived of basic rights—denied the right to vote, restricted from leaving Carville, and often forbidden from contact with their own parents or children. Neighbors fretted over their presence and newspapers warned of their dangerous condition, which was seen as a biblical “curse” rather than a medical diagnosis. Though shunned by their fellow Americans, patients surprisingly made Carville more a refuge than a prison. Many carved out meaningful lives, building a vibrant community and finding solace, brotherhood, and even love behind the barbed-wire fence that surrounded them. Among the memorable figures we meet in Fessler’s masterful narrative are John Early, a pioneering crusader for patients’ rights, and the unlucky Landry siblings—all five of whom eventually called Carville home—as well as a butcher from New York, a 19-year-old debutante from New Orleans, and a pharmacist from Texas who became the voice of Carville around the world. Though Jim Crow reigned in the South and racial animus prevailed elsewhere, Carville took in people of all faiths, colors, and backgrounds. Aided by their heroic caretakers, patients rallied to find a cure for Hansen’s disease and to fight the insidious stigma that surrounded it. Weaving together a wealth of archival material with original interviews as well as firsthand accounts from her own family, Fessler has created an enthralling account of a lost American history. In our new age of infectious disease, Carville’s Cure demonstrates the necessity of combating misinformation and stigma if we hope to control the spread of illness without demonizing victims and needlessly destroying lives.

Download or read book National Hansen s Disease Center written by United States. Congress. House. Committee on Energy and Commerce. Subcommittee on Health and the Environment and published by . This book was released on 1982 with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Carville written by Marcia G. Gaudet and published by Univ. Press of Mississippi. This book was released on 2004-12-02 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: Personal accounts of life in America's last colony for sufferers of Hansen's disease

Download or read book In the Sanctuary of Outcasts written by Neil White and published by William Morrow. This book was released on 2016-06-13 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Following conviction for bank fraud, White spent a year in a minimum-security prison in Carville, Louisiana, housed in the last leper colony in mainland America. His fascinating memoir reflects on the sizable group of lepers living alongside the prisoners.--"Publishers Weekly."

Download or read book Kingdom of the Sick written by Susan L. Burns and published by University of Hawaii Press. This book was released on 2019-05-31 with total page 345 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this groundbreaking work, Susan L. Burns examines the history of leprosy in Japan from medieval times until the present. At the center of Kingdom of the Sick is the rise of Japan’s system of national leprosy sanitaria, which today continue to house more than 1,500 former patients, many of whom have spent five or more decades within them. Burns argues that long before the modern Japanese government began to define a policy toward leprosy, the disease was already profoundly marked by ethical and political concerns and associated with sin, pollution, heredity, and outcast status. Beginning in the 1870s, new anxieties about race and civilization that emanated from a variety of civic actors, including journalists, doctors, patent medicine producers, and Christian missionaries transformed leprosy into a national issue. After 1900, a clamor of voices called for the quarantine of all sufferers of the disease, and in the decades that followed bureaucrats, politicians, physicians, journalists, local communities, and leprosy sufferers themselves grappled with the place of the biologically vulnerable within the body politic. At stake in this “citizenship project” were still evolving conceptions of individual rights, government responsibility for social welfare, and the delicate balance between care and control. Refusing to treat leprosy patients as simply victims of state power, Burns recovers their voices in the debates that surrounded the most controversial aspects of sanitarium policy, including the use of sterilization, segregation, and the continuation of confinement long after leprosy had become a curable disease. Richly documented with both visual and textual sources and interweaving medical, political, social, and cultural history, Kingdom of the Sick tells an important story for readers interested in Japan, the history of medicine and public health, social welfare, gender and sexuality, and human rights.

Download or read book Leprosy Racism And Public Health written by Zachary Gussow and published by Routledge. This book was released on 2021-10-28 with total page 271 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume focuses on leprosy in a country with which this 'tropical' disease is rarely associated in the professional or public mind; the United States. An important scholarly contribution where Gussow argues that academic neglect and absence of comparative studies of lepraphobia have been fuelled by default the myth that aversion to leprosy is and has been universal.

Download or read book Leprosy in New Orleans written by Henry William Blanc and published by . This book was released on 1888 with total page 65 pages. Available in PDF, EPUB and Kindle. Book excerpt: A part of the Duke Medical Center Library History of Medicine Ephemera Collection.

Download or read book Out of the Shadow of Leprosy written by Claire Manes and published by Univ. Press of Mississippi. This book was released on 2013-03-18 with total page 229 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 1924 when thirty-two-year-old Edmond Landry kissed his family good-bye and left for the leprosarium in Carville, Louisiana, leprosy, now referred to as Hansen's Disease, stigmatized and disfigured but did not kill. Those with leprosy were incarcerated in the federal hospital and isolated from family and community. Phones were unavailable, transportation was precarious, and fear was rampant. Edmond entered the hospital (as did his four other siblings), but he did not surrender to his fate. He fought with his pen and his limited energy to stay connected to his family and to improve living conditions for himself and other patients. Claire Manes, Edmond's granddaughter, lived much of her life gripped by the silence surrounding her grandfather. When his letters were discovered, she became inspired to tell his story through her scholarship and his writing. Out of the Shadow of Leprosy: The Carville Letters and Stories of the Landry Family presents her grandfather's letters and her own studies of narrative and Carville during much of the twentieth century. The book becomes a testament to Edmond's determination to maintain autonomy and dignity in the land of the living dead. Letters and stories of the other four siblings further enhance the picture of life in Carville from 1919 to 1977.

Download or read book Disease Control Priorities Third Edition Volume 6 written by King K. Holmes and published by World Bank Publications. This book was released on 2017-11-06 with total page 1027 pages. Available in PDF, EPUB and Kindle. Book excerpt: Infectious diseases are the leading cause of death globally, particularly among children and young adults. The spread of new pathogens and the threat of antimicrobial resistance pose particular challenges in combating these diseases. Major Infectious Diseases identifies feasible, cost-effective packages of interventions and strategies across delivery platforms to prevent and treat HIV/AIDS, other sexually transmitted infections, tuberculosis, malaria, adult febrile illness, viral hepatitis, and neglected tropical diseases. The volume emphasizes the need to effectively address emerging antimicrobial resistance, strengthen health systems, and increase access to care. The attainable goals are to reduce incidence, develop innovative approaches, and optimize existing tools in resource-constrained settings.

Download or read book Uncertainty Anxiety Frugality written by Leo van Bergen and published by NUS Press. This book was released on 2018-06-30 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of leprosy in the Dutch East Indies from the beginning of the 19th century to the middle of the 20th reveals important themes in the colonial enterprise across the territory that is today’s Indonesia. Operating in a territory with only a few hundred Western-trained doctors and a population in the tens of millions, Dutch colonial officials approached leprosy with uncertainty and anxiety. In the early 19th century, the Dutch administration simply removed sufferers from public view: campaigns targetted anyone “looking ugly”. Towards the end of the century, colonial science considered leprosy a hereditary disease of tropical subjects, and therefore undeserving of the colonial government’s limited resources. The leprosariums were emptied. At the start of the 20th century, a growing understanding that leprosy was spread by a bacillus caused a panic that leprosy might spread from the tropics to the colonial metropole. The mixed emotions of pity, fear and revulsion associated with management of the disease intensified, and fed into broader debates on colonial policy. The experts were unsure, and resources were never forthcoming, and despite a view that “bacteria are the same everywhere”, Dutch leprosy treatment in the East Indies mobilized traditional healing practices and relied on home care. Leo van Bergen’s detailed, attentive study to changing policies for treatment and prevention of leprosy (now often called Hansen’s disease) is fascinating medical history, and provides a useful lens for understanding colonialism in Indonesia.

Download or read book Nurse Managed Wellness Centers written by Tine Hansen-Turton, MGA, JD, FCPP, FAAN and published by Springer Publishing Company. This book was released on 2009-03-16 with total page 296 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Ö[M]eaningful, candid, honest, and visionary. This guide will get you started and keep you moving forwardÖ.[A]n excellent tool for any advanced practice nurse, faculty member, or student who wants to practice in the community." --Susan Sherman President, Independence Foundation (From the Foreword) Wellness centers continue to play a key role in enhancing access to health care and providing high-quality care for patients. Nurse-Managed Wellness Centers serves as a step-by-step guide to starting and sustaining an effective wellness center, whether non-profit or academic. Written for nurse and health care leaders, nurse educators, and students, this book demonstrates how to develop centers that provide important health promotion and disease prevention services to all populations. The contributors also share firsthand knowledge on how to address the challenges in developing wellness centers. Get step-by-step guidelines on how to: Begin and maintain a wellness center Assemble an advisory or governing board Write business plans and secure funding in an era of funding challenges Develop and maintain community partnerships Address mental health challenges in wellness centers Document and measure patient outcomes With this book, nurse and health care leaders will obtain the critical tools necessary to successfully develop, manage, and lead their wellness centers.

Download or read book Federal Health Information Centers and Clearinghouses written by and published by . This book was released on 1992 with total page 12 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Interpreting Difficult History at Museums and Historic Sites written by Julia Rose and published by Rowman & Littlefield. This book was released on 2016-05-02 with total page 233 pages. Available in PDF, EPUB and Kindle. Book excerpt: Interpreting Difficult History at Museums and Historic Sites is framed by educational psychoanalytic theory and positions museum workers, public historians, and museum visitors as learners. Through this lens, museum workers and public historians can develop compelling and ethical representations of historical individuals, communities, and populations who have suffered. It includes various examples of difficult knowledge, detailed examples of specific interpretation methods, and will give readers an in-depth explanation of the psychoanalytic educational theories behind the methodologies. Audiences can more responsibly and productively engage in learning histories of oppression and trauma when they are in measured and sensitive museum learning environments and public history venues. To learn more, check out the website here: http://interpretingdifficulthistory.com/

Download or read book Strengthening Forensic Science in the United States written by National Research Council and published by National Academies Press. This book was released on 2009-07-29 with total page 348 pages. Available in PDF, EPUB and Kindle. Book excerpt: Scores of talented and dedicated people serve the forensic science community, performing vitally important work. However, they are often constrained by lack of adequate resources, sound policies, and national support. It is clear that change and advancements, both systematic and scientific, are needed in a number of forensic science disciplines to ensure the reliability of work, establish enforceable standards, and promote best practices with consistent application. Strengthening Forensic Science in the United States: A Path Forward provides a detailed plan for addressing these needs and suggests the creation of a new government entity, the National Institute of Forensic Science, to establish and enforce standards within the forensic science community. The benefits of improving and regulating the forensic science disciplines are clear: assisting law enforcement officials, enhancing homeland security, and reducing the risk of wrongful conviction and exoneration. Strengthening Forensic Science in the United States gives a full account of what is needed to advance the forensic science disciplines, including upgrading of systems and organizational structures, better training, widespread adoption of uniform and enforceable best practices, and mandatory certification and accreditation programs. While this book provides an essential call-to-action for congress and policy makers, it also serves as a vital tool for law enforcement agencies, criminal prosecutors and attorneys, and forensic science educators.

Download or read book Nurse Led Health Clinics written by Tine Hansen-Turton, MGA, JD, FCPP, FAAN and published by Springer Publishing Company. This book was released on 2015-03-16 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Delivers a wealth of information for nurses who wish to open and manage their own health clinics Public health nursing—with its focus on compassionate, holistic care and services to the poor, the aged, those suffering from social injustice, and those without adequate health facilities—had its origins over a century ago with the founding of the Henry Street Settlement in New York City. Embracing the same foundational principles, Nurse-Led Health Clinics is the first book to describe innovative, nurse-managed solutions for improving health care today. It addresses the key business, policy, medical, financial, and operational considerations necessary for successfully opening and operating nurse-led health facilities. With the mission to dramatically expand access to primary and preventive health care, these clinics provide a full range of services—including primary care, health promotion, disease prevention, and behavioral health care—to residents of underserved communities throughout the United States. The book delivers a wealth of comprehensive information for nurses who are considering opening their own clinics. Reinforced with best-practice models and case studies, it discusses what it takes to successfully start and run a nurse-managed health center. The book addresses the history and growth of nurse-led clinics and describes the nurse-led paradigm of care. It identifies the different types of nurse-led clinics (primary care, school based, wellness, and more) and the clinical services offered within them. Also discussed are the requirements and mind-set of potential consumers and strategies for sustainability along with the role of the collaborative team. The pros and cons of a variety of business and operations models are examined along with quality metrics and initiatives. The book also covers various state and federal policy challenges and opportunities and explores the future of nurse-led care in view of ongoing health care reform. Helpful appendices include a start-up checklist, sample bylaws, and a managed-care contracting toolkit. KEY FEATURES: Describes key business, policy, medical, financial, and operational considerations for running a nurse-managed health center Addresses the pros and cons of a variety of business models for nurse-led care Identifies the most common clinical services offered Presents quality metrics, best-practice models, and case studies Includes state and federal policy and regulatory challenges and opportunities

Download or read book Community based Rehabilitation written by World Health Organization and published by . This book was released on 2010 with total page 452 pages. Available in PDF, EPUB and Kindle. Book excerpt: Volume numbers determined from Scope of the guidelines, p. 12-13.

Download or read book Finding What Works in Health Care written by Institute of Medicine and published by National Academies Press. This book was released on 2011-07-20 with total page 267 pages. Available in PDF, EPUB and Kindle. Book excerpt: Healthcare decision makers in search of reliable information that compares health interventions increasingly turn to systematic reviews for the best summary of the evidence. Systematic reviews identify, select, assess, and synthesize the findings of similar but separate studies, and can help clarify what is known and not known about the potential benefits and harms of drugs, devices, and other healthcare services. Systematic reviews can be helpful for clinicians who want to integrate research findings into their daily practices, for patients to make well-informed choices about their own care, for professional medical societies and other organizations that develop clinical practice guidelines. Too often systematic reviews are of uncertain or poor quality. There are no universally accepted standards for developing systematic reviews leading to variability in how conflicts of interest and biases are handled, how evidence is appraised, and the overall scientific rigor of the process. In Finding What Works in Health Care the Institute of Medicine (IOM) recommends 21 standards for developing high-quality systematic reviews of comparative effectiveness research. The standards address the entire systematic review process from the initial steps of formulating the topic and building the review team to producing a detailed final report that synthesizes what the evidence shows and where knowledge gaps remain. Finding What Works in Health Care also proposes a framework for improving the quality of the science underpinning systematic reviews. This book will serve as a vital resource for both sponsors and producers of systematic reviews of comparative effectiveness research.