Download or read book Living with Spina Bifida written by Adrian Sandler, M.D. and published by Univ of North Carolina Press. This book was released on 2009-11-30 with total page 295 pages. Available in PDF, EPUB and Kindle. Book excerpt: It is the most common complex birth defect. Spina bifida affects approximately one out of every 1,000 children born in the United States. In this comprehensive guide, Dr. Adrian Sandler offers a wealth of useful information on the medical, developmental, and psychological aspects of this condition. Accurate, accessible, and up-to-date, Living with Spina Bifida is written especially for families and professionals who care for children, adolescents, and adults with spina bifida. This edition contains a new preface by the author, addressing recent developments in research and treatment, as well as an updated list of spina bifida associations.
Download or read book Living with Spina Bifida written by Larry E. Appelmann and published by Trafford Publishing. This book was released on 2002 with total page 68 pages. Available in PDF, EPUB and Kindle. Book excerpt: Larry Appelmann talks about his experiences, including the past surgeries he has had. He also mentions his family and how important they are to him. Living with Spina Bifida: Speaking Out About My Disability contains 13 chapters, including a prologue and a bibliography, which you normally would not see in an autobiography but he included one because there were a lot of things related to his disability that he wanted to include in his autobiography. Click here to read a special message from the author.
Download or read book Living with Spina Bifida written by Gwynnyth Maple and published by . This book was released on 1988 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Health Guide for Parents of Children Living with Spina Bifida written by Marlene Lutkenhoff and published by . This book was released on 2006 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt: Timmy is enjoying a fun day of playing with his brother when he starts to feel ill. When Timmy's mother takes him to the doctor, they determine that his shunt is not working properly and he will need to have surgery to adjust it. After his successful surgery, and with the help of his parents, Timmy learns about his shunt and how it helps his body by acting just like a detour.
Download or read book Health Guide for Adults Living with Spina Bifida written by Spina Bifida Association of America and published by . This book was released on 2005 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Children with Spina Bifida written by Marlene Lutkenhoff and published by . This book was released on 2008 with total page 395 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now thoroughly revised and updated, Children with Spina Bifida--the highly acclaimed guide written especially for parents and recommended by professionals--is available in a new edition. This compassionate and comprehensive guide covers the medical, therapeutic and educational issues that arise from birth to age six. Chapters focus on specific issues, such as: • Causes of spina bifida • Prenatal diagnosis • Neurosurgery • Urological & bowel management • Orthopedic concerns • Physical therapy • Common medical problems • Development • Day-to-day parenting issues • Education & accommodations • A child's emotional health • Legal rights & hurdles • Perspectives from adolescents & adults with spina bifida New to this edition is the latest information on research and medical advancements, including prenatal testing and surgery; new treatments & medications; the link between low folic acid levels and spina bifida; new rating systems for assessing mobility; an overview of orthotics & wheelchair options; changes to federal education law (IDEA); and much more. It also includes a resource guide, and a glossary of terms.
Download or read book Brooke s Journey of Heart written by Beverly Charles and published by AuthorHouse. This book was released on 2012-08-16 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brookes Journey of Heart is the story of a daughter who lives each day with the disabilities delivered with her at birth and the mother who gave birth to her. Beverly Charles asked her daughter, Brooke Klemme, if she would like to write her story of living with Spina Bifida. Brooke responded, "Yes! There are two sides to every story." Brooke and Beverly show us both sides of their story in the context of faith, family, and friends. In 1971, more than 6000 American children were born with Spina Bifida, but like most people, Beverly Charles knew nothing about this condition until she gave birth to her third and last child. In this touching memoir co-authored by Charles and her daughter Brooke Klemme, we learn first-hand not only what it means, but what it feels like - to raise a disabled child, to watch her suffer and triumph, and to be that child, who now as an adult, tells her side of the story. Most parents will never have to answer this question - should your new baby live? For Brooke's mother, there was only one answer, an answer that would involve multiple surgical procedures, interminable hospital stays, and an army of doctors and therapists - an answer that would change her and her family forever. This book is a spiritual memoir and a medical one. The authors make connections with Eastern and Western religious practices that have seen them through difficult and joyous times for over four decades. Their story transcends the personal to offer hope and help to other parents who have faced the same hard question and who, like Beverly and Brooke, answer "YES." As one reader said, I loved it. I laughed, cried, got mad, got sad, and now feel like a part of your family.
Download or read book Spina Bifida written by Stephanie Watson and published by The Rosen Publishing Group, Inc. This book was released on 2008-08-15 with total page 73 pages. Available in PDF, EPUB and Kindle. Book excerpt: Spina bifida is the most common of a group of birth defects called neural tube defects. Spina bifida is a defect in the development of the vertebrae, leaving part of the spinal cord exposed. More than 70,000 people today live with spina bifida, according to the Spina Bifida Association. Scientists arent sure exactly why people get spina bifida, but they believe it has to do with a combination of genes and the environment. One of the best ways to prevent spina bifida is to take folic acid vitamins for at least one month before getting pregnant and during the pregnancy. In this book, students learn about the history of spina bifida, genetics and inheritance of traits, genetic mutations, who can have spina bifida and how it is treated, and the medical advances in research.
Download or read book Living with Spina Bifida written by Gwynnyth Llewellyn and published by . This book was released on 1987 with total page 117 pages. Available in PDF, EPUB and Kindle. Book excerpt: What is spina bifida - Baby's first weeks - Toileting - Eating, drinking and personal care - Dressing - Getting out and about.
Download or read book Dis ability to This ability written by Meetra Nahavandi and published by . This book was released on 2023-02-14 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Meetra Nahavandi grew up in Madison, Wisconsin in a loving home surrounded by her parents and older brother. From the beginning of life, she was met with multiple challenges; emergency surgery to repair myelomeningocele at birth, surgery to relieve hydrocephalus at nearly 3 months old and learning to walk at two years old with a walker. She went to school, played with her friends, and never thought of herself as being any different than her peers; until the bullying began. Feeling like an outcast, Meetra persevered years of bullying and mocking remarks from peers and was able to rise above it stronger. From navigating school, independent living, experiencing her first love, solo international travel, mental health scares and finally to rising above challenges as a disabled adult in our society, Meetra's powerful memoir sheds light on an incredible life living with a physical disability in a world that was not equipped to see her thrive. Being thrown into the unknown cliché of "too able to be disabled" paved the way for much of Meetra's passions and endeavors. Join this journey as Meetra shares her defiance and says, "Watch me..." to all those who did not believe she would succeed or thrive.
Download or read book Spina Bifida written by M. Memet Özek and published by Springer Science & Business Media. This book was released on 2008-08-29 with total page 523 pages. Available in PDF, EPUB and Kindle. Book excerpt: The aim of this book to promote a multidisciplinary approach to Spina Bifida, providing the three main specialists categories involved – neurosurgeon, orthopedic surgeons, and urologists – with a concise reference that explains the main clinical problems to be faced in everyday clinical practice. The book also provides the busy specialist with an updated overview of surgical approaches.
Download or read book Life with Spina Bifida written by Heidi Ayarbe and published by Momentum. This book was released on 2018-08 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Gives readers a look into the lives and abilities of people who have spina bifida, as well as the challenges they face. Learn how medications, therapy, and other treatments help people with spina bifida every day. Additional features include a table of contents, an informative infographic, a Fast Facts spread, critical-thinking questions, a phonetic glossary, a selected bibliography, an index, sources for further research, and information about the author.
Download or read book Encouraging social development of the young person living with spina bifida written by Donald Lollar and published by . This book was released on 2008 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Easy to read guide for parents on social development in young people with spina bifida. It explains how spina bifida and hydrocephalus may influence development and learning social skills, and gives some ideas about how parents and others can help young people develop socially throughout their childhood and adolescence.
Download or read book Spina Bifida and Craniosynostosis written by Branislav Kolarovszki and published by BoD – Books on Demand. This book was released on 2021-06-23 with total page 174 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a comprehensive overview of spina bifida and craniosynostosis with emphasis on new trends in the management of these diseases. Chapters on spina bifida cover such topics as the etiology and pathophysiology of caudal neural tube defects, the overall management of pediatric patients with spina bifida, surgical treatment, and urological and orthopedic care. The chapters on craniosynostosis present new technologies of surgical treatment, craniomaxillofacial corrective surgery, and telescoping techniques with multiple cranial osteotomies.
Download or read book Living with Spina Bifida written by National Center on Birth Defects and Developmental Disabilities (Center for Disease Control and Prevention) (U.S.). and published by . This book was released on 2001 with total page 10 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Born Twice written by T. M. Berg and published by Createspace Independent Publishing Platform. This book was released on 2018-05-02 with total page 624 pages. Available in PDF, EPUB and Kindle. Book excerpt: Why is this happening? Why him? Why us? I can't count the number of times those words echoed through my mind over the course of the summer of 2017. There is no more powerless feeling for a parent than being forced to watch as their child battles for his health & well being. At my wife's 20 week ultrasound, we expected to learn the sex of our second munchkin, but instead our world was crumbled. Words like Spina Bifida, Arnold Chiari Malformation, Myelomeningocele & Hydrocephalus destroyed the excitement we held and replaced it with more uncertainty than we knew existed. The next weeks & months were a whirlwind as we met with specialists and flew across the country so that my wife could undergo fetal surgery to close the opening in my son's back, as well as give him the best chance for a life of worthwhile quality. We would remain there for 4 months, away from our oldest son & our home. Our little Loxley Poet had our hearts from the beginning, so it was never a question as to if we would do all in our power to give him the best chance. It was only a matter of how and when? The amazing people in our lives, our friends & family, made sure we had everything we needed, support in all shapes and sizes. Our journey being what it was, I decided that I could look at it as a burden or as an opportunity. Instead of asking ourselves 'why, ' perhaps we should have been asking ourselves, 'why not?' So, thats what we did. We would handle this and we would thrive, because thats what families do. That's how we survive. That's how we live. This book is for my little warrior, all of his twice born brothers & sisters, as well as their selfless families willing to sacrifice some so that their children may have it all.
Download or read book The Truth about Spina Bifida written by Bonnie Melendez and published by . This book was released on 2021-11-13 with total page 141 pages. Available in PDF, EPUB and Kindle. Book excerpt: Spina bifida is a birth defect that affects the spine primarily. During the first month of pregnancy, a special set of cells called the "neural tube" forms. Spina bifida is a spine condition that is usually noticeable at birth. It's a kind of neural tube defect (NTD). Spina bifida can occur anywhere along the spine if the neural tube fails to close completely. Dr. Bonnie Melendez's comprehensive guide provides a wealth of useful information on the medical, developmental, and psychological aspects of this condition. This book is written specifically for families and professionals who care for children, adolescents, and adults with spina bifida. It is accurate, accessible, and up to date. This edition includes an updated list of spina bifida associations, as well as a new preface by the author addressing recent developments in research and treatment. In this book you are going to learn the following: Interesting Tips about the Spina Bifida: What is spina bifida? Spina bifida causes Spina bifida types Spina bifida's history Who is at risk? Preventing defects in neural tubes, Spina bifida test Folic acid, Neurosurgery Toddlers and preschoolers with spina bifida Infants with spina bifida Children of school age Guideline on sexual health and education Guideline for mental health Is spina bifida associated with any disorders or conditions? Rehabilitation of spina bifida children and young adults What are neural tube defects? Hydrocephalus Shunt system complications How to avoid a not uncommon congenital defect known as spina bifida during pregnancy And many more... Click Buy Now to Get Your Copy
